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Autoimmune Encephalitis | What is Autoimmune Encephalitis 

Friendly Neighborhood Immunologist
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Autoimmune Encephalitis (AE) is a disease that damages the cells of the brain, neurons. During Autoimmune Encephalitis, the immune system gets confused by certain types of viruses and tumors and attacks neurons with antibodies. This video will describe: What is Autoimmune Encephalitis, How AE might be caused, What happens to neurons during AE, and then discuss some treatment options. Always consult with your doctors about what is right for you. Lastly, please forgive the spot on my camera lens. I will get it fixed soon.
For AE help:
aealliance.org/

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3 авг 2024

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Комментарии : 84   
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
This is a requested video, which I am happy to do. I spent a lot of time on it, but I ran into several issues filming. Please forgive the black spot on the film. My camera was somehow damaged. Adobe Premiere also gave me a lot of issues with the audio. I will work on fixing it. I knew it would take me days to fix, and I wanted to post the video for the subscriber today. I think the overall explanation is still communicated. Thank you for understanding.
@ricknofzinger
@ricknofzinger 2 года назад
Thank you so very much for doing the research and posting this. I know you won't get a lot of views because of the rarity of this disease. I am surprised that only 41,000 have AE in the U.S. I have been hospitalized twice with seizures.since my diagnosis in 2015. My only treatment now is an ant-seizure medication, which I take 2xday. This prevents my seizures, as well as my fogginess, repetitive movements, tremors, etc. So, I am not cured, and fear further deterioration of my cognitive abilities, although the only thing currently affected is my poor memory (I blame it on my advancing age). The Drs. did talk to me about Chemo, but did a poor job of explaining why that would work. An operation of some kind was discussed, as well as a longer course of steroids. I have learned much more about AE from your video than I have from any neurologist I have talked to. So, again, thank you. I will share this with my AE group on Facebook. I enjoy all of your videos. Your drawings are exceptional in helping us all to understand your explanations.
@terjeoseberg990
@terjeoseberg990 2 года назад
How did you draw a virus exactly on the black spot? Was that a coincidence?
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
@@ricknofzinger I’m glad I could be of help in anyway. I hope you can work with your doctors and find a better solution for your health.
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
@@terjeoseberg990 complete coincidence.
@ricknofzinger
@ricknofzinger 2 года назад
@@friendlyneighborhoodimmuno7192 Thanks.
@user-vm3dv6dy2h
@user-vm3dv6dy2h 4 месяца назад
thanks for the explanation, we recently had a patient with this, turned out she has a teratoma!
@timothys820
@timothys820 2 года назад
Thank you so much for this video. I’ve seen many doctors but very few have an understanding of this disease.
@deepaknayyar9285
@deepaknayyar9285 Год назад
Once again, I watched it and got a better understanding of AE. Thank you for your tutorial.
@aprilsatterfield3868
@aprilsatterfield3868 2 года назад
Thank you! Mom of an AE warrior. Yes, ivig or plasma exchange is usually first line treatment followed by rituximab or cellcept (chemotherapy immune suppressants suppressants) are 2nd line treatment.
@Elliemaret
@Elliemaret 2 года назад
How is your mom doing?
@aprilsatterfield3868
@aprilsatterfield3868 2 года назад
@@Elliemaret It is my son with AE. My son has better quality of life but not fully recovered.
@haroldestafia5307
@haroldestafia5307 Год назад
@@aprilsatterfield3868 my son who is 3 years old has suffering A/e currently. He is the the hospital for two months now. My son underwent plasma exchange and the doctors gave my son immunoglobulin. I'd like to know how long months does your son stayed in the hospital before he recover?
@haroldestafia5307
@haroldestafia5307 Год назад
Thank you so much for this video doctor. This helped me understand more about my son's illness he has currently suffering.
@aprilsatterfield3868
@aprilsatterfield3868 Год назад
@@haroldestafia5307 unfortunately my son wasn't hospitalized, he was having seizures, unable to speak, catatonic, loss gross and fine motor skills. It took 2 years to get a proper diagnosis and treatment. So he has deficits 6 years later but much better. It took about 2 years of treatment to get where he is now. But we saw improvement with ivig each time and rituximab helped a lot.
@bigtommy20
@bigtommy20 2 года назад
Very well done! Thank you for sharing this. This is an excellent resource for patients of a/e and breaks things down to a level I think most can understand. I’d love to hear your thoughts on long term prognosis particularly anti nmda and mog. Thanks!
@jeffblydenburgh5938
@jeffblydenburgh5938 2 года назад
My dear friend who has AE sent me your video because there is so much going on with her and I couldn’t understand it all not grasp it. Aside from the audio breakup, this was detailed in such a way that made me understand it better. Thank you so much for doing it as I come to terms with her struggle and understand it better.
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
Thank you, and I am sorry your friend has AE. I hope she gets the very best treatment.
@davidmathews9633
@davidmathews9633 Год назад
Jeff Can you tell me what kind of treatment she is getting
@M1NDCR4WL3R
@M1NDCR4WL3R Год назад
@@davidmathews9633 I would like to know to. I hope she is doing better by now.....
@dammitol25mg19
@dammitol25mg19 2 года назад
Well explained and well chosen topic. Thanks.
@deepaknayyar9285
@deepaknayyar9285 Год назад
Love your teaching i will watch again to gain it deeper knowledge.
@malexander2438
@malexander2438 Год назад
5 star explanation and delivery :D
@AaronBosterMD
@AaronBosterMD 2 года назад
awesome video, thank you for making it!
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
Thank you!
@celestialfix
@celestialfix 2 года назад
Your drawings are fantastic…….kind of the “comic book” version of the science, which is all I could understand anyway, lol.
@BenjiBartlett
@BenjiBartlett 7 месяцев назад
Sincere gratitude. To see the diagrams and explanation has clarified my understanding of how VE changed my life. Recovery has been accelerated with regular yoga, meditation, music creativity and long distance running along with freediving and river swimming. It was probably the river swimming that caused it in the first place...but hopefully my white blood cells and immune system has learned it's lesson...the hard way 😂🧘‍♂️🧜‍♂️🏊‍♂️🎸🎶🙏👌. All good stories have happy endings. Next March/April I will be involved in raising awareness and funds for The Encephalitis Society by Freediving through a 26M deep, 30M long, 18M exit point concrete tunnel. 🧜‍♂️👌
@voiceofyougstersislam817
@voiceofyougstersislam817 Год назад
Never been so undersandable, 💕
@Awnikant1
@Awnikant1 11 месяцев назад
Thank you ma'am, you explained it very well.
@stoms8238
@stoms8238 Год назад
This is happening to me now. I keep telling doctors that I feel tight in the brain and that my brain feels like it’s on fire
@eilidhmclarty5784
@eilidhmclarty5784 Год назад
I'm the exact same however my mri and recent blood counts were clear!
@cespo77
@cespo77 6 месяцев назад
Did you ever find out what was going on?
@sanjayhm4935
@sanjayhm4935 2 года назад
Thank you ❤️
@thiagomarques9429
@thiagomarques9429 7 месяцев назад
Thank you!!!
@mariamaboutouk8849
@mariamaboutouk8849 11 месяцев назад
thank you
@andycochrane4131
@andycochrane4131 2 года назад
Great content, thanks. Extremely valuable at this time for people like myself, just trying to make sense independently. Could you please do a vid on post-splenectomy vaccine implications?
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
Yes I will look into it. The spleen does house lots of macrophages that break down old red blood cells as well as B and T cells. It could alter a few factors during vaccination.
@andycochrane4131
@andycochrane4131 2 года назад
@@friendlyneighborhoodimmuno7192 😍
@leahblack4417
@leahblack4417 2 года назад
Thank you, it's really interesting because it also sort of fits into my mRNA research and I can learn more about the immune system! Also the issues weren't bothering me :)
@gardenvariety-
@gardenvariety- 2 года назад
What do you mean it fits into the mRNA research?
@leahblack4417
@leahblack4417 2 года назад
@@gardenvariety- There's even more information about how the immune system works, which to me anyways, complements this video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-et7bGU4hbYE.html
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
I’m glad the issues didn’t bother you!
@anneefroc4234
@anneefroc4234 11 месяцев назад
Does it bother you now spike is in brain and recognised encephalitis is a adverse event from MRNA vaccines.
@donnazukadley7300
@donnazukadley7300 3 месяца назад
Many who had the C jabs have autoimmune encephalitis. This year alone I have over 10 patients diagnosed with it including encephalopathy, encephalitis, metabolic encephalitis ​@@gardenvariety-
@MsKatrinaSL
@MsKatrinaSL Год назад
What is hashimotos encephalitis and what causes it and how do you treat it?
@RyanBissell
@RyanBissell Год назад
Do the seizures caused by the "less inhibition" form of AE usually correctly present on an EEG as neurological in origin? Or can they appear to be pseudo-seizures?
@bankaswetha9424
@bankaswetha9424 7 месяцев назад
Hi one of boy at the age of 15 was diagnosed with bipolar disorder. Now at the age of 22 he died due to this. He was on lithium tablet. Is bipolar disorder linked to this.
@sheep4521
@sheep4521 Год назад
When one has had Autoimmune Encephalitis, do they typically need regular immunosuppressive treatments throughout life?
@Number4lead
@Number4lead Год назад
Is this similair to CTE as far as the end result?
@rafelmelendez5876
@rafelmelendez5876 2 месяца назад
Thanks. Mine came with lupus.
@davidmathews9633
@davidmathews9633 Год назад
How do I find help for this. LORD please heal
@willhammers9761
@willhammers9761 6 месяцев назад
I had Robin cephalitis 3 years ago. Was completely paralyzed I was told 2 years is the max for recovery, but after 3 years I still feel my paralysis going away. What is the actual amount of time that your body will continue to recover from this paralysis
@happyandfreehealing
@happyandfreehealing Месяц назад
Can it be temporary after a TBi in someone with chronic Lyme?
@haleyjones5832
@haleyjones5832 10 месяцев назад
Hi! I was diagnosed with Autoimmune Limbic Encephalitis in 2020, after struggling to get a diagnosis for years. I had cancer as a child--ovarian dysgerminoma, a germ cell tumor, at age 10. I'm a walking rare case, right? And I'm so curious about if the cancer (or the treatment) caused this autoimmune response...which actually really started around age 21, I think.
@drEAmzZzza
@drEAmzZzza 10 месяцев назад
what symptoms did u have? and duration of it all? i think i have this. god bless glad ur ok
@robinmaly8110
@robinmaly8110 11 дней назад
How do I find a doctor that can treat this??? My 17 year old daughter has had this for over 3 years now, and has just been placed in the Austin State Mental Hospital. Who can help her? We don't have good insurance - she's on medicare.
@poshaknaik450
@poshaknaik450 Год назад
My baby 2.5 years baby this is came in 2 years we take ivig one dose in hosperl ofter one moth she is good 70% when my baby come narmal stage it takes how many years am soo varid about my girl she is now good but adhd beheviar very haiper active plsss tell me how many years it ricover
@rajakmanjothi4887
@rajakmanjothi4887 Год назад
2 year ago my 1 year child suffering from this disses now he is ok but low mental health
@stoms8238
@stoms8238 Год назад
Can you recover from this? 😢
@soumiadahane6446
@soumiadahane6446 Год назад
Please Can you send me this explantation in text form beacause i am vert intrested in this topisc Wait your answer
@heatherwanamaker8000
@heatherwanamaker8000 2 года назад
Thanks for the information. I have this and it is not at all fun.
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
So sorry to hear that. I hope you are getting the best care possible.
@heatherwanamaker8000
@heatherwanamaker8000 2 года назад
@@friendlyneighborhoodimmuno7192 Thanks. I am getting better. Still some short term memory problems though. Thanks for your kind words.
@tnt4412
@tnt4412 Год назад
What have you done for treatment ?
@heatherwanamaker8000
@heatherwanamaker8000 Год назад
@@tnt4412 Mostly taking meds. I can't say which ones as I take a boatload of them. Thanks for asking. I hope you are doing well. What are you doing for treatment?
@heatherwanamaker8000
@heatherwanamaker8000 Год назад
@@tnt4412 Taking meds , not driving and seeing a doctor.
@gardenvariety-
@gardenvariety- 2 года назад
Also strep pyogenes, PANDAS
@friendlyneighborhoodimmuno7192
@friendlyneighborhoodimmuno7192 2 года назад
Yes good point.
@sharonlunz2408
@sharonlunz2408 Год назад
My son has this. Have u heard good results from rituxan use? He tried 6 months of IVIG with some positive results but then leveled off. He got lyme disease in 2020 plus bartonella infection mycoplasma and mold toxicity.
@Wales-forever
@Wales-forever Год назад
My god the sound is terrible in parts which is a shame 😮
@HeatherWanamaker-er2yk
@HeatherWanamaker-er2yk Год назад
I have this condition. It is definitely no fun
@M1NDCR4WL3R
@M1NDCR4WL3R Год назад
I hope you get good treatment.
@tarapalmer9140
@tarapalmer9140 3 месяца назад
Many way for communicate u
@donnazukadley7300
@donnazukadley7300 3 месяца назад
The jabs
@princearuns.kamara5313
@princearuns.kamara5313 3 месяца назад
Thank you ❤
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