Cerebral Spinal Fluid Disorders: Frequently Asked Questions 

I had 3 lumbar punctures when I was four moths old now I know where the headaches have come from. I have had them all of my life. My mother was never told of these side effects. They were so CRUEL back then. Thank you for your explanation. I am 66 and forever grateful.

Dr Luciano installed a shunt in my head last November. I never recovered vision in my right eye but I'm still alive.

Thank you so much for this straight-talking video.

Very interesting and accessible. Thank you!

accessible and simple to understand.

2018 after my second lumbar fusion and laminectomy I had a large csf tear where I was taken back to surgery the next morning and a skin graft taken from my left thigh was used to patch that tear. A year later I was informed by one physician after an MRI of my lumbar back detected a considerable amount of fluid within L4-L5 area and the surgeon who performed my spine surgery said it was okay and nothing ever done about it shortly after this finding I began having multiple spontaneous nose drainage and other symptoms from headaches to vertigo and loss of feeling in my arms and hands. These episodes occurred every two weeks all occurred in the same way upon waking up in the mornings as soon as I stood up from bed the symptoms started and I was confused could not walk or talk I would have to lay down and every episode lasted for 24 hours not fully subsiding until the next morning. This lasted for 8-9 months. I had to have a third lumbar fusion in September 2020 after that surgery which was a 360 degree surgery I ironically had my last suspicious episode in November 2020. All of the physicians in my hometown did not know what I had or why these episodes were occurring I had numerous testing done and everything I had came back normal the mri’s and ct scans of the brain showed mild issues but according to these doctors nothing to warrant any problems. Will these symptoms return? I had an abdominal mri a week ago and was told there is mild fluid retention again?

I just got diagnosed with IIH and my doctor never even mentioned weight loss. He just went straight to telling me I need a shunt. I’m so glad I saw this video, I’m going to ask him for other options because I heard that shunts can be really difficult

Best Doctor ...Had my surgery with him , no issues after that

I have multiple sclerosis since 2003 I have ringing in both ears for 6 weeks now nothing has changed I told my neurologist and doctors numerous times and nothing was done. Unbelievable

Dr. My new born baby suffering from hydrocephalus and there is a wound in the back where is sipnal cord from which a liquid substance released. Please tell How long will this baby live in this situation.

Will this fluid build up show on MRIs without contrast?

i had White matter and the last MRI they found two pontine foci of csf is it the same case?

Sir my father has accident before I year and has brain operation he is parallise his brain fluid flow vein blockage his heart is functioning 35% and his age is 72 years sir what can we do sir plz guide me plz plz

My daughter is 10 and underweight she is very active. She was just diagnosed last month her pressure was 29. It has already effected her eyesight

I would love to show my brain MRI. All the doctors here in my small college town are perplexed. I was told that I may have had a massive stroke before birth. I was born in 1962 before MRIs. I was told my brain did not develop much but thanks to plasticity, my brain rewired itself and I graduated HS about a B- student. I do not drive because of low vision. A Neurosurgeon advised me not to be shunted this year when I saw a Neurosurgeon for the first time ever. I also have severe incontinence where I don’t leak, I gush using huge diapers every day. I was also diagnosed with Ankylosing Spondylitis about the same time my Incontinence developed along with IBD. I also have slight CP but never acknowledged by my Pediatrician or parents back in the day. Now I am scooter bound and peeing and in pain 24/7. My Urologist only wants to consider OAB as the reason why I am incontinent. I truly believe it is a spine/brain thing. I guess I’m stuck with this. My MRI of my brain is interesting if you’d like a picture of it

Crush injury as a kid has left my spine deformed. Every single time they have tried to put a needle in my back they hit my spine snd leave me with a leak. I have had 6 blood patches and 5 incidences. The last dr assured me it wasn't possible for that to happen with today's technology. That time it took 2 blood patches to work and I was a jellyfish for a week afterwards. No needles in my back ever again, thank you!

I apparently have two kinds of leaks, an older SIH, that seems very small, and caused occasional symptoms, but, just after an examination where my neck was hyper-extended, I began to have serious, and multiple, CSF leak symptoms, but, trying to get it recognized, and solid diagnostics performed, two months of pain, balance problems, in bed almost all day... Getting an initial diagnosis, for something quite rare, like SIH, is *hard*.

Does IIH cause balance problems; disequilibrium; feeling like falling down with no dizziness and no vertigo?

I just wanna know if I can drink my spinal fluid to turn into a titan

Dear sir In any case the fluid in the head will try rotate dynamically or the layers under or over the skull will do so? If does it caused by any of the brain part? What would be the cure if anybody feels such? Regards

As minoxidile dilates blood vessels so can it cause headache by increasing high pressure

I have NPH and Epilepsy for 15 yrs now it drives me nuts not being able to do much ( like going to pick up groceries , etc its effecting my walking , talking can't even think straight sometimes am 58 now and going downhill

Why csf fluid decrease without leakage any one exaplain...Is csf fluid decrease is a serious issue

I want you to be my doctor. My doctor really didn’t say what I have and what I need to do all he said was it was NPH

My husband underwent endoscopic CSF leak repair along with Septoplasty on July 19, 2017 through his right nostril. As the exact location of the leak was not found, based on the presumptions, doctor sealed the soft areas from where the leak was most likely to occur. He found his right nostril wet and recently he got fluid discharge through his left nostril (nearly 8 drops). My question here is, would the leak sealed on the right side can recur in his left side? If so, should he go for another surgery or wait for it to heal by itself. He underwent a great pain in his previous surgery due to the lumbar drain and also find his head heavy as the exact place of leak was not sealed but had many layers of the tissues and muscles filled in the approximate place of leak. Please let us know what to do further.

this was very well stated and easy to understand. I was diagnosed with IIH a few months ago. lots of questions and sad there are not more answers towards a cure

Question-I had 2 severe TBIs I had the back of my head was hit hard and liquid was clear and coming out of my nose. I was very upset because it felt like it was from my brain. Was that coming from my brain??

I have IIH diagnosed in early 2005. I was not over weight at that time of diagnoses though over the years I have gained weight I am however not in a morbid category. Treatments have included taps and diamox , am currently on diamox . At present the recommendation is VP shunting however I would like to avoid surgery and would like to know if I qualify for stenting?

That’s me!!!

Sir My baby age 18month MRI report says evry thing normal except prominent ventrical system and sulcal spaces. What does it mean. Please help me Thank you🙏

I remember getting a shot as a kid in my spine. because I remember my vision zooming in, with details on the wall you couldn't see till you stood and stared directly in front of it and things around me going really slow as I never knew what was happening. Something I cant explain today but remember vividly. Always happened suddenly, no pain no bad symptons, just not knowing what was happening and startled. I always ask my mom about that, she says she didn't know why I got the shot and says they misdiagnosed or mistreated me with it, I always ask about that time and she brushes it off, because they weren't supposed to give me that shot because they never really knew what was wrong at that time. The weird thing is before all that I remember slowly controlling it Everytime that happened, I'm still trying to search around what was the cause or what it is and I never had any mental problems or anything wrong mentally. Its kind of like getting used to sleep paralysis where your half asleep can't move but aware and see and hear your surroundings. You get use to being calm and slowly wake up easier and calmer. I don't know but it's something I can't stop thinking about. And I'm not talking about sleep paralysis, it's just an example on how I was kind of slowly not getting startled by it. No irrelevant or over exaggerated comments just some helpful ideas or articles about anything like it. I know it sounds weird as I remember and as you probably are reading this.

If there is a problem how do you convince a professional that they need to consider it? The patient is a young adult who has fluid imbalances constantly. How do you say he or she needs an MRI?

No idea what my pressure was when i went into emergency surgery but after an ETV failure it spiked to 80, external shunt was turned back on. I developed chemical meningitus, white blood cell count was over 800. Couldn't do the shunt until it was under 30. Eye sight came back fully once the papilla edema went down. I got wonderful pictures of my wrinkly optic nerve. No answer to where the clog is in my ventricular system. I guess they said near the base of my neck. who knows, Onset: age 18.

I had brain surgery almost two years ago to remove a tumour. Since then I've had a build up of fluid in the brain around the site of surgery. Am waiting for quidance from my neuro surgeon. does anyone else know something about this?

Hello, my name is Andrew. I'm a 19 year old college student. I have been battling daily headaches and muscle tension in my upper back/shoulders/traps/neck for over a year. I'm doing atlas orthogonal treatment right now. I have gotten maybe 4 adjustments and I haven't gotten any relief. Also I'm looking into the CSF Leak Treatment. If anyone has any ideas or input please let me know. Thank you so much.

i been having headaces not the long after i was on the depo shot my sysmopsts are getting worse

So I had a sunburn and my nose peeled abit and it was dripping some clear liquid and I’m worried

In 2007 I experienced extreme sleep deprivation, hissing tinnitus & a possible CSF flush. My insides briefly lite up. It happened by itself, no drugs, no religious overtones except the image of a grasshopper in my minds eye right after. It might also have been a cockroach. After it happened I found an online animated illustration of the CSF ventricular system & the spinal chord. My brain was hitting reset to make up for what’s loosely referred to as insomnia.

My father having fluid in his brain..we want him to stay more with us..but the problem we dont have enough money.. I hope there is a good heart to offer a free surgery who can help my father.. I am from Philippines

I have Chiari, had surgery 12 years ago, gets worse as you get older.

Sir,now I'm fifth month pregnant. In tiffa scan water level in baby is 10.2 but in blood test low risk pregnancy .any problem is there sir. Please reply

I was frequently sick in childhood and to see my problem the doctors took out water from my back and now every now and then I get back pain its soo painful 😢😢😭.What should i do I showed it to doctor he prescribed some medicines still I get the pain soo hard its soo painfull 😢😢😭😭.

👏🏼👏🏼👏🏼

wrong info about iih

I’m 30 years old, I’m suffering badly 15 years headache 🤕 , I just done all examination and I got diagnosis that’s I have high fluid pressure , than I have to lose weight more than I has done already , it’s no a joke those headache 🤕 kill u in silence, it could destroy your day your plans your best moment everything, when I get it I even know where I can just throw out my head aNd run away , these moment I don’t want hears anything any noise around me , it make your blink red light all the time, have to deals with it for life now 🤦🏻‍♀️.

sorry mark, you need to read up on iih

Diamox and topiramate gave me kidney stones 😢

Another option is 3rd ventricular hole Talk to you doctor if you are a candidate

Contamination during pregnancy or after birth. A healthy diet of miracle foods, earth vegetation and pure water. No meat or dairy should be considered for the sufferer. A whole food plant based diet not contaminated by chemicals is best for all of us.

is it realy problematick to do boxing with this thing

I have pseudo tumor ceribri:(

Caffeine?

some guy yelled, I wonder why he-

Try atlas orthogonal before shunts

In