A Slow, Healing Recovery Day In The Life | Chronic Fatigue & Fibromyalgia FLARE UP 

Happy Sunday lovely people 🤍

Don’t ever feel like your complaining. Chronic illness is very real and very common among us all. I find it comforting to hear of others stories. It makes you feel not alone.

im watching this at 03.14 with a fibro flare up. i never comment on youtube but i wanted to say thank you for sharing, i feel a little less alone now:)❤️

When the dark thoughts come, don't judge them/yourself, just observe them. Let them pass through you instead of sticking to you.

This video made my cry in sympathy. I have the exact same symptoms, sometimes I can function, sometimes I can't and the "am I just making it all up" hit me in the gut so hard! Thank you so much for sharing honey, it's so nice to not feel alone with these struggles. I wish you a better week this week coming 😘😘

Actually Excercise is no longer suggested for CFS. It was for many years but recently doctors have been told not to prescribe this as part of a therapeutic treatment. It can do more harm than good. Sending you love and healing 🙏

You’ve always been so candid about you’re ‘struggles’. Not something we see all the time and it’s definitely helping someone. Hugs and all the best to you ❤️

It took me 12 years before I was diagnosed with fibromyalgia. My own doctor didn’t believe in it and sent me to a psychiatrist. She said I was obsessed with my health. I felt so defeated. Finally I found a doctor who diagnosed me after being in his office for 5 minutes. I have had it for 26 years now and still haven’t found any real relief. Like you said, I try to fight and struggle through every day, but sometimes you just have to give in to it and feel sorry for yourself and give yourself lots of Tender Loving Care. There is nothing wrong with that. Living with chronic pain takes a great deal of strength and energy to get through each and every day. We all deserve to just Let Go once in a while. I find swimming lengths of the pool is the best relief for me. I used to do aqua fitness in the pool, but can’t do that anymore. It just exacerbates my pain. When you get into the water you really don’t feel any pain for a while. The water is so gentle on your body. I hope you get some answers. Take care of yourself. Surround yourself with nice things and things that make you happy. Love and hugs to everyone out there with this awful illness. ❤❤❤

The doctor you mentioned should be ashamed because giving such information is neglectful at best and very harmful at worst. I'm glad you changed GP's. I've got Fibromyalgia and CFS including IBS. I smiled when I saw you do the stretching exercises. Many of us wouldnt dare do that... we would never be able to get up from the floor. Wishing you a good journey as you navigate your life and take care.

It is very hard, you never feel hundred percent everyday is a struggle,always struggling with hundreds of side effects of fibromyalgia it is exhausting,I hope they will find a cure for it one day.Very sad that we have to go through this.

I really loved this video. I suffer from severe endometriosis, and there was definitely a lot of gaslighting in the early days of my diagnosis. Finding the right GP was honestly a life-saver. Nothing ever showed up on scans (although a specialist could see deep endo via an MRI after my first, diagnostic surgery). Endometriosis is an invisible illness too, and sometimes people are amazing about my struggles, but others aren't. I just had surgery from my second surgery, and it has been a very slow, difficult recovery, but I was so lucky to have two top specialists operating on me to excise the disease. It's an incurable disease, but I do have hope now that my future might be a bit brighter. I actually really enjoyed the tea you mentioned in your video about your period during my recovery from surgery. I don't know if you're life me, but flare-ups can be so scary - and I think that a lot of people don't get that, especially when it's something chronic. Chronic pain changes you and it turns up the volume on all pain on the body. I pray that you feel some substantial relief soon. Lots of gentle hugs. xx

I know how you feel, life seems to be more of a struggle when we don't get proper sleep. Hope you feel better soon!

It's 3 in the morning and watching you, I suffer to with Chronic pain, my Husband has just suffered a massive Stroke so sleep for the last 2 weeks has been dreadful, just the exhaustion. So thank you for keeping me company at this awful time of the 🌙night. Bless you 🙏♥

Just you going outside and doing yoga is more than I could ever do in a year

I was lucky to have a great physiotherapist at my GP practice, who back me up and I had a doctor who actually comunicated and thanks to them I got my fibro diagnosis, pets are amazing my wee dog actually knows when and where my pain is, she'll cuddle in to the pain area and cuddles from fur babies always help x

Thank you. I was diagnosed one month ago. My family says stuff like you just need to be more active. If you try harder. You have to push yourself. You need to shower more. You need to be more active. When are you gonna make dinner. You need to do the dishes. I am 45. My husband is 50 n my daughter is 27. She has aspbergers. I just found your video. I’m in us. I’m glad I found you. ^Hugs*

4:06 that moment when Echo came over to test out the mat for you 🥰😍🤍🐈

I have similar symptoms, and my doctor kept trying to tell me for 3 years it was in my head - suggested depression (hadn't mentioned any mental symptoms), and to 'just get a massage'. Blood tests fine, ultrasound scan fine also. I've now finally been diagnosed with Celiac disease, seeing a neurologist (may be nerve related) and booked in for an abdominal CT scan. You know when you're not well and exhausted. So frustrating when doctors keep trying to tell you you're ok and not sending you for tests.

I have fibromyalgia as well and some times i struggle to sleep especially when im in pain n I don't sleep at all due to pain or being sick and watching this made me realise im not alone with chronic pain but it does get hard trying to have a life with this pain because some days i feel like not getting up out of bed at all due to pain.

You dont seem like you're "complaining", i actually found your video so helpful and validating! Im trying to explore whether i have fibro or cfs, and based on your video and some others iv watched today, i think i have cfs. Im in the process of getting diagnosed. It's so difficult when doctors are assholes xx

Thank you for bringing this debilitating disease to the forefront, Its very real!

Thank you for being so honest about your struggles. I have fibromyalgia so can relate a lot to how disruptive and upsetting flare ups can be. I’ve turned a corner recently with lots of trial and error, but it’s still a battle and I’m still learning to understand it better. Sending big hugs 💛

I want to send you a huge hug and wish you all the best. Take your time and don't do a video if it is getting to much for you,i think you need to get a rest whenever you feel like it,or you don't ferl to well...Wishing you all the best and stay safe🥰🌻 Have a happy sunday too🐈🌻

I really feel for you. As someone who also has Chronic Fatigue and fibromyalgia it's an experience few can understand unless they have lived it too. With regards to doctors, I have come to realise that I have to be my own advocate when talking to them. I now only see only one doctor who listens more if it is something I want taken seriously and I just keep chasing and pushing if things don't seem to be happening. I came to realise that seeing any old doctor who I can get a quicker appointment with is just too random and it is better to be patient and speak to the right person instead even if it means waiting a few weeks. Also, that doctor lied to you, there are medications for fibromyalgia, no they don't cure it but they do help with the pain. You don't have to just see the doctor you are assigned by the surgery you can "try" different doctors until you find one you gel with more. Good luck. You are totally within your rights to ask for a referral to a rheumatologist for fibromyalgia

I used to watch your minimalism and van life videos before I got too sick (ME/CFS). I had no idea you got a chronic illness too. 💙

Definitely agree on your views on doctors, I have health issues and all they're interested in is giving out medication x

We had extreme heat the past week and the past 2 days have just been terrible for me. I’m sitting here on my computer and just not wanting to move because it hurts. I have IBS/Oral Allergy Syndrome/potential Gastroparesis (haven’t gone through the testing for the last one yet - thanks to 2020). I feel you on all that you have shared. My experience as well

I can totally relate, I suffer from chronic migraine, IBS, endometriosis and have two prolapsed discs in my lower back. I gained twenty kilos over an eighteen month period which I just can't seem to lose. I also suffer from insomnia and wake up pretty much every two hours every night. Life often feels like an up hill struggle. I have just had four months away from work due to my health and am in the process of a slow, phased return to work. I am an emergency and critical care out of hours veterinary nurse. Before I went off sick I was the Principal Nurse Manager of the clinic but have now stepped down and returned as just an out of hours nurse. I'm on my new journey looking after myself and doing all that I can to maintain a good work / life balance. Eating well, staying hydrated, moving my body, stretching, mindfulness and meditation. I now just take things one day at a time. I have started new medication for my migraines which fingers crossed seems to be helping, reducing from an average of 21 attacks a month each lasting up to 48 hours to eleven from 8th June (when I did my first injection) to today (7th July) I'm due to do my second injection tomorrow. I have to inject myself every month. Sending lots of love xx ❤️ PS don't ever apologise, you're not moaning you're sharing and it helps you and so many others. I love your videos xx 😘

Thank you for sharing this. I can really relate.I’ve been diagnosed with fibromyalgia in 2009 and I am not any better than when I was diagnosed. I was in a car accident at that time. Have been in 7 in total but in general my blood work has been fine. I do have complex ptsd, anxiety and depression due to childhood trauma. I have to work two jobs to support myself and it’s exhausting. I wish I could afford to stay home in rest more often. But drs aren’t even able to give me intermittent fmla for my symptoms to protect my job even though I have over maxed my sick time.

You are so not alone ❤ Pain and heat made it really hard for me to sleep this week, and I was feeling really low when I saw that you had made this video. It really helped. Please keep sharing. Love from Sweden ❤

It makes me so mad when doctors say “just lose weight and you’ll be better”…it’s such bullshit and a complete cop out…you’re beautiful and perfect ❤️ and your health symptoms are real and valid ❤️❤️ loved this video and it really helped me!

❤️ it’s good to be honest about how you are feeling and not hide it from the world. I don’t suffer as bad as you or my friends with fibromyalgia but I do suffer from painful flat feet when I’ve been walking on them for hours. And ibs. It’s great that you are talking about this xx

Hi Kay, I have found the pacing guidelines from Mindfulness for Health really helped me to cope with chronic pain (arthritis now and plantar fasciitis in the past). Sorry for giving advice, I am sure you will have tried pacing already, but I know many people with fibromyalgia and chronic pain who have found it transformative.😘

I also have chronic fatigue and had the corona which resulted in a massive flare up but could not discuss it with anyone. I have mostly done my own research and look after myself the best I can.

It's very brave and selfless of you to share your struggles in the hopes of helping other people with their own. I hope you find the answers you're looking for soon, and good for you for advocating for yourself by finding a gp that is a good fit for you. It's clear you have a very solid handle on your own symptoms too. If your doctor has never suggested it, maybe consider having them check for Celiac disease, there is a specific blood marker they can test for. Best wishes to you and thanks for your videos.

Glad you have your kitty 😊 animals help keep you distracted sometimes ❤ hope we all get a cure soon. Gentle hugs!

I have fibro chronic fatigue and IBS. And I suffered for years u til I went onto the keto diet. No car sat all no dairy no soy. And I basically follow Dr berg on utube and I am a million times better, yes I have flare ups. No coffee and I do Intermittent fasting and lost 13 K and feel like a different person. I am old enough to be your grandma and had these symptoms even younger than you. I hope you find someone who can help you as med doctors do not know. Good luck darling ❤

I am 58 years old and just have been diagnosed with neuropathy, chronic fatigue, and diverticulitis and I am very active but I have found like today I have to slow down and rest. I am so very tired!! Thank you for sharing your story, it helps to know I am not the only person who has this problem.

❤ sweet healing vibes your way ❤

Thank you for sharing your story. It was so helpful! ❤

❤️ sending you lots of love Kay!

Thank you so much for sharing all this with us ❤

Thank you for sharing your story and talking so candidly about hidden pain. You have a beautiful smile, shows how strong you are. Sending hugs! ❤️ For years I had sciatica and though I looked young and healthy I found standing too long on trains impossible. I always felt guilty if I didn't give up my seat.

Get well soon x

What a smart kitty!

Thank you for sharing your story ❤️. Be well. Love all your stories!

Beautiful relaxing videos, thank you x

Thank you! To be able to identify with others and to be validated is very encouraging and uplifting. I and several family members struggle with invisible disease. The struggle is real. Wishing for you all the best in finding your own path. and it (doesn't hurt to have a beautiful fur baby at your side...they never judge) Keep on keeping on.

I am so sorry that you feel bad, I know how you feel I have diverticulitis and nerve damage and I had a cervical fusion in 2005 so I know what it is like to feel pain or can't sleep at night what helps me with my stomach pain is probiotics and for my nerve pain I use ice and a heating pad I only take medication if it gets to hard to deal with. I hope you are feeling better soon don't feel bad about talking about it, you talking about it helps others too!

Thank you for sharing I can't always put into words how I feel when I tell my family and friends that I'm not coping with my fibrom symptoms but you expressed exactly how I have been feeling so thank you for that.

You don't need a diagnosis, you already have one. ❤ This is my life too so totally understand. Take care. Frances x

You're so lovely! Thank you for sharing

Thank you so much for sharing this. I appreciate your honesty so much! You beautiful soul 🙏🏼

❤️ we are always here love. Sending hugs xx

Remember it's your right to get a GP that listens. My ex GP was struck off I was a victim and now only have use of one leg and although the other leg is paralysed I still have pain. You need to go when your at your worst.

❤️ Thank you for sharing. And your herbs are looking beautiful!

I hope you get better soon, in my prayers ❤️

I love your videos so much you make me feel very relaxed and chilled. X

Sending you a big hug. And I am excited about 'that" video.xx

Gorgeous Cat. Hope you feel better soon.

Thank you for sharing. Sending love and best wishes your way for better days ahead 😊

❤️. Bless you sweetheart. I hope you start to feel better soon. Xx

Sending you hugs Kay. 💕

Thanks for sharing. Sending you a virtual hug. ❤

Thank you so much for sharing this, Kay. I don't struggle with chronic fatigue or fibromyalgia, so I don't know how it feels to go through flare ups like this, but I just wanted to say that you NEVER come across as complaining or as finding excuses, so please don't worry about that on top of everything 💛 Wishing you many restful nights and more peaceful mornings!

Thank you for sharing! I resonated with everything you said!

Hope you are feeling much better❤

Thank you!

💕💕💕 hope you feed better soon n take care of yourself 💕💕💕💕

Take care it’s so sad u r in so much pain I have a lot of your aches and pains it is so hard to get through the days thinking of u lots u are doing well to keep going the way u do ❤️😊

Bless you.....lots of love Sue from Melbourne Australia. Xxxx

Sending love & hugs 💖

Take care and take your time, kay, and fingers crossed for your recovery 🤞have a lovely Sunday 💚

We are not alone. Thank you so much for sharing these difficult moments with us.

Thank you for sharing your struggles so openly. Sending lots of love and good vibes your way, and I hope the week ahead will be brighter for you ❤️❤️

Sending you a healing hug.. and Echo is adorable running around like that on the yard.. excellent idea to keep that sweetie safe 🐾

How loving is Echo with you ❣️

Thank you for charing 💕

Thank you so much for this. I feel less alone now 🙏

Thank you so much for this video Kay. I can Totally relate to how you feel & All you e said. you’re not alone. I’m sending you love & hugs 🤗✨💕

I'm glad you are sharing about your illness! You really haven't shared much! It helps for understanding others and normalizing my own issues!

Thanks for sharing your rough moments with us. It does help those of us with chronic illness to see others who are enduring and get tips for self-care and healing. Excited to check out that podcast. Enjoy your day, Kay. 🌸

Thanks for sharing your personal story. Very inspiring! I love how beautiful your garden looks.

Peace and rest to you. Take care of you, sending warm thoughts.✨💫

Absolutely enjoyed this, thank you for sharing. Absolutely excellent video as always, Kay you are such a beautiful person.

Thank you for sharing this with us. I feel your pain and know what it's like to have a chronic illness. My heart is with you.

I am so glad Ive discovered this video and your channel. Finding someone you can relate is so important

💛Thankyou you are truly appreciated.💛

This must be hard. Thank you for explaining it so well. Hope you feel better soon! 💜💜💜💜

Hello Kay ,I'm sending you a hug , adorable boy 😍

Thank you for this. The struggle is real. I suffer from fibromyalgia too.

I was happy to see and hear you were feeling a little better by the end of this video. Hugs to you. Keep doing what you know works for you and keep looking for new things to try. 🤗🥰

I did not receive the help I needed until I switched from conventional doctors to a naturopath and nutritionist. Regular doctors (IME) just know how to throw meds or cut, vs holistic doctors treat the underlying cause. Also functional medicine doctors. I still go to regular doctors but only for what they specialize in otherwise I'm banging my head against a wall. I saw gastro docs off and on my whole life with no results and one month with a nutritionist my symptoms were nearly gone. Just like you the gastro would test, test was normal so they made a throw away comment about maybe changing my diet, but no real info or help in that area- because it's really not their area. Good luck to everyone suffering.

You are such a beautiful person and soul! Thanks for sharing the full picture.

You have encouraged me so much, your are kind and sweet and I am so grateful for this video today. Thank you! ⚘

I love your hair curly! These waves and natural!

I really enjoyed your video. Very helpful to me as I have many of the same symptoms.

Thank you for being so true! You are right to share all the good with all the bad is important, because everything belongs to our lives.❤️

Oh bless you dear Kay, listen to your body and do what you think is right X

Thanks for sharing, I'm in the same situation...