In this ARC TALKS webinar, Jill Waldron, NP and Rebecca Kirch provide guidance on navigating care choice options for amyloidosis patients and caregivers during health decline.
Rebecca provides tips for communicating with healthcare professionals, including recommendations for how to create an end-of-life care plan with a healthcare team. Rebecca also discusses factors to consider when deciding which care option is best, while also providing resources for emotional support. In addition to discussing the stages of amyloidosis progression, Jill discusses the importance of end-of-life care, while addressing the challenges caregivers and patients may experience.
The presentation is followed by a Q and A section.
0:00 Introduction
3:33 Start of Rebecca's presentation.
4:40 Importance of communicating with the healthcare team.
12:55 Person-centered communication is palliative care's core competency.
14:24: Discussing preferences and preparing plans.
17:04 Medical decisions that may need to be made.
19:08 Person-centered care planning tools.
25:57: Palliative care is a lifeline for quality of life.
27: 28 Start of Jill's presentation
29:29 Definition of palliative care.
31:04 Case-study example.
33:24 What is home health.
34: 33 What is hospice?
36: 38 How palliative care is different than home health and hospice care.
39:40 Different modes of palliative care
40:31 Common topics to discuss in palliative care
44:41 Causes of death in cardiac amyloidosis
46:43 Qualifications for home palliative care
47:36 When to bring up palliative care
49:21 How to bring up palliative care discussions
50:01 Case study continued
52:32 Presentation summary
54:06 Q and A and close of webinar.
5 авг 2024
