“How long did it take you to recover?”

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Did you know that recovery from musician's focal dystonia is possible? Good news...it is! Growing number of musicians have resolved focal dystonia symptoms and many who have, have done so by training. These series of video is an attempt to share some of the self-training ideas and techniques that has been proven effective by me (Akiko Trush) and some of my fellow MFD colleagues. Training requires a lot of patience, but by grasping few key ideas and by having some persistence, recovery is possible. It's about consciously working on freeing every little movement one micro step at a time. The key is to be observant and to learn a little bit about why you might be experiencing the symptoms, what really is going on and how to break down the steps and most important of all, have a free mind.
In this video, I answer the question that is the most commonly asked by other musicians "HOW LONG DID IT TAKE YOU TO RECOVER FROM FD?"

Опубликовано:

22 окт 2020

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Комментарии : 30

@windy110 Год назад

I am 24 years old and have been living with focal dystonia for 5 years now and nothing Ive previously tried worked, did some physical therapy, botox injections, sensory tricks. But after coming across your videos and applying your method of retraining for only 2 months every day I already feel so much better, im not close to full recovery yet, but for the first time i see the light at the end of the tunnel, thank you so much Akiko!

@butschibelloontour1621 Год назад

@The Mindful Pianist Thanks for sharing your story. You speak about „retraining“. Could you please go more into detail of what you did on a daily basis and also how frequently and how long you trained? What in practice is retraining? Thanks already. Kind regards from Luxembourg.

@adamstevens3825 8 месяцев назад

I've been living through this for 10 years myself. I'm still determined to get back a bit of my old identity, but with every day, it seems less and less possible. Glad someone is talking about this though!

@cnt6534 Год назад

Im a violinist, and i have focal dystonia on my left hand middle finger. Its been 3 years when it first started affecting my playing enormously. Thanks for giving me hope again. Im gonna try and practise now💪

@ssmabecrelis6443 5 месяцев назад

I play mandolin but same here. It’s unreal how much my playing has been affected. I watch videos from before and it’s like a different musician.

@macintoshimann9892 Год назад

Thanks for sharing this it’s great to see what the other side is like. Ive been sick my whole life but only realized it was dystonia this year. Doctors kept telling me I’d have to learn to hurt and I didn’t want to. Took me 6 months but Wow has a ton of motor control come back! The healing process is exactly as you describe im happy to have words for it now! For anyone learning to use their muscles again, please don’t give up. Keep pushing you will eventually find that first “clip”. Some advice I have is use your senses that work to drown out the ones that don’t. When I train I always turn off lights (my vision sucks) and put on music. Removing the visual static and adding the music takes me to a place where if I work hard I can find the connection I need to build. Also a real big tip I found medical marijuana to be a god send and I used cbd cream to stimulate healthy nerve reactions it really makes a big difference! Best of luck!

@pierrehurtubise3707 3 года назад

Brilliant !! You are a lighthouse in the night for focal dystonia sufferers.

@themindfulpianist8606 3 года назад

Aww.. thank you.

@playpianohymns 3 года назад

I came across your videos recently and wanted to thank you for shedding some light on this topic. I've almost given up ever since this has happened to my right hand (happened as I was preparing for a concerto competition...) and thought it was almost impossible. I tried brute forcing it, went to therapy, all kinds of weird practicing but nothing really improved it. The only thought I had was I had to just not play anymore, but that made me feel worse. I've never had any progress, and it's bled over to even typing on the computer where it takes me forever to type. I'm not sure how to feel and even know if it's improving to be honest, and it's very abstract to me at this moment, even though I've had tried for 3-4 years. I hope that I can overcome this if it's possible with me, and hope that you will keep making content, thank you.

@stefanbernhard2710 2 года назад

Maybe consider taking lessons with a taubman practitioner. I've had some success with this, just haven't been going consistently

@pianolover1986 3 года назад

Thank you soooo much! You are such a sensitive person who really feels deeply and express precisely. That is exactly what I feel everyday when you explain the fine line where I'm just about to lose control but still have the space for mind exercise. That feels very uncomfortable, and now I feel very encouraged by your words.

@leifbennett1354 2 года назад

This works even if your dystonia is genetic like mine. Thank you for describing some of what I do through a dystonia storm. I also use a Chinese healing mantra of "it's already healed" Tai chi, has become my base retraining method now. It's a constant battle, yet maintains range of motion and control. Even it effects my breathing, the breath training meditations work through it and add stability. Just like dance for dystonia, I used drunken style to keep training martial arts. Retraining...as she says. It would be excellent to try and add, some EMS, acupuncture and cupping. I use some acupressure, depending on situations. Acupressure certainly helps, but the wrong application can be bad. Tiger balm, Albi balm is working great. Dystonia is exercising those cells better than any workout. They are filled with lactose acid that will make tour de France cyclist cry... actual tears...

@leonardoescobar5497 3 года назад

Thank you for what you are doing!

@Cynjim4eva 2 года назад

Thank you! You are Avery brave individual

@naxus28 2 года назад

Thank you.

@jackiec1175 2 года назад

Hi, thanks for the honest & informative video. I'm actually curious whether you used any of Dr. Farias' techniques for your recovery & what they were?

@TheNorbert2010 Год назад

Dear Mindful Pianist, being unable to play Trombone any longer due to a focal embouchure dystonia, I am extremly interested in your approach. All in all the mental setup and its recovery seems to be the way forward. What do you think, the best way of strengthening the mind is, confronted to the fact, that giving up always is part of the story

@FLagstarMusic 3 года назад

Hi, could you answer some quick questions? I have a similar type of dystonia to yours, in my right index finger only tho and I've been trying to retrain for about a week now, 3-4 hours a day with your computer method, but haven't noticed a difference so far. Is it better to do the typing motion fast once and wait for the dystonic reaction to wear off or do it very slowly so you can do the motion consecutively without pause? (I have a mechanical keyboard where you can press they keys rather far down, like a piano) And, at minimum, how long would it take to notice an improvement?

@themindfulpianist8606 3 года назад

If you've been retraining for only a week, you will not notice much difference in your overall movement. But... you should be able to feel significant difference in how you feel or how you move in very specific micro moments, for example, you might feel a little bit more comfortable touching certain part of the keyboard against once specific corner of your finger. If you have been retraining for 3~4 hours a day for a whole week and you haven't noticed ANY change, we need to address it. You can send me a short video clip of what you're doing and I'll be happy to comment.

@themindfulpianist8606 3 года назад

I think you can practice fast movements as long as you're not experiencing reaction while you're moving. Definitely give yourself enough reset time in between, so you are starting fresh with every movement.

@FLagstarMusic 3 года назад

@@themindfulpianist8606 Thank you very much! I am perfectly fine just touching the keyboard in pretty much any state. The trigger seems to be the muscle contractions, as in the more exhaused my fingers are, the harder it is to keep them from curling up, once I intend to move them. It's easier, if I rest my non-moving fingers. Since touching is fine, can I rest my index finger on the keyboard in between motions? Also, It's true that I feel more comfort touching certain parts of a key, but I feel like It's because it enables me to do the motion with less effort, which means less of a reaction. Lastly, I should mention that when it comes to my proximal interphalangeal joint (middle joint) curling up, the dystonic reaction is really seamless from the non-reactive state. It bends more, the more exhausted my finger is, which contradicts what you were saying about an on- and off-mode of the condition. That's why it's also hard to tell when exactly the reaction wears off completely.

@FLagstarMusic 3 года назад

@@themindfulpianist8606 It would be really kind if you replied again. I'm kinda desperate here, since you're one of only a few people that have recovered from this. I have a hard time figuring out the point where I should rest my fingers.

@themindfulpianist8606 3 года назад

@@FLagstarMusic It's great if you can rest your non actives fingers on the keyboard. The more sensory input (like touching, feeling of moving) we experience, the better we can define the image of the body parts, which calms the urge for the body to find itself that manifests as unwanted tension... at least this is how I interpret it.

@parksoo-kim6908 13 дней назад

日本人ですか？

@thomascastrovillo9256 3 года назад

It's a curse

@themindfulpianist8606 3 года назад

It definitely felt like it when I was in the dark.

@thomascastrovillo9256 3 года назад

@@themindfulpianist8606 it's like my index on left is broken but it's not. Now to hand doctor to kiss my money goodbye for what? They say no cure. Even Mozart's k545 is becoming a problem. Why would this happen to people gifted?

@themindfulpianist8606 3 года назад

@@thomascastrovillo9256 It's tough! I know. I was told that I will never be able to play piano again and that I should start looking for different career from the first doctor that diagnosed me too. He was wrong.