In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA) (curefa.org) , we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and collaboration.
Also in this episode:
• Sean travels to Vegas with a group of 30.
• Newsworthy: Viral ad challenges stereotypes about Down syndrome: ‘Assume I can drink a margarita’ (www.today.com/...)
• Thank you notes: Jakob in Austria and Kelly at The Venetian.
Links and resources:
• Jen's Previous episodes: DD pt4: Why Sean Baumstark is Banned From Clinical Trials (twodisableddud...) | How a Mom Launched the First Drug Approval in FA (twodisableddud...)
• Newsworthy music courtesy of Zapsplat.com (www.zapsplat.com/)
5 окт 2024
