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1 MONTH KAFTRIO - DO I EVEN HAVE CF ANYMORE 

Sophie Grace Holmes
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#CysticFibrosis you aren’t the thief anymore.
1 month on #KAFTRIO
The good, the bad, and live lung function testing, PBS In training and the bits inbetween..
The most emotional month of my life, buckle up and be ready!
It’s going to blow your god damn mind...
Do I even have CF anymore?
#TRIKAFTA

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7 ноя 2020

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Комментарии : 17   
@SSDavyS
@SSDavyS 3 года назад
hello :) i went from 27% to 85%. and to know il have a whole life living with this... it is beyond belief amazing
@paulmetdebbie447
@paulmetdebbie447 3 года назад
This is great, congrats! Are you double delta 508 or single?
@SSDavyS
@SSDavyS 3 года назад
@@paulmetdebbie447 double delta 508 and ty
@giannisaivatzidis7845
@giannisaivatzidis7845 7 месяцев назад
First time discovering this channel. Came straight from Instagram, already amazed and intruiged curious to what your treatment might be.What a trip! Haven't even seen the whole video yet. Thank you for sharing the journey. I deeply appreciate letting us view it from such a personal and direct perspective
@giannisaivatzidis7845
@giannisaivatzidis7845 7 месяцев назад
The electrolyte part is mind-blowing
@lee634
@lee634 3 года назад
So pleased for you Sophie. Great results in just a short time. 💪🏻💛
@estebandaversa6785
@estebandaversa6785 3 года назад
Amazing!!! Greetings from Argentina!! Thank you for sharing your great energy!!!! You are an inspiration!!!!
@bennieklopper3068
@bennieklopper3068 2 года назад
Sophie this gives me so much hope. My son,13 has CF. We are battling really hard here in South Africa to get access to Trikafta but ever time come to an dead end. Really glad I came across your video. All the best.
@patrickkellar6775
@patrickkellar6775 3 года назад
This is awesome and gives me much hope! I'm in Canada where (due to very dumb government decisions) we are STILL waiting to gain access to this miracle. I'm hopeful I'll be in this position soon enough! Take care!
@cynthiakatz
@cynthiakatz 2 года назад
It's very nice to see other people with CF taking Kaftrio. I take it about a year now and my FEV1 is now 106%.Thats just amazing. I hope others get to take Kaftrio too!
@goodmann4503
@goodmann4503 2 года назад
you are fantastic and ispirational, keep pushing. Sky is the limit
@johnpcusick
@johnpcusick 3 года назад
Amazing
@MrJ6000
@MrJ6000 2 года назад
Legend 💪🏼
@paulmetdebbie447
@paulmetdebbie447 3 года назад
Great to hear, congrats! Are you double delta f508 or single?
@sarraahmed1629
@sarraahmed1629 Год назад
Hi. I have CF and diabetes. This medicine will be to not get creon more also , and recovering from diabetes???
@matijarmk
@matijarmk 3 года назад
7 days till we get it :P!
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