Jodie walks us through what a typical day looks like when she suffers with Raynaud's. Think you might have Raynaud's? Take our online test here: bit.ly/3Hr72r6
Thanks Jodie for sharing, it really did make a difference for me to see and hear your experience. I'm 62 now and have had Raynaud's since I had my son 42 years ago, took ages for me tor realise what it was and to take it seriously myself (if that makes sense?!). I thought I was bonkers feeling so very cold and being in pain and finding it so dibilitating. It's so hard to explain sometimes how it's not 'just feeling a bit chilly'............Thank you again for sharing.
Inwas diagnosed two years ago... its the hardest thing do deal with in a colder climate. Gloves aren't enough, thick socks and good boots aren't enough, winter jackets aren't enough. I need a rainproof warm coat, and I cant find one thats affordable. When i have an attack i cant do anything for a week, everything hurts even if i hold my feet in the air so it doesn't touch anything..
I started with Raynaud's after I had my son at 22. Then a few years later I was diagnosed with lupus at 29. Then I was diagnosed with scleroderma at 32. I wish I just had Raynaud's alone. O know how you feel.
Let us know if we can support you at all Nyvia! We have support groups across the country, as well as a helpline that runs every day and lots of resources :)
Hi Jodie.I too am a fellow Raynaud’s sufferer. Mine is secondary Raynaud’s because I have Limited Scleroderma. May I ask you if you don’t mind, if you have been able to claim PiP allowance? Because your Raynaud’s seems to affect you the same way that mine does me and they refused me. I was considering applying again. And it would give me the confidence to try again if you were successful. I don’t know anyone personally that has this condition. Thank you for your help. Regards.
In my country we call it wintertenen, but I don’t know if it’s the same as raynauds. I do get wounds because of a shortage of blood in my toes caused by the cold shutting off my blood vessels.
Yes often prevention is better with Raynaud's! Good thing the cats walk themselves eh! It's actually Raynaud's Awareness Month in February - let us know if you'd like to join our e-newsletter list to keep up with our latest tips, research & webinars - just email info@sruk.co.uk
