You need a EEG, it records your brain waves and will show if you are having seizures and how often, my grandson had what is called brain spikes and was dx and treated at UCSF Children’s Hospital. You show the same sx he had, it took multiple seizure meds too get them under control. A seizure cause complete exhaustion.
Yes, that is our next step! We are trying to get in to see a neurologist and get an EEG, but everyone we contact is booked out for months. We have some appointments this week that will hopefully be promising!
I was tested for this as we thought I was having seizures. What I know from my own experience is that you will not remember anything from that episode. She would be completely disoriented.. I hope that gives you some comfort❤️
@@TheStewartFam I have seizures and this is what it's like. They can be controlled with medication and she can resume a normal life. I hope the EEG shows something because not knowing is the worst.
@@TheStewartFam Take her to the Emergency room next time she passes out and mention you weren’t sure if it was a seizure. You simply mentioning that, requires them to consult neurology and neurology will most likely order an EEG right there in the emergency room. I don’t think this is safe to wait months to get in. We love you guys and you’re in our prayers!
Also be sure they're checking blood pressure when sitting then standing for 5,10 and 15 minutes. My Mother had the same symptoms and they found her blood pressure was dropping to low when standing and causing her to pass out. Praying y'all find answers.
Evan, the way you keep your chin up thru all this makes me cry. I can tell how much you are hurting but trying to be strong. Wishing I could just give you a big hug.
Having an autoimmune illness I have learned YOU are you best and biggest advocate. This is not normal and don’t stop seeking answers!!!! Praying you get better and find answers.
After my first baby was born, I started having fainting spells & a wise doctor found that my insulin levels were through the roof - making blood sugar plummet. He said serum insulin isn't normally checked so ask your doc to test that. Prayers!!!
I was diagnosed with POTS and Sinus Tach at 29-- 3 years ago. Heat and dehydration are major triggers for me. It takes nothing for my blood pressure to plummet. I keep sodium tablets (Amazon), rescue BP meds (Midodrine, specifically), HR meds (Bisoprolol), and a big tumbler of water with me at all times. Compression socks are recommended by doctors but they've never worked for me. I already had a neurologist before the symptoms started so getting diagnosed was easy. After my neurologist got the results, he immediately sent me to the cardiologist because it was so bad that he didn't feel comfortable treating it. Ask for a Tilt Table Test. Praying for y'all 🙏
My sister had the same thing. She had to do a tilt test on a tilt table for her heart. She was diagnosed with syncope. She has to stay hydrated with propel and sometimes she drinks pickle juice when she feels it "coming". It's an electrolyte and heart issue. Not saying this is what Carlin has. But....always something to inquire the doctors about. Carlin and your family is in the FATHERS hand. Praying you feel his presence as you go through this time.
I have POTS/NMH myself! Few things I notice before having an episode...I start to feel very hot and start sweating, my heart starts pounding really fast and I get confused. Post pass out, I feel wiped out and get the chills/shaking but am fine otherwise. My Johns Hopkins doctor recommends eating some salty pretzels and elevate my feet to recover. Tilt table test is the only way to diagnose it. Best wishes to the Stewart family. Hoping it’s something so simple as POTS ♥️. If you’re looking for further info Dr. Jeffrey Brinker at Johns Hopkins gives a wonderful presentation available on RU-vid.
I did the same thing for years and literally the “tilt test” proved it was a seizure disorder. My family would always think it was for attention. Now on meds and amazing how I feel. 6 years and not a 1 fainting spell
Dear Heavenly Father please heal Carlin's body from whatever this may be. Please also be with Evan during this difficult time as well an of course bless those beautiful babies. In Jesus name I pray amen...❤️
I would ask about POTS more .. I know it’s an overlooked condition.. I pray y’all figure it out quickly so you guys can get through this strongly and you have a solid family support system. ❤️
@@crazyfamily8077 POTS could be a symptom of a small spinal cord leak. I had one and I had the same symptoms. After I had a blood patch I was perfectly fine.
My daughter-in-law continues to pass out too. She's had tons of tests, so her doctor is sending her to Alabama for evalutation and a second opinion. In the past 2 years, she's had a total of 3-4 vaxes. She's never had anything like this before taking them. There are thousands of people having the same symptoms. Read about the spike protein in the blood and mini blood clots. Best of luck to y'all.
I commented on another post of yours. I have POTS Syndrome. And I have passed out more times than I can count. The tilt table test is what she needs. This really sounds exactly like what I have. It took them a long time to figure it out. Electrolytes and salt helped me tremendously. Standing up in one place without moving around is usually the fastest way I pass out. It's an autonomic nervous disorder. Please check into it because I have a gut feeling that is her problem I was in the hospital for a week before they figured this out and that was after passing out numerous times
I was diagnosed with POTs (a form of Dysautonomia) at the Mayo Clinic after suffering for over a year. Great team of specialists that can help rule everything out. Prayers for Carlin 🙏🏻
We're a family of POTSies and it's quite simple to diagnose....no special tests or tilt tables required. Hopefully someone will take a moment to do postural autonomic testing, if it hasn't happened already. (I should be clear...it isn't always easy to find a doc who's familiar with POTS but the testing itself is quite simple)
@@kiffanyevans4979 POTS can be transient, secondary to illness, infection or prolonged bedrest. This type of POTS will often resolve over time with lifestyle changes. There is also a chronic form of POTS that does not resolve, requiring longterm lifestyle change, adaptations and medical treatment.
I'm surprised that they never did a work-up on Carlin right after she gave birth to Zade. Passing out during childbirth doesn't seem to be "normal". The hospital dropped the ball for sure.
Vanderbilt is the absolute best hospital! Im a former Vanderbilt Nurse. Vanderbilt ranks up there with Mayo, Emory, etc. Its a teaching hospital I believe God put you in Nashville at this time for Vanderbilt.
The panic on Evans face when the ambulance was there just made me feel so scared for you guys. I hope you get this figured out! I work in the medical field and I believe you need a neurologist ASAP!! Praying for you guys!
Im surprised they've not consulted or that the ER did not order one during the ER visit. Please do not let them blow u off. Please get the physicians to communicate with each other. It could cause a tia &/or a stroke. Keep being persistent!!!
It was so hard to see her struggle to say “ambulance” and “ER” you can tell something isn’t right. And she’s a new mama she needs to be home with her baby. This is heart breaking and you both seem so strong. 🥺
@@jillmoran5972 yeah, the meds make you so loopy since they give you a (Hot dose) to stop the seizure activity- I was given IV Dilantin and I think Ativan and it completely knocked me out to keep me calm. I was sooooo anxious but I slept like a rock after I went home. My husband said he put me right to bed and I even slept in my clothes since he didn’t want me to wake up and just rest. I don’t remember ANYTHING from that scary evening I was fading in and out of consciousness, certainly don’t remember going home, walking up my stairs the drive home nothing at all. ✋🏻 and… it was Xmas Eve 2015 ☹️☹️
Oh guys! I know you don't know most of us and will probably never meet us but you have a LOT of people from around the world that care about you and are praying for you. Love from Missouri!
After they’ve ruled out cardiac issues I would see about getting a referral to Vanderbilt there in Nashville. They have an Autonomic Dysfunction Center and was extremely helping in diagnosing with POTS/EDS. I was in the same boat as Carlin…many tests/specialist appointments all to come back normal. So thankful for Vanderbilt!
My daughter has been going through issues for years and every test comes back normal.eating a lot of protein bars and water helps .after reading everyone comments on pots we are asking our Dr about it Thankyou
My prayers are with you both. I just wanted to give Evan a big hug. The worry and Pain on his face as he was talking about you passing out. I pray that the Lord guides these doctors to find what is wrong and that you will be able to begin to heal and be well again. ❤️
I felt the same way about giving Evan a hug. I felt so nosey but I realized it okay to genuinely care about these people. I also felt like Evan's sisters wouldn't mind if he got another big sis!
My wonderful husband has witnessed several of my seizures and it has terrified him. Mine have all happened at night strangely. 3 in my sleep but other than that I only have had them between 6 p.m. and midnight. So weird.. I hope they can find some answers; it’s super frustrating not knowing. 🙏🏻🙏🏻
Yes hopefully they went back to Knoxville and she can get into specialist. Im wondering if they have done an Echocardiogram of her heart or seizure test. Its just odd this started during labor
Lord Jesus we ask for healing for Carlin. We bind all sickness, disease, fear and anxiety in the mighty name of Jesus. We declare life, health, peace & protection over Carlin & the whole family. Thank you Jesus for walking with them through it all. Amen
Praying so hard for you! As a nurse seeing you experiencing this at such a young age is terrifying…it is not normal in any way, please YOU are your best advocate do not stop until you have a concrete answer! 💕
A very similar situation happened after Layla was born. It was diagnosed (according to your video from 2 years ago) as aseptic meningitis. Ask your doctor about a hypersensitivity to the epidural (Chemical‐induced aseptic meningitis). It is my understanding that this has ONLY happened AFTER an epidural. Might not be worth getting another epidural as that is the common denominator.
I’m an RN and was wondering the same thing. It would be wise to tell the medical teams your previous experience after getting an epidural and having meningitis. You could also be leaking spinal fluid if the epidural site this time didn’t seal as it should have with healing. Regardless, my prayers are going up as you deal with this heath crisis.
But if she were leaking spinal fluid wouldn’t she have a pounding headache and vomiting while sitting up or standing? I’m only asking bc that is what happened to me, then I got a blood patch and it instantly went away! I’m sure there can be many symptoms to leaking spinal fluid.
I have similar symptoms and my last epidural was nearly 60 years ago. After a bad reaction I had another two babies without pain through self hypnosis and LaMaze techniques. That took care of then but new symptomologies are baffling doctors. I had an abnormal EEG in right temporal lobe so…like Carlin I wait for answers.
@@keririce3245 you are correct... i had a spinal leak as well. Was horrible 5days of laying there after a spinal tap! My dr told me a spinal leak headacje is 10 times worse then a migraine!! Also a spinal leak can only happen if the spine has been punctured... I talked to my Dr and anesthesiologist thoroughly before deciding on a epidural... the epidural does not enter your spinal cord at all and problems from a epidural are very rare... The medicine is injected into a fat-filled area that goes around and surrounds the spinal cord... She was having these problems while she was in labor before her epidural.
Praying for answers. Go to Vanderbilt. They are truly one of the best hospitals around. You all need answers and Carlin needs to be treated so she can heal/recover. My heart is breaking for you both.
God,please keep Carlin safe.God I ask your help in correct diagnosis for Carlin.God ,please guide the doctors,and nures heart,mind,soul,and hands.God comfort Evan,andstrengthen him. GOD KEEP CARLIN SAFE.
I have POTS which is a heart thing. You go into tachycardia then pass out. I think Alyssa had that. Anyway, I’m no doctor, but I’ve never seized with POTS. Praying they find it soon.
Praying! Told my husband about what you've been going through and he immediately asked "Was she vaccinated?" He's a paramedic, and has seen a dramatic rise in this type of thing.
Bingo! I was hoping someone would mention this. POTS is one of the adverse reactions to the Vax along with myocarditis. I wish people would do some research before jumping on the bandwagon to get those shots. I know way too many people that have some really bad side effects and it's just scary. I refuse to get any of them. I've had covid so I have natural immunity.
I commented a similar thing on the last video. Lots of ppl are unaware that neurological and heart issues can occur with vax injury, even not showing up weeks or months later…
@@beckyfoster9282 anything can cause something like this to start if it was already dormant in her. As in genetically predisposed if she for example has pots or dysautonomia My child got Covid which triggered a sudden and severe onset of Dystonia. I’m sure most know nothing about that diagnosis but it’s a terrible condition and extremely painful if they are more severely affected like she seems to be. Did Covid cause her to have this? No. Her bodies response to the VIRUS triggered this condition which she already had. Which goes for lots of auto immune conditions that run in families. Any type of viral illness can trigger one whether you’re 6yo like my child or 60. It didn’t cause it necessarily and could have happened with the next illness or anything causing the immune system to over react. We do avoid lots of vaccines for her knowing her genetic varients and medical conditions very early on but she’s had things present suddenly after a viral illness twice in her short life. And neither one was necessarily out of the blue when we ran genetic testing and really looked back at her minor symptoms after learning what these conditions caused. It was just dormant
You guys are in my prayers. I went thru a lots of things 11 years ago until the finally find out I have Multiple Sclerosis. Praying for you to get a diagnostic soon. Do not be afraid the Lord is you !
I think these are seizures. She has an “aura” that happens before and can anticipate them coming. Followed by fatigue. She also should slooow down. She is postpartum and needs to allow her body the time to recover.
Exactly. I have that. You can feel it coming on. I go to neurologist at Duke. When it passes you’re fine. A lot of people don’t realize you have migraines you cannot feel.
Carlin should not be left alone. Period. Even if someone is watching the kids. She can't call 911 if she passes out. PLEASE dont give up. Keep pushing for the answers.
My nephew has POTS. Passes out without any warning. He has been to so many specialists in several states. It all started after he was given a series of vaccinations all at once prior to surgery. It was standard procedure but he has suffered neurological effects and is unable to work. This happened around 6 years ago and he was only in his 30’s with three children. Currently he has plasma treatments but he is still unable to work. We pray you may get a correct diagnosis and a treatment plan.
After going back to watch the birth of Zade video, the passing out episodes started BEFORE any meds/epidural were given. Maybe have the medical records of Zade’s birth given to specialist. Hopefully he or she can put the puzzle pieces together.
My daughter has POTS. Took us a while to get this diagnosed and we started with cardiologist who then sent us to neurologist. This sounds exactly like what my daughter has. Hope you get answers soon. The medicine my daughter takes has helped her so much and drinking lots of water. Please read about POTS - postural orthostatic tachycardia syndrome. Good luck with everything!
this looks so much like a seizure. even her missing words and not being able to say what she wants, etc. im a RN student and i’ve seen this multiple times. i am continuing to pray for y’all!!🤍🤍 can i say how sweet Evan is during all this?🥹 what a sweetheart
I really feel for Evan as he is trying to hold everything together and knowing that he is scared for Carlin and also trying to work and take care of his family. Prayers for Evan too!🙏❤🙏
My brother had Epilepsy. It was through puberty mind you, but still, they have were all different in many ways but the same basically. He couldn't function after, he was exhausted and he'd sleep for hours. He couldn't speak for awhile, and when he could, he'd have a hard time finding words. Definitely an EEG should've been performed right from the get-go, it seems strange really they didn't do it at the first ERs. I hope you've had it now and they're taking steps to find the right meds for you. I can imagine how scary that is being a young Mom and not feeling in control of your own body. Your husband is trying to stay strong I can tell. But I'm a mom and I'm 63, and don't bottle anything up, have a good cry, even if it's just of frustration. You'll feel better for it, both of you. Wishing you the best of healing.
First one I ever had was a massive grand mal seizure. I broke my arm ( hairline fracture) and dislocated my shoulder. 😥😥 peed myself, woke up screaming on my back on my couch, with my husband (now my ex) watching the whole thing. I wouldn’t sit on my couch for about 4 months- scared the hell out of us. I went to the ER, ran all the tests, came up with nothing. Don’t know what caused them since they just came out of nowhere. The only thing I felt was a sinking feeling in my stomach and I got super dizzy 😵 Anyway that’s my story. She’s DEFINITELY having seizures: so many different types and it’s super frustrating not having control of your body.
TAKE HER TO VANDERBILT! They are an amazing hospital. I have one of my dearest friends there now and they are the ones who are finally giving answers and serious help. I've been praying for Carlin, and for you that you are able to find the right hospital that can get answers for you
Sending tons of hugs, love and prayers to Carlin! I good that they can get you an EEG asap there is no reason they should make you wait a month. Praying for answers. Evan, you’re an amazing husband and father. I am in awe of your strength and how you have been an amazing source of support for Carlin. You two are a perfect match ❤️. Much love to the Stew Crew! 💖💕💙💙
It was good that they took you in, Carlin, because you now have the medic’s notes and observations on what occurred, and what actually worked to stop it..that can only help to speed up the diagnostic process💗
Y’all are in our prayers!! And praying that they can get to the bottom of this and be able to help you get better. 😊 Keep hanging in there Carlin. God Bless!!
Carlin, I am praying you find your answers soon. Don’t worry about the hospital ER thinking your faking or whatever. They know you will never fake this…..there are a lot of friends on this channel giving excellent ideas what it could be please make a list & show it to your doctors if need be. I am so worried for you. I pray you get better soon. Please tell Evan to keep us posted. I am scared too….
🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️ for Carlin , her support You and the family. I had a friend who continued to pass out after birth… and ‘’’go figure’’ it was because all of the ‘’ after birth’’ was still in her. Please make sure that that’s NOT the cause. I love 💕 you all . Prayers 🤲 🙏 sent
Seeing little ones in their uniforms, playing ball is so adorable; they look so stinking cute!! I hope you get some answers and feel better soon, Carlin! 💖
Praying for you! I have POTS but mine is mild now. I had to do a tilt table test. I try to always drink something with electrolytes. But I worked with a cardiologist, neurologist, and a wholistic doctor. Through a team I was able to go back to normal life without constant dizzy spells. Now I’m just thankful for this part of my life I can manage okay. Praying for you. It’s hard to go through the passing out but it’s harder passing a bunch of tests knowing something is wrong with no real results. God is good. You are strong Carlin. Following your journey. Evan you are awesome in all your help. Prayers from Ohio.
Tell them you’re not leaving the hospital until they figure it out. Had friends where the husband stepped up and told them that and FINALLY they figured out the problem!
Take her to a neurologist and cardiologist. My daughters POTS she says “resets” her after the syncope. Heat, hormones, pressure... it all lends to POTS. Compression socks and medication, high sodium diet, is how you treat POTS. And she def needs an EEG, MRI, cardiac stress test.
Need to rule out Lyme disease or any other tick borne illnesses. Tick borne diseases tend to show up after giving birth. They can completely destroy your immune system. Much more commonness than people know with over 500,000 new cases a year.
@@blondefaith5721 agreed 100%. The rheumatologist or infectious disease doc can run that panel. Actually, so can the other docs. There are so many doctors who, sadly, do not “believe in “ chronic Lyme but it’s absolutely real. The lyme treatment sometimes is harsher than lyme but any autoimmune illness should be ruled out as well.
@@Dorinda-Sevvy yes, I absolutely agree with you. Any tickborne tests should be done through Igenex labs in California or MDL in New Jersey. They are specialty labs for tickborne illnesses. Do not go to Quest or Lab Corp. I had similar issues after my first born and it was late stage Lyme disease. Misdiagnosed of course for 4 years. But thankfully once treatment began I saw improvement.
@@blondefaith5721 I wish you well. I have Lyme disease and was told by doctors that it “wasn’t real” and it was “impossible in Florida”, when it originated from a coinfection with bartonella. It is in my spinal fluid and I have many issues from it. It took a long time to find a doctor who listened. So important.
Have any of her doctors considered a form of dysautonomia? My former daughter-in”aw was diagnosed with POTS after years of suffering. Praying for you all.
This is what I was thinking. POTS seemed so likely, but there are still a few other things it could be. I am glad they sent her home with a heart monitor though. Pregnancy can do some crazy things too.
Yes that's what I'm thinking because I was diagnosed with pots too and it took me 7 years to get diagnosed with pots and her symptoms are just like mine and they would run all these different tests and everything would come back normal
Sending lots of hugs, loves,and prayers!!! She is trying to stay so positive even though she is scared. I am praying for you and your whole family! Big hugs, loves, and prayers!!!
Oh my goodness, how scary! Will definitely keep you and the doctors in prayer. It's so hard and discouraging when there's something wrong but they can't figure out what!💜
My son had similar symptoms. If possible, try to video record what she's doing at the time of her episodes. It might be helpful. I'm surprised they haven't mentioned seeing a neurologist. It's definitely good that she's seeing a cardiologist. A couple things they didn't tell me, after an episode is that he would feel really tired, and that his personality would be more agitated for a few weeks post faintings. Praying you get some answers soon.
