14 Years Old, Losing Muscle Every Day | The New York Times

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Nicolas is 14 and has Duchenne muscular dystrophy, which is robbing him of his muscles Ó and his life. A new and expensive drug may help, but can he get it?
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14 Years Old, Losing Muscle Every Day | The New York Times
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Опубликовано:

15 окт 2024

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Комментарии : 46

@muppetsmom 5 лет назад

Such a beautiful, beautiful boy. I pray so hard that a cure is found for these boys.

@erichorbal2157 7 лет назад

The government better pay for the new drug.

@moderatesunited 7 лет назад

Eric Horbal shouldn't have elected Drumpf.

@jaysimoes3705 6 месяцев назад

@@moderatesunited While he is clear psychopath, Obama did nothing either. Ever seen a lot of change in America's policies when the new president was from the other party? No. They are both the same, not there for the people but for big companies. It is a wellfare system for multinationals mostly. Obama was no different at all. Words words words. That is why people lose all faith in politics. Because these people have no problem letting you down big time.

@KevinLyons-gn7eu 3 месяца назад

@@moderatesunited what is the name of the machine that sitting next to him?

@WoWfAnLoL50 7 лет назад

I have this. Im 24 right now. My brother also has this but has since passed. This is a terrible sickness :(

@DeMiTriDreams 5 лет назад

I just made friends with someone with dmd.. looking at the life expectancy broke my heart.. but I want to be by his side either way, the whole way. This condition is vicious and unfair.

@DeMiTriDreams 5 лет назад

@Tech Shakib I will.. no one deserves to live with this. I'm so sorry you have this. I hope you're able to fill your days with joy, love and adventure while you're here. I don't know you but I'm sending you my love and compassion. None of us are promised tomorrow... Try to make the best of what you have ❤️ I love you and I'm sorry you're going through this but it doesn't mean you have to let it limit you. Apply for grants, go to school, or if that's not your thing, find a job that makes you happy, go on adventures. Don't let this condition keep you from living your life. I'll be praying for you. ❤️❤️❤️❤️❤️❤️

@cutedpanda00 5 лет назад

@@DeMiTriDreams i have it 2 milder form of dm i am 33

@cutedpanda00 5 лет назад

@Tech Shakib i have limb graded md also known as beckers md

@eminqeniyev4744 4 года назад

How do yo feel know?

@_carlos9407 7 лет назад

this kid looks cool I wish I knew him in real life🙏🙏

@YTMMS-hy6mz 5 лет назад

LoL

@bhuvanbam8499 5 лет назад

I have polymyositis. Similar to mascular dystrophy but not genetic.

@966minda Год назад

Is her son still alive?

@zenist69 7 лет назад

Give TCM a try.

@arafchowdhury4771 7 лет назад

is that malcom

@bhuvanbam8499 5 лет назад

Exondys 51

@michaelnitsch4431 4 месяца назад

SEE DR. WALLACH ON THE 90 FOR LIFE

@rhonackimp 3 месяца назад

Ohh i have this very late, my son and i have the same 😢

@marcolafargue2851 4 года назад

Try ataluren, it's better than corticosteroids at least...

@mistrotech8894 8 месяцев назад

Stem cell therapy?

@elisamondragon2849 4 года назад

I have a cousin with this and he ruined my life.

@toroshiidk8190 4 года назад

how did he ruin your life?

@teamgoodboys5383 3 года назад

Ayo

@julii5890 Год назад

حبيبي 🤍

@KJVILOVEJESUS 7 лет назад

All this kid needs are SARMs. They prevent muscle wasting. It would literally solve all his problems, he just needs to get on a daily dose of ostarine every day in the morning and he should be fine. I hope the family sees this comment. Even testosterone would help.