02/27/24 - Presentation and Q&A with Dr Peter Tass

Training Wheels Off Parkinson's Support Group

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This month we had Dr. Peter Tass as our guest speaker. He gave an excellent presentation and stayed to answer our support groups many questions. Dr Tass investigates and develops neuromodulation techniques for understanding and treating neurologic conditions such as Parkinson’s disease, epilepsy, dysfunction following stroke and tinnitus. He creates invasive and non-invasive therapeutic procedures by means of comprehensive computational neuroscience studies and advanced data analysis techniques. The computational neuroscience studies guide experiments that use clinical electrophysiology measures, such as high density EEG recordings and MRI imaging, and various outcome measures. He has pioneered a neuromodulation approach based on thorough computational modelling that employs dynamic self-organization, plasticity and other neuromodulation principles to produce sustained effects after stimulation. To investigate stimulation effects and disease-related brain activity, he focuses on the development of stimulation methods that cause a sustained neural desynchronization by an unlearning of abnormal synaptic interactions. He also performs and contributes to pre-clinical and clinical research in related areas.

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3 мар 2024

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Комментарии : 9

@k12914 3 месяца назад

I look forward to seeing the results of a controlled clinical trial. I thought airing a story on national television before controlled trials were completed was inappropriate. But if it works, it works. All eyes on Stanford and Dr. Tass. Effects in many more patients must be presented. Displaying the same two patients for 5+ years is quite concerning.

@SpeedRacer24X 3 месяца назад

Here's hoping that these vibratory gloves come on the market sooner rather than later. I had a chance to try them on and they produce an interseting pattern of impulses to my fingers. I only wore them for a few minutes and I didn't feel any change. However, another person in our group who was tremoring badly tried them on for 5 minutes or so, and when he took them, there was no more tremor for a little while.

@k12914 3 месяца назад

Very cool where did you get to try them?@@SpeedRacer24X

@chinko1953 28 дней назад

Dr. TASS has been talking about these vibrating gloves for years and showing the same miraculous videos of the same individuals before and after for years. Meanwhile nothing has come to the marketplace nor any tentative FDA approval issued. This is in spite of the fact that these gloves are simple medical devices, not invasive, nor internally ingested drugs. If they really worked, then it should be a no-brainer to get FDA approval.

@SpeedRacer24X 28 дней назад

@@chinko1953It does appears that he's not in a hurry to get these gloves over the approval finish line.

@k12914 27 дней назад

@@chinko1953 I agree. Unfortunately I got my hopes up especially after it made the national news. I am frustrated with Stanford for doing such a thing. When you look at it objectively, it becomes clear that doing so was just plain wrong.

@chinko1953 28 дней назад

My neurologist, a very prominent and well-known movement disorder disease specialist, has told me point-blank that this gloves treatment is a scam and hype.

@SpeedRacer24X 28 дней назад

I had the opportunity to interview (the video is on this channel) and also meet in person Dr Tass's patient #2, Kanwar Bhutani who still uses these gloves. The effect on his life using these gloves was indeed extremely profound. He actually brought them with him to the Parkinson's Expo back in March and several of us tried them on. A member of our "Training Wheels Off" Support Group with a strong engineering background has produced for his own use a facsimile pair of these gloves. Recently they told me the effects of wearing these gloves so far (less than a month) has been very impressive. The first thing was the person's sense of smell returned, then their sleep dramatically improved and their sense of balance has also greatly improved. I have absolutely no doubt that these vibratory gloves, much like the CUE1 device produced by Charco in the UK can provide tangible improvements to the lives of some patients much as DBS works for some but not all PD sufferers. Each person with PD is on their own unique journey. Why it is taking Dr Tass’s group so very long (8+ years) to bring this product to market is unknown.

@k12914 27 дней назад

Good advice, I believe. No sense in getting excited until it is seen working in many more patients.