Brain Support Network (BSN) is a non-profit organization focused on the needs of families dealing with the four neurodegenerative disorders collectively known as "Atypical Parkinsonism Disorders": Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Syndrome/Degeneration (CBS or CBD), and Dementia with Lewy Bodies (DLB, sometimes called Lewy body dementia, LBD). While sharing many symptoms of-and often confused with-the more-common Parkinson’s or Alzheimer’s diseases, these four disorders have distinct brain pathologies, no cures, and virtually no treatments.
BSN has three missions: (1) Encourage and facilitate brain donation for neurological disorders to support research for a cure, (2) Educate families coping with atypical parkinsonism disorders so they can be better advocates of their loved-ones, and (3) Organize Northern California Support Group meetings for these disorders.
10:51 This chart still feels a bit off. Those with DLB will still go through MCI stage, right?? You don't go from nothing to dementia overnight. Also, those with PDD will first get diagnosed with PD, but then, what does DLB patients get diagnosed with before they reach dementia stage? Because dementia stage is defined as not being able to take care of themselves and that doesn't happen overnight. Are they (or even PDD patients) diagnosed as DLB/LBD even in their MCI stage?
Did you listen to the recording for an explanation of this chart? (It's been awhile since this event so I don't recall.) I believe this chart is trying to get at the idea that LBD is BOTH PDD and DLB. And that we call it DLB if the cognitive problems are within the first year. PDD "progresses" more slowly through PD and MCI, eventually ending up with PDD.
An OT told family to imagine your brain as a computer. You can type the message, but when you go to hit send, you cannot. It helped us in layman’s terms.
My husband found the usurp walker was not good for him. He is not a big man. But he has had poor balance for several years. He has developed a wide stance to compensate for poor balance. The u-step walker is narrow in the u so it is better for a woman or any person who does not walk with a wide stance.
