Hyperacusis Central is a volunteer-led organization that uses a variety of digital platforms and creative approaches to:
- Raise awareness of hyperacusis and other conditions which are common alongside it - Provide a voice for those left behind by limited treatment options - Promote donations to organizations that support innovative hyperacusis medical research (e.g., Hyperacusis Research, Ltd.) - Collaborate with researchers and clinicians to share the voice and experiences of patients
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To learn about more what we go through, we highly suggest that you check out these avenues. They are historical and concrete sources for more information on Hyperacusis and Tinnitus
I don’t know about you guys but have you checked out Dr Liam, his herbal treatment helped removed my tinnitus and vertigo , I also see a lot of other people whom his treatment has helped on RU-vid , his channel is “Dr Liam Ogbebor herbal centre””””000😊””0
Clomipramine has been very effective in treating my long-term case of pain hyperacusis. Maybe it can help some of you. I know I am not the only one this drug works for.
Clomipramine (anafranil) can help if are THE nerv pathways or Nerv! With Cochlear damage or haircell damage it‘s another story. BY THE WAY.. CLOMIPRAMINE HAS SIDE EFFECTS!
I have hiperacusis too but I have been paying attention to my diet and it has gone down …..you have to eat clean ! Pay attention to Liam stops tinnitus…..the same treatment for tinnitus works for hiperacusis
I know how difficult it is. Unfortunately no cure for that because of lack of research on it. I hope the best for you and thank you for sharing your story brother
Thank you so much for sharing Brian…we need more leading voices such as yours to move this condition up the agenda. Thank you for being bold enough to do so
17 year I. House bound cannot workice in total isolation. Moved to flat now I'm catastrophe lould. Dear x9 catehome. Elders it dosnt HP here ultra lould no staf getit feel death isblesi g it ruind mi life just seem this to reasure me
I just watched your story. I'm here with you bro, I totally understand what you're dealing with and going through. Any hard object touches another hard object and it hurts. Whether that's accidentally dropping something on the floor or sitting a cup on top of a table. I'm here with ya man. We will get through this life. Gods with us. Cry out to him.
The Susan Shore device that will be out sometime after approval has shown very promising results in trials for somatic tinnitus, which could potentially help hyperacusis 🤞
Maybe if you could find a way to contact Dolly Parton, she might be willing to help you financially, since it happened at her theme park?🤔 I really believe she would help you, if you could just find a way to contact her.
Dear Noelle, hyperacusis has different forms. It sounds like you have Pain Hyperacusis. It’s discovered by Bryan Pollard, the founder of the Hyperacusis Research foundation. Google it and you’ll find more info about it. Do not let anyone tell you, you can’t shield yourself from noise because the hyperacusis should get worse (they say). Do not let anyone tell you that you can train it by using pink noise, brown or white noise. Pain Hyperacusis patients cannot train their ears/ brain to get better. And sadly there is until now no cure. The Hyperacusis Research foundation is funding different research to try to find a cure. The best you can do is try to avoid setbacks by using ear protection. For pain hyperacusis patients it’s very important to avoid setbacks. I wish you all the best, because it’s very hard to live with. People who have pain hyperacusis mostly are not depressed, but because it’s so painful to live with it erases their laughter in life. Hopefully for every Pain Hyperacusis sufferer there will be a cure or medicine in the near future 🍀
The fact that he can even talk. I wonder if it is painful...because I can only talk without pain when I am medicated. I don't understand it. 4 years of Hyperacusis here.
The bigger question is What sounds can you tolerate for Sound Therapy? I couldnt use anything at first. Pink noise was painful. I opted for TRT with wearable sound gens which gave me good leverage within months to graduate onto more challenging sounds. Baby steps. Set backs will happen and discourage you. What can you do but keep trying.? Its tough. I wish the best for all suffering with this. I guess i was a lucky one to overcome it in 5 years.
One misconception is that there is Permanent damage to the inner ear hair folicles. Not true. I believe these very hairs can get traumatized but over time can regain their normal function . How else can I recover from the same excruciating condition?
Because Hyperacusis is not a specific illness, but a syndrome. There can be multiple underlying cause and still the symptoms are very similar. For some, it is only a brain decoding error. In this case the cure is easier. For others, there _is_ a damage to the inner ear. These are differentiated as "central" and "peripheral" Hyperacusis. I suffered from both. I recovered from central Hyperacusis 15 years ago in 3 weeks. Now I am suffering from peripheral Hyperacusis, and it seems permanent. Still, I don't think that people with peripheral Hyperacusis should give up their hopes. Sometimes the body recovers or at least the symptoms become weaker. And there is more and more research in this topic which I hope will offer some kind of cure in the future. Hang in there!
I had a law enforcement job and had to shoot firearms to secure my job. I bought 40db muffs with built in speakers that would cut off sound at high dbs. I had no choice in getting disability or insurance to pay my cost because hyperacusis isnt recognized. I gave up my music...friends..church...etc. After 5 years....i beat this for good. Im healed❤.
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉…
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again🎉.
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again…
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again..
Dr madida treated me 3 years ago in USA 🇱🇷🇱🇷with his herbal medicine he sent me for Tinnitus. The medicine really works fast and healthy with no side effect that I can account for, and it cured me totally with no trace of Tinnitus in me again.
I'm only 16, and though I've yet to see a doctor about this, pain hyperacusis is the only condition I have come across that perfectly describes my ear toubles. I'm pretty sure I have a very mild case of this as I've never experienced severe pain from it, but that's only because I avoid really loud environments whenever I can. I have never been to a concert before, and likely will never go to one. I have to cover my ears during a fire alarm or during a pep ralley. I sometimes isolate myself at school because just sitting next to people while they laugh or talk can start hurting. I'm so lucky that it has never been dehibiliting to me, but I'm scared it will only get worse. When I did my own research on hyperacusis there were so many questions and theories that have yet to be researched. I hope I can watch, or somehow help, as these questions are answered.
Your going about it wrong. You have to have noise exposures at low levels otherwise you will get worse. I know 30 years later. I couldnt even talk at that time. I tried to talk and exposed myself around noise, had hundreds of setback. Today i can talk out loud, still have setbacks from loud sounds. Now my tinnitus is getting worse. Exercise seems to help. If pverprotect ears you will be stuck
This video is very helpfull but could you make one about parents that have hyperaccusis and how you maybe could deal with that as a (young adult) child.
I feel your pain bro i just started feeling this about two weeks bro. I had a really bad sinus infection and this started out of no where. I hope you get better brother. I feel like no one understands.
I have had hyperacusis for 30 years. Now my tinnitus is worse. I also have muscular issues. I have become very !one!y. I nolonger want to live. Keep fighting. I am finished
I am going through the same thing. I can relate so much to how your priorities change. Planning for the future seems inpossible, out if question becauae everything depends on me somehow getting better. 😢 Wanted to ask, is anybody hear having hyperacusis react from their own voice and does it also get worse for you when you get sick with fever and cough?
💕I don’t know about you guys but I find dr Liam herbal centre’s ear drop treatment very helpful for tinnitus and hearing loss including vertigo , I am speaking from my experience with his treatment , his channel is on youtube with the name above :;-✅🌿
Sometimes I wish I could show people what I hear... I have 8 different tones, yes I have the high pitched one similar to what's in the video, but I have other tones in one ear or the other, some tones that beep on and off. I envy people that only hear one.
