Brian's Experience with Sound Therapy for Hyperacusis

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Brian discusses his experience with Sound Therapy, also known as Tinnitus Retraining Therapy or TRT, which is often recommended as a treatment for people with Hyperacusis and Tinnitus. He discusses what it is, the theories behind how it works, his personal experiences with it, and when to know if it's causing damage.
Effect of Tinnitus Retraining Therapy vs Standard of Care on Tinnitus-Related Quality of Life:
jamanetwork.co...
Rationale and Efficacy of Sound Therapies for Tinnitus and Hyperacusis:
www.sciencedir...
Disclaimer:
The content seen in this video is the property of Hyperacusis Central. It is for medical education purposes, allowing viewers a “window into a Hyperacusis sufferer’s world.” The information in these videos is the opinion of the authors and is not necessarily the official opinion of the American Tinnitus Association, American Speech-Language-Hearing Association, American Hearing Research Foundation, or any other established organization.
For Health Care Practitioners: The content is provided only for medical education purposes and advice based on anecdotal or evidence referenced where applicable. Although the authors have made every effort to provide the most up-to-date evidence-based medical information, this content should not necessarily be considered the standard of care and may not reflect the individual practices in other geographic locations.
For the Public: This content is not intended to be a substitute for professional medical advice, diagnosis or treatment. However, this condition is not well understood or studied, therefore many individuals with this condition are given detrimental advice by their practitioners, evidenced by the escalation or worsening of these conditions after seeking treatment from a practitioner. These are the opinions of several sufferers who have learned through experience and independent research of reputable papers, articles and studies. You should contact your own physician or other qualified health care provider with any questions you may have regarding your medical condition, and we encourage you to discuss this content with them to avoid improper treatment. Relying on information provided by this content is done at your own risk. In the event of a medical emergency, contact your physician or dial 9-1-1 immediately.
This video may contain audio that is uncomfortable or painful to some viewers. Closed captioning is advised for those who are particularly sensitive to sound.
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Опубликовано:

10 сен 2024

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Комментарии : 31

@hopfbifurcation858 2 года назад

Excellent and balanced video, Shay and Brian. It's so important that people know that sound, even at low levels, absolutely can worsen hyperacusis. Many audiologists don't think this is possible. Despite the fact that the cochlea is the size of a pea, cannot be studied in a live human, etc., they often think of the ear in very simple terms and in terms of what's normal for healthy ears, when in reality, there are complicated pathologies, nerve inflammation, etc. With this said, given the state of treatments, I think most people with loudness hyperacusis should consider at least trying it, starting very very gently. To just add to the discussion, certain forms of loudness hyperacusis can also worsen from sound therapy, but like both of you said, this occurs when there remains an underlying injury from whatever pathology. Regardless of pain, loudness, or both, people should always be careful. Just like it is bad to push through pain, it is bad to push through worsening loudness hyperacusis if enflamed nerves are being aggravated. Thank you for raising awareness, providing information, and adding nuance. I completely agree with Shay about pink versus white noise. Low level pink noise is probably the best place to start at barely audible volumes and short duration.

@symbolistartist 2 года назад

The issue with sound therapy reminds me of GET, the previous recommendations for doctors to get people with ME to push through their fatigue and gradually increase their exercise tolerance. So someone else may be feeling tired and out of shape and it’ll help them, but for ME sufferers, it tends to exacerbate the condition. So when it comes to pain and fatigue, they are very complex issues. I personally have very bad pain hyperacusis but I tend to treat it much as I treat my underlying chronic health condition (hEDS). It means I push through the inevitable tough days when I have to go out and mix with other people (which for me is mostly because of doctors appointments), and then I rest in between. The rest is disproportionate to the activity so it means there’s more sleep and rest than active time. I just can’t keep going like clock work because my system is not set up to live life this way. From this perspective, I can’t imagine putting up with constant noise in my ears other than the tinnitus that’s already there. That would be like not giving myself all the rest that I really need in order to function when I really have to get things done. It’s not just about being a bit sensitive, it’s about being seriously debilitated, and it’s not a joking matter. Either way, I don’t agree that my life is lead in complete silence. I think there’s tons of sounds all around all the time, even on the most quiet day out here in the sticks where I live. The tinnitus itself is sound, too. I think for people with neurological conditions, the idea of pacing is perhaps worth applying to all forms of expressions of illness. Doctors don’t typically understand chronic illness and so they won’t understand chronic pain hyperacusis either. Everyone has to find their own rhythm, their own strategies. It’s possible to live with these problems but of course it all comes at a price. You may have to give up on quite a few nice things in life just to survive the illness. But it’s always possible to see something positive in all the strife. Endurance tests can give rise to mental toughness.

@lucbrugere2219 2 года назад

Very interesting as always my friends 😀 Brian, we have the same right ear... I do understand why in so many years I never saw people with hard pain hyperacusis having success with the TRT... Never. I do believe, as Brian, that it may be useful for some loudness hyperacusis (some people improve quite quickly), but for those with pain hyperacusis, it can worsen A LOT... So the main critical question each one with "hyperacusis" has to answer is : "What kind of hyperacusis I have ? Pain or Loudness ? " Thank you very much everybody☺

@juniorjunior4087 Год назад

Its frustrating that politicians spend billions to destroy humans with weapons. The amount of aid and weapons send to ukraine is ridiculous to maintain their proxy war. Meanwhile, it took 20 years of research, meager funding for dr susan shore to develop her device to treat T and H.

@giorgiapuccia468 Год назад

Quando il dispositvo puo essere disponibile

@and5801 5 месяцев назад

What device?

@lastcall170 4 месяца назад

I had LOUD AND PAINFUL Hyperacusis. Yes...Both

@soakthesoul1 2 года назад

My TRT maskers play tones .. dont play white noise or pink noise that makes my ears scream .. so using widex zen helped alot with my hypercacusis

@karenkramer3760 10 месяцев назад

Do you have loudness hyperacusis or pain huperacusis?

@lichkov60 7 месяцев назад

God Bless you!!! 🙏🏼 Blessings send ❤

@johnkelly1198 Год назад

Someone save us. Im tired after 30 years. Im ready to call it quits

@giorgiapuccia468 Год назад

A nessuno interessa la nostra sofferenza

@mircoverhelst Год назад

@@giorgiapuccia468that's true 😢

@naelbeno6249 5 дней назад

I have pain and burnin Hyperacusis with Tinnitus 😢

@Rick_7023 Год назад

I got much worse from my tinnitus, and develop very mild hyperacusis, because i change hearing aids. Does this happen to someone else around here?

@CHAKETAYBOLSO 2 года назад

Thank you!!!

@tanjavesterdahl 7 месяцев назад

Hi, a questiion please. How do I know the difference between loudness and pain hyperacusis, when my daughter gets headaches from traffic, assemblys, dishes etc? she is diagnosed hyperacusis with audiologists and has been given sound stimulators to use. Thanks in advance Tanja

@swapnilbhat2929 8 месяцев назад

Are you healed completely

@danielaferiat5144 Год назад

Where can you purchase the pink noise hearing aid

@B-qz9fo Год назад

U can't ...u get em from drs

@mircoverhelst Год назад

mijn ervaring met mijn specialist was het zelfde ze zei oordoppen uitdoen en je gehoor terug laten wennen aan dagelijkse geluiden plus met een goedkope uitleg erbij dat het gehoor verlies erger wordt als je oordoppen teveel in houd.. zonder ziekteverzekering was ik failliet

@ka3011 21 день назад

Hoe gaat het nu? Ik heb last van pijn hyperacsius. Geen idee wat ik moet doen

@mircoverhelst 21 день назад

@@ka3011 mijn ervaring met hyperacusis is jezelf goed verzorgen plus je oren en oordoppen aanschaffen natuurlijk en harde geluiden ontwijken.. maar doen je oordoppen af en toe uit succes 🙂

@dianecelento4974 10 месяцев назад

How is your pain hyperacusis today? Has it gotten back to base or not improved to that point yet?

@karenkramer3760 10 месяцев назад

Hi Brian, how did you get your Hyperacusis? Illness, acoustic shock, acoustic trauma?

@briannewman3552 10 месяцев назад

Hey both acoustic trauma followed by acoustic shock

@karenkramer3760 3 месяца назад

@@briannewman3552 How are you feeling now? My daughter got an acoustic shock. Diagnosed with ttts, tinnitus and hyperacusis. I believe the nerve is affected on her. So sad for everyone with this.