In this video I discuss twelve more of my most prominent - but bizarre - daily symptoms. This video follows on from this previous 12 Bizarre Symptoms video: • 12 BIZARRE ARACHNOIDIT...
I have been diagnosed by two UK NHS neurologists with arachnoiditis (probably mildly adhesive) and a spinal CSF leak - both are evident on MRI.
Video content Summary (sorry some of the numbers got mixed up):
0:00 - Intro
2:58 - Case Update
5:12 - Current Meds
6:14 - Walking still helps
7:56 - 12 More Bizarre Symptoms intro
8:32 - 1. Hypersensitivity to stress & intense emotion
11:10 - 2.Feeling like I have a clamped steel rod in my spine
12:16 - 3.Stiffness & pulling in my neck
13:46 - 5.Crouching really flares my symptoms
16:49 - 6 Speed bumps make me feel really ill
18:32 - (4)Moving images makes me feel really sick
19:20 - 7.Hypersensitivity to noise
20:33 - 8.My ears regularly crackle & pop
21:52 - 9.Bladder urgency & retention
23:20 - 11.Have to carry bags into me
25:14 -12.Lie on my side with pillows
26:00 - (10)Log roll in and out of bed to protect spine
For the full summary of my medical history and footage of my January 2021 arachnoiditis flare see this 5 min video: • MY SPINAL CSF LEAK & A...
To see more about how I manage my arachnoiditis symptoms please see: • MANAGING MY ARACHNOIDI...
To read more about my arachnoiditis diagnosis in July 2020 and journey since then see: beckyhillblog.com/category/ar...
To view my July 2022 arachnoiditis flare video diaries including symptoms see: • 12 BIZARRE ARACHNOIDIT...
Twitter: Beckyhill3
#Arachnoiditis #Adhesivearachnoiditis #SpinalCsfLeak #CSFleak #TarlovCyst #SIH
UK CSF LEAK CHARITY: www.csfleak.info/
US CSF LEAK CHARITY: spinalcsfleak.org/
ARACHNOIDITIS CHARITY: www.acmcrn.org/
SPINAL CSF LEAKS: Clinical Presentation, Investigation Findings, and Treatment Outcomes of Spontaneous Intracranial Hypotension Syndrome (NHNN authors): jamanetwork.com/journals/jama...
ARACHNOIDITIS: ‘Arachnoiditis - Taming the Most Painful Pain’ Dr Forest Tennant video
• Arachnoiditis-Taming t...
ARACHNOIDITIS: Suspecting & Diagnosing Arachnoiditis (J. Antonio Aldrete) www.practicalpainmanagement.c...
Perspective: Lumbar adhesive arachnoiditis (AA)/ Chronic AA (CAA) are clinical diagnoses that do not require radiographic confirmation pubmed.ncbi.nlm.nih.gov/36447...
IV STEROID TREATMENT: Dr J. Antonio Aldrete also co-authored a comprehensive medical book called ‘ARACHNOIDITIS THE EVIDENCE REVEALED’ with a whole chapter (51) dedicated to the study of using IV Methylprednisolone in the acute stages of Arachnoiditis/ Adhesive Arachnoiditis to prevent further progression and damage.
A medical paper supporting the use of steroids in treating early stage arachnoiditis and in the prevention of further adhesive arachnoiditis: Immunotherapies in chronic adhesive arachnoiditis - A case series and literature review www.sciencedirect.com/science... And another case where IV methylprednisolone was successfully used: Idiopathic Arachnoiditis of the Cauda Equina: A Case Report from Tanzania www.karger.com/Article/FullTe...
27 июл 2024
