I started another channel dedicated to lung fibrosis and Interstitial Lung Diseases (ILD) if you are interested: www.youtube.com/@InterstitialLungDisease
you are correct to some extent - it is a very complex field. But a lot of progress has been made in recent years. I wish I could tell you that we have a clear treatment that works in all situations, but that's just not the reality. That's why we need more research to #curePF
It seems to go undetected and it's too late when the diagnosis belatedly arrives. At that stage this is an illness worse than cancer, after what I witnessed.
We live with pulmonary fibrosis every second of every day. This is a horrible disease. My husband has been at death’s door many times. The doctors have no idea how to treat him. All they do is blood tests make him walk to test his blood oxygen and prescribe Ofev. With the costs of Ofev it was impossible for us to get it. However, I did call the manufacturer of Ofev and one of their nurses put me in touch with a Foundation that would help us with the costs. He was on Ofev for a short time because it made him unable to move, very sick. We found out there was another medicine named Esbriet. The Foundation we were working with exchanged the Ofev for Esbriet. There is no funding for this anymore. I have searched and found so much information……what to do……what not to do. He’s on oxygen, special diets, plants that have been used at the Space Station, among other things keeping a spotless home (dust, dirt, air particles free.) He has to wear a mask when away from home, i.e., Doctor, Church.
I'm going for a broncoloscpy this Thursday,,,,I'm not one for complaining, my heart is running at about 75%,my liver is also not good high cholesterol and pre diabetic àpparantly. Any idea approximately how long I have .the doctor at the hospital asked me what Inhaler i use but I've never bèn given any ...trying to get into seeing a doctor is rather hard I had an accident at work several years ago was on physio b4 covid hit and have not gone back .
44 non smoker .. These are the findings Findings: There is a focus of chronic subpleural fibrosis adjacent to the right mid-lower thoracic vertebra secondary to osteophytosis. There is no further pulmonary opacity or other abnormality bilaterally. The trachea and central bronchi are widely patent. There are no pleural effusions. There is no mediastinal or hilar lymph node enlargement. Limited assessment of the upper abdominal viscera is unremarkable. There is no focal osseous lesion. There is moderate to severe thoracic spondylosis with osteophytosis. Comment: There is mild chronic linear fibrosis adjacent to the right mid-lower thoracic osteophytosis. What it means...
