I've recently been diagnosed with ALS and I now realize that there's, so many things I took for granted. For example, walking without stumbling, eating without choking, working, being able to open your hands. I challenge anyone reading this to figure out what you want in life and keep going after it, because life can be short.
Adam had great courage to share his story! My twin did not want to nor did she accept she even needed to see a Dr until bedridden and her hands were curling up! NO matter how I begged her...she saw a homeopathic quack and was taking over 100 herbal and other types of pills a day. hyperbaric chamber for 1 1/2 hours a day, infra Red sauna, activated charcoal. Colloidal silver and others...no matter what her very own twin asked her to do with getting diagnosed, I WAS REFUSED! She died miserably in an early chosen "Comfort Care and died quite painfully in two weeks! Unreal....ALS must be diagnosed as soon as possible and those people need the BEST CARE AVAILABLE! I have joined the ALS foundation as I was a care giver on weekends....most devastating loss of my life...tore me apart. I cherish very single day on earth and am at peace with her passing now. Its been 4 years!
RIP young man. Thanks for sharing some of his story with us🙏🏼 My wife was diagnosed May 2022 after her first symptoms (drop foot) began in the summer of 2021. We had just married Halloween of 2020. Her spirit remains bright most days. Keeping a smile on her face and comfortable is the daily goal😊 She’s pretty much wheelchair bound and speech is quickly weakening 😔 We listened to some old voicemails the other day and she cried, having forgot what she use to sound like. We’re going on our second cruise in less then two months, have had many parties with friends and family, traveled to Oregon for a month, all so recently! We knew we were in for journey and adventure and she’s doing everything to go out with a bang. She is my hero🥰
God bless. Time is short. I hope you spend it filled with love and understanding. Eat everything she wants. Go everywhere. Never argue. Always holding each other! ❤
@Science Review Thank you. Ironically, today is 2-27-2021. Her birthday would have been this Monday (3-1-1958). She was diagnosed on May 5, 2005. After her birth, she was placed up for adoption. It wasn't out of selfishness. It was out of love because her birth mother was unable to care for her. My aunt and uncle adopted her when she turned one and brought her into a loving home. She passed that love on to everyone that she ever met and never met a stranger.
I cried my eyes out... what a wonderful spirit he had. I can't wait to see you in heaven one day, Adam! Thank you for sharing your story & making me aware of so much. Your voice is still heard and continues to carry great purpose. ♥✨
The one commonality that I have noticed is that people with ALS can still smile even as the disease progresses. The other is how strong and somewhat accepted they are. Sorry for your loss family and friends.
"This is where im coming to die" OMGUDNESS.. THAT MADE MY HEART CRY!!! I wish I could HUG CERTAIN PEOPLE THROUGH MY SCREEN!!! TRULY IDO!!! that would be 1 wish I would want to come true!! So many SAD STORIES LIKE HIS ON YOU-TUBE... SO MANY PPL ID LOVE TO COMFORT WITH JUST SOME LOVEEEEEE FROM MY HEART!!!!
@@shawnmcanthony5724 thank you.. but it's just my feelings with the heart the good lord gave me.. I've been told way too many times that I'm way too sensitive.. but I think I'd rather stay that way then be like some people now a days.. know what I mean??...I have so much love in my heart... before I became disabled at 29.i worked in the nursing field..I would bring my children to work with me... my oldest daughter is now a nurse...❣️❣️ to me bringing my Littles with me to work taught them the most kindest of compassion... and a different kind of love ❤️
@@barbaraspieler1222 Barbara my wife is a mid wife an i can tell you she is the sweetest person i have met. Nursing i believe can mold someones personality. She loves what she does.keep on being sweet . Soon at isiah 33:24 it says no one will be sick in jehovah gods new world right here on earth like in the garden of eden.The blind will see again and the disable will run an skip about.
@@ruby4761 nah stop eating non human diet, every thing will be fine. The body heals itself when provided with right diet. See the gospel of peace for perfect human diet.
My father was diagnosed 4 years ago.He can't do anything for himself.He can't walk,his speech is barley understood,he drools alot and just wants to die.He hates the life he lives.It's such an awful disease.I wish he had the "I'm not going to let this disease stop me from living life" attitude but that's not the case.It's so sad and depressing to see him this way day in and day out,as I am his caregiver.I can't begin to imagine how he feels.We need to find a cure for this awful disease!
It absolutely is such a heartbreaking, devastating disease. A positive attitude can only last so long when your body is being taken from you. I pray you have much needed support. Cherish your time together (as I am sure you are).
I can relate, I lost my dad to ALS too. I know the struggle and don't be afraid to ask for help. Caregiving is both emotionally and physically challenging with no breaks, full time, stressful and depression can set in. Do you have anyone helping? Is you father still with us?
I just watched my dad die this weekend over this horrible disease.. My Dad was my hero and he chose they way he wanted to go.. He didn’t want a Vent and it was that time..
It hurts me and I cry so hard. All these people are gone. All these videos I watch they have all died. Where is the hope? This is the most hopeless disease.
I watched a bout a young woman at the age of 16 trying to fight this awful &’horrid disease. It honestly goes to show, this disease doesn’t discriminate against age, race or gender. Unfortunately this youth died within a year from ALS. But her story will always be embedded in my memory
Dude I’m dying of autonomic neuropathy been sick almost 9 years it’s a Fucking nightmare please try to find the will to not take your life man life is and can be very beautiful if you open your self to it and make it so … yeah it’a not always rainbows and unicorns but the other option is forever no matter what all the Bible beaters say there nothing else after this so live this one hard and compete
