16 Years: Surviving Metastatic  

Be strong and enjoy every day it’s a gift in your 70’s ❤

I am amazed of your strength,cancer is not a dead sentence indeed as it fights we need to fight back aggressively.

Fenbendazol an option ?

You’re strong. Keep at it. And God bless!

What is your treatment for bones?

You will 🙏 keep going 💪

I heard corrosol fruits were very good to combat this cancer and what does work also is cutting out all sugar, coffee and meat with the exception of fish, just vegetables no additives whatsoever to rebalance your ph.. Also look up on youtube "What 1 teaspoon of ginger did to cancer cells"!

@@GarrishChristopherRobin777 Try reading the book of John, Matthew, Luke and Marc, you'll get to know where life originated from, it could change your point of view!..

Did you get chemo. Best wishes for you ⭐ I don't understand psa levels. Does it mean higher psa levels are worse? does it mean more bone metastasis or sth else

What was your psa free number

@@beebeeramone4641unfortunately for some psa doesn’t matter :( especially if it’s castrate resistant.

Are u alive?

I second your comment 100% !!!!

Blessed by God, I would say!

What stage was the cancer? Because my dad is also having same issue

81 you lucky man

So glad to hear you are ok… and what do you eat? My dad has same cancer, after 6 yrs in pills treatments ,he will start I.V. Chemotherapy in a couple days, his cancer the doc, said is out if control, He have been eating eggs daily & carbs, not hearing my suggestions of not eating that, so now i want to know what menu he needs to have, to be strict with him, greetings from Mexico🇲🇽

Hello, my father has prostate cancer also and we’re running out of time. Can you please tell me what you have done to beat this cancer? Would be so appreciative if you could take the time to explain it to me. God bless you sir 🙏🏼

Best wishes to your friend. I hope he will win this battle. Haven't your friend gotten chemo?

@@ahuyldrm No he was offered Apalutamide instead of chemo , so he took that route . I'll pass on your best wishes thanks

@@forthemusic9875 thanks for answer i hope your friend will get well soon🌸

@@forthemusic9875 hi my father is suffering from same. But they didn't give any harmone therapy. Now they are giving chemo. May i know more about your friends treatment it might help us. Plz

He has money he is a CEO.

Good business... for some

@@awshortclips Do you have any urinary problems?

@@Shubham_12344 Hi. Shortly after surgery and for maybe 8 months later I had trouble with incontinence. It eventually went away. The majority of the time it is manageable. Sometimes it sneaks up on me. I suspect based on what I eat and drink prior, it can affect the urge to pee. In fact, we were in Florida's Universal Studios in the Harry Potter restaurant. It was sweltering outside so I was guzzling water. Earlier in the day I drank two cups of coffee. Guess what? I flew out of the restaurant, looking for a restroom. It was pretty bad especially due to the crowds and my unfamiliarity with the place. I made it but...lesson learned.

My husband has been on ADt for two years, also stage 4. I think the plant based diet is helping also.

My Dad was on hormone therapy for 2years after that it didnt helped now he is in Second line of treatment, Aiberatetone was suggest for hormone therapy let me know which medicne are u been suggested Also adivce company brand also matters while taking medicine bcoz in todays market there are many startup and large markets sell aiberaterone with difrnt company

@@claudiafinelle hi I have the tummy implant it is working very well. I am also following the New Mediterranean Diet plus adding the cancer fighting food. It is working all my pain in my bones has gone. Although I do have hot flushes. Much to my wife's amusement 🤣

@@roming6722 Thats great! Exercise seems to be very helpful too. Yeah,the hot flushes are no joke! Good luck to you, to all of us.

My best wishes for you. Haven't you gotten chemo? My dad: bone metastasis is getting hormon therapy and chemo at the same time but his doctors said "don't panic we should trust each other". I don't know what to expect i am so nervous. He has a catheter because after his first chemo he has had trouble urinating.

I have prostate adenocarcinoma, Gleason grade 4+3, score 7/10, group 3, what I have to do

What is your PSA?

@@Debijo7 My PSA is 6.160 and my free PSA is 0.592. What is your opinion?

I am a healthy 85 year old. My BMI is 22 and I eat mostly plant based. (no meat) I exercise and walk every day and am taking Yoga classes.

@@zpoedog my husband is 80 and as it is on Ellegaard and Xtandi year and he is supposed to be starting radiation for five days a week five minutes a day for seven weeks. I’m very concerned about these decisions, but I don’t know what else to do. As far as your case, personally, I could not imagine not doing anything considering where my husband is at. If you have a PSA that means that your body is making the antigen to the cancer. What comes out of the cancer that’s how a PSA is measured by what the cancer makes. So something is going on in your body yeah I think if they would’ve caught my husband’s cancer before it got so high his PSA was 27. Before surgery and after surgery went to 18 and then it went up to 24 so long story short they started putting him on the Ellegaard in a couple months later he got on the Xtandi yeah my whole point is if it had been caught sooner, we could’ve done different things instead of having to have a radical process to me my opinion is that you need to first off it depends on what you want to do if you don’t wanna do conventional medicine, I suggest you go on a fast and then start eating only good food and drinking. There is a guy online that cured himself of stage four cancer by diet. Well let me correct myself he’s not cured, but he has given himself four more years of life where they gave him two months.

Have you done any research on your prostate? Do you know what a Glisan nine means?

Glory and Thanksgiving to our maker,you will be cured.1/ toxin's to stop and avoid: all refined sugar, pesticides, herbicides, high fructose preservertives Nitrites GMO microwave foods MSG margarines vegetable oil soy products Diet and artificial sweeteners colors processed oils, reduce grains, lectins.

My Lord my God, Before you go for chemotherapy:: NEW research 100 times better than chemotherapy and more effective than chemotherapy kills cancer stem. Take 1/2 teaspoon to 1 teaspoon of Dry Ginger not fresh ginger less potent daily dose, Don't heat above 85 degrees .

zinc levels help, with other minerals, vit. D, and tomatoes - I hope you a healthy recovery in Jesus Christ name.

Hello Fatma, we are sorry to hear that your husband is suffering. Here is a video we did on hormone therapy side effects: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-E_zZ-lG6eeY.html Please reach out to us via our website, www.pcri.org/helpline if you would like to talk to a prostate cancer patient who has been through hormone therapy and can give you information on the process.

I am not a Doctor or professional medical person. I am only a wife. As a wife of a Prostate Cancer man, please first DO NOT BE PUSHED INTO FEAR: 1. Any Doc or staff that tells you "Dont go on internet", show them this video. Get this gentleman's calm attitude and talk in your words! Do NOT ALLOW OTHERS TO TELL YOU NOT TO EDUCATE YOURSELF. You HAVE to be your own advocate. 2. Stick to reputable sites like PCRI, UCLA, MAYO, Wikipedia, Yale, Stanford, and Sites that YOU GROW TO TRUST thru first hand experience. Example, I trust PCRI. I trust Dr Eric Berg RU-vids, i trust Kidney Warrior Dadvice youtubes. I LOVE PCRI and watch as much of their info as I can absorb. 3. Get a 4 inch thick, three ring Binder. Keep everything in date chronoligical order. KEEP ABSOLUTELY every paper, personal notes, statements, tests, labs, CD of imaging from day one! I also wrote TEST and LABS i find online to request running on my husband. I caught our initial uroligist in far too many mis-truths and his staff flat told me, "You dont get to have all your questions answered!" I said WHAT!!! And she repeated it 3 times. (Now FIRED). Take notes, date, time, attendees in conversation, titles of position, Doc, Medical Assist etc. Be able to read back and understand everything many years down the road. 4. LEARN your cancer "STAGING" right away. And I am not referring to Stage 1 thru 4 here. Get your specific Cancer's exact, COMPLETE STAGING. I just asked my husband's original urologist what is the STAGING of my husbands cancer. He said Stage 2. First, THAT IS NOT TRUE IN HIS CASE. Nor the answer to my question. Second, That answer is NOT COMPLETE. Look up Cancer "staging" in Wikipedia to fully understand the difference in STAGING and STAGE 1-4. My husband is NOT a Stage 2. His STAGING IS: T2aN0M0 Stage 3A High Risk, but curable, Prostate Adenocarcenoma, PSA 50.9 with Gleason 4+3=7 with a lab test called "My Risk" Gene test of negative for known bad Genes. Decifer Test originally said there were 2 bad DNA/gene issues but NO doc could answer WHAT his high risk bad DNA WAS. It was a mis-truth as i forced the GENOM TEST CALLED "MY RISK". The test put me at ease when i learned it was NOT EVEN TRUE that my husband's cancer was not, in fact, a BAD BRACA GENE, ETC. After 6 horror sleepless months, we fired original Urologist and now have a MEDICAL ONCOLOGIST and a RADIOLOGIST ONCOLOGIST, and CARDIOLOGIST. Now that i understand my husband's "STAGING", I can understand why Doctorz selected the Treatment Solutions. I learned this "STAGING" info, which they acted indignant that i wanted to understand. This info put me at ease to know, I am beginning to sleep better. Now i had a way to watch the videos at PCRI which apply. 5. Get WRITTEN ON PAPER explanation of ALL "SIDE EFFECTS", and ALL "QUALITY OF LIFE" exepectations from ALL TREATMENTS. Our orig Urologist told us only the few easily gulible answers. Doc withheld the REAL answers from me. We learned the hard way that there is a vast difference in the wording. SIDE EFFECTS. ASK ABOUT NEXT 10 YEARS "QUALITY OF LIFE" from each medication and Treatment. My husband had No Side Effects from 4 days of ADT. Day 5 it bearly killed him from some depleted electrolytes and unknown heart issues. How about checking FIRST. OUR uroligist told us it was not necessary! 5 days later, he was near dead in hospital 2 days. 6. Do not get pushed into anything that your gut/intuition says doesnt feel right, until you get answers. I am not a doctor, this is only my opinion based upon my experience. 7. Keep a good TEAM 8. DO NOT ALLOW ANYONE TO FEAR MONGER YOU. Ask your Docs how much time you have for SECOND OPINIONS. DO NOT BE AFRAID. THE TREATMENTS ARE SO MUCH BETTER NOW A DAYS.

@@nesssssa23 best luck to your father! Look into Thomas Seyfried. He did 30 / 40 years research on cancer and might give some good insights!

My husband is going through the same things. So much pain and same medication. Had to stop meds. Too much. Tremendous weight lost. Can’t walk. Foley catheter keeps developing uti. Leaking.

@@Mrgaurav1432 what was the PSMA PET scan result of him? Spread area?

I heard Provenge therapy may help if its stage 4 in the bones

My son (42 and the time) was diagnosed with Advanced Metastatic Prostate Cancer, Gleason 10, with large tumor in bladder and 7 bone mets, 6 nearby, one in shoulder. That will be 7 years in January. He had surgery to remove enough of the tumor from the bladder to allow urine flow, 6 rounds of chemo, which he tolerated very well, and 6 rounds of radiation therapy. He has been on Lupron from the start and Zytiga for 6 years. He has side effects, but he has a great attitude and is grateful to be alive living a relatively normal life. His PSA has remained undetectable and no signs of the cancer except bones look the same on scans as they did from the beginning. Everyday is a blessing. His doctors attribute a lot of his success to his great outlook. I understand your frustration with lack of specifics (that's why I listed my son's Gleason score and detailed metastasis). Stories like this one are virtually meaningless without those details!

@@Lanceanddian I am so glad for you brother! I sure would like to hear your story. I am 70 years old and have a Gleason score of 3 + 4 = 7 with a different percent volume from two different opinions. The first one wasn't too bad! 5% volume one was 30% though. 5 out of 10 cores. Second opinion from Johns Hopkins comes back..... 40 and 50% volume! Wtf! I am waiting on a third opinion. I don't really want to do anything. Thoughts please I will sure would like to hear more details on your decision to quit any treatments.

what is your medication?

@@sam0091able has always been Lupron shots, a bone shot every three months (Xgeva). Then pills. They started me on Cosodex but switched me to Zytega for a year. I then went to Erleada, which I have been taking since. So I have always been on pills the whole time. The Erleada gave me the mother of all rashes, I didn't tell the bone guy as I thought it was part of the deal. I found a lotion at Manards that eased the itching a lot. When I told the doc about it the rash was nearly gone--had I mentioned it when it started I think he would have wanted to port me then. I eat lots of calcium and vitamin D. They never said, but I drink lots of soy vanilla milk, the urologist, when I told him said to keep drinking it. I had a Pet scan a few weeks ago and it looked very good.

@@sam0091able Did my reply come through?

@@sam0091able I will reply again in case some one else is curious, my reply did not show up on my computer. From the get-go, 4th stage cancer, it was Lupron, no breaks, same with pills. First Casodex for a short time, went to Zytiga for a year, then Erleada till now, and Xgeva throughout the cancer. Calcium and vitamin D. I drink a lot of vanilla soy milk. The Erleada gave me the mother of all rashes for a time. I did not tell the doctor as I thought is part of the deal. The only product I found to ease the rash was a Watkins lotion from Manards. Had I told the doctor I think he would have ported me, so that worked out well. By the way I had a Pet scan a few weeks ago and the prostate at that time was disease free-from a gleason of 10 and most of the cancer seems inactive.

Turmeric 1/2 gm + 2 pinch of blackpepper in warm milk ...have slowly ..relieves pain feel lively ...Also apply externally turmeric mixed slight oil....

​@@anilmehta6425fenbendazol?

Praying for you my brother°°

Need oil? How to use it?

My husband was diagnosed stage 4, low volume metastasis 20 months ago. His Mayo Clinic oncologist recommended he start with a Firmagon injection, which does not cause a flare. His PSA dropped like a rock from 24 to 2.0. A month later he started Lupron (every 3 mos.) in combination with Zytiga. No flare. His PSA dropped to negligible very quickly and remains so today. (He also had 26 rounds of radiation early on.)

Hi I think some people get a flare with Lupron and some don’t. The claim made for Orgovyx is that no one gets a flare. I had a similar experience to you with Lupron being used in tandem with Zytiga/ Abiraterone. After being on Lupron for 2 months I was prescribed Abiraterone as an add on. The PSA dropped to 0.04 after a further two months. The peak prior to Lupron was 16. These results are consistent with the STAMPEDE trial findings in the UK published in late 2021.

Good luck and best wishes. My father is 64 he is taking hormone and chemo at the same time. His belly and arm were aching before chemo but he got first chemo and now he seems fine with his belly and arm thank god. But i don't know what to expect in future. What was your father's psa level?

I have heard Provenge therapy may help with stage 4 in the bones.

Do radiation therapy it is help full for reduce the pain of bones

Turmeric externally oil mixed lot amount n internally 1/2 gm n 2 pinch of blackpepper in worm water....relives pain n reduces tumour size ..surely