Thank you Penny & to you. Definitely know I'm not alone. Just hate to think how much longer it will all go on for. just looking forward to some warmer weather! x
I've been unmotivated and fatigued a lot lately, too. It''s frustrating. In a couple of weeks, I hope to finally be on Mestinon (Pyridostigmine) to treat my hEDS brain fog, gastroparesis, and POTS/dysautonomia. Perhaps that will help a lot. Hoping you feel better soon!
@@ChronicallyJenni Thanks! If I'm able to get this inexpensive medication that's been around for 60+ years, and if it works well for my EDS issues, I'll be sure to let you know. :)
@@ChronicallyJenni I finally got my Mestinon on Friday! It cost only $9 for a 30-day supply! My constipation and orthostatic hypotension were noticeably better on Saturday, but it's too soon to know for sure how well the Mestinon will do. I'm not even on the full dose yet.
Ah yes I knew it was coming busy first day and exhausted but I’m glad you are not alone now having to cook all the time. Honey is getting so big bless her xx
Yeah glad to have some help these days! We haven't weighed her in a while to see its so funny becuase we see her everyday we dont really see the growth x
We're not on full lockdown (I'm in the US) but it's really tough being so isolated and seeing people I used to respect having so little concern for public safety. I'm struggling a lot personally with getting answers to health issues and working within a slow moving healthcare system right now. But trying to maintain optimism....
I'm so sorry you're struggling with healthcare right now its such a difficult time to try and get any help or answers in the midst of everything else going on. best of luck and hope you get the answers your looking for. Lots of love x
