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An Update on Fibromyalgia 

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Fibromyalgia is a mysterious disorder of unknown cause characterized by widespread pain, abnormal pain processing, sleep disturbance, fatigue and often psychological distress. According to the CDC, fibromyalgia affects an estimated 5 million adults. Dr. Sean Mackey, assistant professor of anesthesia at the Stanford University Medical Center, discusses our current understanding of this cryptic disorder: its pathology, diagnosis and treatment.

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30 апр 2009

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Комментарии : 598   
@kathymcgirt8944
@kathymcgirt8944 5 лет назад
Umfortunately I am too freaking smart for my own good. You can’t convince me not to believe what I feel, so I can’t pretend I am not in pain. I can’t make my brain go with the ‘how much pain you feel is how you think about it’ stuff. It hurts. It keeps hurting. I can be reading the best book in the world, and I still hurt while I am laughing and enjoying myself.
@estherk7484
@estherk7484 2 года назад
Wow Kathy…unfortunately, you just don’t get it….and you never will.
@alexandriawoods2558
@alexandriawoods2558 2 года назад
Agreed
@dp1275
@dp1275 Год назад
Yep if you’re in pain for 30 years, u find a new normal. Thing is , I don’t want this life. It effects every aspect of one s life. Everyone
@wvjaybird5
@wvjaybird5 Год назад
@@dp1275 Hopefully humanity will soon find some relief for long term pain. I hope you find that relief soon. 😢❤
@JulieTobin-Ruszczyk
@JulieTobin-Ruszczyk Год назад
The brain is much more powerful than you think
@carolynsmith9972
@carolynsmith9972 4 года назад
Honestly, the chronic fatigue is almost as bad as the pain! Last month, I actually was standing leaning against my refrigerator and fell asleep, and slid down the fridge, catching myself as I almost hit the floor. I went to bed, in tears...this was day 4 of fatigue beyond belief. And I had been sleeping pretty good (for a change) at night, that week. It’s so debilitating and depressing.
@debbypolk5457
@debbypolk5457 Год назад
I had to abandon my whole way of life and basically take to my bed. I pray for some kind of miracle. I am very enlightened by this video. I had no idea this disease was so complex. Thank you
@davidkruse4030
@davidkruse4030 Год назад
Sounds like narcolepsy or cataplexy
@fibromyalgiasucks2326
@fibromyalgiasucks2326 6 лет назад
A lot of information there. Hoping either a cure or a viable solution gets us all out of bed, reduced or removed pain and our lives back. Fibromyalgia ruins every aspect of our lives and more need to be done to understand it. And those doctors even to this day still say its in your head and you need to get out and exercise should lose their license. Those few words can cause SO MUCH HARM! After two different doctor in two different years told me those words I nearly killed myself. How at that time could I exercise if I couldn't get from my bed to the bathroom???`???
@animeart1703
@animeart1703 5 лет назад
Fibromyalgia Sucks makes me laugh when a doctor says do more exercises lol yeh right how the hell can you exercise whilst in agony even if you get a good day okay are do some gentle exercises ok not to bad next day even more pain Carnt win I’ve had this for 5 years about to try 3rd lot of medication cause there shit even made me put on 3&half stone
@musicloverforever8475
@musicloverforever8475 5 лет назад
@Kevin G , thanks Kevin, I do have all of these things also , I just started taking ibuprofen again after 35 years this week and my hands are more swollen, floating in blow up pool all week which was no help ,this last few days, I could have sawed my arms feet and hands, though don't have the strength, the pain is relentless, I hope you, and everyone suffering from this, has a break from the pain, that was my prayer today to give me a break from it , I hope you had a wonderful New Year,cheers from Australia
@musicloverforever8475
@musicloverforever8475 5 лет назад
@@animeart1703 hi, I hope you get a break from the pain soon,
@marydelgado7187
@marydelgado7187 5 лет назад
Fibromyalgia Sucks hey there. Your right fibro does suck . First off I’m so super sorry that you got two stupid doctors and I praise God that you’re still hanging on . YOU ARE NOT ALONE!! Unfortunately I wish I had a cure all for you but I know all to well how annoying it is when someone tells me what I should do . I believe that there WILL one day be a cure ,until then all we can do is be there for each other and I pray .soft hugs and prayers to you . God bless.
@musicloverforever8475
@musicloverforever8475 5 лет назад
My prayers and thoughts to all , and those suffering from fibromyalgia , I have been bed ridden all of 2018, I don't believe the chemtrails are helping me either, since they've bumped it up a few notches, the spraying here is bad and I believe it's been making my inflammation 10 times worse, take care
@catheyderosa9594
@catheyderosa9594 9 лет назад
This is the by far the best information I've heard on Fibromyalgia. I actually feel like there could be some hope. I've been ill with Fibro and all it's ugly following disorders for 18 years. I am definitely looking into the study. I am on Disability and my life has been ruined due to these DISEASES. Thank you for a glimpse of hope and for your dedication to the research of this bizarre group of diseases. I am so grateful. Even if it isn't approved in my lifetime, there is always the other generations which will benefit.
@wvjaybird5
@wvjaybird5 Год назад
Doctor, you have a special place in heaven. Your compassion, care, concern and empathy for people in pain is so evident in your presentation. Thank you. This gives me hope for humanity as well as hope for getting out of chronic pain one day. May the creator bless you and all the healers in this world.❤
@Braiella
@Braiella 11 лет назад
Don't give up! Don't give up. I have been misdiagnosed since 2008, first with possible lupus, then rheumatoid arthritis.. those were devastating enough. After all these years, my doc finally sat me down and explained I have fibromyalgia, CFS and osteoarthritis. There are good days-weeks.. and bad days-weeks.. sometimes months. I understand your feelings of isolation, depression and have thought so many times of just ending it just to make it stop. We have to fight together. Don't give up.
@ibrowzbmx4life
@ibrowzbmx4life 11 лет назад
Very informative and well done! Thank you Dr Mackey for sharing your time and experience with this. It is so nice to feel validated and your long term brings me much hope! Thank you again!
@odonata9838
@odonata9838 5 лет назад
The best video on this subject so far. Thank you! My symptoms feel relief just listening to this lecture.
@gorealestate
@gorealestate 13 лет назад
Absolutely awesome lecture on Fibromyalgia! Thank you for such great, accurate info!
@debanjanmondalphysio
@debanjanmondalphysio Год назад
Best information about fibromyalgia. I recommend this video to all my fibromyalgia patients.
@MarilynneGrahamTimco
@MarilynneGrahamTimco 12 лет назад
thank you for this video, yesterday my son and I watched it together for the first time together and it made him understand more of what I am going through....I do believe a new door has been opened.....
@lisap3344
@lisap3344 4 года назад
Awesome, finally someone who is onto this !🙏👍🏻
@Brockt87
@Brockt87 5 лет назад
There are multiple methods for resolving fibromyalgia I’ve seen for myself, that actually work in many, and some in most cases and they are explained below. It often has multiple aspects to it requiring more than one method for healing. MD’s very rarely have the skill set required unless they are a functional medicine doctor, who often do along w natural Paths experienced w fibromyalgia & some mainstream medical doctors who have learned so called traditional methods are useless for most chronic conditions and have found what actually works. I’ve had fibromyalgia for 25 years, and have been aggressively looking for a root cure. I’ve been studying natural medicine since hearing of fibromyalgia being cured by it 15 years ago, and my mother was able to cure hers w just what I learned in the first 6months. Since then I worked 5 years in a residency clinic for doctors of natural medicine & saw them cure people no one else could. I’ve been an exceptionally tough case, and I was t one of them, but I had a dozen doctors who taught & trained new docs I learned from and help guide my own research and 100s of things I’ve tried. There’s been cures out there a long time but they don’t get publicity. There’s limited money in cures & so much in have an expensive issue for decades. Dr. Daniel Dantini has a 70% cure rate w fairly heavy rounds of viral meds & food sensitivity identification and avoidance. He reversed his arthritis after an elimination diet showed which foods he was sensitive too, after needing a double knee replacement at 35, and has his b4 and after xrays from another doctor. Almost everyone w fibromyalgia has food sensitivities causes by candida and/or 1 of 4 viruses still active in our symptoms. I had 2 friends who worked w him or years and saw him cure 100s if not ,1000s. His book explains how to get his protocols handled w ur own doctor, if they’re no open minded enough u can find one who is. I didn’t respond to the protocol but asked to try Armour thyroid & 25 years of energy issues disappeared in less than an hour & pain was down 80% within 6 weeks...until they changed “a binder” & it completely stopped working. My doctors had all said my thyroid was perfect for 25 years as well, but a chiropractor had found a few years early this was not true. Over half of thyroid issues are undiagnosed & their #s are calculated into what is considered normal. Everyone of the tens of thousands w fibromyalgia Dr. Tenenbaum has worked w had substantial candida overgrowth, usually systemic, which actually causes full fibromyalgia symptoms in itself. Unfortunately, most mainstream MDs deny systematic candida is possible outside of the ICU, while functional medicine & other holistic doctors know it’s extremely common, especially in those of us w chronic issues and treat 1000’s of cases. I recently had not choice but to reluctantly take antibiotics, which is almost always what causes candida overgrowth in the first place and had a drastic increase in candida and the same drastic increase in fatigue joint pain brain fog and muscle pain, related to activity. I’ve tried almost everything including pharmaceuticals, which are actually less effective than natural methods of reduction and very toxic and hard on the system I t’s a fairly long process that must be taken slow and first and gradually increased. Biofilm must be dealt with or much of it will survive understand shield and come back as soon as it’s not being hit w antifungals(Candex is the best supplement for this according to many experts in this area who don’t sell), multiple antifungal herbs are almost always required(Purely Holistic has a really good one 120 tabs $20, probiotics are a must along w a low carb high fat diet, free of yeast containing foods like cheese bread most vinegars & especially alcohol. PB8 is the best probiotic for the $ and often less than $10 for a bottle of 120, but the best method is usually to make ur own own Kefir Milk or water kefir with real kefir grains. Some natural-Paths recommend going slow at first since it has trillions of probiotics in a serving, and anything that combats candida can cause die off symptoms from the extra toxins released when they are killed. Saccharomyces Boulardii, is a Probiotic that actually eats candida & quite a few pathogenic bacteria including C-diff. Usually even beneficial yeasts aren’t a good idea w serious candida but this one is recommended by the best specialists out there for candida SIBO and as a great probiotic to take during antibiotics, if they absolutely must be taken. Out of everything I’ve tried to combat Candida die off, which can be absolutely brutal in the beginning if u don’t start very slow, Thorne Research - Molybdenum Glycinate 1mg capsules are by far better than anything else I’ve tried. Highly recommend at least getting a bottle to have on hand, and they’re only $11 on Amazon. Just taking 1 w antifungals is often the difference between no symptoms and feeling rough, but when I’ve had really bad detox symptoms, taking 4 on an empty stomach eliminated 80-90% of them in 15 min! That, staying very well hydrated, going slow, and taking less antifungals when not taking them w food have been the main keys to not getting sick. Also look into upper cervical chiropractic. This cures my migraines and most of 25 years of back pain. Didn’t even have any real issues w my neck, but neither do most others w fibro & one doctor found 90% of his patients had up cervical issues that were causing many of there symptoms. I didn’t think I had issues w this or any of the other things that turned out to be at the root of serious fibromyalgia arthritis migraine etc symptoms & many of u probably don’t either. It’s case is a little different but a VERY high percentage Of us have all of these issues that most doctors will tell u they’ve never heard of them, or they don’t really exist if they have. I’ve learned to follow the evidence of those who are getting cured, or curing others, or at least getting huge improvements in symptoms who just covering them up. This is all the info most will need to be able to look into it for themselves and get better. I’ve also found many incredibly useful supplements for fibro related symptoms like reducing arthritis joint pain allergies over 90%, after experimenting w hundreds that were useless or only had limited results. Let me know if u have questions or found anything else w profound results
@jeannettegrondin7190
@jeannettegrondin7190 3 года назад
You should have ur own channel. You can help so many people. You have a wealth of information that will help. I so believe in all u have said. Where should one start ?
@diannetedesko1923
@diannetedesko1923 2 года назад
@@jeannettegrondin7190 ‘
@estherk7484
@estherk7484 2 года назад
Geez Brockt…..have you ever given any thought to writing a book?!?!
@richcarson6899
@richcarson6899 11 лет назад
I loved this Fibromyalgia video by Stanford's Dr. Mackey MD, PhD, covering pain, genetic predisposition, disease mechanism, and most importantly, treatment. - Rich
@dprideaux
@dprideaux 13 лет назад
Wonderful way to accept fibromyalgia. I never thought of it in this way. This should be of great help to all of us who suffer. Thank you for such wonderful information.
@bunnyjeanne4
@bunnyjeanne4 13 лет назад
This is the best explanation I have seen for Fibromyalgia. I was dx in 1998. Please keep researching it is so hard to get doctor's to listen and believe what we are going thru sometimes. I have added this to my blog where I advocate for understanding and research. Once you have a cause we will defitely be able to receive more complete treatment to keep control of ourselves
@tinaayer801
@tinaayer801 2 года назад
What a great reasercher. Thankyou for this. You can do a lot in medicine when you have an open mind.
@deanna.mdeason2361
@deanna.mdeason2361 8 лет назад
Thank you and bless you for not giving up on us!!!!!
@douglasmartin5453
@douglasmartin5453 8 лет назад
If you have Fibromyalgia, there are many ways you can improve your lifestyle and your symptoms. Jenny Prokopy shares her ideas for increasing your activity level, bettering your diet, and discovering new relaxation techniques. Check out: fibromyalgia.cf
@lisap3344
@lisap3344 4 года назад
I do appreciate your dedication as I am sure all fibro patients do.
@FIBROMOM
@FIBROMOM 8 лет назад
Fibromyalgia - the other F word
@stevechoinski2701
@stevechoinski2701 8 лет назад
True story
@joelleenbeanks3767
@joelleenbeanks3767 7 лет назад
I love you... me biolgician fighting fibo for 10 years.I would assign 3 FFF ....s to it all.
@everevelyn1094
@everevelyn1094 6 лет назад
FIBRO MOM you got that right!
@honerdcouster8723
@honerdcouster8723 4 года назад
Touche'
@Queenalika85
@Queenalika85 3 года назад
Hello my name is Nyesha Brooks and I live in the United States, Philadelphia Pennsylvania. I wrote a book called Aaliyah's Invisible Illness. It centers around a teen girl who goes through the twist and turn of living with a sickness. I have a chronic illness known as Fibromyalgia and that why I wrote the book. I'm hoping to spread the Awareness about Invisible Illness and give people hope. My book is available on Amazon for an affordable price. Thankyou
@PechilvrsPreciousPeepsNursery
@PechilvrsPreciousPeepsNursery 5 лет назад
Times for update....it's 2019
@marleneholloway7775
@marleneholloway7775 Год назад
It's now 23.
@katiahurtado6598
@katiahurtado6598 7 лет назад
Such a great video! Thanks.
@caroldeans5363
@caroldeans5363 3 года назад
Has anyone tried the LDN that the Dr. is discussing here? Did it help with fatigue? I have had Fibro for 28 years and I had to quit work several years ago. It is so bad that I can go for days with barely being able to get out of bed enough to take a shower, make a sandwich and lie back down. I used to be so active. I was a counselor for domestic violence victims. I was a victim in my first marriage and this lead to my Fibro. My pain is so bad, that I wrap up in heating pads and electric blankets, do deep breathing, relaxation techniques, self good talk, all the things i used to work with my clients as a counselor. I so want my life back. Just being able to even go to church now would be great. I got so weak and the pain so severe that I had to quit driving. I am totally homebound now. I seldom go out, unless it is to a doctor. It just takes too much energy to get ready. Also, does anyone else have problems with their family members or friends, simply not believeing that Fibro is real. I have that problem for real. They simply feel it can't be real. I am afraid it is all too real. thanks everyone have a great night. I do thank God each day that I am still here to feel pain, as my first husband tortued me so badly the last night I was with him, that I nearly died. God delivered me and my children, when he died. My second husband was a wonderful Christian man and he died in 08 from a kidney transplant. But I am so fortunate to have three great kids and six grandkids.
@kimberlyhortz6471
@kimberlyhortz6471 2 года назад
I hope you are better now. Domestic violence is very hard on people. I have fibromyalgia to and I had to quit working because of the pain. I believe that God can heal anything. So I will pray 🙏 for you. I was married to someone who tried to hurt me too. God saved me from all of that. God bless you.
@barbaracoleman7919
@barbaracoleman7919 10 лет назад
Best summary of FM I have ever heard!! I will be trying LDN soon!
@Susdenfann
@Susdenfann 11 лет назад
I'm so glad I watched this video. I was diagnosed with fibromyalgia two years ago. While I have read quite a bit on it, this video touched on things I had not seen associated with the disease before. I'm now more convinced than ever that my doctor made the right diagnosis! Thanks for putting this on the internet!!
@lunacyinpoetry
@lunacyinpoetry 14 лет назад
This is fantastic. Thank you so much.
@jillharding2991
@jillharding2991 4 года назад
Fibromyalgia started after I had 10 hours bowel surgery. Up until then I was a senior nurse doing 12 hour shifts, fit and healthy until I was 44 and had that operation. I spent 4 years trying to get my energy back... I never did.. now 8 years later I'm riddled with pain, frightening muscle spasms and chronic fatigue it has destroyed my life. THIS ILLNESS IS LIFE CHANGING.
@mawg7598
@mawg7598 3 года назад
Great video and gave me some options to consider. God bless you n yours.
@LGH764
@LGH764 11 лет назад
Any chance of doing an update on the update? This is still one of the best educational videos for new patients & their friends & family that is available despite its age now & it would be wonderful to find out what progress has been made since 2009
@deborahhawkins4531
@deborahhawkins4531 9 лет назад
Good video, did not cover all the symptoms, but generally a good video. I have had the condition since 2002 and do not take any medication due to severe reactions to drugs.
@joycestites2075
@joycestites2075 3 года назад
I was diagnosed with fibromyalgia in the early 90s. I have pain all over my body. I’m 73 and I’m nearing the wheelchair era. The doctors here in my small town doesn’t know enough about it. I remarried 2 years ago and it’s gotten worse. Do you know that hundreds of doctors in Dallas Tx have excluded it from their practice!!! This video has helped me so much.
@catherinemoloney1336
@catherinemoloney1336 5 лет назад
Amazing talk. I don't have firomyalgia but I do have postherpetic neuralgia and so have chronic pain. Not sure if there is a cross over but I really enjoyed this talk - I felt like it was the pain I feel that you were talking about. Thanks
@atiqrahman7289
@atiqrahman7289 5 лет назад
Good medical discussion.
@christinamarie9284
@christinamarie9284 11 лет назад
My heart goes out to you. It's really hard to be happy, or even think clearly, when you're in pain. I would urge you to return to your doctor, or find a new doctor, and ask for help managing your pain. In a case like yours, some adequate pain relief might make a huge difference. Everything looks horrible when you're in pain-- if you get some help with the pain, you might find things are looking better.
@JohnLW100
@JohnLW100 11 лет назад
Excellent Video
@martharut
@martharut 15 лет назад
Importantísimo entender en que consiste esta dolencia, tanto para el paciente como para quienes lo rodean, pues realmente es un drama sufrir de dolor permanente, el cual te incapacita en el momento menos esperado a lo que suma la incomprensión de quienes te rodean, sea tu familia, amistades, jefes y compañeros de trabajo.
@betsybk11
@betsybk11 3 года назад
And have every test on earth run...you probably/hopefully don't have anything that shows up wrong! Well, now that I am older I have loads of things showing up wrong! So far this doctor is awesome!!! I hope he continues to be understanding!
@Exile0nMainStreet
@Exile0nMainStreet 12 лет назад
My friend has this. She goes through regular cycles of just being out of it, and sleeps, sleeps, sleeps. My other friend has Lyme disease. There are some real similarities. I'll have to start studying fibro. It really sucks.
@shahilagh
@shahilagh 4 года назад
This person and his talk were definitely much more informed than what the talk in Michigan was done ...
@standard13
@standard13 15 лет назад
What an incisive account about this central nervous system disease! I'm keen to hear a follow up on further Naltrexone testings.
@FIBROMYALGIASOMERSET
@FIBROMYALGIASOMERSET 8 лет назад
Great .. Thank you 🤗
@rachaulbermudez
@rachaulbermudez 5 лет назад
But Thank you trying to find help for us.
@maxsy1
@maxsy1 14 лет назад
YAY!!! FINALLY!!! At least we're in a diff direction! I was VERY impressed with whole video. Soooo easy to understand and soooo logical. I cannot wait til it's out on the market for all of us that suffer this horrible disease. Only wish I could retrieve ALL the money I wasted on everything else out there that "claims" to heal fibromyalga! Now THAT'S a depressing thought!!
@jeannettegrondin7190
@jeannettegrondin7190 3 года назад
This was an incredible informative presentation that all should see. Very well done I hope this guy knows how much this is appreciated. The crazy thing is this was 11 freaking years ago and I have never seen anything come close. I am going to research this guy and follow him imagine what he knows today! The only part that I don’t like is the medication part as I have had such bad experiences with meds that it has affected my life more with taking and trying things. Many just cover up the symptoms. I wish he would mention diet such as gluten sugar carb free. Meditation and yoga. However Writing this only half way through the video. Amazing video. All doctors should see this video and stop thinking it’s in patients head. Fight on Warriors !
@SoulSearch11110
@SoulSearch11110 5 лет назад
Great Video
@eccentricoldcow
@eccentricoldcow 13 лет назад
Thank you for your help, wish the doctors would take notice and give me the support I need.Instead I am penalized and have virtually no support, and in fact my GP lied over my health to the benefits agency. Sad old World we live in
@julsjuls2009
@julsjuls2009 12 лет назад
Thank you for a very educational explanation of the CNS in fibromyalgia. I was diagnosed at age 28 and I am now 48. It's been a long 20yrs. Everything that you discussed made sense to me as a patient. I hope that more Dr.s will come to understand this disease in order to help their patients. I was at a lost at 28yrs old. I thought I had some horrible disease that was going to kill me. Glad to find out later it wasn't. Thanks again for the lecture and hope more people will watch and get informed.
@jennysand1
@jennysand1 13 лет назад
Thank you for your research I have looked up so much about this illness I was diagnosed with this in 2003 about 5 months after a vehicle accident and loads of trauma the previous year. I was fortunate to have a switched on doctor who suspected that I may have this which was confirmed. I go up and down with this and manage to work 20-25 hours a week at times it is not possible and I am bed ridden. Hydrotherapy pool and walking in it helps. Rain and cool weather and stress trigger me
@janiceeskelinen8937
@janiceeskelinen8937 4 года назад
Has anyone here tried the keto diet ?. Cutting out sugar and all carbs that breakdown to sugar has an incredible anti inflammatory effect. I’ve been doing it for 8 months now. The biggest difference is how I feel when I first wake up. I don’t feel like a piece of crap . That’s a huge improvement. What you put in your body makes a difference.
@vallerietolliver5739
@vallerietolliver5739 7 лет назад
Does anyone else have difficulty driving my nerves feel hyper sensitive and feel over sensitive to too much sound activity and feel cars are moving faster then than they actually are seem like they are getting to close or not stopping soon enough. Am I the only person that experiences this?
@carolestrella1212
@carolestrella1212 5 лет назад
I have had 5 car accidents. You do the math.... I don't drive anymore.
@lorrainedusseau5760
@lorrainedusseau5760 5 лет назад
Everything seems to be too loud, bright or fast
@1savdsoul439
@1savdsoul439 5 лет назад
It seemed to me the cars were coming back at me, I would slam on my brakes. Therapy helped a lot after my 6 car pile up on the interstate. I was the second car. I stopped but the cars behind me rammed me into the car in front of me. My truck was totaled. 25 years later its pain and depression. Ive just had a mastectomy ( hell to add that kind of pain on overactive nerves). My teeth chatter uncontrollably because if the pain. I was clueless about the suffering attached to breast cancer. Found out the same day I learned I had cancer that my thyroid is attacking itself. I pray as the doctors discover links they will find a cure. Thank you for working to help us. This isnt living, Its a slow death. If we can all write about what were going through maybe it will help the doctors understand more.
@janetscofield7740
@janetscofield7740 5 лет назад
You are not the only one. I have had this for 21 years. I keep a current drivers license because on the rare occasion I have a "good" spell sometimes I feel like I can drive. Most of the last 15 years I have stopped driving completely because I feel like I am a danger behind the wheel. I have all the things you described to the point it just overwhelms my system and I can't keep up with what is going on around me. I don't know how telling you this can help except to know you are not alone.
@1savdsoul439
@1savdsoul439 5 лет назад
Janet Scofield janet! So sorry! Mine is 25 years in so I get you. There are simple therapies that will help you get behind the wheel again. It’s bad enough that our bodies are prison but add not being able to go places when you are able to is insult to injury. You can even look up simple things you can do online, on RU-vid. There are tapping therapies you can do with a friend or you can put your hands stretched above your head and just open and close your hands while you relive the moment. It somehow re-signals the brain and takes it from going into panic mode to a feeling of calm. Don’t spend another day not being able to get behind the wheel. You have suffered enough. I just wonder, are you a Christian? I feel like Christians really face a lot of tribulations because we strive to be closer to God. While those who aren’t seeking to better the relationship with Christ have a pretty smooth ride. Satan has no reason to attack those that are already on their way to hell. But those of us that care a lot and value our salvation we are the ones he wants. Sorry that may be too much information. Anyway I’ll say a prayer for you.:)
@iseecheese
@iseecheese 13 лет назад
good info video. Not counting injury, FM usually is sicological caused which causes fisiolgical problems, nerves/ chemical degradation & imbalance, often dealing with incidents of emotional /physical abuse will help Heal the cause. Abuse problems are- bad sleep, nervous, fear, worry /dread, moods, anxiety, lack of self love / confidence, edginess / sensitivity, bad dreams, stiffness, fatigue, digestive, focusing, swelling, circulation, electrical signals, blood pressure etc,= same as FM ,
@evam.2101
@evam.2101 9 лет назад
Robert, women give birth.we are not weak with pain.
@nuffsaid3548
@nuffsaid3548 8 лет назад
+Eva Madrigal women can tolerate pain much better than most men. I have been under doctors care for fibro since 1994, and now my newest enemies have come along called HLA-B27, R.A and degenitive bone disease. I am also allergic or have life threatening side effects from all the fybro drugs from lyricia to savalla. I quit drinking 2 years ago, smoking 6 years ago, changed my diet, do B-12 shots monthly and all my Doctors as of last week told me they are pretty much at a place to give up. I still move as much as i can, i've been disabled since 2009, and being a man and having this is very hard to live with. I feel for you all. But any of you guys out there, never under estamate how much pain a woman can take. I would gladly transfer my daily pain to any man for just 10 mins to give you an idea of what we go through everyday. It would crush you in minutes. and I don't use any pain meds. They haven't found any that work for me. So the next time you think about telling someone to buck up, walk it off, make sure you know everything there is to know about the one you may be insulting!
@eilishholden9886
@eilishholden9886 6 лет назад
Eva Madrigal 8
@HANYNE1
@HANYNE1 11 лет назад
I suffer everyday of Fibromyalgia. & Chronic Fatigue Syndrome/ME. I have no cure, no meds or hopes & I don't die of the diseases. The only way to end my suffering & pain is by ending my life. I scared myself with my thoughts to end my life so many times in the last 3 years & I don't know how to live my life like normal people.
@goddessvibes08
@goddessvibes08 5 лет назад
How're you doing now
@godivapaw
@godivapaw 11 лет назад
I do understand, as I do have FM. I can relate.
@greatlistener3740
@greatlistener3740 5 лет назад
I clicked on this video just to comment that a fibromyalgia video update is over an hour long?.
@LadyAmaz
@LadyAmaz 12 лет назад
Thank you so much. This helps me understand much more.. is anyone else interested in the link between Fibro and Psychic ability..
@SF1976.
@SF1976. 7 лет назад
The cause of the pain is known since 2013 (University of Wurzburg study - lining of the nerves is gone), just in case not everyone is aware.
@joykipp7025
@joykipp7025 7 лет назад
Stephie Fehr tell me more about the lining of the nerves being gone, was never to thus!
@dr.h.e.sawyerjr.9984
@dr.h.e.sawyerjr.9984 7 лет назад
That's not always true. Get your facts straight.
@stevec6893
@stevec6893 7 лет назад
Stephie Fehr That's Multiple sclerosis where the myelin sheath covering the nerves breaks down. That is NOT Fibromyalgia. In Fibromyalgia there id no apparent injury or destruction of nerve or muscle fibre, its a missfiring of pain signals due to normal sensory systems going haywire and chaotic, for reasons unknown todate.
@vanonthemoon7975
@vanonthemoon7975 7 лет назад
Study and year should suffice. It's Prof Sommer's study. You can contact her directly.
@Kay-tc3go
@Kay-tc3go 4 года назад
Funny, he spent more time on what 'opioids' do which aren't half bad. But, no time on the other drugs, "they do have some "side effects". And there are nutritional supplements that work for me; but not by themselves. You have to incorporate a lot of different items to battle this 'monster'. My 'illness syndrome' is never rewarded, nobody really takes me serious. After all, it's not cancer. Sometimes I wish I had cancer, people would treat me better. Not really but you know what I mean.
@patrick45sue
@patrick45sue 13 лет назад
@mywingsareyours I agree fully,I can manage the pain but when the muscle pain spread's from head to toe that is what brings me down to the ground with a thud...
@SARTORONTO
@SARTORONTO 11 лет назад
Stephen Le Page, This video is 4 years old. Lots have change since and yes, many are testing positive for Lyme Disease. I will get tested this week after suffering for 20 years with FM.
@Jennbooth3
@Jennbooth3 14 лет назад
This lecture hits on a lot of points for me. When he mentioned "clothes" I finally broke down in tears. I thought I was crazy becasue sometimes my bra makes the muscle between my rib cage flare up by at least 1". My accupunturist freaked out when she first saw me like that.
@roslynewatt7833
@roslynewatt7833 3 года назад
Same thing with the bra. I would keep pulling at it thinking it was too tight. Then I had 3 big spinal fusions and couldn’t wear a bra. I was amazed that I kept wanting to pull at the under bra line. Then I thought....I must have a phobia. 🤔 Hahaha....got the answer re; the bra. All of my clothes have to be loose, including socks. Stress is a big factor too. 😖
@theneuroperson
@theneuroperson 13 лет назад
@MrApplewine Actually there is a great deal known and published about central pain augmentation or sensitization. Substance P (main pain neuromodulator) is increased some 400% in the CSF of FMS patients (Russel, et al), and 5HT (Serotonin) which in the spinal cord helps to reduce ascending pain signals is decreased by about 50%. So there is an increase in pain signal transmission, which can now be visualized in the brain using fMRI studies (UMich, among others).
@saraswatkin9226
@saraswatkin9226 Год назад
Hope you found improvements in treatment after 13 years of last talk.
@stephenlepage
@stephenlepage 11 лет назад
5:30 very interesting to see Lyme on the slide show as a possible cause. So many people I know with FM have tested positive for Lyme. It's disappointing that he didn't talk about it at all.
@katierichley4130
@katierichley4130 4 года назад
I want to be a part of this trial!!
@gillsnyman3870
@gillsnyman3870 3 года назад
Hi, thank you so much for this excellent video. I have severe fibro and would love to be a test subject if that would be possible. Gillian , from South Africa.
@Exile0nMainStreet
@Exile0nMainStreet 12 лет назад
05:22 O nuts! My friend went thru that. I'll definitely have to look into this more.
@Marfilla
@Marfilla 6 лет назад
True! It hit me when I was the most productive and had to slow down significantly. :-/
@jeannettegrondin7190
@jeannettegrondin7190 3 года назад
Gut health is so important but hard to avoid so many foods
@cippanddail
@cippanddail 12 лет назад
I like the guy, finally someone study fibro properly, but I see he mostly exploring mechanisms how it works through brain and CNS but the cause of this all in my opinion has to be some neurotoxins, the key is to find from where this neurotoxins come from. Basically depression anxiety fibromyalgia CFS and many others works through the same mechanisms
@xXZeroSynDromeXx
@xXZeroSynDromeXx 11 лет назад
Great talk. Thanks for posting. I have no doubt that this person is qualified and knowledgable. Before everyone asks their doctors about guaifenesin, I'm pretty sure that when he talks about guaifenesin, he thought he was talking about dextromethorphan. Just FYI. I'm a licensed pharmacist by the way.
@janetscofield7740
@janetscofield7740 5 лет назад
No, he is talking guaifenisen. There is a book that came out about 10 years or a little more, ago about treating fibro with guaifenisen. I can't remember the the authors name of course (fibro memory loss). It was written by by a MD. Very specific protocol. I and my 2 sisters who have fibro all bought the book and tried it. We had some mild improvement but it was shot term. Possibly placebo effect. Now I am going to obsess about the authors name.
@TOBDNCNG-Marygrace
@TOBDNCNG-Marygrace 10 лет назад
LDN is the best thing I have in my arsenal for Fibromyalgia. Been on it five years! Until there is a cure, I will take my LDN. I also do the Iodine Protocol and it helps soooooo much too. Will do both forever. Looking into Ozone Therapy for my Lyme now.
@MrApplewine
@MrApplewine 11 лет назад
I've been having pain in some muscles that specific and is not normal of at least 5 years. Mostly neck, head, jaw muscles, but also a little in one of my right hip muscles intermittently. I found the trigger points Janet Travel and dry needling by physical therepists as my best understanding. Possible jaw bite problems as well. I haven't found a treatment to cure it yet, but I had more pain in the past and dry needling may have treated that. Those pain areas have not come back.
@MrApplewine
@MrApplewine 13 лет назад
@theneuroperson There is also myofascial pain syndrome, which appears to be caused by micro ischemic muscle nodules in the muscle. Additionally, all of the markers for fibromyialgia showing increased pain do not prove which direction the causality goes in. If a person is in pain you would expect pain biomarkers to be higher.
@casperblackcat1975
@casperblackcat1975 13 лет назад
@PowerRedBull I remember this article & It also stated that the Canadian blood service was not going to accept donations from people who suffered from CFS or Fibro because of this virus, Each Fibro case is different & can be caused by several factors so it's not a one size fits all kind of Illness.
@misskurmis
@misskurmis 4 года назад
Fibromyalgia is absolutely exhausting. I have been on a cycle of flare-ups for months. After three days straight of this suicidal ideation always kicks in. You can just only take so much. Well, I wait for it to pass and then it starts all over again. I never ever ever ever feel rested. Ever. It's been years of this
@yoya4766
@yoya4766 4 года назад
I hear you. Same here.
@kathycochran544
@kathycochran544 Год назад
It's such a relief , eventhough I'm so sorry for those of us who suffer, to know that you have the suicidal thoughts also... may God help us
@ctcatlady
@ctcatlady 11 лет назад
Fibromyalgia is associated with autoimmune diseases, thus my diagnosis of Mixed Connective Tissue disorder. I am on elavil, oxycarbazepine and neurontin. I have systemic Lupus, Crohns, circulatory issues, skin issues. Describing it as immuno-deficient is not entirely incorrect. Stress magnifies the symptoms of these diseases thus reducing the bodies immune system. So in fact that is a great part of this disease. Stress from being in pain, stress from loss of work etc etc.
@ghazalapaul9938
@ghazalapaul9938 5 лет назад
I have been diagnosed with fibromyalgia yesterday, I am relieved that there is a name to my aches, been everywhere meant all fields for tests I have a history of gout, thyroids, hiatce , ibs, high blood pressure, chronic pain arthritis, And only now my GP said I have fibromyalgia, I am an overactive person by nature, But have been suffering in pain for years and have been complaining to my doctors I know there is no cure , but is there a treatment which will allow me to live normal
@tammyb.5051
@tammyb.5051 4 года назад
I HAVE FIBROMYALGIA ALL OVER MY BODY.
@rachaulbermudez
@rachaulbermudez 5 лет назад
2009- 2018 any new news we are still suffering :(
@Brockt87
@Brockt87 5 лет назад
There’s been cures out there a long time but they don’t get publicity. There’s limited money in cures & so much in have an expensive issue for decades. Dr. Daniel Dantini has a 70% cure rate w fairly heavy rounds of viral meds & food sensitivity identification and avoidance. He reversed his arthritis after an elimination diet showed which foods he was sensitive too, after needing a double knee replacement at 35, and has his b4 and after xrays from another doctor. Almost everyone w fibromyalgia has food sensitivities causes by candida and/or 1 of 4 viruses still active in our symptoms. I had 2 friends who worked w him or years and saw him cure 100s if not ,1000s. His book explains how to get his protocols handled w ur own doctor, if they’re no open minded enough u can find one who is. I didn’t respond to the protocol but asked to try Armour thyroid & 25 years of energy issues disappeared in less than an hour & pain was down 80% within 6 weeks...until they changed “a binder” & it completely stopped working. My doctors had all said my thyroid was perfect for 25 years as well, but a chiropractor had found a few years early this was not true. Over half of thyroid issues are undiagnosed & their #s are calculated into what is considered normal. Everyone of the tens of thousands w fibromyalgia Dr. Tenenbaum has worked w had substantial candida overgrowth, usually systemic, which actually causes full fibromyalgia symptoms in itself. Unfortunately, most mainstream MDs deny systematic candida is possible outside of the ICU, while functional medicine & other holistic doctors know it’s extremely common, especially in those of us w chronic issues and treat 1000’s of cases. I recently had not choice but to reluctantly take antibiotics, which is almost always what causes candida overgrowth in the first place and had a drastic increase in candida and the same drastic increase in fatigue joint pain brain fog and muscle pain, related to activity. I’ve tried almost everything including pharmaceuticals, which are actually less effective than natural methods of reduction and very toxic and hard on the system I t’s a fairly long process that must be taken slow and first and gradually increased. Biofilm must be dealt with or much of it will survive understand shield and come back as soon as it’s not being hit w antifungals(Candex is the best supplement for this according to many experts in this area who don’t sell), multiple antifungal herbs are almost always required(Purely Holistic has a really good one 120 tabs $20, probiotics are a must along w a low carb high fat diet, free of yeast containing foods like cheese bread most vinegars & especially alcohol. PB8 is the best probiotic for the $ and often less than $10 for a bottle of 120, but the best method is usually to make ur own own Kefir Milk or water kefir with real kefir grains. Some natural-Paths recommend going slow at first since it has trillions of probiotics in a serving, and anything that combats candida can cause die off symptoms from the extra toxins released when they are killed. Saccharomyces Boulardii, is a Probiotic that actually eats candida & quite a few pathogenic bacteria including C-diff. Usually even beneficial yeasts aren’t a good idea w serious candida but this one is recommended by the best specialists out there for candida SIBO and as a great probiotic to take during antibiotics, if they absolutely must be taken. Out of everything I’ve tried to combat Candida die off, which can be absolutely brutal in the beginning if u don’t start very slow, Thorne Research - Molybdenum Glycinate 1mg capsules are by far better than anything else I’ve tried. Highly recommend at least getting a bottle to have on hand, and they’re only $11 on Amazon. Just taking 1 w antifungals is often the difference between no symptoms and feeling rough, but when I’ve had really bad detox symptoms, taking 4 on an empty stomach eliminated 80-90% of them in 15 min! That, staying very well hydrated, going slow, and taking less antifungals when not taking them w food have been the main keys to not getting sick.
@jenniferfleming8698
@jenniferfleming8698 3 года назад
@@Brockt87 Thank you so much for putting together all that helpful info! I too have fibro w/underlying candida I will try some of the products you have mentioned
@deborahjiggens7199
@deborahjiggens7199 4 года назад
From my experience I completely agree that it’s related to nerves
@marleneholloway7775
@marleneholloway7775 Год назад
Central nerve system. Yes the substance p in the spine...is turned up too high.
@brokenheart1348
@brokenheart1348 3 года назад
My life was before severe /ME and after. Ambitious , sporty , perfectionist& driven. Was famous for juggling 100 balls at same time. On top of the world . After emergency c-section With a baby ended up in wheelchair! Yes it is all in your head, you have depression etc after 3 year of different diagnosis like MS etc told me you have FM/ME. I cried atleast knew am not crazy. I know now that I burnt myself & my body out. I lost my career as pharm D. Still no one understand & gets me. Still do too much for my family . This year became 50, and DT2 as well due to reduced mobility . My cortisol has been x20 normal levels and that makes it difficult to lose belly fat. If I could live in deserted island , with no responsibilities and no one to expect too much of me, I would feel better. I am never pain free even with fentanyl patches , SSRIs etc .
@frederickharwood
@frederickharwood 9 лет назад
Hi interesting video, I have had fm for the past 30 years. please would you know any research taking part in Englandx
@69shozzy
@69shozzy 6 лет назад
2009!! Time to update!
@latainadeborique
@latainadeborique 3 года назад
Exercise triggers MORE pain and I become paralyzed in numerous places
@mikewitortrpmd.9967
@mikewitortrpmd.9967 6 лет назад
see advances in fibro/cfs treatments. thanks DOC MIKE
@Matt-to1bi
@Matt-to1bi 5 лет назад
I take 24 pills a day I’m on no sugar diet no carbs diet and still in chronic pain
@babybunnies
@babybunnies 8 лет назад
+ RESEARCHCHANNEL, you need to change the title of this video to a title similar to "2009 Stanford Conference on Fibromalgia" You people are doctors and you done your thesis and you call this video "An Update to Fibromyalgia"?? The ICD-10 book already recognizes FM as a true medical condition and more probing needs to be done by neurologist, endocrinologist, rheumatologist, etc,.which many physicians don;t care or don't know how. We are still WAY BEHIND in treating this complex issue that are affecting millions of people around the world.This video is not fully accurate either for doctors are so blind on looking at things from the chemicals in our food, water we drink, pollution and everything that can affect our autoimmune/nervous system. The TSH, T4, T3 (which may be on the low side of the spectrum and still told everything is normal) You scientists need to delve in much deeper than what you have already done. We need more money funded in PAIN. Too much money is spent on AID and Cancer, not yet enough on PAIN which has been around since the beginning of mankind! All these chemical drugs in our body can also complicate our pain receptors.
@synapse131
@synapse131 11 лет назад
Hyperalgesia (central sensitization) is almost exactly like what people with meningitis or encephalitis experience. I think this is no coincidence. The swelling probably adds to direct infection processes to cause pressure on the dorsal aspect of the spinal cord, resulting in problems with blood flow to the dorsal horn. This would also explain why people with chiari malformation/spinal stenosis have similar issues and are probably a subset of FMS.
@daisyvann4124
@daisyvann4124 3 года назад
i feel so bad and also for my job , i don't now how i have to live like this for ever!!!???????
@Queenalika85
@Queenalika85 3 года назад
Hello my name is Nyesha Brooks and I live in the United States, Philadelphia Pennsylvania. I wrote a book called Aaliyah's Invisible Illness. It centers around a teen girl who goes through the twist and turn of living with a sickness. I have a chronic illness known as Fibromyalgia and that why I wrote the book. I'm hoping to spread the Awareness about Invisible Illness and give people hope. My book is available on Amazon for an affordable price. Thankyou
@SmokeyKeitaTEACH
@SmokeyKeitaTEACH 11 лет назад
Myelin is a dielectric (electrically insulating) material that forms a layer, the myelin sheath, usually around only the axon of a neuron. It is essential for the proper functioning of the nervous system. It is an outgrowth of a type of glial cell. The production of the myelin sheath is called myelination, which begins in the 14th week of fetal development, although little myelin exists in the brain at the time of birth. myelination occurs and continues through the adolescent stages of life.
@frangipang1955
@frangipang1955 7 лет назад
Smokey Keita ....yeah, it's interesting. I have Fibro but also episodes of Trigeminal Neuralgia which is eroding of the Myelin Sheath, that's around the Trigeminal nerve. Others have it too.
@synapse131
@synapse131 11 лет назад
Absolutely correct. NMDA antagonists (drugs that work to lower glutamate in the brain) of several different kinds have been found to be helpful palliative medications. Opiates, cannabinoids, GABA agonists (such as Neurontin and Lyrica) dextromethorphan, MK-801, memantine, etc. have all been found to be helpful; but they vary by the individual and possibly by the causal subset. The brain is complex.
@MrApplewine
@MrApplewine 11 лет назад
Yes. Also invisilign braces may have messed my bite up which screwed up my lateral pterygoid (trigger points) and then the antagonist (temporalis) developed trigger points and also neck involvement. I'm planning to look at getting my lateral Pterygoid dry needled next. I had it so bad it was effecting my proprioceptive sensory input to my balance system and causing tinnitus. I was getting nausea and dizziness.
@boudika100
@boudika100 3 года назад
I have had alot of uti infections and biokult and urvi using has worked for me after yrs of suffering .got multijoint issues and recently been diagnosed with fibro.deffo a link
@brianamason7712
@brianamason7712 10 лет назад
Hi! I just wanted to say you are a wonderful speaker and you explained things well and at a perfect pace. I have a grandmother who was diagnosed and I found it fascinating to learn about. I am hoping to become a brain researcher either as a neurologist, neuroscientist, psychologist, etc. I'm also going to be a senior this year, and will be graduating with a full IB diploma. I'm considering Stanford as one place that I may apply to, although I am not sure if I will be able to go to such a prestigious university. I admire your work and I'm impressed by your obvious enthusiasm. Thank you for being an inspiring figure.
@jairo06tu
@jairo06tu 2 года назад
P9999999
@jairo06tu
@jairo06tu 2 года назад
99999
@jairo06tu
@jairo06tu 2 года назад
909
@jairo06tu
@jairo06tu 2 года назад
9999
@jairo06tu
@jairo06tu 2 года назад
09
@MsConstrued1
@MsConstrued1 11 лет назад
not necessarily, but if you are craving foods and over eating some types of food it could certainly cause mildly similar symptoms
@johnathanabrams8434
@johnathanabrams8434 11 месяцев назад
14 years later and nothing has changed
@Gitsie007
@Gitsie007 12 лет назад
My symptoms have been really bad lately--after feeling good for a few weeks, it comes roaring back and it takes so much out of me. It SUCKS! Sometimes I can barely function.
@angelaknight7184
@angelaknight7184 2 года назад
Thankyou I had scoliosis , I had the op . Now I have oa, and fribromyalgia
@marleneholloway7775
@marleneholloway7775 Год назад
What's oa?
@davidolenick2280
@davidolenick2280 9 лет назад
If it is only a perception of pain then why does the upper back be come inflamed hot to the touch and show up on infrared pictures? You are on the wrong track .
@rochelle-ofcoursehatch7912
@rochelle-ofcoursehatch7912 9 месяцев назад
I’ve been suffering since at least 2007, but I’m just now seeing this video and my doc is JUST now recommending naltrexone. How can this info be known but SO many docs and patients never hear about it? I hear about cymbalta though? Big pharma has absolutely broken out health care system. I’m so pissed that I didn’t know about this option until today. Like seriously ANGRY. Un effing believable. Where are the trial results? And affordable? I have insurance and still paying $100 a month because I have to get it compounded since they can’t make a pill in low dose. 🤬
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