I have upper prodominate lung fibrosis. My cat scan has been stable for the last three years. I had mold in my basement & I lived there for over 10 years. Since I moved I been much better! Not requiring oxygen only at pulmonary rehab and when I sleep at night. My pulmonologist put me on Ofev last year & so far my oxygen levels are above 92. Was diagnosed in 2018. Thank you for all you do for us regarding pulmonary fibrosis. Btw, my cat scan said my fibrosis resembles sarcoidosis fibrosis.
My dad passed away a couple weeks ago. It was scary. He was diagnosed with IPF. Dad’s treating doctor was his close friend and he monitored dad’s condition closely. He would make dad take vaccines and monitor his LFT. Dad was doing fine until he couldn’t survive. It was 3 years 6 months since diagnosis. I really miss my dad. I’m based in India. If you ever want to know what all we evaluated, I’m here.
Thoughts for you! Same happened to my husband ‘s father . Now, my husband has been diagnosed . In the USA our PFF foundation colors are blue and green. So, I send to you 💚💙💚💙💚💙
@@Lizbeth36961 he was diagnosed at a very early stage with almost no symptoms other than a persistent cough for 2-3 weeks. But the disease progressed way too fast for him.
If im certain that my fibrosis is caused by scleroderma then it's not Idiopathic right? Thank you so so much for sharing this info, you're an Angel to us. 🙏
I am 55 years old. I take perfenidone everyday as per advice of my doctor. How much progress ocuur in terms of medicine to reverse or othér better medicine?
I had severe lung scaring on one lung , after pnemonia and sepsis. I signed to have a lung removed but they said the pneumonia started to heal just after, but left severe scarring in the left lung , they said I will be fine unless I get pneumonia again as it will be fatal. I was supposed to go for scans every six months but it never happened. It’s been just about 5 years and it’s hurting in the cold and competing with my nerve damage in my left arm. Is all lung scaring ipf? 😅
What does it mean when Ipf impairs mobility like getting out of bed. We were told that her lung function is at 28%. She is getting worse. She is being prescribed morphine sulphate. What dosage should be advised. She was duagnosed in 2020. Please advise thank you.
IPF impairs mobility by making there less oxygen in someone's body, making it harder to perform tasks of daily living. In terms of lung function, it is based on a predicted value, and then an individual's function as seen through tests like peak expiratory flow is compared to the predicted. Any questions about medications relating to the specific patient should be advised by the patients medical team.
