I filmed an update with Cecilia five years after this video was filmed. I highly suggest watching it following this video. You can find it at ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-n7Wzb6esnpU.html
@@pablikobarahona Hi Pablo, I used to be a therapist and have dealt with many people who live with schizophrenia. Most people with this disorder… and notice that I don’t call them schizophrenics because they are people with a disorder. I don’t like to call them by their disorder. Anyway you asked about the eye contact and most people with schizophrenia do not make eye contact just like many people with spectrum disorder, formally called autism, don’t make eye contact. It’s just a symptom of the disorder.
I admire how well Cecilia advocated for herself - "I don't answer that question." and "If I'm not comfortable I'll let you know." There's a lot we could all learn from her!
Active listening??🤣🤣🤣 Some nonsense going around these days...you mean he listened? It's not hard, especially seeing as the channel relies solely on the 3rd persons opinion..
I agree, it really is human and beautiful. There's a lot more to active listening than just listening. It really is a skill. He is absolutely amazing at this. I'm a therapist and coach others on how to actively listen and you wouldn't believe how difficult some people find it. Society has evolved us out of that time taking, empathic, sustained shared experience of really truly hearing another, due to busy lives and unfortunately closed minds. Relationships are indeed the agents of change. Beautiful active listening. A thank you to the bravery and honesty of Cecilia. You are amazing, strong and beautiful, thank you for telling your story
@@andyrome316 "Active listening" is listening to a person and responding accordingly to demonstrate that you actually care about what they have to say and ask questions based on that.
her explaining that she doesn’t like to say if she’s hallucinating because it’s harmful for people to interact with hallucinations felt very important to know - I will always keep that in mind from now on if there’s ever a situation in which that arises. i truly appreciate her sharing 💙
The voices are telling her to say this. I have two family members this way and have studied them for years. The normal part of her wants to interview but voices are telling her not to say so much.
@@melodym7045 possibly... I could understand this, but it also makes sense if she's grounded enough to know something isn't actually there to not draw attention. If you watch her recent update in here, she says she couldn't make eye contact because she was seeing a hallucination in his direction. There are times when she's suuuper turned away from the right side of the screen (their left)... Also @3:56 she looks over and checks on that area. It doesn't look like a look at a passerby.... Plus I'm positive he'd know to have that room on lock down. If she said "yeah I see something over your shoulder."... Sounds kinda like a bad idea here.
@@pumpkinkoot865 they cannot distinguish between real and fantasy. Voices and images are common for them. I just visited my close family member today. They were talking to themselves but thought they were speaking to someone. They saw me walk in the room and played it off real quick that they were writing some stuff down. But when I stepped out, they said I won't tell her to leave. Spoke to a few drs and like I've said gone through this year's and years. I'm a expert in knowing those symptoms.
Weirdly when I ask one of my family members if they see hallucinations, they say yes but then a day later say that was the real person they saw. They honestly can't tell the difference. Watch out for loud talking or abrupt stomping or thrashing stuff, you will then know they are off meds and it's a danger for you so you would call the cops that can put them back in the mental place to get back on track with meds. They can and will stab you if the vision they see is bad with you in it!
She seems both focused and distracted at the same time. I'm sorry it must be hard to live like that and Never been able to fully relax and the reaction of society.
I love how respectful she is and sets rules for herself, all while educating. You can tell at 1:15 that he genuinely didn’t know that and was respectful of her boundaries.
I love how present she is, and that she refuses to discuss current hallucinations because she doesn’t want real life interacting with the hallucination. That takes a lot of awareness and a solid grasp on reality and that has to be extremely hard for her. My best of wishes to her and I hope she’s happy and well today.
@@TheSquatCrafters really sad to See someone in a place mentally to have the urge to write Something Like this under such an wonderful Video. I hope you'll get to a place where this is no longer Something you gain relief or satisfaction from
she's really down to earth and super chill. i could 1000% see her as a friend and thats without the need to ask the typical or even repetetive and prying annoying questions that most would ask. she's an entire human and that's awesome.
I've also seen this girl on a ted talk. I can relate to her as a person with complex PTSD in having to put all my energy in appearing "normal" and like her I've often been called crazy. A lot of people don't understand the difference between hypervigilance and paranoia. I'm not afraid of things that haven't happened to me. I'm afraid of things that HAVE happened to me and are well within the range of possibilities. I'm much more sensitive to red flags. "Normal" people to me are incredibly gullible, submissive to authority, and susceptible to emotional manipulation. I've had to fight to survive. I'm a survivalist.
I phobia of the real voices especially when I asleep. I also fear of people touching me when I am sleeping. Because I can't differentiate what is real what is not real 😓
Yes she worries of real people. To be a friend of hers would be a treasure. She has such sensitivity and very honest person. May God find her a wonderful understanding boyfriend and hope to fall in love with someone special.
Yes, it is obvious that the girl grew up in an environment, within a family with a special culture and education. Where everyone expected a lot from her, they had high expectations about her future. And mental illness came to bring all of that down. She is clearly talking about her parents, her sisters, her friends and relatives. From that middle class circle in which she moves, where if you are not a successful and productive person, you are nobody and nobody values you.
True this however when viewing others like Deb Webber in Australia its tough to jump to mental illness. Calvin Quickshank(New Zealand) Sue Nichols- USA Teresa Caputo - Allison DuBois -Tyler Henry So many more that its difficult to define another's reality or GIFT - In the USA there is one in ten therapists who are progressive, teaching patterns of a Gift vs Hallucination. Spirit energy is very real. When I began to document, write it down and take pictures, is when that one in a million therapists did not put me on drugs but rather taught me about mediumship & clairvoyance. It opened a positive door to my depression and the more I documented the more she taught me about patterns and psychic ability. Why jump so quick to put people on pills?
Not until I came across psilocybin mushrooms treatment. Psilocybin treatment actually saved my life honestly. 6 years totally clean. Never thought I would be saying this about mushrooms
Can you help with the reliable source I would really appreciate it many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Germany. Really need
My brother has schizophrenia. He’ll look up at the ceiling or the wall or go in random places and when we ask him about it he says I don’t know every time so props to this lady for making it clear why schizophrenics can’t talk about their visions, truly learned a lot from this video.
In my country, they say that smarter people are more vulnerable to schizophrenia especially when combined with sensitive, perfectionist (but very indifferent to a certain things) and anxious personality.
It's amazing that she is currently hallucinating and she can remain so present. For people i know that have schizophrenia, they often seem like they are somewhere else. You can tell that they're paying more attention to the hallucinations than you
I think it’s really smart the way she said she doesn’t answer whether she’s hallucinating or not in that moment. I’ve never thought of the hallucination and reality fusing. I’ll definitely remember that tip
"The good guys get schizophrenia too and the majority of them are good guys." That's the realest thing I've heard. We need more stories with protagonists/positive rep of people with schizophrenia.
With schizophrenia specifically, it really is not too far off the mark. The same mental skills that allow human beings to swap perspective and put themselves into someone else's position, to imagine things that don't exist yet/anymore/right here, those are the very programs that go off the rails and work against the self in this disorder. I remember reading an entire paper about that perspective once. It really doesn't take much to send someone over the edge. The brain's balancing itself on a thin razor most of the time and we call that normal because we can't see the path it treads.
My mom, Celia, was squizophrenic. She passed away recently and I miss her so much. She suffered all her life with it and she loved me still like I was precious to her. I love you mom. This world is horrible without you. Be strong Cecilia.
Her honesty is like jumping into cold water it's so refreshing. The mental strength to hold a conversation while a hallucination is happening is mind blowing. She has worked so hard on herself I barely recognize her in the new video. Its inspiring, thank you Cecilia for allowing us into such a personal part of your life.
I’ve worked with schizophrenia patients & when she said she is able to separate her hallucinations from the reality of day to day things I was so proud for her!! That was always my goal for my patients. It’s the greatest feeling in the world to see that relief in their eyes!
I work in a psychiatric ward, specifically with schizophrenia and watching this clip made me so damn happy! This disease is something, as Cecilia says, a lot of people fear just because they don't have any knowledge about it. Meanwhile this fear is actually very unnecessary. If more people talked about psychosis-diseases it would be a lot easier to actually be able to deal with them as someone who has this.
I also found it great how well she was able to establish boundaries. I was really angry when I heard about the friend abondoning her because he "didn't know what was going on in her head". It just makes me soooo sad and angry at the same time. I've lost a lot of friends due to psychological issues myself, but it wasn't like that, it was more like me withdrawing from society more and more. Without explicitly telling anyone about my problems. That's hard enough, but this must've been a real punsh in the stomach for her. I wish she has understanding people in her life who value her as a person.
Esquizofrênicos , alguns, machucam pessoas , esse é o medo.Quando podemos saber se a pessoa vai ouvir uma voz mandando nos dar paulafas ou agredir de outra forma ?
"I'm more than a plot twist in a movie" is such a fantastic line cos it makes you realise how often hallucinations and mental illness in general are used as plot devices in fiction.
And how INCORRECTLY they are usually used in any type of fiction, movies, television etc. When I see an ignorant depiction of mental illness, specifically schizophrenia, I get very angry be cause they NEVER represent it as it is. And too many people still believe that calling some behavior schizophrenic when implying that it is split personality. That is such a facllacy perpetrated by media. So hey writers, directors etc. STOP writing about something you have NO understanding of, at least speak to a psychiatrist for goodness sake. Grrr this makes me so angry! We’re misunderstood in general. We don’t need your demeaning, inaccurate and sensationalized accounts!
A lot of things are used as plot twists in media. Does their relation to real life events and conditions mean they shouldn't be used or are insensitive? No. That's rubbish talk. Writers can and should write whatever they damn please as long as it fulfills them as the artist. Fk everyone else.
For those who don’t know : in a follow-up interview, she tells us she was symtomatic in this interview. This seemingly well-spoken woman is fighting actual hallucinations in this video. So epic!
Do you have a link to that interview? Edit: the uploader has pinned a comment with a link to the follow up video, for all you people reading this and also wondering
@@sunnyblue7800 Studying to be a clinical psychologist and we are often taught to not use personal tone, as it may influence how the person we are talking to may answer or even trigger them. Now not every psychologist uses this approach, but its usually the general approach for those reasons. There to listen, not to make any judgement (good or bad)
I clicked on this video because I recognized Cecilia from her TED talk; I love hearing what she has to say and I love how she is working to crush the stigma against schizophrenia. It's a disorder that many people are not educated about; in fact I hardly knew anything about it until taking a psychology class in college. And I still have much more to learn about it, along with many other mental conditions. Education is so important.
wow when she was talking about attempting suicide because she was afraid she couldn’t be the person she wanted to be.... i think so many people who struggle with all kinds of mental disorders can relate to that feeling so much
I know the feeling that you can't be the person that you want to be, my example is just my shy personality and my social phobia. It hurts a lot the fact that you want to be more open or by her example not having hallucinations but you can't do anything to change it. My problem is nothing compared to hers because with help i can change it but i see a bit of me in her and i wanted to say what i just said in this comment.
@@La-hora-del-terror My childhood was very harsh, but I wrote on the wall of my room a dream, and now I am in the crucial stage of this dream and I feel very afraid that I will not be able to achieve the only dream that patiently endured in my childhood, so I think the symptoms of schizophrenia appeared on me because of this matter
My dad had paranoid schizophrenia and was given 14 shock treatments . Most of the time he was pretty much normal and then he would relapse . My dad was the most loving ,caring ,giving, kind person I've ever known.. I applaud her for her speaking about it. God bless
My great aunt had schizophrenia, she passed about 15 years ago. She sadly was from a generation that was institutionalized rather than treated in the community. Our family never abandoned her like some did, she would come for weekend visits because we lived closest of all the relatives. Despite that it was always something spoken about with shame attached, something that was whispered rather than accepted as a mental illness. I'm so grateful that we are working towards a world of acceptance for people with schizophrenia.
@@dirkdiggler8427 I wrote I am sorry to hear that because she wrote about how her aunt sadly was from the generation that institutionalized rather than treated in her community. It’s sad to know there are many people who suffered
Wow, I’ve never thought about the “real life interacting with the hallucinations” thing before. I imagine that must be pretty stressful. Love love love that she set precise boundaries to keep herself safe and comfortable too.
I’m a teenager living with schizophrenia and have been diagnosed, Cecilia is very strong and she is doing so much better as she was in this video years ago. I told some of my best friends about myself living with this condition and they started joking and saying that I could hallucinate a sword and start fighting them, they said it would be cool living with this condition, that is very harmful for me and I feel worse about myself. Anyway Cecilia is a very strong individual and I look up to her now.
That’s so horrible that your “friends” would find it would cool. I was diagnosed at 19 as a person living with schizophrenia. I’m 51 now and I still don’t tell many people because they have such a distorted understanding. I’d been having auditory, visual, and tactile hallucinations before my diagnosis and tried to fool doctors too, because I was afraid of being labeled and even committed. Ummm that didn’t work, but I was very lucky to have a father that advocated for me when I could not do that for myself. I can relate a lot with Cecilia’s lack of eye contact. I do the same often, first because I often see distorted images of people looking at me, and second because my mom said she could tell when I was listening to voices “in my head” by looking at me. I did not like that idea. I was very interested in Cecilia’s spider experience. I won’t go on about it, but I felt them crawling behind my eyes and when I blew my nose to try to push them out, I’d see hundreds of tiny spiders in my tissue. Hard to hide that from people who will never know & understand schizophrenia let alone think it would be .”cool” I’m so sorry you had to experience that!!! EDIT! I realized my autocorrect changed SHIZOAFFECTIVE disorder to SHIZOPHRENIA. That’s something I NEED to correct because I have a mood disorder (depressive) that ties into my psychosis. I often have psychotic episodes only when I’m already in a depressed state. So this is different than living with schizophrenia , even though I’ve lived with psychosis (different types of hallucinations as I described above and delusions as I described above. I just felt I needed to correct the error in the disorder I live with. I relate so much to Cecilia though, and I admire her openness and willingness to educate others so much! M
She mentions in a Tedx talk she is an Astronomy and Astrophysics major and mentions a discovery her and an associate come across, she seems incredibly intelligent.
She's been living the life of a superhuman! Fighting giant spiders and murderous clowns and ghosts Though those are all hallucinations this proves she is a strong person
Exactly. She's a Super Hero & doesn't even know! She really is a very strong person. It's so important her showing people how normal she is & how she copes with it all! I always thought/assumed that people with schizophrenia were crazy murderers.
LOVE the way the interviewer is so attentive to every word she has. The pause to acknowledge what she has just said, the actual acknowledgment and affirmation to what she is trying to communicate. Even if he may not fully comprehend, he will speak up and ask she try to elaborate a bit more. Awesome job!
she definetly is amazing with how asertive and well spoken she is. at the same time, the hallucination she described about a giant spider and its legs creeking resembling childrens' laughter really chilled me to the bone, I really feel sorry for her..
From personal experience, it’s really hard having that condition. It’s hard having to take all of your energy just to look normal when your really tripping balls in your head. It’s so bad. And you know it’s not real, it’s impossible. But you still experience it, and you can’t stop it. Or change it. She said a lot that hit home. Needless to say she’s incredibly brave. I think courage is the word.
Would it make you feel better if someone was comfortable with you not "looking normal?" Like what does "not looking normal" mean exactly? Reacting to your hallucinations? Yelling in fear? Having a conversation with someone who isnt there? I guess to an outsider it seems like it would almost feel worse to acknowledge the hallucinations
There is something very special about this possitive man, look how he deeply gives his full concentration to the person and really listens, wish the world had more people like him.
I never thought about people acknowledging active hallucinations as being harmful to the person having them. My reaction would be to look there as well to try and imagine what you're seeing, which I assume is what the thought is of the people looking that way. This is why I love this channel, it helps me learn things I never would've otherwise.
Once I tried helping a lady having hallucinations. She said she was seeing sth crawling on my arms. I didn't look at it, just kept looking at her and talking. It seemed to calm her down in a significant way over time. But you have to keep yourself collected for it to work. If you don't look at where the hallucinations are supposed to be but start to panick it would make little to no difference. Learning the proper actions to take in such cases is actually super nice.
I cannot imagine the strenuous effort of dealing and living with this condition. I live with kidney failure, recently transplanted and my mind is my lifeboat in the moments things get harder. When the mind fails you, thats tragic and it breaks my heart seeing people having to deal with it. Keep being courageous Cecilia.
Thank you for your understanding and kind words. They mean a lot to us who have been given schizophrenia diagnosis. Yes, me too, even though on that front I'm doing pretty well.
I hope you are in a good healthy way now. I've got schizophtenia as well, and often thought about it, exactly what you wrote. You're mind is all. But i am so afraid of deaseases with organs, that i really can't decide who is more blessed. I hope you got it right. My english is limited. Sending hugs
I was diagnosed with schizophrenia 5 years ago, I’ve been getting better through the years, I follow her on Instagram and I’ve seen her improvement too.
She’s so smart and truly knowledgeable about her own diagnosis. She taught me so much and gave me an insight which deepened my empathy. Cecilia thank you for opening up. You are refreshing and truly a gem that this world hardly deserves but are truly better for.
What a lovely young woman 🥰 This was very informing and I'm happy to know she's thriving and finding ways to live a good life. She has such a beautiful speaking voice.
"I don't have a phone . That's a pet peeve of mine when people are staring on their phones" - Life lessons! Well done Cecilia. I do really admire you . Thumbs up
Yo agradezco a la vida que este hombre haga este tipo de vídeos. Gracias por darle espacio a toda la sociedad. También te agradezco que haya subtítulos en español. Seguiré viendo tu videos desde Argentina.
She seems like such a lovely and genuine person. I can’t imagine having to deal with all of this and still being able to send such positivity and good vibes out. There’s really something special about her personality! She seems like the perfect kind of chill friend you can eat junk food with and play board games and not have to overthink or talk to much-just be.
If you're unaware, please look up "Schizophrenic in 2020 (Coping with the Chaos)" after this video. She's doing so well now, it's like she's a new person.
Seen it for years. Read my description on this. The only thing you can do is make sure they are on meds to calm them down. It won't stop voices but it will stop them from stabbing you when your asleep!
I have schizophrenia also, and I've gotten so much better in the last few years. Other than the right medication, which in my case is clozapine, one thing that really helped was studying numerology. Somehow putting a number to most things has helped organize my mind. I don't know if it would help anyone else, but it helped me tremendously. Also, going back to friendships from when I was younger sort of helped my mind to go back a little, and return some of the wellness I had previously. Doesn't sound like something that would help normally, but it did help me.
@@danytargaerys712 thank you, but I've only hallucinated twice, both once 20yrs ago while doing shrooms and acid. But if it's anything like that, while being sober...thats horrible. I guess I just don't understand either situation becuz I DO believe both exist, chemical and demonic. I assume when it get "dangerous" is when it falls into that demonic category? Idk?
I love how open she is to share, that others can better understand what is happening. She is such a strong person and I know I speak for everyone when I saw we are so proud of you
I could listen to this lady all day. She is so articulate and honest. I have learned so much from this. The part about people asking if she is hallucinating made so much sense and is so important. Lovely lady and very well put together x
I think the guy posed some really honest questions, which may have invited her to speak out like this. His intonation really gave off the impression that he was genuine.
Thank you for this courageous interview, Cecilia -- you unlocked for me a key understanding of my own lifelong problems. Please know that you have impacted the lives of many, many people just like me. ❤❤
I had coworker who had mild schizophrenia, the fact he was so apologetic was so sad. I said to him: ,,Dont worry bro, you are good human being, and thats all that matters, and never apologise for it."
Coming from a family where mental health issues are something we deal with everyday, knowing how hard it is to put into words what you're experiencing or perceive as reality, spending more time trying to explain to people why we are this way etc, I understand and love and support this beautiful vibrant brilliant young woman with all my heart. Thank you for having the courage to speak with boldness and courage. And to the gentleman who initiates these critically important opportunities for dialogue - thank you for your patience, and acceptance, and for the kindness and compassion you show each person who shares their very different worlds with you.
This was the first interview that I saw of this yt channel. Cecilia, you are an amazing woman and person. You have achieved a lot and thats why I admire you. You are doing great!
As someone who was diagnosed with early onset skitzophrenia as a child and dealt with it for the past 35 years, I admire her ability to set boundaries for herself in a healthy way! ❤👏👍She is really inspiring!!
I love listening to Cecelia, even when she's not talking about her schizophrenia. She's really neat to listen to because of her voice. And how soft she is.
Cecelia is so skilled with setting boundaries, something we could all learn from! How when Chris asked a question and she assertively says that she is not answering it. Such a profound interview all around! Thank you for your time Cecelia :)
I am a Nursing Professor and I teach about cultures, religions and Mental Health. I wanted you to know that I use this video in my class because it helps students understand this mental health challenge in a beautiful way. I encourage my students to follow not only SBSK (which I ADORE! Keep up the amazing work, it's needed!) but Cecilia's journey! Thank you Cecilia for being so brave! You go girl!!!
0:35 I really felt this moment, you can see and hear she's really mustering courage and composure to talk about something so delicate to her... If you watch subsequent interviews, she has come a long way in dealing with schizophrenia! Night & day difference!
Comments are back! This interview hits so close to home as my cousin lives with schizophrenia, and there are questions here that I could never feel comfortable to ask.
I really wish Cecilia is doing ok, going on with her treatment and receiving a lot of love in her life Mental health has been ignored for so long, even becoming a social stigma... these videos must help to make a change towards plenty of mental disorders
@@BuffTaanJai99 it is really positive to watch her succeed, not just as the head of SWP (dissolving the "delusional" predisposition from others btw), but also getting over her own mental circumstances, sharing the keys to develop a way to stay as healthy as possible. I feel happy for her and the people supporting the organization who finally found a place to feel themselves understood.
"It's often said we fear what we don't understand, so me understanding my diagnosis makes me less afraid".... "Just being able to interact and have those type of moments when we aren't on electronic devices". I agree so much with this
She is so intelligent and articulate. She speaks with such perfection, I enjoy listening to her and love how she explains herself! What an amazing person 💛💛
@@sarahlundgren3358 I’ve met many people, I’ve never heard someone speak so clearly and eloquently while battling possibly many conversations of her own. It wasn’t a dig or a general reference to people with schizophrenia, it was a direct comment regarding this particular, spectacular human, don’t try to know my intentions, it was a compliment. 👍
I think she’s my favourite interview I’ve seen so far. She spoke with such honesty and respect for herself. I just wish I could play board games with her😭