Cancer Survivor Story: Non-Hodgkin Lymphoma | The Patient Story

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Cancer Survivor Story: Non-Hodgkin Lymphoma.
Arielle is a cancer survivor. This is her story. She had Non-Hodgkin Lymphoma (Non-Hodgkin's) and is in remission after undergoing chemotherapy (R-EPOCH) for her NHL subtype Primary Mediastinal Large B-Cell Lymphoma.
This is the full video of her story: how she was diagnosed, what chemo was like, how she dealt with side effects, and more.
See her full story at www.ThePatientStory.com.
Direct link: www.thepatientstory.com/cance...
NOTE: Arielle says "Zoloft" in the video when she means "Zofran," the anti-nausea medication.
0:01 What were your first symptoms?
2:08 How did you get diagnosed?
4:16 Did you choose treatment?
5:05 What was chemo like? (R-EPOCH Dose-Adjusted)
6:14 Can you go into detail on what your days in each cycle would be like?
9:59 How did you respond emotionally to the first round of chemo?
11:20 What were the side effects of chemo?
14:10 Describe the hair loss.
17:47 Be your own advocate.
_________
Join Our Community:
Website: ThePatientStory.com
RU-vid: / thepatientstory
Instagram: / thepatientstory
Facebook: / thepatientstory
Twitter: / patient_story
LinkedIn: / thepatientstory
_________
Background:
The Patient Story turns in-depth interviews from recent cancer survivors into a FAQ format-story along with timelines to give newly diagnosed patients and caregivers a sense of what their lives may look like in the upcoming months. Hear straight from the people who've already been through it.
TPS (formerly OneDavid) was started by Stephanie Chuang, a non-Hodgkin lymphoma survivor, who wants cancer patients and caregivers to get the information they need in a human way, not with medical jargon. Visit www.ThePatientStory.com for more.
If you would like to share a story, give feedback, or just say hello, we'd also love to hear from you! Please write us at support@thepatientstory.com.
_____
A message from our founder:
My name is Stephanie.
In 2013, I found a story that touched my heart: a group of friends were fighting to raise awareness about bone marrow donations for a young woman who'd been diagnosed with non-Hodgkin lymphoma. It had spread to her brain.
Nina was in dire need of a bone marrow transplant. She's of Asian descent, which narrowed her odds of finding a match (fewer people of the same race and ethnicity registered to donate).
The good news: she found a donor! The wife and mother of two is living happily. I couldn't be happier.
The "odd" news: I was diagnosed with the same cancer, same sub-type just three years later.
That motivated me to create The Patient Story: a company to help cancer patients and caregivers by giving them real answers from real people - people who've actually been through the experience.
Find more at www.thepatientstory.com
Where it all started: • The Patient Story | Wh...
#thepatientstory #cancerstories #patientstory

Опубликовано:

28 июн 2024

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Комментарии : 261

@lt7378 Год назад

My son was in his last semester of medical school when he found out he had NHL. He had to drop out and go thru the same chemotherapy regimen you went thru. It was a very difficult time, besides Covid going on which my husband got. My son is in remission now and in his first year of residency.

@ThePatientStory Год назад

Wow. What an incredible story! Please let me know if he wants to share his story on our platform. That is so wonderful - so glad he's in remission! - Stephanie (stephanie@thepatientstory.com)

@sheloshelo4884 Год назад

Whats the reasons nhl, does anyone say to you ? Your son is stresfull one ?

@radhahb781 2 месяца назад

Which stage

@balbijanic 7 дней назад

@@sheloshelo4884 microbs maybe or carcnogenics, but NOT stress. Stress cannot cause cancer.

@jasonpierce30 5 лет назад

Cancer survivors always impress me. I don't think I could ever be that strong. Cancer survivors are true heroes and an inspiration

@ThePatientStory 5 лет назад

Jason, thank you so much for your kind words! Human resilience is an incredible thing, isn't it? :)

@jasonpierce30 5 лет назад

@@ThePatientStory your welcome... Yes it is. Truly amazing

@Tootswilligers 5 лет назад

Well they dont have a choice. You either fight or you give up

@roch145 Год назад

I think in the moment of treatment there is more a sense of necessity and not any thoughts of being heroic. After my treatment people told me how heroic I was, but I never really felt I was heroic. Perhaps from an outsider’s perspective cancer treatment requires a heroic response, which I suppose is fair to say.

@georgestrait66 Год назад

thank you for your words. They matter.

@kristencampbell7993 10 месяцев назад

I had stage 3 non Hodgkin’s lymphoma. I had a lump on my neck. I thought it was an ingrown hair. I was really sick for 11 days and so I finally went in. They did blood work and the next morning the urgent care called and said that I needed to go into the hospital so I went into the ER and they did blood work and came back and told me that I had cancer. I’m not in remission yet but I am cancer free. I did the r-chop too. I lost my hair after my first treatment. I went through treatment from August to December. My hair is back, but it’s starting to look better. My hair is very curly. I wear headbands

@Lisa_BisaRN 5 лет назад

She is so articulate & positive. Such a strong woman. I think she meant Zofran for the nausea.

@ThePatientStory 5 лет назад

She did in fact mean Zofran. Thank you for your warm words!

@craigweeke7905 4 года назад

Lisa P1 , I am an Emergency Medicine Physician, I am certain that she meant Zofran

@pornstarlivesmatter3319 3 года назад

BEST INVENTION!!! I ALWAYS HAVE IT ON HAND

@evieswegsda1089 Год назад

My Grandad Was Diagnosed with Stage 2 B-Cell Non-Hodgkin Lyphoma 3 Years Ago and the Tumor was in the Left Hand Side of His Neck and it Damaged His Vocal Cords, and His Voice Still Hadn’t Gone Back to Normal After a Year and at That Point They Said it was Very Unlikely That His Voice Would Ever Go Completely Back to Normal, and the Damage was Likely Permanent But Thankfully He’s On Remission Now and He’s Ok and That’s the Most Important Thing

@anitakhem4735 Год назад

Hearing your story makes me feel less anxious. August of this year my husband was diagnosed with primary CNS lymphoma. He was exhibiting some weird behavior before being diagnosed. Hearing about his diagnosis was not an easy thing to hear as I reacted super emotionally while he stayed calm and unaffected. I started googling his diagnosis immediately but the tears just kept pouring down my face. I honestly was a mess at the beginning as compared to currently. My husband just finished his second round of chemo and his symptoms weren’t as bad, except the WBC, RBC and platelets bouncing around. It is extremely difficult for someone going through chemo as there’s a lot of side effects. Remaining positive throughout treatment is key I would say for anyone who has a love one going through chemo. My husband positivity is so inspiring and so are those going through chemo. I will continue to pray for those who are fighting cancer as it is not an easy battle. God bless you all ❤

@nannettedejesus154 3 года назад

I'm a lymphoma non hodkin patient, stage four in my abdomen and chest. Next week is my fifth chemotherapy. The nausea and the vomit is worse as soon I get the chemotherapy. I needed to see this video, it help me a lot. Thank you Arielle for sharing your story. May God bless you always

@ThePatientStory 3 года назад

Hi Nannette, so glad you found this helpful. We are thinking of you as you go through your treatment ❤️

@poppygirl5 3 года назад

How are you now !!:)

@nannettedejesus154 3 года назад

@@ThePatientStory at this moment im good. The results of the Petscan on the month of January reflects no signs of cancer but im still in observation.

@nannettedejesus154 3 года назад

@@poppygirl5 im good thanks for asking. The Petscan show no evidence of cancer. But im still in observation

@sheloshelo4884 Год назад

@@nannettedejesus154 how r u now any ralaps ?

@AKadir8 Год назад

I just discovered that I have stage 4. None of my family members bothered to wonder the cause of my lumps which are all over my body (crotch, legs, arms, neck, at least 50 of them) but I did a deep research and I check all the boxes. Your video helped me see the horizon and what to expect and how to take up space. Thank you, Arielle.

@user-vc5wl7uq2x 3 месяца назад

How are you now? Are you cancer free?

@paulphillipson2378 3 месяца назад

Hi, I was diagnosed April 12th 2023 with stage 4 non hodgkins lymphoma, got the all clear February 2024. Had intensive chemo and radiotherapy as well as turkey tail mushrooms and cbd oil which I got the go ahead for from my consultant. I'm sure they helped me and the oncology team were amazed with the progress of my recovery.

@premilabenjamin4444 8 дней назад

By my stripes you are healed says JESUS CHRIST. The prayer of faith will heal the sick. Praying for your health and healing.

@balbijanic 7 дней назад

@@premilabenjamin4444 Praying cannot cure it becase stress cannot cause cancer.

@georgestrait66 Год назад

that three to four days before feeling almost normal for once and then WHAMO! back to the grind. horrific and seemingly never stops. Finally got finished with Chemo, then my stem cell chemo, then the transplant, finally two months later I feel almost normal. Such a looooong journey. Hope you are doing well

@Adriano-qz2mg Год назад

I’m having stage 4 follicular lymphoma on my bone marrow, I’ve been diagnosed in February 20th ,I’ve lost my dad week before and I went to his funeral exactly on my birthday 😞! I’m undergoing treatment with r-chop chemotherapy and I really believe that I can get through this with the help of treatments and faith in God , and I wish all the other people who are suffering of cancer to stay positive 🫶🏻🙏

@laurent2523 8 месяцев назад

Hi darling Adriano. I am so sorry to read about all you’ve been going through on top of the loss of your dad. How are you doing now? Lots of love and healing wishes x

@radhahb781 2 месяца назад

How r you know r u recovery from cancer

@Adriano-qz2mg 2 месяца назад

@@radhahb781 today I received the second pet scan results and it’s full remission 🙏

@dodibenabba525 9 месяцев назад

Just to help people who may be going through this, I've had it twice, in the early stages a chest x ray and a blood test will not pick up lymphoma, so all clear on those investigations really means nothing. Only the combination of an ultrasound scan and a biopsy will determine it. I'm not trying to be harsh just keeping it real, I know what it's like to have false hope.

@hydie0073 5 лет назад

I don't know you but I find your cancer story very inspiring and I have to say I'm so proud of you from one woman to another and I'm so happy you are doing well..your courage is unwavering and it amazes me and I wanted you to know that...Thank you so much for sharing your story with all of us..I know it really helped me to see how you came through this horrible diagnosis with such a positive outlook and you are so graceful and that just says so much about who you are as a person and as a very strong woman...wishing you all the happiness in the world and you and your family are in my thoughts and prayers...sending hugs from Indiana...❤

@ThePatientStory 5 лет назад

Thank you for your wonderful message!

@hydie0073 5 лет назад

The Patient Story You're very welcome! ❤

@insyncmusicproduction 2 года назад

Positively the most revealing and comprehensive description of this grueling ordeal. You are a remarkable person. Congratulations and here’s to your continued healing and health.

@dnt_vtepedr 3 года назад

She is such a beautiful soul. My mother had non-hodgkins. I moved in with her to care for her through it. She was stage 4 and they gave her no chance of survival. She told the doctors that it wasn't her time to go so to figure out a plan. Lol After 6 months she was cancer-free, and she has now been 5 years in remission. My 14 year old daughter just got diagnosed with Ewings Sarcoma. So this is my second time going through cancer without ever having it myself.

@ThePatientStory 3 года назад

So sorry to hear about you dealing with two cancer diagnoses already. First, your mother sounds like an incredible woman - so glad she's on the other side of things. I'm sending you big hugs as you care for your daughter. -Stephanie

@dnt_vtepedr 3 года назад

@@ThePatientStory thank you for your warmth and kindness. Blessings in your journey!

@thebasiclife4319 3 года назад

What plan did u do for ur mom

@keithmarshall8478 4 года назад

Your video is very encouraging as I was diagnosed with low grade non hodgkin lymphoma in December 2018 I started my chemo in January 2019 I've since had 8 sessions of chemo which finished in August and now I've to get maintenance treatment every 8 weeks for next two years, I've had 2 lots of maintenance treatment so far and things are going ok for now, stay strong my friend sending you lots of love from Scotland

@Recite-GodHealMeCreateMiracle 4 года назад

Look for : Alimentation best to heal cancer and other disease - Sleep - Hygiene in habitation - and so on And look for : Psychological Conflicts - Psychological Fears - Psychological Problem : Speak a lot, speak about your problems, don't keep your emotions, speak about, free your body of your blocked-energy blocked-emotion, solve a lot of problems and son on. Look for the link between disease and psychological conflicts-fear-problems-hurts and so on. And look for : Energetic Healing, Tai Chi Qi-Gong and so on And so on Help-Relieve disease-cancer : maxime-sayd.e-monsite.com/pages/informations-ultra-importantes/aider-soulager-cancer-maladie.html For those who whants to recite this continuously : " I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all my problems all my illnesses all my conflicts all my fears all my wounds and others things now on all plans now so be it "   " I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all theproblems the illnesses the conflicts the fears and others things in universe "   " I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all the problems the illnesses the conflicts the fears and others things of firstname+lastname+linkwiththepersonne "   " I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all the problems the illnesses the conflicts the fears and others things of human being "   " Morrnahs Prayer : Divine creator, father, mother, son as one…If I, my family, relatives and ancestors have offended you, your family, relatives and ancestors in thoughts, words, deeds and actions from the beginning of our creation to the present, we ask your forgiveness…Let this cleanse, purify, release, cut all the negative memories, blocks, energies and vibrations, and transmute these unwanted energies into pure light….And it is done. "   " Dear universe, the Super-subconscious and all those who care about me in spirit. Please locate the origin of my feelings and thoughts of [INSERT ISSUE] Take each and every level, layer, area and aspect of my being to this origin. Analyze it and resolve it perfectly with God’s truth. Come through all generations of time and eternity. Healing every incident and its appendages based on the origin. Please do it according to God’s will until I am at the present filled with light and truth. God’s peace and love, forgiveness of myself for my incorrect perceptions Forgiveness of every person, place, circumstance and event that has contributed to these feelings and thoughts. I am sorry, please forgive me, thank you, I love you " *

@DriveVibes360 3 года назад

How r u now dear??

@keithmarshall8478 3 года назад

@@DriveVibes360 still getting my maintenance treatment which finishes in May but overall I'm doing good just trying to avoid getting covid, how's things with yourself

@sheloshelo4884 Год назад

@@keithmarshall8478 hw r u now

@3izzy0 5 лет назад

Thank you so much for this. My brother was recently diagnosed and I hope your words will help him through his journey. I hope you are continuing to do well and thriving no matter what!

@ThePatientStory 5 лет назад

Eliza, we hope this helps him, as well! Our site has more stories like this, though with less video: www.thepatientstory.com. Wishing you and your brother the very best!

@jessycertain3593 5 лет назад

“Take up space!” I love this and I will use it to guide me through this, thank you

@ThePatientStory 5 лет назад

Jessy, we are so glad this resonated with you! If it helps, Arielle's story is also up on www.thepatientstory.com under non-Hodgkin lymphoma stories. The best to you!

@hazeloveu Год назад

I’m so happy you’re doing well today! Listening to your story, the way you describe things, sounds so similar to my experience with mantel cell NHL. Thank you for sharing your story. You’re not alone! I’ll be praying for you.

@sheilawroten4559 4 года назад

I don't know what you do for a living but you should DEFINITELY be a spokes person for something! You're articulate & funny & the camera loves you. I couldn't stop listening to you. Oh & did I say the camera loves you!

@ThePatientStory 3 года назад

Arielle is the best! Thanks so much for such kind words, Sheila!

@29sagittarius51 10 месяцев назад

As soon as I feel I need to hear another survivor story, one is posted. Thank you for sharing your story! Much love to you and yours 💕

@davidrhed5494 5 лет назад

Thank you for sharing this god bless you. My father in law was in remission for 3 years but his lymphoma came back he is now 70 years old he handled his first round well but we are scared.

@ThePatientStory 5 лет назад

David, we are thinking of you and your father!

@scottculli7851 Год назад

Thank you so much for taking the time to make this video, I am 59 year old male and I have just been diagnosed with lymphoma, I don’t know which type yet, I have them in my neck and groin have not gotten a chest x-ray yet, I’m thinking it’s non-Hodgkin’s, this was very helpful for what to expect, I went through six months Interfernon , chemo therapy injections to treat hepatitis C when I was 42, I think the depression a company with suicidal thoughts, and uncontrolled sobbing which is all part of receiving the injection, was very difficult, the migraines, and the occasional cluster headache, which was debilitating, was tough, insomnia and lack of energy were the other things to battle, Again thank you very much, it’s good to be prepared,

@veronicalombardi2443 11 месяцев назад

EXCELLENT, ARIELLE. Thank you so much for your REAL presentation. It will help me a lot.

@brandileigh189 4 года назад

This is very informative. I currently have most symptoms for lymphoma. I finally found someone who will go forward looking for lymphoma instead of thyroid issues, because I have had a swollen lymph node for 4 years in my neck, FOUR YEARS! AFTER THYROID CANCER! I had thyroid cancer in 2011 so when I say any symptoms my NP Thyroid dose gets raised or lowered. It took my collar bone pain and shooting pain in my arm to get them to listen. It shouldn't have to be like this. The last part of the video is BY FAR the most important. BE YOUR OWN ADVOCATE. YOU are the patient, NOT THEM. What you are "supposed to" feel is not always what you will feel. REMEMBER -THE SQUEAKY WHEEL GETS THE GREASE!!!!

@ThePatientStory 3 года назад

Thank you for sharing, Brandi! Hoping you were able to get the answers you deserve.

@neelamsahani3625 3 года назад

How are you now

@leonidasm.4501 3 года назад

Thank you, thank you. The last advise was the best advice. We shouldn’t be afraid of asking questions, of doubting the doctor, of making them feeling like we don’t trust them. It is OUR body. It is our life. May the Good Lord bless you.

@ThePatientStory 3 года назад

Couldn't have said it better. Thank you!

@helenayong6267 6 лет назад

I had gone through the same regimen, i was diagnosed in july 2016, doing my chemo till end of october 2018, having the same type of lymphoma, mine is below the diaphragm. i hope you will be getting better each day arielle.

@cruxandcarnage 5 лет назад

Wow 2 years on Repoch? That’s crazy. How is it going?

@ThePatientStory 5 лет назад

Helena, sending you our very best. We are happy to say Arielle is doing well! Her entire story is on www.thepatientstory.com if it helps to read it, as well.

@angela1981 3 года назад

How are you now

@isabellagimona4629 3 года назад

Currently waiting for blood tests back and just taking some preparative measures in case and this has really helped me. Such a lovely woman who explained her experience so well! She is so right!! Take up space! ask questions! You know your body best.

@ThePatientStory 3 года назад

Isabella, thinking of you! Glad you liked Arielle's story and that it was helpful. More NHL stories here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/

@Amanda-lb5sh 2 года назад

Omg. You said a phrase that came to me in a reading while seeking for answers. Take up space. Thank you for this.

@ThePatientStory 2 года назад

Amanda, so glad Arielle's story resonated with you!

@jennygrim2057 Год назад

Thank you so much Arielle for your honesty and information described so positively Bless you! Xxxx

@justimagine2403 5 лет назад

Impressive amount of detail!

@ThePatientStory 5 лет назад

Thank you so much!

@georgestrait66 Год назад

i loved Zofran, such a savior just when I needed it.

@chinchilla1956 5 лет назад

Thankyou for sharing your story. I found your honesty and straight to the point way of explaining very good. X

@ThePatientStory 5 лет назад

Thank you so much for your feedback! If you'd like more stories, feel free to visit our website: www.thepatientstory.com.

@uno531 4 года назад

thank you for your story very similiar to mine im about to make a part 2 to my video with more of my side effects. hugs to another cancer survivor

@hezebelbeing 9 месяцев назад

Great interview, I appreciate her so much. Thanks

@marionfraser570 Год назад

Wow best and most informative account of someone’s experience no mincing of words or colouring the palette so hope you are all clear now and living your most vivacious life you should definitely do some patient advocacy roll 💕💕💕💕💕

@ThePatientStory Год назад

Marion, thank you for your kind words to Arielle!

@yvonnefacteau4329 3 года назад

Beautiful video, it was like watching a good friend speak and I such a perfect order with the approachable questions. Thank you for sharing your experience.

@ThePatientStory 3 года назад

Yvonne, so glad Arielle's words could be of comfort. Thank you for your kind words!

@Nohablogringo- Год назад

I’m so scared right now. I (14F) have had a lump in my armpit for about a 1 1/2 (April 2021) and it’s grown A LOT like it’s a full chunk of lymph nodes. I went to the pediatrician and she said it was a swollen lymph node. But now it’s grown so much since April like it feels like a cluster of lymph nodes are swollen. And it feels soft and movable. BUT NOW I HAVE SWOLLEN LYMPH NODES IN MY NECK. Some come in clusters, some are left alone, some are not moveable, some are. There’s one under my jaw the size of a pea a little bit bigger. There’s one on the side of my neck and I feel like it’s growing? Like it feels like it’s attaching to other lymph nodes. I have diarrhea and constipation sometimes but mostly normal poops. Also I’m burping a lot? Like it feels like something’s in my throat like a lump. No sore throat just feels like mucus. ALLERGIES? anywho NO night sweats, fatigue. If I do have cancer I hope it’s Hodgkin Lymphoma. Ty if you made it this far lol sorry I have health anxiety and needed to vent. Gonna force my mom to get me a CT scan and biopsy so if I do have cancer we have it at a small stage. 🥹👊

@chrisj8764 Год назад

Best wishes

@jennyjoyce9465 3 года назад

I’m pretty sure you meant Zofran, the anti-nausea medication, instead of Zoloft which is for depression. I’m so happy to hear how well you did. Thank you for sharing!!

@ThePatientStory 3 года назад

Hi Jennifer, yes, that's right - Arielle meant Zofran. Thank you so much for watching!

@TheFrnchrn99 3 года назад

Thanks for sharing your story. This is very insightful. Best of luck to you.

@ThePatientStory 3 года назад

Thank you for such kind words. Best wishes right back to you!

@patriciastirling0706 Год назад

I am trying to prepare to take care of my boyfriend just diagnosed with cancer I want to be positive for him

@ThePatientStory Год назад

I am so sorry to hear about your boyfriend's diagnosis - please know you are not alone, and it is so wonderful that you are there for him. Sending you hugs. -Stephanie

@marylovesss 5 лет назад

Omgosh! You are my hero!

@ThePatientStory 5 лет назад

We're happy to say Arielle is still doing so well! Thank you for your message! If you have any feedback on our site or know someone who wants to share their story, please let us know! :)

@kimtobon9042 10 месяцев назад

Thank you SO much for sharing! Love and Light to y o u Sister!!

@sirendipitybritt 3 года назад

Thanks for sharing your story! FNA’s are NOT fun! And waiting is the worst! Much love to you !

@ThePatientStory 2 года назад

Britt, thanks for your kind words. Much love right back!

@1MinuteFlipDoc 4 года назад

an AMAZING video! Thank you!

@ThePatientStory 4 года назад

Thanks for watching! Glad to help in any way you need!

@myrtleesther8855 4 года назад

You are an inspiration, so articulate and brave and everything laid out so honestly the good the bad and the ugly. Thank you so much it is reassuring to know beforehand what one may be up against and be prepared.

@liztorres4390 4 года назад

My oncologist has nurses that informed me and a family member of all the process, the things that you might feel, things that could happen during the process, like constipation...ughhh. The hair falling, weakness and also put everything for me in writing. A Medport was placed, it helps. Also I looked up about the disease. Weakness, bad moods, falling, little or no appetite. The first thing I did was put all of this strange disease in God's hands, and even though it was a terrible experience, God had control. Just a few tips: For constipation: Mineral Oil. When your hair falls off, get satin bed sheets and pillow cases , they are much more comfortable. For loss of appetite, get a nutritionist who specializes in cancer patients. Lots of ensure, shakes made of every green fruit or vegetable you can eat. And of course, Place your soul in God's hands. 😀

@ThePatientStory 3 года назад

Liz, these are wonderful tips. Thank you for sharing.

@breigemurphy1305 Год назад

💕💕💕💕💕

@dodibenabba525 9 месяцев назад

Senna is excellent for constipation in cancer patients too.

@namashpandey1283 5 лет назад

you are one strong lady

@ThePatientStory 5 лет назад

Thank you for your support!

@nancyhughes7595 Год назад

Thank you for sharing your story! I was diagnosed with DLBCL, double hit, and am almost done with cycle 3 of DA EPOCH. (Just had my first spinal infusion of methotrexate also). This chemo is so difficult. I kept asking myself why can’t I be stronger. Your story has helped me tremendously, knowing someone else was having exhaustion issues. I hope you are doing well! ❤

@GanubhaiA Год назад

Hi Nancy, you will be fine.I went through the 6 cycles last year and am doing great now. Just don't get sick no viral or bacterial infection.. stay safe! When you are done, go out and live life!

@rosaliemarino7858 8 месяцев назад

Im waiting for biopsy results following recurrence of lump on right side of neck after CHOP chemo Im very anxious to see whats next CartT scares me

@pureone26 5 лет назад

What a lovely brave lady, thanks for sharing xo

@ThePatientStory 5 лет назад

Thank you for your support!

@theresa2749 5 лет назад

I had non hodgkin's lymphoma also. 22 years ago. 4 kids later totally natural. my husband was diagnosed with hodgkin's 11 months later. Yep never thought I would make it. He did awesome he had abvd i had chop. you speak and explained things so well so how long have u been in remission?

@ThePatientStory 5 лет назад

Hi Gail, we're happy to say Arielle has been remission since the end of 2016! So glad you both made it through treatment and had four kids!

@tamb7587 Год назад

Bless you , for what you have been thru you have been thru hell and back u sweet , sweet lady ! I pray from here on your life will be filled with good things!

@lettiehanekom 4 года назад

Wow thank you for sharing your story my son has been diagnose with T-Cell Lymphoma and your story did give me hope that he will survived

@ThePatientStory 4 года назад

We are so happy to know Arielle's story is giving you hope! Let us know if there's anything we can do for you.

@sheloshelo4884 Год назад

How is r son

@menomeno69 2 года назад

Beautiful soul and mentality

@ThePatientStory 2 года назад

Could not agree more!

@melissadietz1258 Год назад

God Bless you

@Lridesagain 3 месяца назад

Thank you for your very personal experience with lymphoma. The only thing that perhaps would have been informative would have been your type and grade of lymphoma. So glad you are finished with your chemotherapy. You look wonderful. ❤

@joytownsend8329 8 месяцев назад

Thank you

@cruxandcarnage 6 лет назад

I’m going thru the same regimen and lymphoma! I’m going on my 5 cycle soon!

@ThePatientStory 6 лет назад

Ness, so sorry for this belated reply. Sending you so much love! Please let us know if have other questions (onedavidco@gmail.com). I'm Stephanie, the founder of OneDavid. I had non-Hodgkin's and underwent R-EPOCH, as well. I want to make sure I'm creating a page that is helping people.

@cruxandcarnage 5 лет назад

OneDavid it is helping!

@ThePatientStory 5 лет назад

@@cruxandcarnage Thank you! We switched to ThePatientStory.com to hopefully be more clear. If you have any other feedback or want to share your own story, please message me (stephanie@thepatientstory.com). Happy holidays.

@ficonner8303 3 года назад

Hi :) Is the cancer gone?

@paulphillipson2378 3 месяца назад

Cold sweats, hot shivers, no get up n go, no energy to spare or stamina Lack of sleep, itchy skin, can be overwhelming, you put on a brave face for the family Stomach bloated and flatulence, without any influence, you fart and you burp uncontrollably Out of breath and tired, in a world of your own, thinking how to keep hold of your sanity It's so surreal, these things that you feel, and friends will show their true colours The ones that you love, will be there for your good, and treat you like they are your mothers Loved ones are worried, is this the end, of the one they love so dearly The fight is on, the battle begins, the future no longer viewed clearly It's just the start, it will take time, test your strength and mental ability At times you may need, to be alone and daydream, finding solace in your own tranquility Your physical strength will pull you through, although it will be diminished Stay mentally strong, for however long, it takes until it's finished The treatment is hard, makes you feel bad, but it's eatng away at the issue Immune system suffers, take care where you go, avoid anyone with a sniffle and tissue And in the end you'll find, your own peace of mind, as your progress is shared periodically The therapy is working, destroying not shirking, eating the problem methodically

@victoriajohn6693 5 лет назад

How can they expect a patient to not have questions or to just have few? It is people you are dealing with doctors, do the right thing and be patient and put them at ease the best way you can

@ThePatientStory 5 лет назад

Victoria, we couldn't agree with you more. Unfortunately it seems so many physicians are overwhelmed by having incredible numbers of patients to see. We hope thepatientstory.com can help fill the void by answering questions straight from other patients and caregivers.

@tiffanybrodie1149 5 лет назад

Thank you Arielle for sharing your story. I was recently diagnosed with Follicular Indolent 3A Lymphoma. WOW what a lot to take in! But glad I came across your channel, this really helps. I will be doing the Rituxan. so We will see how this goes. Prayers up

@ThePatientStory 5 лет назад

Tiffany, first, so sorry that you are having to deal with your own diagnosis but we hope you know you're not alone. www.ThePatientStory.com is trying to grow stories so we can help everyone feel connected and get human answers. Unfortunately we don't yet have a Follicular lymphoma story but if you have any feedback or questions, please message me at stephanie@thepatientstory.com. Also always happy to share new stories, like yours :).

@elizabethdifebo8535 2 года назад

I just saw this. How are you doing now? Thats exactly what i have . They want me start with just antivodies.

@thisismyname007 3 года назад

R-EPOCH sounds pretty harsh. My own regiment was Maxi-R-CHOP one day in the out-patient infusion room and three weeks later, it’s high-dose cytarabine in the hospital for two nights. I read that the dose adjusted regimens are not better than the “bolus” regime where they bring you five bags one after the other and then you can go home.

@roselucht4583 23 дня назад

We discovered I have what my Oncologist says is a slow growing NHL when I got diagnosed with invasive lobular cancer and had a cat scan then biopsy of my lymph nodes in my left retroperitoneal abdomen. Will be having a mastectomy June 19th. On June 11th I’ll find out results of my bone marrow biopsy.

@martahagyari7174 Год назад

I really got a lot of useful information from your story. Also you come across as very likeable, very human. I am recently diagnosed & am still doing some testing before starting what I believe will be radiation without chemo. (Who knows at this point?) Thank you for sharing your story & best of luck & good health in the future. ❤

@alyshaviliamu1795 5 месяцев назад

Hi my daughter has it and supose to start chemo next but im thinking cheno coukd be worse, even tho they say it can be cured but i dont trust as shes fine and she will be sick with chemo,, just wondering how you are going are you better

@martahagyari7174 5 месяцев назад

@@alyshaviliamu1795 Hello. I ended up having 12 doses of proton radiation therapy then 3 separate doses of in hospital chemo. My chemo was nauseating, I lost my appetite completely. But I am great now, a year later. I’m just doing follow-up MRIs & doctor visits. Good luck to your daughter, I hope she will be better soon.

@Embryo7Music 5 лет назад

What a Great video. You're So Sweet. I WISH You Perfect Health. This video is Very Helpful & well done. Thank You! :)

@ThePatientStory 5 лет назад

Marina, thank you so much for leaving this incredible feedback. We think Arielle's pretty amazing, too! Our mission is to help as many people as possible (www.thepatientstory.com). If you have any feedback for what can help patients and caregivers more and/or have a story of your own to share, please message stephanie@thepatientstory.com. Thank you!

@Embryo7Music 5 лет назад

Oh! You are So Welcome. Much Happiness & Success to You... :)@@ThePatientStory

@geoffreyc1027 Год назад

This is so similar to my story. So far I’m only one 5 day R-EPOCH treatment in and hopefully my mouth sores don’t get that bad.

@sheloshelo4884 Год назад

How r u now

@vogirovottega Год назад

Just did my 1st cycle for R-EPOCH .. let’s fight it blud

@sheloshelo4884 Год назад

@@vogirovottega non hodgkin b cell ?

@vogirovottega Год назад

@@sheloshelo4884 NHPLBCL… complete my first cycle .. pretty ok .. 🙌🏼

@sheloshelo4884 Год назад

@@vogirovottega i will go 4th r chop chemo 2 days later. I m nhl b cell to. Have mediasten mass 10 cm do u have any mass

@tameraleonhardt2281 5 лет назад

Your video is scaring the crap out of me. I've thought for months that what I'm going through may be lymphoma but it's been a process getting in with drs. that listen because I have slightly swollen nodes all over my right side of my neck not one or two that are huge. I have an appt with a new primary care Dr Tuesday her PA already ordered me a ton of blood work plus mono test.. Hopefully they'll have results already. I was wondering if you could tell me how swollen your node you had biopsied was? You didn't really say. You're an inspiration💮😊🏵️ thank you so much for sharing this with us!!

@tameraleonhardt2281 5 лет назад

I see now this is not her channel. But thanks anyways for the video lol!!

@tntshelby 5 лет назад

@@tameraleonhardt2281 I am literally in the same boat as you. It has been awful and I know it is going to just be even worse with what is to come. I had an ultrasound and it wasn't good, it's been horrible trying to get the biopsy scheduled. I told the doctors for years that I was sick but nobody would listen. Hang in there.

@ThePatientStory 3 года назад

Sorry for such a late reply! We weren't getting notification of comments - can't believe we missed this for so long. Thanks for your kind words and hoping you're doing well today.

@kiki1326 5 лет назад

Thank you for sharing your story. I will be starting a similar regimen, but before I do I am getting a 2nd opinion. I am hesitant to poison my body with chemo, but if it's the only way, I will do it.

@ThePatientStory 5 лет назад

Hi Kiki, we understand how tough these decisions can be. We're thinking of you! If it's at all helpful, there are more stories on www.thepatientstory.com.

@x2x0x 3 года назад

It’s not the only way though. Please watch Chris Beat Cancer on RU-vid. There are clinics which cure cancer through food and detoxing the body

@johnnysilva12 3 года назад

Thank you for your inspiring story. I'm not if you answered this, what stage was your lymphoma?

@ThePatientStory 3 года назад

Hi Ashley, Arielle only knew that she was early stage, perhaps stage 1. By the way, her story (and many others) in text is here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/

@dandelions2414 Год назад

Could you see or feel a swollen lymph node in the shoulder/neck area where you had pain or just had pain only? Did it feel like muscle pain?

@gamergirlmars Год назад

have you ever been on Ofatumumab? was it just the Cytoxan that was killer or was the Rituxan that way too? thanks!

@karenadams142 2 года назад

You have it so right know one knows your body like you do. I’m currently experiencing being told I have cancer but we don’t know the type. So let’s watch and see. Wait and see, that’s a horrible thing to have on your mind everyday.

@ThePatientStory 2 года назад

Karen, you are so right. The waiting part is the toughest. I am thinking of you ❤️ . -Stephanie

@brendahidalgo8728 5 лет назад

Bless You! I just had CT scan and am Waiting

@ThePatientStory 5 лет назад

Brenda, wishing you the very best! If you want to read Arielle's and other people's stories in-depth, check out www.thepatientstory.com.

@brendahidalgo8728 5 лет назад

@@ThePatientStory Thank You!n So Much

@alittleofthislittleathat351 4 года назад

How did your CT scan go, please help I have hard lump in my neck

@brendahidalgo8728 4 года назад

@@alittleofthislittleathat351 Have a sonagram or ct

@brendahidalgo8728 4 года назад

@@alittleofthislittleathat351 swollen node

@neginmm1416 2 года назад

Oh yeah the part about oncologists basically just thinking about chemotherapy is so true. They don't like to answer questions. Which is a big problem. They need to have like some sorta advisor for the patients that knows the history and the drugs and can help u patiently.

@ThePatientStory 2 года назад

So glad you could relate to Arielle. Sometimes the cancer centers/hospitals have social workers or nurses who specialize in this - would be great if that was available everywhere, that's for sure! Thank you for sharing your thoughts. -Stephanie

@sherrybutts5947 Год назад

Yes not listening is a big problem for me with them!!!

@simonehernandez2030 Год назад

Hello Arielle, I have some of the symptoms u mentioned, still on bloodwork and will get results at the end of Jan 2023. I dont have a lump and but the tissue on my left shoulder is swelling. Is it the same with you? Thank you.

@gabrielasarmiento9113 4 года назад

i have non hodgkin b cell lymphoma and currently im breathless. my 4th cycle of chemo was supposed to be at Jan 3 but i got pneumonia so we couldnt proceed to chemo bcos of the infection. i had to be admitted again and was hooked up with an iv and antibiotics. i also have to drink a lot of medicine like every hour my alarm would buzz off through the entire day for my medicines. im starting to get really sad day after day. i would try my best to stay positive and not overthink and trust the process but its really making me miserable. after watching your video i kinda felt motivated. i hope i can beat cancer like you did! thank you for sharing your story. youre such an inspiration. i am tired but i will push through

@ilovechocolate8336 4 года назад

stay strong!!!❤️

@ThePatientStory 3 года назад

Gabriela, thanks for your message. How are you doing now?

@sheloshelo4884 Год назад

Hyyy how r u

@rajabhattacharya4127 Год назад

Can somebody enlighten me on Indolent MZL stage 4 with liver metastasis, LDH 209. How long do I have to live ? ON BR Chemo (4 cycles done).

@youngianneverletgo3696 4 года назад

Did your lymph nodes not move and were they hard?

@prettyaj7612 5 лет назад

Hi may. I speak with you i gues i need personal advice i do have lymphoma,like u. Pls

@laurenclark1480 Год назад

I've been do sick and tired of trying to figure out. I'm so weak not bring able to live. I need good dr.

@sherrybutts5947 Год назад

U sound soooooooo much like my mother when she went through cancer

@richardpoindexter6322 4 года назад

Had lymphoma large B cell behind my right knee ..had a golf ball sized tumor..My final sign was my leg began to swell ….It was explained to me lymphoma attacks blood vessels and arteries causing blood clots ...So I had little circulation in my leg ..I had two rounds chemo which shrank the tumor ..and many treatments for blood clots in my leg...dissolving the clots and stints in my thigh and groin ...been 2 yrs and they say so far Im cancer free ..but had to retire because of my problem with blood clots and my leg swelling …. I thank god every day I survived ..it was touch and go for awhile ...But ..Its also hard living expecting the cancer to return …..or maybe losing a leg due to lack of blood circulation ...Its scary everyday

@ThePatientStory 3 года назад

Richard, so glad you are doing well! If you want to share your story, we'd love to get to know you better through this survey: thepatientstory.typeform.com/to/OJfTUC

@sheloshelo4884 Год назад

How r u now

@angelabrown7182 3 года назад

Yes she meant zofran.. I've found a couple of lumps on my neck and have had a strange feeling in my upper belly and also have night sweats.. but I'm not about to go to the doctor yet not after this.. I have way less dump I don't think I have it

@ThePatientStory 3 года назад

Hi Angela, yes, Arielle meant Zofran. If you aren't feeling well, it may not hurt to just check in with a medical expert. We're thinking of you.

@pristinv500 4 года назад

Can you please tell us where you went for treatment? Thank you!

@ThePatientStory 4 года назад

Arielle went to UCSF for treatment.

@pristinv500 4 года назад

Thank you very much!

@1MinuteFlipDoc 4 года назад

what was the different constipation option? i'm going to be doing chemo soon and i'd like to know... Please!!

@ThePatientStory 4 года назад

Hey there, I'm so sorry we don't know this off hand! Feel free to email support@thepatientstory.com, and we can perhaps find the answer for you. I'm sure we can contact Arielle for you. If you need anything else, please don't hesitate to ask! If you're looking for more information on NHL treatment and side effects, you can find more stories on our website at: www.thepatientstory.com/cancers/non-hodgkin-lymphoma

@maryroseabenoja6816 3 года назад

How long your journey before you actually do a chemo?

@barbaradw9969 4 месяца назад

When my husbands hair fell out, I also shaved my head, to try and make him feel a bit better. Prior my hair was just below my shoulders. But I did it for him.

@urielhernandez3741 Год назад

Hi I'm currently experiencing all these symptoms and same the doctors can't find anything wrong with me. My lymph nodes don't seem to be getting big or anything but they are painful. I'm getting pain in my abdomen chest and neck. I haven't lost my appetite or feel feverish. But I have been getting night sweats. I got c scan and blood work all negative. I will go tommorow again and actually tell them that I'm worried it could be NHL. Thanks.

@ashishagarwal2937 5 месяцев назад

How is she now?

@heshamalsunaidi3991 4 года назад

It can be cured for ever ?

@dawnmanzetti1633 Год назад

You said you took Zoloft. Did you mean Zofran? They are very different drugs with different indications/uses. Zofran is commonly prescribed for nausea.

@brilliantbutblue Год назад

I came here to say she meant Zofron not Zoloft which is an SSRI

@Jkstolz 5 лет назад

Cannabis is amazing for nausea

@marionfraser570 Год назад

Hi again I was diagnosed with NH LYMPHOMA stage 4. In July /August 2020 had chemo and then immunotherapy went into remission for nearly8 months but on a regular check up in may for blood was told everything was ok but had bad backache which I emphasised to my oncologist FINALLY he agreed to a ct scan then a couple of days later got the bad call from oncologist that it had returned I have just been through 3 intense cycles of chemo and now am in the process of getting stem cell transplant and I’m not gonna lie IM SHITTING MYSELF Has anyone else had it I need an honest opinion please !!

@sousounina4295 9 месяцев назад

How are you now?😢

@byBlazing 8 месяцев назад

My 16 year old cancer was just diagnosed with this :(

@josianel84 Год назад

Zoloft or Zofran for nausea?

@CarolynAOdell 5 месяцев назад

Not Zoloft. zofran. Thank you for this video.

@kaypendergast5676 Год назад

My story is so similar up to the point she was diagnosed. I had something pretty big too...

@sheloshelo4884 Год назад

How r u now. R chop ?

@bharatipatel720 4 года назад

Its realy Scary !! One needs lot of courtage to go through all this .. What if one do not go for Cheemo??

@G4building 4 года назад

I had dose adjusted R-EPOCH Chemotherapy for stage 4 Diffuse Large B-cell Lymphoma and am now cancer free for 2 years. Not all are this lucky but I would be dead without it. It’s worth a try ... you never know. Many good results are occurring at times. Trust the medical professionals. I’m glad I did.

@ThePatientStory 3 года назад

So glad R-EPOCH worked for you!

@larrygaruccio7858 5 лет назад

i have to go get ck this week im very scared but it must be done i hope all is well but i know its not good my body tells me its not.

@ThePatientStory 5 лет назад

We are rooting for you, Larry! Keep us posted!

@allytay208 Год назад

Zoloft for nausea? Or zophran

@CoraJean19 7 месяцев назад

Do you mean Zofran? Not Zoloft?

@davidmayhall6567 4 года назад

My neck is swoolen up and I had tonsils removed but still have a lump and feel sick I have to go through the diagnosis. I used roundup in my garden and at my neighbors home killing weeds. I hope I can beat this! 😭 I feel sick my face and arm hurt. I am all alone I have no family to help me. I am single and care for myself How can I get through this alone?

@neelamsahani3625 3 года назад

How are you now