I lost my grandson, the light of my life, after a brave battle with vicious cancer and to be honest I take heart in knowing the disease can't hurt him any longer. My heart goes out to all children and people who battle illness. STRENGTH and COURAGE
G Red Just know he is ok now,& u will see him again when its ur time 2 go... u can ask 4 a visit from him in dreams.. if u have its a valadation from him 2 u letting u know he is ok... #EmpathAndMore
G Red I lost my son , he battled a brain tumor that came back as myriad tiny new tumors in his spine after they thought he was cancer free. The first tumor they called medulloblastoma. Three years of fighting from 5/11/09-5/11/12. Finally free of that relentless horror. We were blessed with a second child and they got to know each other for a year and a half almost and we are very thankful for that. My younger son still remembers him and misses him. I am still having difficulties and nightmares and it’s hard to live life normally because my husband and I are so afraid of any little illness or pain that our younger child might experience. If it weren’t for God’s gift of giving us our younger son, I would have tried to go with my older son and some days I still wish I could go where he went. But I can’t leave now because I love my younger child dearly and I know he needs me and I am so thankful for his love. G Red I hope you are doing well now . I know nothing makes this pain go away, but some days are better than others . I don’t know why God let’s a child be born with so much joy and love and hope and excitement about what he will do tomorrow and what he will do in his future and then to crush his hopes at 15 years old. I know I am very lucky to have enjoyed his company for that long when some families lose toddlers or infants. So sorry for your loss G Red.
Nikki Garcia my son told me at four years old after he got sick with a stomach flu and had to spend two days in hospital on IV fluids, he told me , or asked rather, where would I put him when he died? Would he be outside under a tree because he thought he would be lonely there. I tried to almost force him to believe that he would never leave me first, but I told him he would grow up and have his own family before that would ever happen. He would not change his mind , or tell me how he knew this. He was right. How did he know? How can I ask for a visit from him in a dream? Because I had that once a few years after my grandma left, but I didn’t know if it was real.
😢😢 I’m an RN with adult hospice god bless these special ladies. So proud my daughter is in medical to be a pediatric trauma nurse. It takes 👼 angels on earth to be able to comfort the children and the parents. Prayers 🙏
At my grans funeral instead of flowers we all donated money to the hospice. I’m glad there’s such a great place where these children can go and b kids.
Thank you dear God for giving me my healthy boys. I'm thankful to hear them run around, be loud and play like animals. I will never take that for granted! My heart goes out to these Angels.
I am a palliative care nurse that cares for children...if we don't get attached to our patients we can't treat them like our own family. When they go our heart breaks...and we never get over losing them...but they need us so we do it as best we can.
I’ve worked with Hospice Care... I loved my job. Sounds bad maybe but in those final days and hours even minutes a caregiver makes a difference not only to the patient but the families as well. Children are by far the hardest. I remind myself and accept that when I care for a person I know what the end result is going to be. That’s what helps make a difference. Most definitely get attached or couldn’t do my job.
I really applaud you all. When i say I'd get too attached i mean I wouldn't be strong enough to handle the loss. Its amazing that you can stay strong for these kids ❤
lost619 You’d be surprised of how strong you are now, you just don’t know it yet. I didn’t think I could handle it either. I was scared and with the first passing of a child and elderly people I will never forget and it was hard. Then seeing a difference that End of life caregivers make, made me love my job and it’s who I am.
It’s very very hard not to fall in love with these wonderful beautiful , precious children. A woman doesn’t have to give birth to a child to love them...no matter who they are, where they came from,or if they are healthy or sick. A woman will love you no matter what. A woman has the heart of an angel.
me 2♡ i know what its like 2 have little 1 with medical... my 5yr old Nisa.. she has brain disorders also multiple seziure.. colcephaly,grey matter heterotopia,seizures, emergency spinal surgery,been in icu.. her list keeps goin.. they also found an unknown spot on her brain... i dont know why this happens but god has his reasons 4 all... but my hearts breaks not only 4 my little 1 but others... NEVER GIVE UP.. my little 1 always says dont cry mama we got this...♡
Oh my, Sophie, sweet child. She is so loved. Those freckles across her nose, oh my. Her mum is so strong and Sophie looks so much like her. I love when her mum says, “she knows she’s loved.” And she is.
I used to work with some of these children and it was tough but it was so rewarding. Unfortunately I had to leave because of my own personal issues but the girls are really nice and I loved looking after the children.
These people are so incredibly brave for what they do. I'm not sure I could ever do hospice, seeing as there's little to no chance of a happy ending when it comes to these cases. Sure, there's always the off chance that someone will make a miraculous recovery, but chances of that are slim, and these people have to watch as their patients decline and as their lives end. That would just be too much for me. It takes a very, VERY special kind of person to become a hospice nurse, and we should all be incredibly grateful for what they do.
As a retired geriatric nurse I can assure you there are wonderful times at the end of peoples lives. Hospice isn't about dying. Its about making the most of your life. Planning ahead for family and friends. Being able to close old wounds and say goodbye. Ive been with hundreds of people as they leave this world, most of them went peacefully. The ones who had hospice care and/or massive love and support from family and friends were the calmest and most at peace. So many of my patients would say how having hospice to help their family was a huge relief for them so they could move on. Hospice care goes on for a year after the patient dies here in PA if the family wants. We love our jobs. It takes a very special person to be a teacher in my humble opinion!
Numero Letter I completely understand where you are coming from. No one likes death and dying. But it doesn’t always have to be a terrible experience. As a nurse I ensure that my patients aren’t alone when going through that transition, I keep them comfortable and help them maintain their dignity in the most intimate experience of their lives. It’s sad but it really is such an honour to be able to care for someone in their final moments. That being said I don’t think I could do that with children. All of my patients have been very elderly and lived long fulfilling lives. The fact that children experience terrible illnesses and hospice for kids has to exist breaks my heart. It definitely takes a very strong person to be able to do that.
i would love 2 work with hospice one day.. i would love 2 just be their and show extra love and support 2 all of them day and night,whatever they needed i would help get 4 them,& fluff their pillows go way beyond 2 make them feel all very loved... id pamper them like queens & kings or prince n princesses... id buy them fresh flowers if they wanted id do whatever 4 them♡ and i would be extremely crushed if they died.. but god will keep them close and with no pain..♡ id try n help the families also with whatever they need help with... id just feel happy,sad/crushed... happy they will never have no more pain n be in heaven♡ but also sad they be gone... my heart would always miss them..
It's also takes a VERY special kind of person to be a pediatric nurse as well. Pediatric hospice nurses truly ARE God's angels on earth. I went to nursing school to be a pediatric RN, but my first step in Children's Hospital changed that. I had a hard time caring for children that would eventually be okay, so hospice would have been so very hard to do emotionally. No way could I have done it. I know nurses that care for dying children find it just as emotional, they just hide it better. 💙😇💙😇💙😇💙
Ive watched documentaries on EB for years and years and it has GOT to be, hands down, one of THE worst disorders you could possibly have and all of the children are SO brave. I know I wouldn't be able to live like that. I pray they find a cure, and SOON. Those poor poor babies
Thank you to all of the nurses, doctors and caregivers out there. And strength to all of the parents loving and helping sick children. Watching this now just... life, man. Life.
Wow! These nurses are amazingly caring, strong, brave, understanding, sweet, did I mention caring? They are absolute angels to do the job they do. My mother is a nurse in a veterans home. She falls in love with these men who come to live there and becomes one of their best friends. She cares for them every single day, but unfortunately, these men pass away pretty often. She loses her friends and copes very well because she knows that they are in a better place with God, and are no longer suffering. She’s so strong. It takes special people to do these types of jobs. I wish I could be like them. I wish I had half of their strength. Thank God for these angels. Thank God for letting these children experience having an angel on Earth. Lord be with them all.
We can pray for them which I know brings miracles. God completely healed me of brain cancer which nearly killed me at 16. God gave me a surgeon I consider even now my earthly hero. God gave me and my parents that miracle. I'm in late 50s and still praising the God through whom miracles happen. Prayer works my dear friends. God hears and answers prayers, not always the way we want, but He does always hear our brokenness as we come to Him. Live y'all in Jesus name Amen
Jungmee Bae It's a bit sad when you think about kids being used to things like that. A kid I know gets multiple needles a day. I'm 24 and I get nervous about IV's. At three he just throws his arm out, and pays no mind to the needle as he watches his iPad. He's used to it. And it's..sad when kid get so used to things like that.
I've been in and out of the hospital ever since I was born. By the time I was around four I was able to rationalize not being afraid of the doctors and nurses because it took more energy out of me than was necessary. When you go back and forth so many times, the routine gets to you and you know what to expect. Most children cry because they're afraid of the unkown and loud noises and not just because of the pain itself
Wendy Bendy I believe he just has a subq port. It's placed under the skin and does directly to a major blood vessel so there's no large needle having to fish around for a vein, it can just be accessed directly and easily.
BRAVE CHILDRENS ...and loving caring parents taking the stand with their kids all the way...Thank goodness we have people Hu went to college to study for years just to help with illness in people of all kind..
I have lost about 65% of my family to cancer. I had an Uncle pass away from leukemia when he was only 3. I have lost a baby and I know the heart break of losing a child. Let alone to have a child to live and love for years and lose. My heart goes out to all of you. 💜🕊🙏😇
The little blond boy with the brain condition, my heart breaks for him. I would like to be there to hold him all the time so he feels the comfort at all times. He is such a beautiful little boy. I pray he doesn’t suffer for long, I would like to picture him as a beautiful happy angel, rather than see him laying there in paint and not be able to talk or move.
Why did I click on this..? Absolutely heartbreaking to see these brave children suffering at this level. My heart breaks for the parents, their entire families and for these amazing nurses. God bless them ❤️
I'm currently in my first year of college and going the nursing route. Due to personal events in the past I want to try working at a children's hospital or even hospice care but man it's going to take a lot of learning. There is no way I would be able to help anyone right now with how emotional I got while watching this. God bless these children and every other like them.
It's so difficult watching children suffer, especially for their Parents, I feel ashamed complaining about my hard life, ( which is not so hard ), God bless these children, their parents and all the staff involved in their care ❤
the world needs carers just like miss Hanah here. Keep being amazing for these kiddies i see how you truly love them & how they love you right back! being a person with a severely debilitating disease i understand the need for a carer who is genuinely wanting to be there and help but also wants to keep us smiling like this. this is beautiful!!
My son goes into little havens without them we wouldnt have met some amazing people its a home from home literally.. people expect it to be a place of sadness when actually they gave us hope .. we arent alone ..
i feel for these kids... myself have chronic illnesses that affect me in my life starting when i was a young adult (19/20) and now i'm facing more things that limit my life to do things and such but like these kids you just have to press on and keep trucking along the best you can.
It's all one. Adults. Children. Suffering reduces us all to helplessness. Children bring the additional pain of innocents who are suffering. That is what is so impossibly hard to bear.
I work with it. I never thought I would, but I have someone close who died, as a young adult. And their last year of life was a total care failure. What if she’d have had that last year of life with real quality. Then, I got it. My anger never went away, but I knew I could change something.
God bless each and every one of you that help with these gorgeous children!!!!! As a nurse it is so nice to see the true caring of people!!!!!! I wish Every health care staff was this caring!!!! Unfortunately they aren’t 😢😢😢😢
i mean, imagine if his family read this, the guilt they’d feel. they can’t be there 24/7, they probably need jobs to pay for medical bills and other things
All these people are Godsends to the kids and their parents. I love all children no matter what. If I didn’t have so many health issues I would wanna take care of children no matter if they are healthy or sick. The children did not have a choice to be born with health issues.
omg it is already hard to work in hospice care but to be in children hospice care must be harder. they just started their life and it is already almost over.
Any updates on these little ones? I hope Sophie and JJ pulled through. These little ones are more brave then I am. If I found out that i had cancer I would be freaking out
These people r amazing. I think hospice should be as long as the patient needs. Some places only admit a patient to hospice if they have no more then 6months to live. I feel that no on can put a cap on how long it takes a person to prepare to die.
I worked in hospice care for a very long time and the most common misconception is that hospice is ONLY for end of life care and it’s so much more than just that. People who are having problems with getting medications sorted out with the right dosages for themselves & what type of medications they need can be sorted out perfectly by a hospice nurse! They provide a level of care that is more than 1 on 1! The love, sympathy & bonds that are built are absolutely a blessing! Knowing that I was there to ensure that the end of life transition is as smooth and comfortable as possible makes me feel good for the patient and family. 💖
Wowww if hospice for children was the only job in the world , I’d become a homeless bum with no job . I adore children, as a mother of 3 myself I couldn’t do this . God bless everyone that work in hospice / hospitals . Those children are the actual bravest spirits on earth Woww 🙏🏾🙏🏾.
I don’t think I should complain about my life anymore 😢 seeing these little kids going through so much pain and suffering my problems are nothing May Allah help all these kids 😢
Heartbreaking. I’m so grateful my children grew up healthy. However from a very personal perspective I would not want full resus. If my child was suffering like this.
I am 11. On 23/10/23 I got stabbed with a 5 cm knife. Doctors told me I probably won’t survive and I will probably get put in one of those. It kinda hurts to see these vids cause I kinda know what will happen.
This just doesn’t seem fair at all. These poor kids having to deal with something so difficult at such a young age. Ciara is such a cutie and so very brave. My ex has a kind of rare skin condition called Ichthyosis and it’s very difficult on the person, especially while in school. He was terrified when I got pregnant with our daughter but thankfully she doesn’t have it.
Wait I'm confused the one lady was talking about the lil boy having a good recovery but hospice for when hospitals can't do anything else for a patient and their dying
This is why human euthanasia should be legal everywhere. No child should suffer like this and no parent should have to see their child suffer this way. Seeing any child suffer in this manner does make me question God.
