Autoimmune awareness month - Pain & Fatigue symptoms  

It certainly seems that there's massive inconsistency from doctor to doctor, and country to country.

Totally agree, and understand your situation, especially the stigma of people with disabilities and benefits. There seems to be quite a hatred online. 😞

@@AnkylosingSpondylitisMan it's not just online you are treated differently by doctors if you don't work ,the last GP I seen said to me "you should get a job you don't want to be sitting around all day"

I could have wrote exactly everything you did. Chronic pain makes you not able or feel like doing anything, even when you might not be feeling a lot of pain at that moment, it's like you are in recovery mode for that short window. What time is the worst pain? You get hit just before it gets light out? I have the burning feet also btw. I notice that sugar makes my pain so much worse, but I don't do anything about it.

What did you make the shielding box from?

@@AnkylosingSpondylitisMan I made a few differnt ones. 2 inches thick of foil faced Polyisocyanurate. Make sure you use half inch or thinner sheets so it is in layers to make 2 or.more iches. Use aluminum tape to put together. Add several layers of extra foil on outside, i use heavy duty roll from cost co . Cut in a fan. Better if you draw air through several feet of metal duct and put copper scouring pad inside, also ground box... but it will work either way with grounding and extra duct. Depending on the problem, the box needs to have door closed. For back pain and some other issues you will find the door can be open. For geo magnetic issues like migraine and seizure, the box needs to be sealed well and where the duct and grounding may be better, depends on how sensitive someone is to geo magnetic activity (Induction), like my wife is. The vornado 8 inch fan is the best, they last a long time...a fan with air going in and one going out is best. I have tested and used for over ten years. I can walk you through anything. Alternative materials that cost more are HDPE and stainless steel. Geo magnetic activity is very low frequency, I was supposed to find out that stainless is best for this, but cost a lot. I did build a box with HDPE, it cost me a lot of money but I think it was overkill. I tested for over ten years thousands of times with measly every medical episode, some more and some only a few times. I can tell you which ones it worked for and some it had no effect. There are some surprises like a no. Stop cough (like we experienced during lockdown days) and Fibromyalgia takes about 30 seconds. I believe the space weather Activates epithelial and inflammation because in a study from July 2022 they showed solar flare activates endothelial and inflammation. The implications of endothelial I feel is really big becaus it lines out entire body, vascular system and some organs, may explain why space weather is such a primary trigger. Just my thoughts.

@@AnkylosingSpondylitisMan excuse the spelling errors .. I wrote fast while having lunch. Lol. I tried to leave a link to my yt that shows the box, but yt didn't let me

@@AnkylosingSpondylitisMan You can also use Galvanized Steel Roll , it is an excellent metal. It is important to use the foil faced polyisocyanurate (unless you use HDPE) because very few materials strip a muon or HZE high energy particle. We are mostly blocking two different things that occur opposite half the time and trigger specific types of episodes. If you use the roofing roll of galvanized metal, the edge is razor sharp, so be careful. If you ground the box woth a plug in the wall, please buy a cheap tester for 5 bucks and test for a hot ground.

@@AnkylosingSpondylitisMan if you are doing an entire room, it's easy just to use foil and polyisocyanurate. Don't worry about all the other stuff. Also, Best to not have metal facing inside the room as the last layer, you can also paint it if you have the metal facing against the wall. Using the anti wifi 5g paint at H depot would be awesome, you would be covering a wide range.... very peaceful, sleep is awesome either way.

Did the fusing of the lower spine hurt?

​@AnkylosingSpondylitisMan Yes, that was one of my first signs. I was in a wheelchair for about 2 years......back in one now, tho after fractured T11