I found this video to be extremely helpful. My bladder cancer was T1 high grade noninvasive. The mast was removed from my bladder. I then started BCG treatments for 6 weeks. Then a cystocopy to check bladder. Then another 6 weeks of BCG treatments. I am now in year 3 of treatment. I have been cancer free for the past two years. I will have another cystocopy at the end of July. In December I will have the last 3 BCG treatments. It has been a long journey but I am so glad that they caught my bladder cancer early. Good luck everyone!!
Pray you are doing well. Had my 5th today. Little discouraged to hear you've been in treatments so long. Thought I was clear after 5 years of re-ck. Found it again.
Mine was found during changing of kidney stents. Had TURBT surgery to remove it, then three months of chemo. Now, next week, I am having my bladder removed and will have a bag for the rest of my life.
i have learned more about my issues by watching this presentation than i ever did by reading material or face to face talks with urologists . thanks for making things clearer for me.
Have T2 muscle invasive bladder cancer and weighing options. This was the best, video I have found. Things were explained so well and clear! Thanks so much!!
Much appreciated. You prepared me for my meeting with the surgeon tomorrow. I know have questions I can ask as well as an understanding of the entire process and options. Great Video.
thank you to the two doctors for sparing their valuable time - excellent information - my mother(81 yrs) is currently diagnosed (1 1/2 months ago) with urothelial muscle invasive bladder cancer, undergone TURBT and slated for partial cystectomy next week ..... hope it works for her!
This is a great video, I just had 12 tumors removed from my bladder in 1 surgery. fortunately for me the tumors did not invade the bladder muscle. Within 8 weeks I was back to my normal daily routine, I did have 6 weekly BCG treatments (no side effects). And probably one of the countries best surgeons at the Moffitt Cancer Center in Tampa. going in for my second cystoscope in Sept, since my surgery in Feb of 2017. Doing great. My Drs. name is Scott Gilbert. He keeps the visits short and sweet, which I like. He will answer all of your questions as well. I loved Moffitt.
I got all the way from x-ray to CAT Scan with no detection. The cystoscope procedure in my doctor’s office went well until the irritation. Then, I saw the 2 primary tumors (which proved to be (TA or T1) high grade). I attribute my current status to the early detection through microscopic blood in a routine physical and the follow up by my doctors. As a result of the early detection, my cancer had not penetrated into the second level. My doctor who, followed the steps indicated here (chemo to BCG), has been very reassuring. I am now into the every 6-month step in the BCG process. BCG does irritate my bladder, but after a year and a half following surgeries to remove the tumors and surrounding material (for safety). I am thankful for the early referral from my doctor to the specialist.
Sounds like my recent experience - I'd consider myself a T1 - they say no need to see an Oncologist, but should I still consider Chemo? I will ask my Primary today when I get my physical. Thanks!!! Wishing you the best of good luck - we are very, very lucky not to have the bladder wall penetrated.
@@dennishassler605 When my cancerous tumors (2) were removed, plus surrounding tissue scraped out, my doctors did put a little chemo concoction in my bladder; however, my primary doctor said it was probably not essential, saying further, “chemo has not proven to be as effective as immunotherapy. I confess I do not know anything more than that. In general, if the cancer has not penetrated beyond the first two law\yers of the 4 layers of bladder wall, then removal of the cancer plus immunotherapy should keep th e cancer from returning in most cases (overwhelmingly). Best always, Keith Whitney
P.S. After a few months from my last immunotherapy treatment, I have normal bladder control, something I had not had for at least a year or more before the discovery of the bladder cancer. I was nervous for the first few months following the “all clear” and end of immunotherapy. Now, approximately 6 months after immunotherapy and my doctor’s statement “your bladder has been so clear for this whole period of immunotherapy (from surgery between 3 and 4 years) that I do not believe your bladder cancer will return.” He checks every 6 months for a year or two, then perhaps every year. (I actually am a little confused as to whether he checks every 6 months for the rest of my life or every 1 year.) Your doctor will likely say something else similar to mine, “If anything comes back, we will get it out immediately! Don’t worry.”
@@keithwhitney7491 Thanks. I also spoke to an Oncologist and he'll review my data - I'm NOT expecting any problems with the BCG treatments, but it's wise to check all the options and get informed going through the process. Some experts claim it's best to have an Oncologist involved for a better outcome, BUT it's probably not essential if you tolerate treatments well. My sister is also looking over my shoulder and she's a ranking RN with one of the very best treatment centers in the country, too.
Thank you for the info, my wife might have this. They went in to put a Stent from Kidney to Bladder, they took Biopsy inside Bladder, now she has blood in Urine for 3 days? Is this Normal?
In my own case the pathology report for a non=invasive tumor says "low grade to high grade". So how does the urologist classify this? Mine is saying Ta and prescribing 3 months cystoscopies. I'm not so confident.
I am from Guadalajara Mexico... this is a very helpful video about bladder cancer. I am 39 years old and I was diagnosed bladder cancer T1 low grade. The doctor did a RTU and i have to check my bladder in three moths and then 6 months... thank you very much for this video. It,s been very helpful por me.
I’m just starting the early stages and waiting and waiting feels endless!!!!! I found a tiny amount of blood and made an appt. Grew up in a home with so many smokers, married a smoker, became a smoker, but was able to quit over 20 years ago! Trying to learn as much as I can…. Sonogram is next…. Wish I could just make all the appts. now and if it’s found I don’t need the rest, then cancel them!!!! Getting the appts is taking months! 😢
At 16:35 Dr Soloway discusses inserting chemotherapy agent into the bladder right after TURBT for low grade non-invasive tumor. How does he know so quickly from pathologist if it is low grade? Do all facilities have path reports so soon? In my own recent TURBT I was out and gone home by then. What is the chemo agent he is referring to?
The urologist inject it into your bladder a day after you have undergone TURBT not waiting for the histopathogy report of the tumour removed. He just do it to kill the floating cells, if they may have left in the bladder during the resection process.. mitomycin inj is used..
After the TURBT a Chemotherapy rinse is always used Mitomycin 2 I think is standard to stop any Cancer cell seeding. Then you receive the pathology report. Mine was HG Non Invasive Interstitial Papillary Carcinoma. Still going for a 2nd opinion. Then a Meeting with the Oncologist. Besides BAC. There's another Chemotherapy with Intervestial Gamebine for 90 minutes the Docecyline 90 minutes. Supposed to be a bit more effect than BAC with less side effects. All new to me but trying to become as well informed as possible
I had T2 Muscle Invasive Bladder Cancer Had A 3.7 Centimeter Tumor removed followed by 7 weeks Chemo and 37 Radiation treatments Still have my Bladder it works very well I feel that Bladder preservation was the best choice but from the Chemo my feet bottom and my fingers have numbness and my balance is not that good.Because I had a hard time falling asleep I take a half of a Zanax one hour prior to sleep and that helps me alot It has been over 2 years since I completed treatment so far so good I do understand that I have bought time and that I will never grow old but I am still strong and in one piece I am 55 years old.
+Anthony Enright Hi Anthony, I have a T1 High grade tumor non muscle invasive and my doctor wants to remove my bladder and prostate. I am opting for what you did. What advise can you give me?
Dear John Please Do Not Have your Bladder and Prostate removed If you have T1 Non invasive bladder Cancer What you need is to have the Tumor removed followed one week later by Kemo and Radiation Please Email me @ anthonyenright1@gmail.com or call me at 631 275 4078 Anthony
This video is informative but based on what Dr. Soloway is saying I would not have him as my doctor he seems so rote in his practice. Some of these doctors are in such a hurry to cut out body parts and they drive fear into patients. Of course with such a life threatening disease who stops to think. From what I understand BCG should be the first line of treatment and it does not affect the rest of your body. The bladder is an isolated organ. I had the same diagnosis as you John and went through BCG treatments. I stay away from all forms of sugar. I would advice you to educate yourself on bladder cancer. If you have an open mind, I also suggest you look at "The Truth About Cancer." Do your research and try not to let fear get in the way. Tell your body you are the warrior and nothing is allowed to invade your body. Also doctors are not educated on nutrition which also a factor. Did you know that the lack of Vitamin D can also set the conditions for bladder cancer? Most medical doctors will poo-poo alternative and nutritional therapy. Did you know that Frankincense is used in the Mediterranean for bladder cancer and they have had a great success rate? Also the lowest cancer rate is actually in the Mediterranean?
Have questions do you're know anything about Des children I am a adult my Mom took shot or pills to stopped her from bleeding to and her to carry child and I found this out this July 2012 I have autoimmune system disease I am kind of scared because kidney disease runs in the family Cancer and breast cancer
Sir, My prostate and bladder was operated due cancer and now using urine bag. I myself modified the coloplast product in foam and quiet feel easy but mucus disturbing me so much. wants some thing latest to avoid mucus and stoma bag leakages etc.
My father ultrasound report did show small growths in the lining of bladderr? What it could be? Is it bladder cancer ?should we go for cystoscopy or not?
we are fixing to go thru this with my grandma Im so scared we are not sure what's going to happen she goes in 2 weeks to talk to the urlogist And cancer doctor they removed the tumor and come back its cancer and in the mussels they said they half to reconstruct the bladder so if anyone could give any kind of info or heads up please the family is so worried and scared
William Surratt hi William. My mom was diagnosed yesterday. Small tumour removed and also pathology found cancer in the muscle. Waiting for a ct scan, she needs chemo in preparation for surgery where they will remove the bladder. How is your grandma? My mom is 78. I know how you feel but curious as to how things have turned out. Thank you
Dr Bergman, vita c, marsgmellow rout, and parsley tea daily, Alkali your system and between meals Apple cider vinegar with a cup of water then rinse your mouth out
Dear sir I am Sakil from Bangladesh. My father is being effected by bladder tumour, my doctor has told me that it might blunder cancer . I am soo worried about this. I dont no hw may will get rid of the problem. Please pray for me so that I can face it.
My family never smoked has T2-3 very fit never over weight. Why is this cancer so prevalent when smoking has decreased in the U.S. Where is the research in other countries with very high smokers?
I was just diagnosed with bladder cancer; I'm also one that you would call 1 in 10 years. They are going to remove my bladder and I start chemotherapy this week.
@@deepakkumarcreations7742; thank you for your intrest; but, I've chosen not to do chemotherapy or any treatment the doctors recommend. My research shows that there are better treatments out there other than chemotherapy and surgery. I've chosen a C.B.D. & T.H.C. treatment. My research found that cannabis stopped the tumors and allowed the patient to keep their bladder and other organs. So I'm choosing the cannabis treatment for my Cancer.
@@jackbrown3761 bro what were your symptoms ?? Actually one month ago I had pennis pain ..after 5-6 days I had gross hematuria so I did my urine test which showed RBC plenty ...but after 3 days I had pennis pain and difficulty in urinating especially at night ..so did 2 urine tests after 6 and 16 days that showed my RBC count 30-40 hpf and 5-10 hpf respectively and yes I passed a very little hard substance once so I thought it a stone...but now every morning my urine is little reddish that's why I am very afraid...
@@deepakkumarcreations7742; there were no symptoms, all of a sudden one day the blood showed up in the urine. No pain in my privates. However I suffer from chronic pain from a back injury as well. That's it. No symptoms.
My boyfriend had bladder cancer. He passed away September 2012. He was a retired First Sergeant (Army), his specialty was ammunition. Afterwards, he worked at a funeral home. He was a heavy smoker.
I lost my fiance, the love of my life, to bladder cancer, 8 months ago. He had one round of Chemo and Radiation. The Dr s, are trying to say the Chemo, made my fiance terminal. I am completely lost and devestated without him...
@Rushikesh Rangdal ohh so sad brother it's heartbreaking to lose your father I had red urine one year ago but fortunately I don't have it again and sometimes I feel pain on one side of my waiste..
