I followed Izzy's inspirational story and posts on YT and Instagram for years. There's been no new posts for 4 years which is concerning. Hopefully just because she's having an amazing, busy, happy life and has no spare time for social media! ❤ Izyy if you're out there, please check in to let us know you're ok! 😊😎
I do hope I'm not right in saying that lemtrada did something terrible to you? It took a while to find this channel but then I remembered your name as I had watched several videos when my neurologist and ms nurses were trying to force me to have this drug. I declined and they are now saying it's lucky I did as it's a dirty drug and as we all know it has been withdrawn. They were very pushy trying to get me to take it and that's what put me off similarly same thing with the coronavirus vaccination. If you are still around and surviving 😮 please do reply to this message as I really need to know what happened to you after you took this drug. Incidentally four different neurologists told me that if I were their brother they would want me to have this drug. I have told this to my physio and Ms nurses but they just say coincidence I'm sure they're trained to say it has anyone else been told this by their neurologist. These companies make billions from these medicines they don't care about us
Hope you’re doing well. My brother has had a rough time over the last 5 years. Misdiagnosed with Alexander disease, suggested he then had progressive MS, finally seen a MS specialist (after 5 years) who suggests it is relapsing/remitting MS. NHS is a nightmare.
I can't even imagine at your young age . I just got diagnosed at age 68.. and what I'm been going through is overwhelming. On Kesimpta 3mos. Bless you sweet young lady 💝
U don't realise how strong u r, all those test, anxiety and not knowing must have been horrendous, but u did it, u have proven to yourself that u r more resiliant than u thought, all u can do now is don't look to far ahead and take 1 day at a time, keep up this positve outlook, so proud❤❤❤❤❤
Hi, thanks for your story and insights. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now, what do you think or should I rule out MS? Thanks
Hi Love, Ive seen a few videos by you in the past. Probably commented at some point. If not I recently interviewed Dr Brooke Goldner who treats patients suffering with inflammatory conditions with great success. Including Multiple Sclerosis: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-TO0cfvWO1mw.html . Also have you come across Roy Swank and his work? ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-lEnn_AZT-SU.html&ab_channel=Dr.McDougallHealth%26MedicalCenter
I was diagnosed with MS in 1998. I used to run all the time but haven’t been able to since 2007. I love to ski and ride my bike. I’m not as strong as I used to be, regardless I go out as much as I can. Your video was really inspirational and reassuring to me! Thanks for sharing. How’s your MS progression? I wish you the best health and longevity with this disease!
How are you doing with these supplements now? Also did you only do lemtrada once? I was just diagnosed, thank you so much for what you’ve put out here on RU-vid. 🧡
Thanks for sharing Very interesting seeing your approach I will need to watch again All I would say is be mindful of the dosage and get blood tests say 6 months to check your levels Do you take 10 000 iu vitamin d3 daily ?
this video has helped me so much. Going through very hard times atm and having to deal with skin issues on top of it all is always stressful. I hope u all feel better soon beauties!
I understand what you went through i´m going through such a similar thing. I have Aggressive RRMS, was diagnosed in March and in a few weeks they want to start me on Lemtrada I am scared about the risks and side effects. But they keep telling me that for my aggressive case it is the best option. I also have latent tuberculosis so I have to take 3 pills a day for 6 months on top of Lemtrada which makes me extra nervous. And your videos have honestly made me feel so much better, I know that not everyone is the same especially with this illness but you give me hope. Thank you from the bottom of my heart :)
I had optical neuritis and had to take steroids by IV and my whole face is filled with pimples and pustules T_T MS is scary. I was suspected of having it and had to do many tests. luckily i dont. Thing is my income is so less so if i had ms i would not be able to afford any treatment. So ive decided to work harder and save up and donate to Ms charities. hospitals are scary. I was going blind in my right eye and its my greatest fear to go blind. its something i wouldnt wish on my worst enemy. I really hope there is a cure some day for MS. I have diabetes so i had to be injected with insulin along with the steroids.
Hello from greece!! I recently discovered you..and i was wondering how are you now.. Your videos are so inspiring..i love watching them and you made me see ms a little bit easier..i hope you are still that well.. thank you for doing this
I was diagnosed with lupus over 10 years ago and have been put on multiple tapers of prednisone but this last one, mine face is awful! I'm hoping some of these products will help out. Thanks for sharing your story! 💞
Thank you for sharing your story! It truly helps people with MS not feel so alone! I believe in diet and exercise but not willing to risk my mobility on anything! Finally got on a strong dmt last year and I’m so thankful it’s kept me stable!
