Come sit with me while I describe the rarities my daughter was born with, how they have affected her life and why we call her Bella Brave. #bellabrave #medicalstory #raredisease #medicalmiracles
Thank god you live in a country that you don’t have to worry about going broke from medical bills. I have to think that plays a role in this miracle. My American brain was instantly stressed about the financial implications of her life saving treatments. You are an amazing mother.
RIP baby girl watching this brought me to tears. She was/is such an inspiration to the world. Strongest person I've ever seen. Big hugs and love to all her family and friends
I believe this young lady was brought in the world to show the power of the kingdom of God. What are the chances to be born with 3 rare diseases and the rarest form of each?? 😮 And to overcome so much as she has- the enemy had it out for her, but God has an amazing plan for her! What an honor you have to be the mama of this little wonder! She will do great things! This life has many troubles, sufferings, and heartaches- one day Jesus is coming back and God will remove it all! I look forward to the day this little angel will be 100% free from the cruel sufferings placed by Satan on this earth- but until then, she is an incredible example to us all- that we can be victorious in the face of terrible hardships, day by day, and moment by moment. God bless you all abundantly.
@@user-kc6ns7xz1ythey weren't attempting to be rude, so i think "shame on you" is a little harsh. although you aren't wrong about it not aging too well.
What a beautiful spirit thank you for sharing Bella story she has inspired me especially through depression… god continue to wrap your arms around this beautiful angel rest in peace Bella🫶🏽🙏🏽🕊️💜💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕
rip Bella you truly brought smiles to millions thank you for making your mom smile while going through her hardest time you are an Angel Bella. my condolences 💐
Kyla thank you so much for sharing Bella and your family’s story. She really is a miracle and the bravest gal out there! I’ve been following you guys for a while and it was so interesting to hear your full story in detail. It just further proves how incredible Bella, you and your family are. Thank you for shedding a light on some of the ways society is lacking in accessibility. As someone who works in the field of mental health it really opened my eyes to ways I can implement accessibility into my work and my life more. Sending Bella, you and your family so much love right now! Thank you for sharing your story.
I spent a good few nights at the hospital while my dad was sick with cancer, and my mother went to see him rvery single day of the 125 days on the dot before he passed away. The spirit Bella has, the bravery, the everything...its so unheard of when youre in and surrounded by that situation. I was thankful my father was brave, but it really felt like he was the only one in that hospitwl who had people visiting him because they wanted to, not out of guilt or because theyrr forced to. I feel terrible saying that, but its true, just based on how these people seem to be sround their sick loved ones. Even if its overwhelming grief, sometimes you need to oush and show a smile and put the best effort into keeping an amazing attitude. My father may have passed, but i am grateful we stayed positive the whole time. We definitely are human and had moments of ssdness and grief, but its having the ability to still joke sround and talk to my sick father like everythings fine, but still able to acknowledge the fact it isnt all fine. Sorry if this is a big ramble. I feel so many dont see the effort YOU put in with bella. Youre her mother. I cannot imagine how it feels to see her pushing through this with such bravery. You must be so proud. But understand, i know how mentally/emotionally exhausting it can be to go through this. For both of you, and the rest of the family too. Keep being you tho, bella too. You are both amazing, and people that we need in this world.
RIP to Bella 🕊🙏🏾😞..She definitely was a fighter and beautiful spirit. My sincere condolences to the family and friends. What a testimony, I know no more fighting and pain. …
Thanks for sharing. I found you guys on tik tok a few years ago and then gave up tik tok. I was so happy to find you on Instagram because I love her personality. Your family is an inspiration and I admire both of your bravery.
She is an incredible mom through years of caring for and minding her daughter. It's a lifetime of commitment being a mom. Don't forget about the father, he is very much involved with the endurance and finance, of course, for their daughter's illness. God bless this family.
I can't believe she had 3 disorders.This is really sad when I found out about it I busted out in full tears. I'm so sorry for your lost.She was a wonderful happy girl. Rip Bella hope you have a wonderful time in heaven fly high and keep watch on your family they miss u so much. Now I understand why u haven't posted in months
Soy mexicana y como mujer te admiro por ser una gran madre valiente y a bella que puedo decir esta lleno mi corazón de tanto amor hacia ella es una niña muy inteligente es un pedacito de vida hermoso un gran milagro como deseo de darle un abrazo con todo mi cariño se ha ganado mi corazón y el de muchos estoy segura ❤mis bendiciones para ella y su familia dios me de la oportunidad de conocerlas ❤🙏🙏🙏Dios los bendiga mi hermosa bella .
I am so sorry about what happened I will miss her and I know you will to so I am sending prayers to your family I wish you best of luck and. We all love you and Bella we will be there for you the hole time
My heart goes out to you and little Bella and your husband. What a blessing Bella is to you, even though she has gone through so very much, she is a soul lifter for you❤. This side of heaven will give us no answers to why things happen, but true, forever love conquers all. May you feel Gods presence, strength and love❤
God continue to wrap your arms around this brave smart loving and beautiful spirit… continue to be loving and sweet always and forever… rest in heavenly peace 🕊️ 💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜🫶🏽🙏🏽🕊️🕊️ 😢😢
Dear Lord, please help this sweet little angel to heal and give her a miracle. Thank you for her life and bless her so abundantly, watch over her wherever she goes and let her know that she is so loved by so many people. We love you little Bella 🩷
Thank you for sharing this I have followed you guys for a very long time and supported you through prayer. Viral hugs and kisses. I always wanted to know the full story and I didn’t ever want to ask so I appreciate you explaining it. Thank you so much and I’m so proud that you guys are on a positive journey forward now lots of love from Canada.
Rip Bella we will miss you very much❤❤❤🦋🦋🦋🦋🦋👐👐👐👐👐👐🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋🦋 it’s hard to say goodbye to our sweet girl but she is now free and is in a better place now with no pain I’m so sorry for your loss Kyla
I love watching her everyday. She definitely is an awesome little girl with her future looking bright! And watching you as a brave momma too! May God bless you & always keep you safe! Love from NM!💕🙏🏻🫶🏻😀
If I could sit down and chat with anyone, dead or alive... I would choose BELLA!! She is wise beyond her years. Has moved every mountain that got in her way. And is now on her way to climbing mountains with her bravery, strength and SaSsY attitude. #BellaBrave
I know this isn’t related to the video but please pin this message. On August 16th we are going to spread awareness about Bella Braves story. To honour her we are going to wear her favourite color pink on August 16th or copy LLBB on videos related to Bella Brave but either way to honour her. Bella was diagnosed with cartilage hair hypoplasia,scim and hirschspurngs disease. Cartilage hair is one of the rarest forms of dwarfism. Hirschspurngs is a bowel disease, and scim which is a very rare disease that messes with her immune deficiency. Bella Brave unfortunately had the most worst and rarest form of each disease which was very hard to diagnose her. She had 6 surgeries when she was born. She stayed in the hospital for 2 years right after she was born with her mother. Bella brave had to have a bone marrow transplant which is one of the treatments for being born with scim which is basically no immune system. Bella brave braved through over 30 surgeries at only 10 years old. Her sweet little soul stayed with her throughout her life. Even on the way to an surgerie she made the funniest joke EVER. Bella said “ Knock Knock.” Mum replied “ Who’s There?” “Bella” “Bella Who?” “We Are In A Bella-Vator!😂😂😂 At only ten, she was put into a medically induced coma and she passed away peacefully. Please copy this and spread this.
I did want to mention that I am a healthcare worker, and I have taken many courses and all kinds of programs and things like that and we have always been told that by 2022 all these businesses had to have access for a wheelchair and if they don’t, we are to report it because they will get a really big flying. Everybody was supposed to have everything switched over by that deadline so if you do run into something like that, make sure that you report it.
This is educational and may help people with children experiencing problems learn what might be helpful. Social media has played a big role in people being able to push doctors to do certain testing. This is not gross at all.
@@WaldoGotchubent Okay this is the most delusional response I have ever seen. Please enlighten me why I would be "jealous" of a horrifically disabled 10 year old. Maybe one day you'll mature past 2nd grade level "comebacks". Clown
