Superbly helpful Clarified more concepts for me in my long covid Vaxx chronic pain journey. Both of your professions layer brilliantly. Would you all consider creating a course?
Dr. Furlan. I’m in Calgary, Alberta. I have this with CRPS, tinnitus, visual snow, visual vertigo. I was diagnosed with FND and given education on pain neuroscience and sent to EMDR therapy for childhood trauma. What do you do with your patients with graded motor imagery?
I believe there is a perception aspect. My problem is i really struggle to perceive & communicate pain in a normal way. Most doctors treat me like im crazy. I definitely do have chronic pain, I also have a high pain tolerance, and i am also hypersensitive. Its all nuanced. Ive had period cramps worse than labor. Ive been under anesthesia and felt them cutting me. Ive had no response to narcotics whatsoever. Ive walked on a broken ankle. But cant walk with sciatica. But ive also screamed when a kitten walks across my lap or had to change clothes if theres a tag or can’t sleep is theres a grain of dirt in my bed. My muscles feet back and knees hurt 90 % of the time, but its so normal i can usually tune it out like background noise until its unbareable or im quiet/still. Sometimes my pain is much worse when i am in bed and much less when i am moving. Ive also had shadow tooth pain after a root canal. I cannot describe my pain very well. Stab, throb, ache, shooting, I have no idea. Or rate it on a scale from 1-10. I have no idea. Like im uncomfortable enough to go to the dr, but im not dead yet lol But I suspect I have a little of both. Neurodivergence as well as chronic inflammation in joints & muscles, and i am hyper mobile so i have dislocation. I also struggle with proprioception. Sometimes i forget why i have a big bruise, forget to eat, walk into doorframes. if i am expecting pain it is more comfortable than if it’s unexpected, Ive spent my entire 45 years in pain but invalidated and dismissed to the point ive just accepted it and gave up on doctors. Ibuprofen, chamomile, and ginger seem to help. Aspirin, and acetaminophen do nothing. Narcotics just help me dissociate so i dont care, kinda takes the edge off i guess, but pain is still there in the background
I have nerve impingement in my lumber spine from a car accident which even gave me temporary paralysis so no my chronic pain is coming from damage and I was told by specialists I need surgery which I was denied by my corrupt lawyer and auto insurance. I still get small events of paralysis yet I have been classified as chronic pain.
Pain does originate from brain signals but physical sensations are very real. If you stopped nerve signalling from the brain it would stop. Try video ‘How brain programming causes chronic pain’ and talks by Professor Lorimore Mosely. They use diagrams and examples and Dr Mosley has chronic pain. Hope this helps.
No more long term opioids. And, I’m sure it’s only coincidence that these new studies/sciences that opioids don’t help ppl w chronic pain happened around the same time as cp patients began being blamed for the “opioid epidemic.” 🤨
Hi doctor, I wish you practiced in the US. I have nine compression fractures in my spine from taking prednisone for 15 years. I have to take prednisone for a obscure disease called retroperitoneal fibrosis. I have been to five pain clinics. Also have IBS and two aortic aneurysms caused by the retroperitoneal fibrosis. i’ve gotten spinal injections, facet nerves burned off, physical therapy, chiropractic but the only thing that works is opioids. I get 60 low-dose hydrocodone in a month but it’s only enough to last me 20 days. My GP says she’s not comfortable prescribing any more than that because she doesn’t know anything about opiates. Just venting I guess. Venting because I have no place to turn. Have a good day
Idiopathic retroperitoneal fibrosis is a subtype of IgG4-related disease. The go to treatment is steroids, but there are others as well. I have IgG4-rd in my pancreas and biliary tract, and salivary glands. It’s a rare condition, but they’re finding more & more about it. I can’t do steroids, so I had to use a form of chemo called rituxan. I didn’t want to live the rest of my life on chemo so I changed my nutrition to whole food plant based, no refined sugar. I haven’t needed chemo in 5 years. Lifestyle changes make huge differences.
What is the treatment of pain caused by stress please, im from Algeria, i try to listen to you but i can't understand well, so please write me the answer is better, thank you so much
My whole body joint is painful, sleep deprived because of over active bladder, headaches and anxiety issues. Please help me with one medicine which can help me sleep properly at night. I live in Mississauga. Please help and take my blessings.
Yeah me too i have that kind of illness 😢😢 im having now anxiety and depression due this illness.. doctor only said im just only do things to enjoy myself coz my pain is only in my mind.. but its real its really pain in my back like thers stubbing , pin and needles and crawling inside my body 😢
I WISH my brain could block the synapses that cause my sciatic pain! I've tried everything - and go to monthly pain dr for injury that happened years ago. I was hit by 18 wheeler and rolled over highway 3 times! I came home that night intact, but with spinal and neck injury that has only gotten worse. I've avoided surgery, but thus year plan on spinal fusion. I don't have a "list" of behaviors, I just HURT, and I am broken. I know the before, and after.
3:53 - it's beyond annoying..it's maddening aka frustrating, upsetting, and disruptive to function 'normally' while having to also manage the pain firing off. Why do you think most people end up taking their lives? annoying is when someone pokes you..that is annoying. I suggest using the actual verbiage and descriptions your patients tell you and I am sure they have expressed it in frustrating overwhelm and angry tears b/c it could drive a person 'mad'.
wow..this is off..Comparing a pregnancy to chronic pain...ouuff..miss me with actual understanding. then to say those with chronic pain are like the guy who had the nail and overreacted where there was nothing..for those who deal with chronic pain..way to be super invalidating and gaslight a whole bunch of chronic pain patients..way to throw a comparison..which is what the rest of the medical world does..what are you trying to say??
👋FND(damaged nerve in my neck) + C-PTSD + Endometriosis I'm still learning, for sure, especially since I'm 28 & just started having Non-Epileptic Seizures. I'm 6yrs clean & sober🥳 Opioids are a 10 outta 10, do not recommend😅Yes, I was self medicating, but it's extremely validating for me to know that I did this for other reasons other than "Hi my name is Yonnie & I'm addicted to Opioid pain killers". Past yr I've have so many Seizures that I was actually laughing in the middle of the last one, totally throwing my boyfriend off😂 I realized if I just didn't try & move or fight it then I can just 😎 I asked him to put on RU-vid until I came out of it I really didn't want to bring my Paralysis Demon with me to the awake realm🥴