I actually wanna hear Anna's take on PMR(Pre-Menstral Rage Syndrome). I think this could be what leads to the bipolar diagnosis as well. I always get this and I can be quite and handful right before well.. Even some of my other gal pals said they get the same. I call us ladies "Queens" for a reason! Stay Wild Truce!
Rianna Majzoub I don’t have that, I have PMDD though and it is vile but my symptoms have calmed down a lot since going on the depo. Would defo recommend
@@TheAspieWorld maybe you should do a video about eye contact? I would be really interested in seeing what I look like talking to other people - because I look quickly and then away... And also, YOU say you have to. Change the world! Don't do it! (I am not yelling, I am just impassioned)
Zoom calls are the worst. There is nowhere to look except directly into the other person's face. If you look away it's super obvious, and the other person may assume you stopped listening and comment on it.
I know this is 2 years old, but in class whenever a teacher asked me a question and stared at me, i always had to look away. This was the same as home with my mom. When they'd ask me "Are you listening to me?", in my mind i'd think "Why do i have to look at you when answering? Dont you hear me already?" and it would just be confusing.
I'm 31 years old and was diagnosed a couple of months ago. It started when I went to an Autism workshop as part of my business (we teach children coding, robotics Etc and work with many autistic children). It was a 2 day work shop and I was in a state of shock the whole time because everything they spoke about was ME. Everyone else was learning what being on the spectrum is like for someone but I felt like they were just speaking about my life. I left that workshop both confused and enlightened. I discussed it for weeks with my wife (who attended the workshop with me and also felt like they were describing me) and eventually decided to bite the bullet and seek a diagnosis. I had a session with a psychotherapist (that specialises in ASD in adults) for a couple of hours, with my wife and pretty much straight away she saw the signs in me and by the end of the session I had my diagnosis and I received my report a couple of weeks later. I definitely wish I knew sooner, especially when I was in high school and uni because I could have gotten more help and support rather than just being put in the "too hard" basket and ignored. I definitely feel like I could have succeeded more if myself and others knew I was on the spectrum. However, I am so glad I have a diagnosis now because I finally don't feel like a freak. I now know why I am the way I am and it is really a life changing feeling. I love your videos by the way, I watched them non-stop before and after my diagnosis ❤️
I would like to try for one, but not sure if I quite have enough of the symptoms yet. What do you mean the "too hard" basket? Meaning the work? I'm glad you were able to figure out what it was that was causing issues through out life.
I am 31 too and trying to get a diagnosis. I never knew until a few months ago that it presents differently in females. Once I saw how girls present with ASD I was like woah, this is me... I haven't talked to anyone about yet except my best friend. I wanted to find out for sure if that's what I have before bringing it up to my husband/family.
You know it is funny a lot of people say that my voice / audio is soothing ha! Thank you so much for the comment! Make sure you are subscribed and have the notifications turned on :).
I discovered that I'm autistic at age 27. I can't get an official diagnosis but I have no doubts. It has been such a relief! Finally there are other people who are just like me and they offer great advise on how to every day struggles. Autistic vloggers have helped me out so much.
@@koen8185 Because the only center that offers this kind of diagnosis is the same Center where I got diagnosed with dyslexia at 18yrs old. And they told me basically there is nothing we can do for you since you're an adult. (It was incredibly difficult the first time. I had a meltdown in the waiting room.) The waiting list is years long and it is obvious from their online presentation that their understanding of autism is not up to date. Having an official diagnosis is not that great in my country. There are people who have lost custody of their children without any other reason but their diagnosis. And as I work as a nursery and kindergarten school teacher, I am afraid that a diagnosis will cause trouble in my employement. I have to get a doctor to sign that I am in excellent health, which includes mental health. And I am afraid that the diagnosis will make it seem like I am not fit to work with children. I have a new teaching job and my new boss is way nicer since the last time that I posted this. Maybe I will consider "making it official" in a few years after I have proven that I am great at my job.
@@Yakarash I see , what can I say , it's a difficult situation at least when a diagnosis could cause that kind of trouble , so you better don't for now . For me it took about 7 years to finally go for a official diagnosis , cause I saw no point or advantage in it really , but finally it changed things for the good . The most important of it is to get self-awareness and consciousness, and esteem of course , and find others like you to share experiences . I wish you the best in your challenge , and keep me posted ! 🖖
@@koen8185 Thank you! You are really nice. I have learned so much about myself through these kind of channels. It has become way easier to listen to my body and know how to avoid situations that cause shutdowns, or how to deal with social exhaustion. Even if I can never get an official diagnosis, these channels have made me accept myself and be able to enjoy life more.
All my life people used the fact I've always been the youngest to dismiss my "strange" behaviour. But when I got diagnosed by a pediatrician last yr October at 17 the pediatrition was astonished because he thought it was obvious. I feel the fact I'm femail could have played in to this I guess.
I just got my diagnosis a few days ago. Your videos helped me so much through the process, thank you so much!! I got my diagnosis in four months from which I think is great.
Amy McLellan I live in Hungary 😊 here you have to 'apply' directly (without seeing a gp) by filling out a 50-page-long form about your habits, quirks and childhood, and then two months later I went to the assessment (2-3 hours long) which they recorded to DVD, so that a couple of psychiatrists etc. could watch it and talk about it. Then they talked to my Mom (3 hours long) about my childhood. Then a few weeks later I got my diagnosis.
We live in Canada and my daughter was recently diagnosed with ASD1 and her assessment appointment took over 2 hours of questions and exam by her new pediatrician who knows a lot about ASD. She also has General Anxiety Disorder and Panic Disorder. She is 17 now and we were sure back when she was about 5 that she had ASD but each time she saw a new doctor the first question they asked her was "do you have friends" and when she said YES they said "you don't have ASD" Very frustrating over the many years. She is finally getting extra help in school now. It was a great relief for all of us that she was finally diagnosed so she can get more help.
OMG! That must have been so frustrating. Expecially since most Aspie-girls do heavily depend on highly social girls as "translators". I always made friends with the nicest girlI could find, because they where more tolerant towards all my weird quirks.
I agree alot with you guys !! It took me til I was 21 to get diagnosed with Autism (only reason I did get diagnosed was Sceniro pictures and specific events in my life when explained by my parents...) But, before I got diagnosed professionals such as reflections (hated that place) said there was nothing wrong with me and blamed my bringing up as I missed alot of my school life and went through poverty for a while... but i knew within me it wasn't that! But, i was finally relieved that i got diagnosed with Autism from Lanc service in Heywood (Manchester.) But , yes i have finally been diagnosed with PDSD and UEPD/BPD , OCD and Anxiety. You guys are awesome!! Us girls do hide our symptoms well most of us. People are shocked when they find out I do have Autism lol I find it quite amusing. P.s about PIP (personal independent payement) they keep denying me ... I have so much evidence and it's stupid... and upsets me .. I do want a job well part time .. so going around in circles .. yeah when you do say you have Autism they do deny you a job too :(
Amazing video :) I've heard alot of people from the UK say they have add/adhd and autism, which is almost never diagnosed together in the Netherlands as it overlaps too much, they usually just add a comment, the same goes for OCD, panic disorder, everything with a relation to autism!
@@TheAspieWorld yeah me too! I have ad(h)d in the subgategory as my physical hyperness can also drop off and we don't really know yet what is caused by the autism and what by the bipolar 2, but my attention is definately not as it is supposed to be!
I was lucky to find a Dr to do the testing for both my children. In the US where I live it normally takes 14 months. She got me in within a month. With my son I wasn't surprised by the diagnoses. My daughter was a shock. I thought she was just shy and had a touch of anxiety.
My assessment was very fast, my assessor spotted it ten minutes and was basically ticking the boxes, in total it took about two hours. I was diagnosed through the NHS in the UK. My Mum and older brother were present, it actually took place at Mum’s house. The problem was it took 39 years to get there...Pros: I can explain myself better. Cons: I lost my closest friend of 28 years, job search is also harder I’ve been turned down for jobs I am over qualified for with flimsy reasons & people don’t take it seriously. Like Kevin Chapman, I’m South Lincolnshire based and it took me two years to get on the waiting list, I then waited a year and a half.
farmersautisticwife it is a struggle in some parts of the UK and it’s like a stupidly long time to get the diagnosis. Stick-ability is the way forward. ✌🏼
32 year old female currently waiting on an assessment for ASD after getting a preliminary diagnosis & would love to hear more specifics about the actual assessment interviews & what would be expected of me, as i'm finding the not knowing quite stressful. I am also receiving some level of skepticism regarding ASD in general - what is the best way to explain how a spectrum condition can still be a "real thing", i.e - when being told, "but isn't everyone a bit autistic, then?" I explain that diagnosis comes when the traits cause problems in life, but I feel people still assume that "everyone's a bit autistic, & you just need to learn to cope with life" & that a diagnosis at this stage of life is my wanting a label to lean on. After feeling somehow "broken" for my entire life, leading to severe mental health issues, this is so disheartening & is really causing me pain.
I had a meltdown in my psychiatrist's office five years ago and he gave me a diagnosis of bipolar NOS and borderline personality disorder after that even though I don't really fit either.. but I've been talking to him now about ASD and he's going to send me for an assessment.
I live in Eastern Europe and here even severe cases of autism are often misdiagnosed. I know for sure I am an aspie, but it's almost impossible to get a right diagnosis at my age (I'm a 26 year female). Besides, if people around me find out about my mental condition my life will get even harder beacuse people here lack education and think every sigle mental problem equals schizophrenia (they don't know about this condition either, just make offensive assumptions).
@@TheAspieWorld Wow, thank you for replying to me! I've been watching your videos for a year and the information you provide is really helpful in my situation. Cheers!
Other than RU-vid I find Reddit & some other forums are also helpful for both those on the spectrum as well as helping friends, family & caretakers. I find them great for asking specific questions, aspie life hacks, toys, sensory tips, co-occurring disorders, relationship advice, communication & so much more.
This was a really helpful video and also makes me feel how incredibly lucky I am that from when I asked to be tested as autistic it took just under 5 months to be diagnosed, after a long time of debating to get tested or not. With a couple of friends I live with being there defiently helped as they saw how I am in a completly different light to how I see myself. Now it's just the writing game of getting my report back now
Thanks to both of you!! It sure helps to know there is help for someone living with autism!! The whole video gives great information. Nice to see Anna join you and give her opinions. Always a pleasure to watch your videos Dan! :)
I'm still on getting my diagnosis, but I'm finding it really hard at work (I work in a big shop) explaining to people why I can't do certain things like work on the tills, work quickly and keep up a high level of focus when it's really busy and noisy in store. My employer just doesn't understand and really doesn't seem willing to either and all the stress isn't helping either
Sophie Leigh Art i same the problem at my job. I also can’t work quickly. If feel that if I work faster than my usual pace, i feel like my work will be half-assed
I am 33. At 22 first I was diagnosed with depression then bipolar then borderline personality disorder and finally a few months ago at age 32, Autism... for females who think they might have autism, I recommend Samantha Craft’s Unofficial Checklist: females and autism. I ticked most of those boxes as I read it and it helped me know what to tell the doctor when I went for the pre-assessment consultation.... it’s also good for loved ones to read to gain a better understanding
I’m in the US and I was diagnosed a few weeks ago at the age of 35, along with ADHD. I actually went to a psychologist seeking the ADHD diagnosis because I had long suspected that I had it and I kind of wanted to know once and for all. Thanks to private insurance I was able to get in quickly and start the assessment process. The ASD came as kind of a surprise, but not really...I had suspicions in the past that I might have it but was always brushed off by professionals. My daughter also has autism so she obviously got it from Mama. It’s been kind of a blessing and a curse...it’s helped me to understand myself a little better and to relate to my daughter more, but I’m also sad and a little pissed that no one was able to see it earlier. I find myself often wondering what my life might have been like if I had been diagnosed earlier and gotten the proper support.
Jenn12141983 Diagnosed in April this year also at age 35. Life has been hell and still is. I think there needs to be more support for adults who have struggled their whole lives. Wishing you a happy life.
Thank you for making this video. I'm a girl and I only discovered the possibility that I have Asperger's around the beginning of the year. Now I'm trying to get a diagnosis. I've been to my GP twice now, and they keep referring me to the wrong place, for general anxiety, so now I'll have to go back again! Hopefully it will be 3rd time lucky! This time I'm going to do what Anna did and write a big long letter about how it has affected me my whole life. I will unleash all my autism on to them until they start taking me seriously! 😂
SweetStrawberryShell honestly just go back and lay the law down, think me and my mum had to be firm and say no we’re being referred stop messing us about haha and voila on the waiting list i was put ✨ don’t give up 💕
I'm in the UK and am going through the diagnosis at the moment. I've been diagnosed with BPD and some of the traits of that fit but there are other behavioural things that aren't covered by my BPD diagnosis. I saw the mental health nurse at my university who said that some of the things that I was describing sound like I am possibly on the spectrum, especially the masking that I do a lot.
Hey it’s so odd how lots and lots of people are misdiagnosed with BPD when it should be ASD. Thank you so much for the comment! Please subscribe to my channel to see more videos from me :).
I went for a diagnosis in April. The psychiatrist I went to knew me since I was a little child. Back then she diagnosed me with F40.1 from the ICD10, so social phobia, but also depression. She re-diagnosed me with social phobia/anxiety again this April, noted a LOT of female traits in the paper but still said there was no way I was autistic. She literally told me that everything written on the internet or in books (by Aspies btw..) is nonsense and does not in any way picture autism as it is... And she told me this from the very beginning. Said, that autism portrays a certain picture I did not fit in because I could talk to her. There might be some connection to anxiety but I don't feel like it's only social anxiety. I can't relate to this as much as to ASD. I talked a lot with members of TheAspieWorld Discord server about this and they said I should try again, but with someone who is specialised in adults. I am kinda frustrated cause I read a lot about females going undiagnosed or misdiagnosed on German forums cause I feel like over here we're still much more behind when it comes to this... One woman there went through several mental hospitals and got 7!!! different diagnoses before she got diagnosed with ASD... It's crazy and actually... I don't have much hope left of getting a diagnosis given the circumstances lol
The psychiatrist is clueless herself - how on Earth does she know what being on the spectrum is, she is neurotypical herself!! What she is saying is nonsense, and if you have done the online test for autism ( psychology-tools.com/test/autism-spectrum-quotient ), that your result indicates you are indeed on the spectrum, then print it out, take it to your regular doctor in the first instance, and try and get a referral to a specialist who knows what they are talking about properly. If none are available from the state, then you may well be better to seek a private diagnosis with a recognised expert.
i have autism but wasnt diognosed till i was 16 and had a mental breakdown in college, i think mainly because i am a trans guy (wasnt out at the time) and have all male autistic traits but everyone thought i was female. all through school i was being examined and getting help as the schools knew i had something wrong with me but could never work out what.
This really sucks. My family would tell me I have low self esteem just because I expressed I wasn’t comfortable in big crowded celebrations. I mean ????. People that don’t know about the subject tend to shrug it off, it’s sad. I think getting officially diagnosed is a great idea. And to those close to you maybe try to show them some literature on Asperger? That helped with my mom.
@@nattr612 I I got told the same thing as well when I came out. My mom would say "You just haven't met the right person yet." It wasn't until I showed her a documentary on the subject that she believed me and understood it.
Go to the National Autism Society website and do their online test. This will give an indication. There is also advice there. I think the guidance is that if you score over 35 out of 50 then you probably have ASD. Take that score and see your GP, they are pretty much the only gateway to getting an assessment.
I've been waiting on my ASD assessment for over 2 years, exact same boat I was 22 or 23 and hadn't a clue what Autism was until my mum was like "do some research, I think this is you etc." Very soon discovered meaning to things in my life that didn't make sense, becoming more aware of myself and my perspective etc. Have came across your channel completely by accident but very happy that I have because I already feel much less alone and isolated .
I definitely think I am on the spectrum as I struggled with many of these social situations/interactions. Interpreting relationships and their meaning and understanding other people's perspectives. I now have a BA in Sociology and Communication combined with my skill of masking it makes it difficult to explain to my family and friends why I think I'm autistic. Many people have outright said that there's no way, but they don't understand the tremendous amount of anxiety and how lost I felt in my youth and during young adulthood. Are there any benefits to seeking out a diagnosis when I'm in my late 30s and have essentially found success in building a family and career? I'm conflicted if I should seek a diagnosis at this point because I've already developed the skills ABA would have taught me.
There could come a time that your tolerance and patience for human behavior stops , you've just had it . It's nice then to already have a formal diagnosis in your backpocket as explanation and evidence .
I had the initial appointment a few months ago and they hadn't followed up si I called and they said the lady hadn't even gone through my previous records yet and hadnt decided if they were even going to start the process and it annoys me and they still haven't called back
I'm subscribed to both of you! Good to see a collab / crossover. For the first question, I'd say bring up Autism / Aspergers vaguely, just as a general topic, an article you read, or maybe even a famous person on the Autism Spectrum. It might mean having to try to fit it into a conversation, but you can usually tell a person's attitude by their reaction to it.
Very interesting i found this helpful. i am seeing a psychologist and am hoping she can help me with the question to find out if i have aspergers. i know i have ocd's. it would put my mind at ease just to know if I have it or not. i think I do have it because my wife and my mother in law thinks so.
I was diagnosed with OCD first, before my Aspergers diagnosis. OCD treatment was important but my therapist took a while to understand my autistic/special interest obsessions and my anxiety-relatex obsession and compulsions.
Try to get a diagnosis in Greece.Its hopeless...They are many years behind.I was diagnosed at34 with bpd but i think there is still more ...Maybe i have both or i was misdiagnosed,but i m so embarassed to say to a doctor that maybe he is wrong or i know better than him...
This is some thing interesting. I mean I got my job and had to tell about some other diagnoses I have. One is being legally blind. And I’m quite happy that I got my job nevertheless. I already mentioned self injury us behavior. I had to reassure the company I’m working for that work wouldn’t be the reason why I would harm myself. And work isn’t the reason why I hurt myself in the past and not even in the present. In Germany you get a kind of disability passport. I don’t know if this is the right word for it. It is basically a card in the size of a credit card with your picture and then it’s saying that you’re disabled maybe you also are allowed to take somebody with you for example in public traffic or when traveling or in cinema and other stuff. Then there is written how much percent your disability is. In my case it is 100% disability because I can’t legally blind. In fact I don’t feel this hard disabled because I develop coping strategies and strategies how to help myself. And then there are some extra short forms like Bl for blind H for helpless (I don’t feel helpless most of the times, but there are situations where I need help) G for mobility disability, aG is severe mobility disability. I know that there is one for people re hard hearing or death but I don’t know this. But there are no diagnosis written on this card. Another thing that seems different is that employers Hass to have a certain amount of disabled people in their business, otherwise they have to pay money as a kind of punishment. And it’s enough if you give a copy of this disability pass and they don’t have to know which disability you have. In Germany it is important to have an autism diagnosis if you want to work on autism specific issues because not every counselor has experience in autism. And autism therapy isn’t paid by health insurance you have to quietly for this in another office. And this is the reason why I, personally would like to get a validation of what I think how I feel. I mean, I can’t get any more benefits than I already have. It’s just about getting help if needed. And I don’t want to have any other benefits. The only thing I always wish is to be understood, never mind if it’s about my vision, my complex PTSD, disassociative identity disorder or possible autism. That’s all I wish.
It is super Awesome after a diagnosis to have someone to help understand myself and my aspie traits. I am now in the process of understanding when I can't talk and soo much more!!! :)
The Aspie World demand avoidance affects a lot of people on the autism spectrum. PDA isn’t in the DSM but is widely reported. It’s when demand avoidance is to a pathological level. It’s definitely worth reading up on - especially as an advocate for autistic people; you might even recognise some traits in yourself!
The waiting list here is about 3 years and since I can't connect with a psychiatrist (probably because I'm autictic and they refuse to adjust to that without a diagnosis) I'm never being put in cue for getting a diagnosis and it's just hell
@@TheAspieWorld yep, there's so much pressure on the mental health system here and they really don't have time for anything. Just now I said that I wanted to switch psychiatrist in March and I have my first appointment with the new one on Monday
I'm a FAB ( female at birth) genderfluid person that was purposely misdingosed with Psychosis. When I got a new psychiatrist I was dingosed with GAD (Generalized Anxiety Disorder), major depression, PTSD, and Autism. I'm 17 ( almost 18) now, when I was misdingosed at age 13.
My 3 year old daughter just got diagnosed with mild ASD, after her diagnosis it's also making me question if I'm also on the spectrum. Now that I think about the way I was as a child it makes a lot of sense. I was always very shy and didn't like to play or go out much, I would bang my head on the walls and floor as a toddler and id get very upset and angry a lot, I could never focus in school and it just seems like it's all coming together. This video helped me a lot, you don't hear much about women with autism and your right it's always been more focused on boys, so thank you guys for this video. 💜
If you identify with almost 90% of the checklist like it explained your WHOLE LIFE....if it resonates with you so much you are yelling YESSSSS OMG YES to most of the questions.... would that be a fairly certain indicator that you have it? Also scored high on all the tests exept one i still scored in the autism range but closer nt. I will get assessed but i need to understand now... my whole identity hinges on it
I'm currently in the process of receiving a diagnosis for my teenage son AND daughter. They are VERY different as far as "symptoms", but I definitely feel they are both on the spectrum. We are in the US. Does anyone know if they would qualify for special services, as adults in the US, as far as work? Such as, being able to work part time, like they can in the UK? I hope that made sense....
If you lose a job because you tell someone you have Asperger's, you would not do well in that unenlightened environment. I'm thinking autistic people who can work online, have their own money making arrangement have the best work and money relationship.
thank you for this video. Im 33 and looking for a Diagnosis at the moment. I have a diagnosed Depression since I was 15 years old and the struggles got worse each year. I found out about aspergers through a podcast and was looking for a new neurologist/psychatrist who knows about it (my old one said I could not have autism/aspergers because I'm able to talk! -.-) and the new one was awesome and gave me a referral. Now I need to find someone who does the diagnosis because she dosent do that. But everyone I find has waitinglists of months up to one year ._. thats crazy. (not to mention that I have to travle ~4hours by train to get to the nearest one who takes new patients....)
Hi I'm 42 years old and was just diagnosed today I've known for quite a few years that I maybe on the autism spectrum but today i finally after of years got my diagnosis
This video makes me very sad. Here in the US I have no access to diagnosis, treatment, or counseling as I cannot afford a widely accepted health insurance. I cannot sustain a job due to meltdowns and burnouts. I’m constantly changing jobs and I feel like I’m drowning. There is no help and no support
My 10 year old daughter has ASD. She has repetitive speech pattern, deficiency in comprehension, and has zero friends. I hope she makes some friends when she grows and be able to make sense when she communicates.
I'm going to therapy (which has helped) but I suspect that I might be on the autism spectrum. Especially after hearing a friend noticed similar behaviors I and her son have.
Its tough being a female who masks traits so it's difficult to diagnose when you don't display what are regarded as typical male autistic traits. Its tougher being a male who masks so it's harder to diagnose when you have the traits that are currently associated with female autism! Perhaps the gender association should be removed all together, firstly look at commonly known traits and do further testing to pick up the more subtle signs and traits which can be missed when masking? How about a video on masking and camouflaging in males? It's not just a female thing!
@@avlpe7662 Not unless you're a young child on the lower functioning side of the spectrum, and even then they're far more likely to be stamped with Unspecified disorder of psychological development. As a 35 y.o. with a higher education who can occasionally hold a job I'll just be laughed out of the establishment.
Sorry, I forgot to mention that when I was informing my parents why I wanted them to fill in that formula they thought that I couldn’t be autistic because people on the spectrum are all not intelligent. And I had to explain to them that this isn’t true. Now little bit of sarcasm. My parents should have been honest because the woman who gave birth to me loves to play the Martir who has to raise a severely disabled child (blind, later mental health issues as well - CPTSD and DID - the DID they didn’t get and I won’t tell them again). So many people where pitying her for this and saying that she was a strong woman. She could have got more PG if she was honest. 😂
The thing about telling someone that you have Asperger’s is that if you don’t had to do anything with this issue, you’re just confused when somebody tells you that he or she has Asperger’s. And I was about 17 till 20 I think, someone I knew told me that she has asked burgers or assumes that she has asked burgers but to me she seemed completely fine. The only thing that was really obvious was that she couldn’t answer phone calls or do phone calls and Unfortunately, like me self harming behavior.
I've been misdiagnosed as having emotional instability disorder, and new one that they think it may be is cyclothemia which is a milder form of bipolar apparently. My little boy had asd ADHD and ODD and his life is very similar to how mine was, watching him grow up is like history repeating. I am awaiting a new asd assessment appointment now. Like I've said before, your channel is amazing help for people to just get some understanding of their condition or their loved ones diagnosis. Thank you 😊
I got my assessment recently. The experience was so negative. I wasn't really asked questions, everything I said was followed by something like "Oh, that's not on the list here". She completely ignored the social interactions part because I was diagnosed a decade ago with social anxiety. I still feel I have Asperger's, but I can't bear going through something like that again.
The best advice would be to research where it would be possible in your part of the world to get seen by a recognised expert in autism diagnoses, and not a Quack like you have been to previously. Social anxiety is very much related to autism: it is a well-known co-morbid factor, so that should naturally be taken into account as well, as it is one of the common traits. Don't be put off (which is what they want), and pursue a proper diagnosis until you get one..
@@avlpe7662 Thank you! I was seen by an NHS "expert" in autism diagnosis in adults (in Scotland). After the assessment I spoke with other women who were diagnosed and all agreed my experience was nothing like theirs. I was pushed to give answers "give me something", but my obsessions, collections, and repetitive behaviours did not seem to fall within the items on her list... And while I possibly do have social anxiety the problem is I really don't know how the game works. I copy, repeat what others do but always seem to get it wrong. It was only 1 1/2 hr of assessment (I knew that in advance) but after 20 min I shut down and could not give any proper answer. She interrupted me many times as well, saying "oh, I do that too". It was patronising and humiliating. I'm so glad I discovered Dan and Anna!
@@mel_cosentino Hi and you're welcome, the best advice would be to do the Autistic Quotient Test online ( psychology-tools.com/test/autism-spectrum-quotient ), print the results, and take them to your GP, saying you are convinced that you are on the spectrum, and ask for a referral to a recognised expert (who knows what they are talking about!). Keep pursuing it until you get the diagnosis done properly!!
I’m in Australia and I’m currently going through diagnosis (one session down, one to go). They gave me the option to split it into two sessions a week apart or do the full 3 hours. I highly recommend splitting it up if you can! Not only is it less draining, but I’m realising a bunch of stuff that didn’t occur to me in the first session that I can write down and show them later. As for referrals, I skipped that because it’s too complicated. I had the option to just walk in and pay out of pocket. It cost $600 each session. However that does mean I could just book straight in, and I had the option to get the appointment within 2 weeks. Also apparently in order for diagnosis to be fully acknowledged here (when it comes to getting government aid etc) they need to do a dual diagnostic with two people interviewing you at once (eep). This video has really great advice. Also if you can’t have someone close to you or a parent come in, it’s a good idea to spend the time beforehand to assess your own behaviour and notice the “quirky” things as much as possible, and write it down if you need. Definitely research what kind of things you should talk about because this will only help them out. If I hadn’t paid close attention and spoken to my psychologist about what signs to look for, I would’ve been very unhelpful in the interview. (As a side note, the people assessing me are really nice and make it really easy to talk to them, phew)
Ive literally been trying to get a diagnosis for 10 years. Ive had multiple doctors agree that they think i have asd but ive never actually been formally diagnosed so i cant get any help until i get the diagnosis
Parents: f**k you my child is fine Me: reading every single google doc on my new schools website to see which classes I won't get anxious/ be interested in and then writing notes for teachers on somethings about me, then writes notes just in case the teachers want to us to say things to the class.
Great video Dan. I am on the waiting list to be assessed for aspergers, have been told the wait is 18 months through the NHS where I live!! Can you do a video about the help that is available to you once you have been diagnosed? Thanks
My daughters first evaluation was at 2 1/2 years old. Another at 3. Pediatric neurologist at four. The only diagnosis was adhd. Second opinion developmental pediatrician appointment at five. She agreed with adhd and added anxiety. She saw ocd tendencies. Now she’s added additional screening and I think we are headed towards an autism diagnosis. I think that’s correct and I just want her to get the help she needs. She is almost six. We are in the US.
My son 16 was diagnosed in March asd level 2 and my daughter 13 was diagnosed with aspergers in May. My son was misdiagnosed with schizophrenia when he was 11. Where doing genetic testing.
Hi guys; My favorite part of the video is pretty much everything you both shared about your experiences..... It's interesting to hear about the assistance available in the UK..... I'm 54, and live in the US. I'm already on permanent disability "benefits" from losing my left leg in an auto accident when I was 30, which was a suicide attempt..... I can only imagine how different my life would have been if I had even known of the possibility of being on the spectrum and had had the right support instead of just being diagnosed as having depression and being put on Paxil, which is basically generic Prozac..... I began my journey into the possibility of being on the spectrum almost two years ago when my sister in law told me that she and my brother had had genetic testing done after my nephew was diagnosed with autism, so they could find out which side of the family has the gene. She said that it's my brother's side, and that one of my sister's sons was diagnosed with Asperger's. So I started researching this and the more I read and watched about ASD, the more I began having the "AHA" moments that gave me the answers to all my unasked questions about why I'm such an "oddball," why I've always felt that I'm on the wrong planet since I was very young, why I'd get in so much trouble for saying something and not understanding why, and so much more. I've reached out to every organization and clinic that I can find, looking for how to get assessed as an adult, but I stopped about a year ago because I felt like I just kept hitting brick walls..... I've been told by the clinics that there isn't anywhere even remotely close by that accepts my insurance, I've been told that I'm not on the spectrum by a former psychologists who I saw for many years, I've been told by one of the local organizations that "Asperger's doesn't exist anymore", I've been told by another local organization that if I was on the spectrum that I would have been diagnosed YEARS ago, AND, I've even been told by another organization that only CHILDREN have ASD and that I can't be diagnosed now since if I DID have it, I've "OBVIOUSLY grown out of it"..... I'm on government healthcare, so yeah..... SO..... I'm wondering what you recommend in what are the best RU-vid videos/channels for the US that have specific information that could be of assistance to me..... Thanks 😊
Another amazing video! Thank u Dan! Is it even possible to get diagnosed in Russia?🤔 It's really scary coz I think they're not qualified enough Especially to diagnose a girl 😂 And I've never heard about centers specialized in autism So there's probably no such thing in my place Your video came just in time !😎 (Besides U can be proud of a scale of your channel)
You talking about getting your diagnosis sounds similar to my experience every time i go to the doctor’s office but longer (not that of course I’m saying they’re the same at all). After I’m always exhausted and i feel like i’m being interrogated when they ask so many questions. I haven’t been diagnosed with ASD it’s just an experience your descriptions reminded me of. Edit: Also I just wanted to say that I find your videos super interesting and helpful even without ASD, they help a lot to deal with my anxiety because I recognise quite a few of the traits you mention in myself. So thank you!!
holy moly, such a fab video. Im currently unemployed because of the woes of aspergers and im not on any benefits, has ESA been swapped to Universal Credit now or am I getting it wrong? I really thought there was no point signing on before this video lol
@Sophie New claims have to go through Universal Credit, but the good news is that it's £94 more than ESA (Support group rate). It's around £654 a month. People already on ESA stay on it for now, until Universal Credit is rolled out across the whole country.
@@sophierebekah You're welcome Sophie, and yes your personal circumstances do influence the rates - see the following link for all the rates in tabulated format: www.entitledto.co.uk/help/Universal-Credit-Rates
@@sophierebekah What happens is that you get the basic rate straight away, then you have to have a face-to-face assessment, afterwhich you get the "Limited capability for work & work related activity" rate added on, plus the extra component gets backdated to the start of your original claim.
The PIP/jobseekers point is useful, I did not know about that. Also I am horrified by the fact that you actually have your job offers revoked! I am temping just now because I really struggle in a professional workplace. At least this way I know when my work will stop as opposed to getting sacked
