Brain Support Network and Stanford co-hosted a virtual caregiver meeting on Sunday, November 14, 2021. Attendees were invited to share "resources" and "tips" they find useful in caregiving for family members with Parkinson's Disease, Lewy body dementia, progressive supranuclear palsy, multiple system atrophy, and corticobasal degeneration. This was open to local Stanford and Brain Support Network support group members only.
Examples of resources and tips that were shared:
- Local resources: Family Caregiver Alliance. A particular home care agency, a particular assisted living facility, or a particular board and care home. A good palliative care program. A hospice agency that offers a pre-hospice program.
- Online resources: List of exercise videos. List of exercise classes. “How to” videos.
- Tip: Sign up early for hospice. Utilize the Medicare home health benefit.
Stanford and Brain Support Network co-hosted in June 2021 a "gadget" meeting. We filled up all 90 minutes sharing helpful gadgets, equipment, and tools, so this November meeting was a follow-on meeting to all the other things we didn't have a chance to share.
19 мар 2023
