A message to people with Ichthyosis and visible differences. See more of Carly's writing at Carlyfindlay.blogspot.com For a list of Ichthyosis resources, visit carlyfindlay.blogspot.com.au/p...
Loved every word you said! This is why people need to be much more open minded, just to hear such a simple speech but at the same time the strengh in between every word. Best wishes for you Carly from Argentina! Keep up the good work and never give up!
this made my day. I feel so bad that I have skin issues and have for about 7 years. I say I feel bad because I can't imagine how hard it was for you to be victorious and not allow it to be a recluse. At 18 I started to have extremely bad acne all over my face back and chest. I don't have any friends I stay away from people as much as possible and when I am around people I have panic attacks. I allowed acne to have such a bad grip that I turned to drugs.By 19 I was a full blown heroin junkie. which only made things worse (duh) I've been clean for 3 years and my skin is a lot better now but my mind isn't I get that feeling of everyone is looking at me and thinking omg look at him he is so ugly. I wish I could be strong like you and could look at people when talking. But this video was a good watch for me because I'm sitting here thinking how do you do it. kind of like a super hero lol.
One step at a time! There will be some days when it won't matter and others that it'll affect you. But it's inside of you that strengh. There will always be a jerk around that may say something nasty or simply stare at you... but it's your life and you shouldn't let anyone make you feel any less. You deserve to be happy!! Maybe my words don't mean much right now, and it may feel weird coming from a stranger but just keep in mind different is not bad, different is not less, it's something new. We only have one life to live. Dream big and don't give up!!
The parts that matter about her are beautiful. The parts that last forever, not just this temporary shell we are given for our short time on Earth. You're amazing Carly!
I have Nethertons Syndrome which is a form of ichthyosis. I have a red face too and peely skin . I want to be a model and a influencer . I related to so much of what you said . Especially people starring and our family and friends noticing more than we do. Loved your video !!
Wonderful clip Carly... preventing the sense of isolation seems to be part of the key. I hope many, many people watch this and learn. (This with any kind of disability and those who are lucky enough to meet you!)
Increase vitamin K2-mk7, scales I believe contain calcium, K2 puts calcium in your bones, teeth, finger nails, not your joints, arteries and yes your fish scales, eat Natto daily. It helps.
Hey Jo! Thanks for your message :) I do use paraffin all over my body - but I let it soak in before dressing. It's very hard on my clothes - and my washing machine suffers. My paraffin containter attracted the bomb squad at LAX! Paraffin has been the best moisturiser for me, but it may not be for all with Ichthyosis. Read my blog - link above - for some of my other treatments.
Hi Carley, Hope you are well. My Daughter suffers with ichthyosis. Nethertons syndrome to be precise. Would love to speak with you privately if your willing. Kind regards Zohra x
