Empowering Nano-rare Patients | 2023 Nano-rare Patient Colloquium 

Amy Williford, Ph.D., is the n-Lorem Sr. Director of Communications and Donor Relations. One truly is “the loneliest number” and most nano-rare patients are exactly that: the single patient in the world with their unique mutation and disease. Whether a nano-rare patient is truly n-of-1 or a member of a tiny patient population, the patient is entirely isolated. In response, we are developing an array of pertinent support efforts that will seek to create a sense of community for nano-rare patients. In this presentation, Amy Williford discusses our Patient Empowerment Program and how we are creating a community of care.