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About PANS PANDAS from ASPIRE 

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Learn more about PANS PANDAS.
PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven categories.
PANS - Pediatric Acute-Onset Neuropsychiatric Syndrome
PANDAS - Pediatric Autoimmune Neuropsychiatric Syndrome Associated with Streptococcus
-Signs and Symptoms
-Diagnostic Criteria
-Disease Course
-Range of Symptom Severity
-Triggers & Disease Mechanism
- Diagnosing
-Treatment
Learn even more about PANS PANDAS at www.ASPIRE.care
Alliance to Solve PANS & Immune-Related Encephalopathies

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26 авг 2024

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Комментарии : 27   
@kebrrrkosplayz7858
@kebrrrkosplayz7858 Год назад
Im 14. I fit into all of these symptoms. Inever acterd or felt the way I do now until after my grandmother had walking phenomena and ever sence I don't feel like I can do anything anymore. Can't eat, sleep, do school in general, feel extremly shy and scared around people I know and trust and the ones I don't know I want to hurt for some reason, cry for no reason, the list just keeps going on and on. I feel SO bad for my father who can almost no longer take my now constant crying and screaming. im on antipsychotics and they don't work. THANK YOU SOOOOOOHOHOHOOO MUCH FOR MAKING THIS VIDEO!
@aspirepanspandas
@aspirepanspandas Год назад
We are so sorry. PANS is horrible. We hope you will be able to access medical treatment too.
@Blu3b3rrymuffinn
@Blu3b3rrymuffinn Год назад
Omg, in 14 and have PANDAS/PANS too!
@GrantAndKelli
@GrantAndKelli Год назад
Y’all are not alone! My daughter is 10 and has been dealing with this for years! Hang in there! As a family of 5 we put our hope in Jesus because when all hope is lost here we know that one day soon we will be with Him and all sickness and disease will disappear!
@Blu3b3rrymuffinn
@Blu3b3rrymuffinn Год назад
@@GrantAndKelli Aw thank you so much! I hope that you daughter is doing okay. I’ve been dealing with it for maybe 10 years. I’m so sorry that you daughter and you and your family are going through this. I hope that you all are doing okay. ❤️
@kebrrrkosplayz7858
@kebrrrkosplayz7858 Год назад
@@Blu3b3rrymuffinn Well I haven't been diagnosed, but thank you!
@cleversmosh
@cleversmosh Год назад
I have pans and was diagnosed nearly 2 years ago now, I recently started experiencing age regression, like really recently, like in the past month or 2. I didn't know it had anything to do with the pans. thanks for educating me on that, so now I can stop worrying it's something else
@caz7363
@caz7363 2 года назад
Thank you for educating me. ❤️
@aspirepanspandas
@aspirepanspandas 2 года назад
So welcome! Thank you for learning.
@lovisaricks9168
@lovisaricks9168 3 месяца назад
Is there a connection to PaNs and pandas and autism?
@RadianceRush
@RadianceRush Год назад
Great video. Thank you
@bobbyjones6066
@bobbyjones6066 Год назад
wonderful video
@adrianarigano1300
@adrianarigano1300 Год назад
Thank you ! 🙏
@Katieriddle-lestrange8716
@Katieriddle-lestrange8716 10 месяцев назад
when i was 3 years old i had strep (i think or another infection ish thing) and i fit into a lot of these symptoms like ocd progressing, severe (seperation) anxiety disabling me almost completely for going to school or other places, i have suspected adhd and i have tics and some other stuff (insomnia and sensitive to light and sound) do u think this could be pans/pandas? i’m not sure because i’m also gifted
@brainwithani5693
@brainwithani5693 Год назад
Is there any research or connections between Thiamine and PANS? I'm looking for answers. My understanding is that pathogenic mutations in the SLC19A3 and SLC19A2 genes can cause issues with processing Thiamine and leads to problems with the basal ganglia, which is involved in PANS. Studies have shown High dose Thiamine and Biotin can help with the inflammation that occurs in this part of the brain.
@hearme4581
@hearme4581 Год назад
Idk but I took antibiotics and they depleted my b1 vitamins and I had horrible mental illness for about two weeks until I need my research on the medication and what I needed. There is alot of pandas symptom that sound like thiamine deficiency symptoms. I would say try methylated b vitamins and see what happens.
@elenam1101
@elenam1101 2 года назад
Are you located in UK?
@aspirepanspandas
@aspirepanspandas 2 года назад
No, we are located in the US.
@LindleyArnold-nc9vy
@LindleyArnold-nc9vy 8 месяцев назад
Me having adhd didn’t help my case
@AlexTch
@AlexTch Год назад
Rife machines should help!
@grrrwah
@grrrwah Год назад
oh. i thought everyone did this 😅
@notkerrystolcenberg
@notkerrystolcenberg 10 месяцев назад
they do, its growing up
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