Amazing video thank you from the bottom of my heart for sharing. I subscribed. I am going to also follow you on instagram. So excited I found you!! YES mine have gotten worse with age. It makes birthday so bittersweet. Oh my goodness, so devastating. I am deeply sorry you had this experience. It is sick how no one listens. I have POTS (I do iv fluids for mine), Mast cell, EDS, and a few others too.
just keep going hun, it might not get any better soon but sorround yourself with people you love and care for and make sure they return the feeling back. the whole community is here for you. I'll be praying for you. live life to its fullest even with the limitations.💓💓
You did a really great job. I have lupus fibromyalgia migraines thyroid disease diabetes cancer I feel your pain sweetheart what can get through this keep making the videos and I'll keep watching thank you for being so positive and sharing take care
Actually you are amazing 😍😍,stay positive ❤,and always remember that God is always standing by your side and will never leave you one second 💕💕,Love you so much💙, and by the way you are so gorgeous ❤✨!
Thank you so much for this video! I’m a 9th grader and I have been sick for 2 yrs now. I have celiac, EDS, POTS, SPD, and asthma. We think I have MCAS as well. I’m seeing a specialist in 2 weeks! I’ve started having allergic reaction (sometimes severe) every. Time. I. Eat!! I also react to scents, toothpaste, heat, and my own tears as well! It’s just great to hear of someone in a similar situation. I will definitely be going to follow u on IG!
Well done. I think this is really helpful for others similarly ill (whether through vaccine injury or other cause) and their families to help understand what they are going through. Unfortunately, with my daughter, I can relate to much of what you say - but she won't talk about it, so hearing you describe so well what it all means - the sensitivity to noise is a big one - and light - has really helped.
Nice video! Only one thing I would clarify- celiacdoesn’t vary in severity, it just varies in how symptomatic people are to small// large amounts of gluten. I say this as someone who has had celiac since I was one year old. Other than that, I love the video, thanks for spreading awareness!!
im glad you made this channel I have 2 of your chronic illnesses and i know it is about Doctor's not listening and thinking you're crazy it took 8 years(age 18-25) for get diagnosed with 8 different chronic illnesses
Bless you, you are so sweet. We have alot of the same conditions and it's a massive struggle. People only notice when yr fatigued but pain u cant see or high HR and Low BP (well I have that) I look forward to following you lovely. Soft hugs and make sure you get rest as all this blogging can take it out of you. Xx
Thank you for your video.Ive been in ER so many times.They've told me that i need to see a therapist.You give me hope that a Dr will help me find out what my underline illness
Great Video and advice I have continued chronic illness and pain my started very noticeably at 22 and 23 but I had mild symptoms since childhood. I support you #spoonieforlife 💜💜💜
Hey, thanks for sharing your story! Have you thought about starting a Twitter account? There's a really big chronic illness community on there, it's super friendly
