*Hi Amy* please don't feel defeated if you don't get things done that you've planned. Be proud of yourself for the things you did manage to do. From the little I can see, you got up, got dressed, did your makeup, I'm guessing did your meds, and did some vlogging and I'm sure you did so much more. This is 100 times more than I have achieved today and I am so proud of you x 🤗🐾
It could still be the TPN helping with your hair growth (alongside the shampoo). It takes about 6 months for new medications/diet/nutrition to have any effect on the quality of your hair 😊
That is good to hear. I have only been on feeds for 3 weeks and my hair was not doing good because on the deficiencies and lack of nutrition. I also have Gastroparesis from Autoimmune Ganglionopathy Autonomic Neuropathy and I am being tested for Lupus.
Can you please do another day in the life or week in the life from morning to night cause I really enjoy watching your routines,meds,nausea time etc.. cause I also suffer from similar problems
Happy belated birthday! I'm a new subscriber and i have to say that after watching a lot of your videos, i've never really realised how much in life i take for granted. Girl, you're badass! Also, i'm jealous. I'd love to be 23 again. Sadly i'm 30... Lol. Lots of love from Norway x
For my Anatomy class in Uni, we have an assignment on EDS and I feel like I already know so much thanks to you! I didn't realize how much you had taught me about it until reading through the assignment. Thanks for educating me on your personal experience with EDS. I wish I could get to know you in real life, you seem like such an amazing person. And Tom and your family sound like a HOOT lol
I'm commenting quite early but I just wanted to say thank you. I'm having quite some issues with "new pain", have chronic migraines and now the joint pain I merely had turned into a chronic issue and my stomach is acting up blah blah but you make all this stuff easier to take because of how precious and sweet and positive you are. You're such an inspiration. Really. And thanks to you sharing your life a bit with us, I was able to help a friend getting an actual diagnosis because doctors here were as clueless as my friend was and now everything is sorted and proper treatment is starting for them. Thank you so much 💕
I just wanted to say that I've loved watching your videos. I just found your channel. I was recently diagnosed with MEN2b, a rare genetic disorder (of course) and have had two major surgeries in the last two months. Im doing great now but struggled with the paradigm shift that came with the diagnosis. I love that you show your good and bad days. ❤️
I too ABSOLUTELY LOVE that she shows BOTH. I suffer from chronic pain (NOTHING like Amy) I only have Spinabifida and have had 13 Back surgeries and am waiting for my 14th. When I first found Amy a few months ago, I must say I sometimes got a tiny bit down because she handled everything so amazingly well. At the same time I was so happy and envious of her for being able to do so! Then one day she showed that she was having a bad day. While I was so extremely sad for her, it let me know she was human and that I'm not the big baby I eas beginning you feel like I was. So showing BOTH sides of chronic illness is so amazing to do so. And I'm SO EXTREMELY THANKFUL for both Amy and Tom for sharing and allowing us all a small peek thru the window of their life! Thank you guys SO VERY MUCH!!
Your hair growth/healthiness is due to the TPN (in turn making you healthier). Your body is benefiting from all of those great vitamins, minerals, and other nutrients in the TPN as well as the extra hydration you get👍🏻 That’s great! Happy Belated Birthday!
I love it when Tom is let loose with the camera and just wanders off in the middle to hang with the dogs :D Your parents are fantastic also and I'm so glad you have these people with you!
I just started watching your videos a few days ago and you are so strong. You constantly apologize for "complaining" and you don't need to do that at all. You go through more pain than most people. I have chronic back and stomach problems but it's nothing compared to your conditions and you always stay so positive! You are an inspiration and I think the tpn has been great for you. You look so much healthier! I hope that's not offensive, I just think you look great. I wish you and tom all the best!
If that wasn’t wild, me and my best friend were born exactly a month apart on the same day, in the same year! She was born on the 6th November and I was born on the 6th December 2001
Happy happy birthday, Amy! Your hair is looking fab, but it's very unlikely that a shampoo (or any external beauty product) will accelerate hair growth. That's mostly determined by genetics, and yes, your TPN will likely be playing a role, too (the protein would initially go to things other than producing keratin for your hair, especially since you were so malnourished, which explains the delay). Anyway, it's looking great, and so are you! I'm glad you're recovering after your latest hospital stay. x
Have you got weird looks when you get up from your wheelchair? I use mine sometimes and when I do people look as if trying to figure out what's wrong with me. Kids stare holes lol. If I get up (because I can walk it just hurts to walk) people stare.
I use a wheelchair because I have severe dizziness from my MS and I get weird looks all of the time. Lol. Like if can't reach something on a shelf at a store.
I use function of beauty and it's so amazing! I also got it for my mum as a surprise, I sneakily asked her all the questions and sent it to her mail box and she was over the moon 😁❤️
So glad you had a good birthday. Looks like you had fun. Tom was funny to watch. Seeing the white liquid go into the yellow liquid for your tpn was cool to watch.
Happy Birthday Amy!!! It looks like you had such a nice day!!! And mustard is very in here as well, so she has good taste!!! Also, I am so glad you've purchased the Apple watch and I love the reasoning. I personally don't have any interest in owning one, but the hard fall feature has already saved lives and I hope if you end up needing it, it serves you well. Here's to an awesome 23rd year!!!
I can't believe that you are only one year older than me (pretty exactly too since I am just about to turn 22) and it's crazy the stuff you already lived through and then at the same time you are already getting your own house and stuff like that. Have a great year full of good luck and health and love!
Happy birthday thanks 4 letting us be part of your day I just love your family they look like there so much fun have a great day sending you lots of love and happy memories on your birthday
Happy belated Birthday Amy!!!!! I hope I had an awesome day!!!! Please don’t feel any insecurities about ur weight, ur looking healthy & awesome-and in not anyway overweight!!
You and your boyfriend are adorable. Seems like a real great love between you two. He's super goofy...I feel like we see him hanging out in his underwear a few times today lol.... Reminds me of my hubby and myself. Haha. Love you videos!
I totally get what you mean about needing a lot of sleep I have EDS etc and my fatigue is ridiculous I often wake up thinking I’ve slept for 10 hours but I’ve actually been asleep for 15 haha I need 10-15 hours just to function semi normally 😂
Happy belated birthday babe! You look so happy and upbeat, yay! Glad you got that watch you wanted with the seizure app compatibility. Hopefully you won't need to use it, but so glad you can feel more at ease now, as well as your fam
Im so impressed and I can't find words how much it means for me to see new videos from you. You are such a fantastic women and I really hope you stay as strong as you are right now
Wow , my TPN calories were cut down to 1850 after previously being much much higher , it’s due to get cut down again but didn’t think they’d ever drop it that low !!
Happy birthday! With the watch just so you know....if it’s within 14days of purchase you can return and get a full refund and then get the new model. It’s only $50 more than the series 4 and is basically the same watch but then you would have the “latest” version. I know because I took mine back yesterday after having it 18days because it seemed to make more sense to get the newer one for me lol. Either way though it’s beautiful and I hope you had a lovely bday!
So i was wandering through RU-vid and saw that one of the recommended vids had a young woman with a hose in her nose. I was curious so I clicked on it and was just blown away by what I saw. It's amazing that you can be so positive through all of the crap thrown your way. Since then I have randomly watched various videos and am making my way through the library. Keep up the good work and keep that spirit up!
Happy belated birthday. Feliz cumpleaños! Now you have it in two languages. I hope you enjoyed your birthday. It looks like you did. Hoping many more for you.
A shampoo will not make your hair grow that much. Just having an adequate diet will make your hair grow, and it’s most probably your TPN, it takes a while for diet to effect hair growth.
I love the lipstick color on you!! I forgot he had the mini size ones, I want! Happy Birthday Amy...I hope you totally enjoyed your day! I have to go but will finish your video tomorrow. Be well xo
Happiest birthday beautiful so thankful u have been blessed w another year may ur health continue to improve and u and Tom grew closer and more in love than ever have a great year building ur new home and stay out of the hospital💋💜🦋🤪💖🌈🍨🍭🍬🍰🎂🍪🧁🍩🍾🍷
