I believe that everyone is able achieve something extraordinary. Through my videos I hope I can empower you to achieve your biggest aspirations, challenge yourself and prove anything is possible when you put your mind to it.
Great video. I hope you are still doing well. I wish doctors here would get on with treatment. I changed my GP because my old one couldn't work out their referral issues for over a year to a cardiologist, and I didcovered the director of the clinic is someone who was clueless about an illness years ago, and I left another clinic because of her, and another doctor there misdiagnosed something else, and yet another doctor in the system nearly killed me, instead of doing a workup, and now I have some serious issues going on, I nearly died, abd that was the last straw for me. Perhaps I should've changed a year ago, but other doctors taking my insurance are a long drive away. Thanks for sharing your proceedure. I'm sure it is helpful for many people. I'm hoping my new doctors are better. So far, so goid.
First time discovering this channel. Came straight from Instagram, already amazed and intruiged curious to what your treatment might be.What a trip! Haven't even seen the whole video yet. Thank you for sharing the journey. I deeply appreciate letting us view it from such a personal and direct perspective
I know this is an old video but thank you for doing this. My son, now 5, almost 6, was diagnosed with cf at 13 months and listening to your parents brought back all the emotions of getting the diagnosis but also provided a lot of hope and inspiration to keep doing everything we can to instill good habits and persistence in dealing with this disease. You are an inspiration and your videos and journey will help my son and many others see what they can accomplish in spite of their condition. Thank you.
It's very nice to see other people with CF taking Kaftrio. I take it about a year now and my FEV1 is now 106%.Thats just amazing. I hope others get to take Kaftrio too!
Sophie this gives me so much hope. My son,13 has CF. We are battling really hard here in South Africa to get access to Trikafta but ever time come to an dead end. Really glad I came across your video. All the best.
CF patients resort to lung transplants when their lungs are so damaged they don't have a choice anymore. Basically, if they do not get a fresh pair of lungs, they die from not being able to breathe.
You are such an incredibly inspirational person! I just found your channel and I can only say: Thank you! I have CF and am super lucky to turn 51 this week, much thanks to a combo of having only one F508 mutation and a super rare one, and also because I spent 30 years on doing martial arts like crazy. But it's all so tiring and lately, I have so many mixed feelings; I'm of course super grateful for being alive but I also experience survival guilt. I am excited about Trikafta but also worry that it won't work on me - if I can even get it, and I also feel both physically and mentally exhausted and weary after having fought against this disease for so long, especially when I despite this saw a recent drop in my lung function. But your attitude; seeing what you have accomplished and keep accomplishing, really gives me renewed energy again so now I'm yet again determined to keep fighting and try to improve my lung function. I used to feel unstoppable and now I aim to find that attitude again. CF won't win easily. :)
MY granddaughter 6, is having this procedure done and I'm scared for her and my son,her da, today's 8-31-21, and she's on her way to the hospital, I'm scared the blockage might be something really bad!
Fantastic to see you guys out like that, Keeping it safe and keeping it real, Great words Sophie, not that you should have to defend your choices like that, always look forward and keep on pushing 🙌 🙌
This is everything and more. Life is too short to be cooped inside while we still have fire in our bellies. It’s so amazing to see friends who are like family be able to share a laugh and see emotion instead of laughing behind a WhatsApp message. I am so proud of you and thank you for showing Pen Y Fan!!! I’m starving after seeing the food! Josh if you ever read this you’re incredible too. Let’s go champ. I can’t wait to see what’s to come in the future 💛💫
Hello, thx for ur video Sophie, but I always wonder about the side effects of this therapy, I'm french and I can take it this summer but idk what to do, Im kinda afraid
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This is awesome and gives me much hope! I'm in Canada where (due to very dumb government decisions) we are STILL waiting to gain access to this miracle. I'm hopeful I'll be in this position soon enough! Take care!
Great video! As a road marathoner for the past 5 years, I'm always looking for new tips on motivation, getting stronger and preventing dreaded injuries. Strength and flexibility workouts seem like a great solution. This post is very inspirational. As a fellow RU-vidr, I love sharing my experiences and knowledge as well. I know how much goes into these videos! Keep posting - I just subscribed!
