this all about my charocot marie tooth and how it effects me i hope you enjoy this video and i will defiantly be doing an updated video charcot marie tooth 1A all about me
DestinyGPlus3 my 3yr old has recently been diagnosed with CMT1A, she has not started showing signs of it yet. She had a genetics testing done to try and figure out why her sugars. Infinite to drop...the sugar drops are still a mystery, but they care across the gene for CMT during the process. They rechecked to confirm the diagnoses and it had been confirmed last week. It has been helpful to hear about the progression of the disease. All of this is new to me and I am trying to be prepared and informed about the disease to help her better understand as she gets older. Thank you for opening up and giving insight on CMT
@@shannon8381 Hey girl i am so sorry to hear your little one has cmt ! im reaching out to you that if you need someone to talk to you can find me on facebook at Destiny Goins, my profile picture is of my three children, i will greatly talk to you and add you to the cmt support groups over on facebook !
