Тёмный
No video :(

All That You Can't See: Living with Ehlers Danlos Syndrome [CC] 

Chronically Jenni
Подписаться 9 тыс.
Просмотров 6 тыс.
50% 1

All That You Can’t See
Living with Ehlers Danlos Syndrome
A Radio DocuDrama Produced by Jenni Pettican
Presented by: Tom Rowntree, Verity Hodgson-Bajoria & Shem Jacobs
Dr Edvard Ehlers Played by: Markus Dalum Tilds
Dr Henri Alexandre Danlos Played by: Jacob Simmons
Huge Thank you to my wonderful dazzle of Zebras for sharing their stories:
Kilynn, Georgia, Sydney, Rachel, Shannon, Stacey, Catie, Brittany,
Rachael, Amy, Poppy, Kim, Laura, Gemma, Cosima,
Martin and Carol.
To Find out more about Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder please visit:
Ehlers-danlos.org and Ehlers-Danlos.com
To find out more about Jenni and her fellow EDSers please visit:
/ chronicallyjenni
Please donate to my All That You Can't See Fundraiser so people can get the awareness, understanding and treatment they deserve. www.justgiving...
I made this radio docudrama for my final piece at university. After trying to write a play about the symptoms of EDS & POTS I thought it was more important to be informative. I hope this helps you, or someone you know, learns a little about what EDS or HSD is but also gain a deeper understanding from the stories shared.
Onwards
If you'd like to support this project please take out a free trial of Audible Audio books here:
www.amazon.co....
You can also find me on other social media:
Facebook: / chronicallyjenni
Instagram: / chronicallyjenni
Twitter: / jennipettican
Facebook support group: / 785786465114178
Mixcloud: www.mixcloud.c...
Email: chronicallyjenni@gmail.com
Patreon: / chronicallyjenni
Kit: www.kit.com/ch...
Blog: www.chronicall...
Music Credit: Scott Buckley - www.scottbuckl...

Опубликовано:

 

23 авг 2024

Поделиться:

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист
Посмотреть позже
Комментарии : 43   
@boomshackalaka450
@boomshackalaka450 10 месяцев назад
This is an incredible collection of experiences and I’m so grateful I got to hear them. I’m bawling my eyes out at 4am in bed rn for every one of us who suffer from EDS and similar conditions. There’s a fire inside of you, the determination not to let the struggle defeat you and I know for certain that I’ll be back to listen many times more in the future when I need to borrow a little of that fire for myself. There will come a day when adequate treatments for this thing are found and I plan to be around long enough to see it. Stay strong and may you find a path to wellness.
@Luma994
@Luma994 5 лет назад
Oh how I cried. From recognition, from hopelessness, from hope
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
You are not the first and you won't be the last, I should probably attach a warning. There is always hope! Spoons & Love xxx
@gordonwybo898
@gordonwybo898 5 лет назад
This says and explains so much!!! Great piece to share with family and friends. Thanks again for your gift. This will definitely go far to bridge the gap in communicating with non-zebras.
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much. I really hope it helps. This is exactly the response I'd hope for x
@oliverclimbsV3
@oliverclimbsV3 5 лет назад
This is beautiful and really well made. They should definitely play this at future EDS conferences
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much Oliver! I'd love that x
@penelopepolinsneemeyer4757
@penelopepolinsneemeyer4757 5 лет назад
What a great report. Thank you Jenni! xxxxxxxxxx
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you
@gypsy197d
@gypsy197d 5 лет назад
This was awesome. Great job. I think every person with chronic illness' family should hear this. To even know how hard every day is but we still do it. "Just at a new pace"
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much! I really hope it can be heard by lots of families so they can understand a little better. Spoons & Love x
@kristinwallace6551
@kristinwallace6551 4 года назад
Thank you for making this amazing video! Much love from a classical zebra!
@ChronicallyJenni
@ChronicallyJenni 4 года назад
Thank you so much for listening Kristin! Spoons & Love x
@24hoursayear
@24hoursayear 5 лет назад
Jenni this is outstanding. Educational, touching and SO well produced. This is broadcast quality! UEA better give you a good mark for this, or I'll come back and have some strong words.
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so so much Josh! They gave me a first for it don't you worry :P x
@24hoursayear
@24hoursayear 5 лет назад
@@ChronicallyJenni the better Fucking have
@katkaplan3
@katkaplan3 5 лет назад
Yes! Amazing and thank you! This will help my family and friends understand me better.
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Yay I'm so pleased! Let me know what they think x Thanks Kat x
@nikolainewton2295
@nikolainewton2295 4 года назад
The last time my neck was straight and no pain was 1989.
@ChronicallyJenni
@ChronicallyJenni 4 года назад
I'm so sorry Nikolai I hope that one day you might be able to find a little relief. Spoons & Love
@nikolainewton2295
@nikolainewton2295 4 года назад
@@ChronicallyJenni Thank you
@mariaelenabartesaghi6322
@mariaelenabartesaghi6322 8 месяцев назад
Omg. Yes
@hereternalsummer8224
@hereternalsummer8224 4 года назад
This is incredible Jenni! I found your youtube through a fb group btw. So happy I found you! I just started my channel and want to find others who are passionate about education around this. Thank you for making this! It's soooo important!
@ChronicallyJenni
@ChronicallyJenni 4 года назад
Aww Thank you so much!
@karenbell3911
@karenbell3911 5 лет назад
Congratulations! This is beautiful and powerful. I hope this can go far and wide! Xxx
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much Karen x I hope so too x
@lindapriest9779
@lindapriest9779 5 лет назад
This hits every nail on the head! Thank you so so much! Brilliant! X
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much Linda
@GeorginasJourney
@GeorginasJourney 5 лет назад
This is fantastic Jenni!!!
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much lovely 💜
@mariaelenabartesaghi6322
@mariaelenabartesaghi6322 8 месяцев назад
THANK YOU.
@mariaelenabartesaghi6322
@mariaelenabartesaghi6322 8 месяцев назад
I understand. All my ❤
@ClaireGraceMarshall-jr5mm
@ClaireGraceMarshall-jr5mm 7 месяцев назад
Im beginning to think this could be possible for me as well, after the new year my husband and i will go to thr Dr amd start up tests.
@life-gs7zr
@life-gs7zr 5 лет назад
Aye
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
eh up
@life-gs7zr
@life-gs7zr 5 лет назад
Love the video
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Thank you so much
@life-gs7zr
@life-gs7zr 5 лет назад
Np I love watching videos about chronic Illness and I don't have any chronic illnesses or disabilities besides ahstma ADHD OCD I still like to learn about chronic Illness and disease bc of my sister she has a rare amino acid disorder called Hyperprolinemia type 2 only 3 people in the US have it including her. She also has ADHD, epilepsy and Cerebral Palsy the her feet she just walks a bit crooked her Pituitary gland is not the way it should be and her bone density is weak
@ChronicallyJenni
@ChronicallyJenni 5 лет назад
Wow. Lots of spoons & love to your and your sister. I'm doing a series soon featuring people with lots of different conditions so hopefully you'll find that interesting. x
Далее
ОБЗОР ПОДАРКОВ 🎁 | WICSUR #shorts
00:55
My Mobility Aid Tour
24:13
Просмотров 2,6 тыс.
Bend or Break | EDS Documentary (AWARD-WINNING)
39:57
Просмотров 186 тыс.
Ehlers-Danlos Syndrome in Gynecology
15:11
Просмотров 59 тыс.
My hEDS Story
20:01
Просмотров 2,6 тыс.