I asked some lovely people living with Erb’s Palsy to offer some advice to children with the same problem. Hopefully this will be useful and a source of motivation and inspiration.
I have erbs palsy in my right arm the biggest thing I have learnt is not to say I can’t do it or just give in , I’m trying to bulk up and can see improvement on my erbs palsy side slowly , I try to do everything in the gym , I’m not bothered what I look like when I excerise , I know I can achieve what I want so I keep going , never give in or say I can’t do that because you can !!!!!
I am sitting here with my 12 year old son and my goodness you have no idea the tears that this brings with so much joy ! Sir i have no idea who you are but the world should know ! you are amazing for making a video like this for our children and all the videos you make ! I thank you with all of my heart !!! We plan on doing your exercises as well!!!!
Seeing all these women encouraging us was so inspiring. I can already tell why men with Erb's palsy feel more ashamed or insecure about putting ourselves out there. As men, we are told that we need to be strong and competent. Having a weaker arm is not something we are comfortable with displaying out in front of everyone. Since following your channel, I have sincerely started going to the Gym on a regular basis... and overcome my insecurities to some extent.
Thank you for making this video. My daughter (now 2months old) was born with a BPI and this video is wonderful and inspiring. It will be great for her to see others doing great things and achieving their goals. Thank you for making all your videos. Keep up the good work.
I appreciate you sharing your story and helping to spread awareness about Erb's Palsy. My 17 month old son has it and, honestly, its just now really sinking in as to how it will affect him in so many ways for the rest of his life. He could not even move his affected arm at birth. With 2 therapy sessions each week (occupational and physical) and working with him at home he's made great progress. He can now move the hand and arm (with limited function) and grab toys with both hands. He had an MRI a few months ago and it showed damage to the C5, C6, and C7 nerves-with the C7 being the worst. There is still a lot of swelling and most likely there was an avulsion or complete tearing of that nerve. This affects his ability to extend his arm at the elbow-reaching out or up. Since the nerve has been torn it will not heal on its own.. I believe I will get him tendon surgery when he is old enough, which should help. 🙏 Thanks for doing what you do and God Bless!
Thank you so much for this! My middle daughter was born with erbs but we worked with her quite a bit as she has been growing. She is 6 now and has wide range with the effected arm but does occasionally have issues. She was stuck on my pelvic bone during birth, her left arm. We nearly lost her. But she is a fighter, she's such a blessing, and her own kind of drama queen as well lol you cant tell most days but I've been really worried due to lack of the doctors involvement and just us at home doing physical therapy she could I guess regress on the progress she's made. So we've been researching past few years to just learn more. Experience from the person is so wonderful! Thank you so much!
WOW! My son is 12 and wants to play you have no idea what this comment means to us as we sit here and watch this video and read comments! Good for you !!!!
my baby has has erbs palsy on his right arm he is also preterm baby with GERD . I do his exercise daily know he is 4 months old he use both of his hands and bring to his mouth but still has some limitation and his wrist somehow is drop . thank u for sharing videos
