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Amyloidosis - Rare Disease Day 2011 My Story 

Julia Gabriel
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A short vlog about my Dad`s battle with Amyloidosis. Please visit www.nugglemama.ca for links and more information.
Facebook Support Group / amyloidosisawareness
Music is Don't Give Up (Peter Gabriel and Kate Bush song) and used as a "for fair use in article" sample.

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26 фев 2011

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Комментарии : 15   
@privateuser3859
@privateuser3859 3 года назад
Your emotion made this one of the most effective videos on disease awareness I've ever seen. I'm so sorry your Dad, and you (because he's your loved one) are suffering because of amyloidosis.
@josephjrmondo1127
@josephjrmondo1127 2 года назад
.....you are a brave person. Your family would be proud to have you, more so your father.
@nugglemama
@nugglemama 12 лет назад
Treatments have come a long way since my Dad was diagnosed even. Have you joined the Amyloidosis support group on Facebook? They are a good bunch. I have left the link in the video description.
@shandusa
@shandusa 5 лет назад
Thanks for sharing your father’s story
@Kizzulady
@Kizzulady 11 лет назад
I cried watching this. My father has this same dicease. I don't know how I can make it through all this.
@jagrajsingh6494
@jagrajsingh6494 4 года назад
One day my mother had hyper-pigmentation in her lower leg, severe itching along with redness. We took her to the Doctor. He prescribed her some anti-allergic like cetirizine, she took this medicine daily for about 7 days. As soon as she stopped the medicine, relapse occurred. One of my friend told me about Planet Ayurveda. I thought of trying it, we went to Planet Ayurveda. Dr. Vikram Chauhan prescribed my mother with 'Amyloidosis care pack'. Now she is very much fine.
@akbarivohra4194
@akbarivohra4194 4 года назад
My mother suffer from amylloid protin with aa... And Dr ask no treatment for amyloide
@roundpatty
@roundpatty 12 лет назад
You're very brave, sorry about your Dad. My Mom has it, she was just diagnosed a few months ago, but hasn't been feeling right for at least a year. Thank you for sharing this. Take care. Pat
@akhtaraurakzai4694
@akhtaraurakzai4694 3 года назад
Hello every one , I am daignosed with Amyloidosis primary type AL on 27th October 2020. Now i am on chemotherapy. Doctors has planned autologus bone marrow transplant after complication of my chemotherapy. You all are requested to pary for my full recovery. Thank you.
@elliotbigland4300
@elliotbigland4300 4 года назад
I belive i have amyloidosis but even bringing the subject up with my doctors i know how it would go down they would not take me serious but im 90% i have this or cancer
@ramonab2029
@ramonab2029 3 года назад
see a professional: it's very important. It will do a kidney or other biopsy in order to rule amyloidosis out(there are many types of amyloidosis)or more simply a Serum Amyloid A (SAA)( blood test.)
@beatlejuice42
@beatlejuice42 4 года назад
Thank you for you video. I have just been diagnosed w/al amyloidosis. It’s hell. Is he still alive..?if not I am so sorry. I am sure he was a wonderful man
@juliagabriel9758
@juliagabriel9758 4 года назад
He is still alive, but facing kidney failure and dialysis.
@MOJORAPSCALLION
@MOJORAPSCALLION 4 года назад
The links don’t work 😢😢😢
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