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Art & Chat. Where I've been, and my experience with Trigeminal Neuralgia 

Cassandra Hanley
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30 сен 2024

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Комментарии : 69   
@CassandraHanley
@CassandraHanley 3 года назад
I actually cannot believe I put that video of myself on the internet, then used a screenshot for the thumbnail...... yep that is me at my absolute worst, between the swollen eyes and the rosacea that flares up when the pain gets bad, I literally just put the worst image of myself on the internet...I must be mad
@jennyc1846
@jennyc1846 3 года назад
Mad? You're an Aussie of course your mad!! but fantastic!!
@CathyPowellGlass
@CathyPowellGlass 2 года назад
Not mad, brave. Xx
@BeardedBarley1
@BeardedBarley1 Год назад
...All for the sake of the story.
@marianbaker6544
@marianbaker6544 3 года назад
I’m so sorry to hear you have been suffering so much Cassie I had no idea. I just wanted to let you know how very much I enjoy your narration as you work - clearly an Aussie (like me) you make me laugh! You both inspire and intimidate me with your beautiful art work. A lifetime ago I worked with graphite and charcoal and have done very little art in decades but the desire to get back to my art never really left me. I am now discovering generous artists like yourself on RU-vid prepared to share there expertise and it has spurred me on. I have just purchased some art supplies and colour pencils as this medium has appealed to me for a long time. I love listening to you and watching you work. You explain things in an easy to understand manner. Thank you so much for sharing your talents with us.?Take care!
@gregfam6250
@gregfam6250 3 года назад
It takes courage to get on with the things you really want to do. I've been suffering from a condition that has no cure and it extremely irritating, so I know to an extent what you are going through. Thank you for sharing, and hang in there!
@grannieannie1371
@grannieannie1371 3 года назад
Your art is amazing. Honestly be kind to yourself and only come to RU-vid when you can. We'll be here waiting for you when you're ready and able to talk.
@WildPortraitArtist
@WildPortraitArtist 3 года назад
I'm so sorry that you've been unwell with chronic pain recently. I hope your condition is kinder to you and that you get some reprieve from it soon. Look after yourself hun, be kind to yourself too. I have speech issues too (not through chronic pain though, I have developmental coordination disorder aka dyspraxia), I think you speak just fine! There is no shame in the way you talk, your voice is beautiful
@CassandraHanley
@CassandraHanley 3 года назад
really, I never would have picked it Monique? you speak wonderfully and create such finely made art! you must have worked very hard?
@marionwigzell7334
@marionwigzell7334 3 года назад
So sorry you have been so unwell Cassandra. I had been wondering where you were. Your drawing is amazing. Well done to you for persevering through the process. I wish you all the very best for your surgery and pray it works for you (-: Marion
@CassandraHanley
@CassandraHanley 3 года назад
Thank you Marion. I have my Fingers crossed for the best at this point!
@CathyPowellGlass
@CathyPowellGlass 2 года назад
Your description of being smashed with Thor's hammer and his lightening bolts is perfect. I also have TNN (from a medical accident) and am very sad to hear you suffer too. I only recently found you and I love your work (and accent, I'm British). Please keep posting when you can, on your own time, as your work is inspiring. This guy is amazing. I've been too afraid to work this big so far. And without OMS, OMG! Solvents are big triggers for me but I recently found I can tolerate small amounts of zest-it. Seeing this artwork though makes me wonder if I really need it. I'm so pleased to have found your channel.
@friendsnotfood2425
@friendsnotfood2425 3 года назад
So sorry you've been suffering so much pain. You're so brave and inspiring to talk about it and share your beautiful work. Sending love and healing wishes 💗
@jennyc1846
@jennyc1846 3 года назад
Thanks so much for sharing that...Trigeminal Neuralgia...sounds damned awful, hugs to you. I'm sure you sharing your health problems has helped many people. Sometimes people need to be aware that not every day comes up roses, and what artists put up with for their benefit. As a chronic pain sufferer myself (with Crohns and Fibromyalgia and possibly Lupus) it can get you down, it can hurt like hell...but people like you, artists like you Cassandra, are my life savers. You know you don't always have to talk (even though you like doing so). Stop causing yourself grief, do the techno thing and put sub text on the screen..like 'hi folks, having a bad day cant talk today, bear with me, here's some great music while I draw'. And draw you can chickie!!! That cocky was fabulous...a few steps along from Clarence the Cross eyed Tiger!!! Those feathers might have done your head in but it was awe inspiring to watch I wish it had been in real time...I hope this new procedure works for you, rosacea is bad enough without the pain too...maybe botox that nerve to death!!! Good luck...BTW there's nothing wrong with your accent dont apologise for who you are...be proud...Aussie Aussie Aussie!!!
@caitie-can4572
@caitie-can4572 3 года назад
Thank you for never giving up on RU-vid, I’ve learnt a lot from your videos 🥺
@CassandraHanley
@CassandraHanley 3 года назад
oh, I wont give up!! i might just need a little time is all :)
@MusingsFromTheDen
@MusingsFromTheDen 3 года назад
I'm so sorry, I know exactly what chronic pain feels like and it's ruddy miserable when breaks the '10 barrier'. A lot of artists seem to be dealing with physical or mental health issues that we cope with through our art practice and it's good to talk about it. I hope your procedure goes well and gives you permanent relief. X This piece is absolutely stunning. 😊 👏
@MusicalRaichu
@MusicalRaichu 3 года назад
anyone like someone on her patreon have any news? do you know how cassandra has fared with the procedure?
@CassandraHanley
@CassandraHanley 3 года назад
I’m still here! I’m looking at a few more weeks before my procedure, but I had a bit of a hiccup with my meds making me very depressed and unable to hold a pencil in a controlled manner. That is still a problem , but i seem to have worked my way though by the worst of it. I have a bunch of videos in the works in the next couple of weeks
@TheRealMythril
@TheRealMythril 3 года назад
I have chronic Cluster Headaches (another TAC). That trigeminal nerve is a bit of a ‘bar steward’! It’s totally resistant to all abortive and preventatives, and HighFlow 100%O2 only helps for the time that I’m on it.(its only usable for 20min at a time and only helps a tiny bit) People just don’t seem to understand how these brain disorders (the person who called them headaches needs hung up by the toenails!) really destroys how you function. Fingers crossed for your procedure, hoping it does the trick for you, and that you can get back to living your life a good bit more comfortably.
@SuzanneLegault
@SuzanneLegault 3 года назад
Nerve pain is the absolute worst ! I lit a candle for you and truly hope that the operation is a success beyond your wildest dreams. The piece suits your narrative well : dark feathers with spots that stand out like lit up nerve endings. The hunched over pose with the eye bulging out staring at us. And the luminous blue (color of healing) background shining with hope that healing is on the way. Thanks for sharing your story. I had never heard of this condition.
@karenrichardson6767
@karenrichardson6767 Год назад
Thank you for sharing your story with us. I hope that you have found an answer to relieving your pain. Have you found any relief changing your diet? Your bird is wonderful! And I agree that once you go BIG it's hard to go small.
@lisalailey768
@lisalailey768 11 месяцев назад
So sorry you’ve been suffering with this condition and hope your feeling better now, Ive been immersing myself in art too suffering a condition which can be extremely painful and frustratingly affect me being able to be upright which puts a hold on any art, I suffer a spinal csf leak which has left me very debilitated, thank you for posting your story It makes me realise im not alone with suffering a chronic unusual condition, Im hoping to use my art as a form of income in time as I am unable to work now, Ive recently turned to coloured pencils as easier with my condition, im researching any self employment tips so I can get my artwork out there and start making an income .
@JingBing-dm2vv
@JingBing-dm2vv 3 года назад
I'm sorry to hear about your suffering and the impact to what you love. I pray the surgery is a complete success and you can go back to your life and art without the struggles and pain! Such a beautiful art piece btw!
@emilyerdbeere9210
@emilyerdbeere9210 2 года назад
Dear Cassandra, you created such a lovely paintings. Thank you so much. You are very brave. Get well soon
@gnostie
@gnostie 2 года назад
I just landed on your channel. ...You go ahead and speak in ANY way that's least painful to you, darling. You are clearly a lovely person and a talented artist. RU-vid-wise, just do what you can, when you can. You can use text to speech too, by the way. Why suffer if you can delegate RU-vid-type stuff to technology and save the in-person speech for important occasions.
@russellball4053
@russellball4053 3 года назад
That's the Aussie Spirit! We look forward to your occasional vids and I hope everything goes well.
@cathysparks2797
@cathysparks2797 3 года назад
Have you tried B complex vitamins for the nerves? B complex works with nerves, it feeds them. I’m a naturopathic doctor now and, as a kid, I had poly neuritis and, my doctor put me on B complex vitamins,. It helped some. The condition was a reaction to the polio vaccine they said. This was back in the 1960s so little was known about the condition. I had feeling in my extremities but no movement, weird.mi outgrew it when I was 13 or so. I enjoy your videos, I’m an artist myself. I wish you the best in your art and with your neuralgia. Sorry this is so long. Try the B complex and see if it works.
@sweetbb125
@sweetbb125 3 года назад
Welcome back. I am sorry for your pain... I do understand. I hope your paint get's better. Since I started doing art, it is my saving grace - I forget about my pain, both physical and emotional.
@joyfulldj
@joyfulldj 2 года назад
Just a sidenote. Is it an option to use google assistent for speech? That way you can type in what you want to speak and google can say it? I know its not what you want it is a way for you to continue without speaking. For me as a fibromyalgia patient life is about finding that sort of answers. Ask your md if he can shut the damn nerve up with some botox? :P ( Sorry asked if that would work on my legs, but no such luck here... maybe you have better luck?? LOL )
@LisssyLi
@LisssyLi 3 года назад
I have just discovered you on RU-vid and omg, I love your art work! Good luck with you surgery. X
@jenniefrench1338
@jenniefrench1338 3 года назад
So sorry to hear about this. My doctor does this procedure and has a lot of experience with this. You will be ok. I have had actual brain surgery awake four times and am limited. You painting is gorgeous! This procedure has had a lot of success. Hang in there.
@claritzairosario68
@claritzairosario68 3 года назад
I'm so sorry to hear about your chronic pain, and you health condition, I understand how disabling it is to have chronic pain, which paralyzes all your activity, I suffer from chronic pain too, and I know that it is not easy to have to continue feeling pain. I can't say it's the same ever! Because it's not the same, but I can understand you. I hope that this surgery is a success and you can improve greatly! Many blessings and many good things for you! Amazing work!🥰
@janetbrown124
@janetbrown124 3 года назад
I really enjoy listening and watching your videos and lets face it life sometimes just gets in the way on so many different levels for all of us. Hearing about your battle with trigeminal neuralgia is heartwarming, I feel for you, as I am sure your other followers do too. I admire you as you have chosen to fight the challenge it brings and you keep pushing for what you want, You are an inspiration to others to do the same so keep going. I wish you all the best for the surgery, hope all goes well and I will wait for your next video. Just a quick question you didn't forget to sign this amazing artwork did you? I couldn't see it the video. Take care of yourself. JB
@juliewhitehead4432
@juliewhitehead4432 3 года назад
Cassandra, I hope you soon get some relief from your illness, you are an insiration. Your art is incredible and also very inspiring. Look after yourself ----- your health comes first, second and third and all else can wait in line. Send hugs your way Juliexx
@Karina-er7mx
@Karina-er7mx Год назад
I'm sorry to hear about your pain 🥺🥺
@raulcivalero4321
@raulcivalero4321 3 года назад
Lamento mucho por lo que tenes que pasar... te mando un fuerte abrazo saludos desde Argentina
@evak8210
@evak8210 Год назад
Hang on Girl , praying for you!♥
@marianbaker6544
@marianbaker6544 3 года назад
Magnificent piece!
@martha_makes_art
@martha_makes_art 3 года назад
❤️
@drawwithmepragathi4146
@drawwithmepragathi4146 3 года назад
Mam, You are such a huge inspiration for artists and you are really brave!! U can come to RU-vid whenever you are comfortable with it we all will be waiting for ya!! You will get better soon!!
@CassandraHanley
@CassandraHanley 3 года назад
Aw, thank you. ❤️
@samsulalam
@samsulalam 3 года назад
Welcome back 🙋🏻‍♂️ Great to see you again 🧡🧡🧡🧡 Stay safe and keep smiling 😊
@CassandraHanley
@CassandraHanley 3 года назад
Thank you so much 😀
@lindakruger6348
@lindakruger6348 3 года назад
Cassandra have you tried hot compressers on your face where the neuralgia is also I take Tegretol which I think you would be on as a anti- convulsion pill. I have facial neuralgia but nothing to the pain you have but I find the really hot compress helps. I'm so sorry you have this it can just ruin your life. I hope something can be done for you. Lin Kruger
@CassandraHanley
@CassandraHanley 3 года назад
Yes! A hot compress of any description really does help. I think it’s kind of like the heat helps to overload the nerve and stops it from really hitting the high notes. But this time all the heat in the world did nothing. And yes, tegretol is the drug that has worked for me for many years, but suddenly stopped helping, Dang it!!!
@micheleyoung9292
@micheleyoung9292 3 года назад
This piece is wonderful and well worth the time and effort. Chronic pain is awful and I'm sorry you have to deal with it. It is so important to listen to your body and do what you can when you are able. Best wishes to you!
@CassandraHanley
@CassandraHanley 3 года назад
chronic pain is an absolute bitch... no matter what it is caused by. I wish no one had to experience it
@suegibson850
@suegibson850 3 года назад
Beautiful work. I hope your health improves. Please keep working on your art.
@pamr.3723
@pamr.3723 2 года назад
Sharing is so hard to do.. Thank you for sharing your beautifully art.. Not sure if you've tried anti-depressants. I have chronic pain with multiple sclerosis. Nerve blocks helped too. Just sharing what has helped me. Of course stress is your enemy. Your brave for sharing. Best wishes on your journey.
@CassandraHanley
@CassandraHanley 2 года назад
no, I haven't. the anti seizure drugs seem to be helping for now... but the side effects are, less than ideal, as I am sure you would know! MS is I am going in for surgery in less than 2 weeks.. so fingers crossed it helps
@pamr.3723
@pamr.3723 2 года назад
@@CassandraHanley prayers for you and hopefully you will find some relief. True seizure drugs cause a lot of issues. I had to stop taking them. My hair started falling out. 😩 I have found major relief with anti depression meds. Hang in there... you've been thru a lot.
@BlaiddGoch
@BlaiddGoch 3 года назад
This piece is stunning Cass :D
@CassandraHanley
@CassandraHanley 3 года назад
Just quietly I think so too! I am going to put it up for sale, but I’ve actually hung this one in the house so I can admire it till it goes.
@angelinaalbury7923
@angelinaalbury7923 3 года назад
I’m praying that you have a wonderful and pain free outcome. Such a difficult way to live in constant pain. Can’t wait to see what awesome work you will make in the future.
@wizkidsvideos
@wizkidsvideos 3 года назад
Sorry to hear about your health issues. The art piece is extraordinary. ❤️❤️❤️
@triciab8751
@triciab8751 3 года назад
Beautiful piece! I truly hope your surgery is successful in reducing your pain. Chronic pain sucks! We pretty much have to take any amount of relief we can get and just live with the rest of it. Hoping far more good days than bad for all that know the life of varying degrees of misery that's associated with so many conditions.
@DemonKeeperArts.n.Crafts
@DemonKeeperArts.n.Crafts 3 года назад
I have a friend who's dealt with this for a very long time and finally she had to have surgery, it partially worked which for her life livable again considering before she was barely living and barely able to function at all. With three young children living her life was not something she was willing to give up doing.
@CassandraHanley
@CassandraHanley 3 года назад
I am so glad she found some relief. Something is by far better than nothing when things get To the worst. But….. oh how I wish no one ever had to feel this.
@DemonKeeperArts.n.Crafts
@DemonKeeperArts.n.Crafts 3 года назад
@@CassandraHanley I do know from listening to her experiences she's explained nothing I've ever dealt with has come close at all pain wise. What you and others deal with experiencing the pain from T.N. I honestly couldn't begin to imagine so anyone who deals with that I hope relief can be found.
@Knorrette
@Knorrette 3 года назад
Sorry you have to go through this. I never heard of this condition but it seems almost impossible to live with. Wishing you strength and winged hands for your surgeon. Good luck with the surgery and hope you have a speedy recovery.
@Knorrette
@Knorrette 3 года назад
Oh, nearly forgot - what an incredible piece!
@CassandraHanley
@CassandraHanley 3 года назад
Part of my reason for posting this is that many have not heard of this condition.. but it is not rare. That means there are a lot of people dealing with this silently.
@CassandraHanley
@CassandraHanley 3 года назад
Thank you 😊
@EdnaCloud
@EdnaCloud 3 года назад
Heaps of love and support coming to you from Wales, UK. Admirable video, honest and informative. Fabulous art, so sorry you are suffering Cassandra but as always your videos are worth the wait
@CassandraHanley
@CassandraHanley 3 года назад
thank you
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