1 Year With Aggressive Multiple Sclerosis: MRI Results 

My Wife has MS, she is fighting it every single day, it's hard ... I wish all the best and health to everyone.

My mom was diagnosed with MS in 1972 and she is 87 now. She never had any medication for her symptoms. It took a long time to diagnose her. She has a very slow progressive type. Started by falling down all the time. Her left side is affected and the leg would just collapse. Started walking with a cane, then a walker and now she is wheelchair bound. Aside from the MS she is healthy as a horse and will probably outlive me.

My name is Justin, I was Just diagnosed with MS. it started when i was walking down stairs my legs would shake and i started getting blurry vision. I'm 36 and I'm in the best shape of my life, so i thought. so when they gave me this diagnosis it devastated me. Im still trying to digest it and figure out what this is going to mean for me. I just want to say your story has giving me so much hope for the future, and has inspired me to fight this in every way I can. thank you so much for telling your story you don't know how much it has helped me.

Great news! I'm very happy for you! Stay strong and possitive, you give us all hope. I was diagnosed 9 months ago at age 38 and waiting for my own MRI results.

This is absolutely brilliant news Izzy!! Congrats and happy New Year. I too am on Lemtrada 6 months post round 1. I'm 36 years old and having massive gains for the better. G-d bless you and keep on fighting. MS will not define us we define it!! 🙏🙏

so happy to hear this news. you seem like such a lovely person. you're so young to be going through this and it made me smile to see positive news for you. it made me smile.

This has made me so happy Izzy, I'm so happy for you and this will give so many people hope xx💗

Going on year 9 with ms, myself. I’m so glad you’re doing well. Xx

You spread so much Hope! I also was diagnosed with MS when I was 17 (two years ago) und lemtrada is my recent therapy after having daily injections of Copaxone which didn’t worked for me because my ms is also very aggressive. I was very scared of using lemtrada but my doctor said that it would be my last chance. One year ago I got my first injection of lemtrada and it was okay. Not really enjoyable but so is life with MS you know. I was sick for a long time after lemtrada but it was okay. Next week, my second and hopefully last cycle of lemtrada starts and I am very nervous even though the first one went „well“. I saw so many videos about young women who also got the lemtrada therapy and they are so fine with it and I love to see this because it shows that there is hope to live a „normal“ HAPPY life without any affecting disabilities or impairments even though there is no final healing for this awful disease. I wish you all the best for your future! ❤️ hold on and stay healthy as far as possible 😍😘 thank you for sharing your own story, I think I’m not the only person that feels supported because of you 😊

wow so lesions can heal, that's awesome. Your videos are really helpful and you've got a great personality thanks for everything!

So very happy for you! Hope all the best for you in the future! x

You have the comfiest voice in the world Izzy. Found you because my granddad has MS and wanted to learn about it, decided to watch every video 👍

Knowing what you went through before and leading to the time you got diagnosed, I'm so happy and grateful that you managed to pull quite a significant recovery clinically and as shown in your MRI scan. Stay strong, informed and optimistic.

I am happy to hear your good news! Congratulations and I wish you the best in this new year!!!!

I am so happy for you Izzy MS ! :-) You are a strong beautiful woman and I hope this year will bring you amazing things.

Thank you for sharing your story! It truly helps people with MS not feel so alone! I believe in diet and exercise but not willing to risk my mobility on anything! Finally got on a strong dmt last year and I’m so thankful it’s kept me stable!

Hi Izzy, Greetings from the Nez Perce Indian Reservation in Idaho! Happy New Year to you too! I'm thrilled to hear the good news of your MRI results. Well done! I'm glad the combination of all your healthy eating, exercise and Lemtrada has helped. You have asked for suggestions for more videos, and nothing would thrill me more than sharing the MS journey with you. My RRMS is fast becoming SPMS. I've done Copaxone, Rebif, Gilenya, Techfidera, and have had such adverse reactions (including some that almost ended my life), that I'm focused on diet now. Therefore, I'd love to see more videos following you through an entire of what you eat and drink with menu and recipe ideas. I used to live in the UK and miss it terribly, so it is delightful listening to you talk about things that I can relate to totally. Best wishes in the new year sweet Izzy! Hugs, MS Janet

Congratulations!!! I am studying MS for a university project and you have helped a lot.

I think you're strong and very motivational and I enjoy your spirit. Also, you're so positive which will make anyone with this disorder feel like pushing past all the negatives. Thank you☺

Keep fighting you are a warrior. Thank you for making these videos

so glad to hear your good news :)

I'm so happy for you!!! :)

Fantastic news to start the year :)

Great news! :) I’m cheerrrring for u

Great news! I'm hoping to seek out Lemtrada, possibly Ocrevus.. thanks for the update! 33/also with agressive ms!! Glad to see this update!

Thiw video really lifted my spirits, thank you for sharing.

I love you Izzy, you give me hope!

I'm very happy for you. Many blessings and light to you.

Glad to hear the good news I’m a new subscriber

I can not watch your videos without crying. It is the first time that I have felt like someone understands. I am so confused and I miss my self. This video gives me hope that I will get my life back.

Prayers, I have Secondary Progressive MS. Maybe one day, we will have a cure. Stay positive, and laughter is the best mediciane. XoXo's

so pleased for you x

It's great that they let you see your MRI. When I asked to see mine they basically in not so many words said no.

Enjoy walking and running as much as you can. Stay strong. It's not who you are. It's a part of you. Been dealing with it for almost 10 years. You are much more than just this disease

I'm glad you seem to have been on a path to recovery. Resilience is one of those unteachable things. I hope you're still doing well. I've had MS since childhood. I'm 43 now and can still walk and see, so never give in to despair or, if you do give in to it, remember that all things pass and you will get stronger. There is a certain amount of hope in Eastern medicine as it has historically recognized more clearly the immune system/ gut bacteria/ mind/ nervous system relationship which has recently been more widely disseminated in Western academia. The medicine I take, fingolimod, is derived from a mushroom used in a traditional Chinese 'eternal youth' formula. Inner strength is the most important thing. Try to take good care of yourself without being too hard on yourself. You know what I mean.

Yay! This makes me happy! :)

Glad everything is going well on that front, recovering so well. Really interesting to look at the MRI's I think; my MRI had loads in the spinal cord and only 2 in my brain. I find it so interesting and am looking forward to seeing a second MRI for myself, probably Oct/Nov 2018. I have been on tecfidera another DMT, and so far (first attack May 2017 diagnoses Oct 2017) no relapse, seems to be doing something!

I understand what you went through i´m going through such a similar thing. I have Aggressive RRMS, was diagnosed in March and in a few weeks they want to start me on Lemtrada I am scared about the risks and side effects. But they keep telling me that for my aggressive case it is the best option. I also have latent tuberculosis so I have to take 3 pills a day for 6 months on top of Lemtrada which makes me extra nervous. And your videos have honestly made me feel so much better, I know that not everyone is the same especially with this illness but you give me hope. Thank you from the bottom of my heart :)

I'm glad you are getting treatment

Happy to hear it

I love You , because You always make me cry . x

Praise GOD! Praying for healing!

I am so happy for you! Glad, that your way of changing your lifestyle has helped so much to make you feel much much better now. Did you already have two roundds of Lemtraada or just one? Sorry, but I can't remember, if you have vlogged about that before.... I was diagnosed with MS in 2012, now developed spms with balance-problems,walking issues, using a cane inside the house, a walker outside or even a wheelchair, when distances get too long. But I go to physical therapy evey week, eating healthy (which has helped to reduce my weight actually!) and trying not to be too negative when I feel devastated because of my unability to walk with friends in the vineyards with their doggies...that makes me so sad.... and my granddaughter, Nora, age 4, always is saying to her Mom, my daughter:" Mommy, when does grandma with the cane come to see us again? I love her so much". This is what makes me cry too. I will always be the grandma with the cane for her, although I am only 48 now... Well I thank you for sharing all your experiences with us. Hope everything will continue being ok for you. All the best wishes, hugs and greetings from Germany. Britta

Your attitude is very inspiring to me☺

Great news. Go you!

thanks god happy to hear that

I’m happy for you that you’re doing so well. I have been through a very similar mindset, through the organic food, exercise, etc etc, throughout my 14 years I’ve seen reputable doctors in Aus and the England taken the dmd drugs, vitamins or which the decline carried on unabated until I went to Russia. I was taken on regardless of my disability scale of 7. I was wheelchair bound, it took 1 month and I can walk on my own two feet again. I’m now disease free. Use your new found exuberance and save your money, have stem cell treatment. There is only one treatment that stops the disease progression and it’s not a DMD. I’m saying this as someone who was a top sportsman and who owned and ran a health and fitness centre for 25 years, I was one of 250 people treated in 2017. Yes I totally agree with your statement, everyone’s different. Use your time well, save your money, if you can get stem cell " !

Love you Isobel 💕💕💕

that's awesome, god bless you

Hi Izzy love ur videos can u please talk about ur actual treatment length etc thanks x

Get well. I'm starting my Huntington's journey myself. I'm flapping around like a bird.

Isobel it's great news that u r back to normal . I would like to know what treatment protocol did u follow thanku

Hi, thanks for your story and insights. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now, what do you think or should I rule out MS? Thanks

hi ! ocrevus , i just had my second ocrevus infusion and its great for me too, the doc. here in cali wanted me to try lemtrada too, but i said i wanna go first with ocrevus ( which is not so strong and only kills my t-cells) have you heard from ocrevus??? is ur immun system weak now???

I don't have aggressive ms but I still decided to treat myself. I do respect people who choose to do so but the problem with this disease is that even if you're fine the disease is there and is chronic, you never know how much damage it can do to your nervous system. So please everyone reconsider therapy:)

Glad to hear the good news. Keeping you always in prayers to Jesus who is the source of all life and healing. Don't forget to acknowledge Him yourself and thank Him. Happy New Year and best wishes.

Loved your videos. Thank you. Have you ever read the book Medical Medium by Anthony William. Very eye opening. Prayer and hugs.

Have you tried the Swank MS Diet? It's primarily a plant-based diet, and it has been shown to reduce the majority of MS symptoms over a 30 year study. You should check it out. Right now, I'm on a whole foods plant based diet and I notice as soon as I eat any oil, processed sugar or foods high in saturated fat I present symptoms (All animal products are high is saturated fat including diary, oil and chocolate).

❤️❤️❤️❤️❤️. Stay strong in Spirit.❤️❤️❤️❤️❤️

I found out May last year.

Not sure of your age. My nephew is 32 now, but diagnosed same around same age. Has your family or you had to change any house design for wheelchair or walker, or strength issues, have you had to start learning to put heavy things down lower like in kitchen or bedroom etc? these would be topics I would like to hear about. His mom is almost 60 and has it very differently from him, diagnosed the same.

Izzy probably you are not going to answer what drug as complety heel some of your lesions. Keep the positive thinking, i had those same felings in the begining of the MS when i was diagnose after a year of great stress i had this attack on my holydays in a foreign country ,Cuba, and that humidity and hot was very bad to me. I didnt had an attack since 2002, at the end of the last year i had another one and recover in 2 months , im going to have new drugs soon. Keep positive!

Great had mine did not realize how many I had until my new 3d images the new doctors.let me know how message you so I can tell you how many I have.

You're fortunate to be offered an annual MRI, after my disagnostic one 5yrs ago I've asked for an updated one but been refused. I have primary Progressive MS. It's aggressive and as a result I've had to use a wheelchair full time since just one year after my diagnosis. My life has been shattered in every way. I miss running, working, driving.... my partner abandoned me so I no longer have a real home. Just terribly lonely and feeling unsupported. I'm in a lot of both physical and emotional pain. I wonder if anyone else has the same experience, and would contact me?

How do you know the lesions healing? Is it gonna heal really? Does your doctors really say it heals? I have brain spottings too. I hope to hear news like this.. and Godbless us and to all who suffer brain lesions. 🙏🙏

What is that treatment you mentioned Izzy?

My I ask how bad was the treatment and how long did this treatment last? I have to have MRI because my doctor thinks I have MS and I am so scared..

Please explain what the treatment is. I can not understand the word that you are calling the treatment.

I did talk and text instead of typing.... So please forgive me ... I know it's gonna sound like I'm illiterate because words are missing or words that shouldn't be there are put there but I think I'm hoping you can pretty much Figure out what I'm saying

Hi Izzy, I don't know maybe you already know about it, but have you considered HSCT? I've been stalking MS research ever since diagnosis in 2010. Please let me know if you want, I can give you more info on the treatment and a personal experience with it :)

Are those Tumefactive lesions ?

I wish my doctor did this. He barely talks about all the MRI'S, I have had. I originally had over 20 lesions in my brain. He just says no new activity and some lesions are healing, I don't know what that means, that some are healing. Have you been told that??

I've read that lesions don't disappear but dissolve and move into spinal fluid which is indicative of the patient have the worst form of MS. I hope I am wrong bc I think I have MS. I have been paralyzed 2 times. in right arm.

I wonder how many rap artist made new music in a MRI

could you give me some information about the treatment that you took?

Show what you eat and how it is cooked

See Ya!

My vision is blurred in my left eye and I got tested for plaques in optic nerve and it’s confirmed that it’s not optic neuritis..I’m feeling little numb in my arm..did anyone had any symptoms like these..do I need to worry about ms? Do I need to have the mri done?? Im claustrophobic😩.My vitamin d is 23ng..please someone kindly help me with the information.

Nice video I think eat properly no alcohol or cigarettes is important but these MS medications are very important in your treatment. Last time I went to my neurologist she told me my disease has not progressed and I am lucky that they have the medications that are available now. Make sure you are taking 5000iu of vitamin D along with your medication

What is the name of the treatment u did? I recently diagnosed of MS. Have no clue what is it too.

Cela à l aire très intéressant 😊😊 j ai moi aussi une multiples sclerosis.. j aimerai comprendre 😯😯 peux tu traduire en français.. please..😕😕..?! Si possible bien-sûr.. en tout ca tu a l air super !! 😘

Had my mri on the 2 nd of December, I’ve heard nothing, I’ve contacted the QMC nottingham I’ve been completely stonewalled , so my occupational therapist tried leaving message and emailed and she’s been stonewalled too , I’m giving up , I’ve been left to rot x

Have you done your second annual MRI? I'd like to see how well Lemtrada worked for you.

Black Seed - 'The Remedy For Everything But Death' Please consider using it and I pray it helps💖

Would you possibly do a video on foods you avoid?

my icon

HSCT?

I have MS I’m 6 years in now, unfortunately all ms is aggressive and unpredictable.. I have half my vision in my right eye and half hearing in my right ear

Question, have you ever been tested for the herpes virus as a possible cause for this?

Have progressive Ms very fast and aggressive

Must be your healthy eating helped

Have you all been checked for Lyme?

I can't even imagine at your young age . I just got diagnosed at age 68.. and what I'm been going through is overwhelming. On Kesimpta 3mos. Bless you sweet young lady 💝

Hi Izzy! You smokin or using weed yet? If not, try it! It blew my mind!

Lesion disappearing is actually a sign that the disease progresses. The tissue is replaced by liquid.

Hope you’re doing well. My brother has had a rough time over the last 5 years. Misdiagnosed with Alexander disease, suggested he then had progressive MS, finally seen a MS specialist (after 5 years) who suggests it is relapsing/remitting MS. NHS is a nightmare.

How do you know the lesions healing? Is it gonna heal really? Does your doctors really say it heals? I have brain spottings too. I hope to hear news like this.. and Godbless us and to all who suffer brain lesions. 🙏🙏