Okay, hear me out: No, I wouldn't wish this on anyone... but... I do wish certain people would have to experience it for maybe an hour. Or a day. Basically "walk a day in my shoes". Don't you feel like more people would have greater empathy if they knew what we go through?
I had flexor tendon surgery in a laceration injury at work of the back of my hand 14 weeks later in my hand is in extreme pain I can't stand it it swells up like a surgical glove it looks horrible and all the doctors just stand there and tell me it's in my head I can't move my fingers I can't move my right hand and I'm losing my right hand but the doctors tell me there is nothing wrong even though it's swollen up like a balloon and it looks purple oh it's fine I need help
I specialize in the treatment of patients with crps: generally, about 50% of my caseload will be crps with the rest split between other chronic pain conditions and "typical" orthopedic issues. I appreciate the spotlight here on this condition, I feel that it's vital that more therapists become aware of crps and can be allies to this terribly underserved population. As physios, we have a unique opportunity to help these people to become whole once again, but we can't do that if we aren't prepared to accept and rise to that challenge first.
Do you see any point to arriving at your doorstep 1 1/2 years after onset? If so, where is your practice? Thank you for your willingness to work with this population.
@@SowingSeedsWithChristy Hi Christy, actually yes, I do: I almost exclusively treat CRPS patients that have failed to improve with previous therapies. I practice in Wilmington, DE at performance physical therapy, if I'm able to help in any way.
@@bipennate Thank you, Jon, but I'm way out here in CA, but I'm encouraged to know there is hope after all this time. I'm catching some flack from my Disability insurer for not continuing to be seen by my Chronic Pain doctor (HMO), but he already told me there's nothing more he can do for me and doesn't any longer respond to my correspondence. So I'm going to the psychotherapy visits that the pain psychologist recommended and doing the weekly ongoing online somatic movement/Feldenkrais physical therapy sessions. I continue to learn about CRPS from Pradeep Chopra, MD, and am planning to start with an integrative medicine doctor very soon. It's just so hard having to be the patient and drive my own care as well. There was no protocol of standard care when I was diagnosed with CRPS. It's terrible because everything I read said that it required a multi-disciplinary approach, but it was like pulling teeth to be seen by the right people and over 5 months of languishing in pain with very painful, aggressive hand "therapy" before I was told about the chronic pain mgmt pgm. They wouldn't refer me out to a specialist because they said they had their own in-house spclst. I would argue with that. Anyway, thank you fur your response. I thought I'd take a chance and see if you might be local. Take care! Be well!
Hello everyone. I have CRPS Typ 1. There is a therapy called Axomera. It was developed in Germany. It helped me a lot. I did it around 20 times, but I think it is only available in Germany, maybe Europe. I hope you will find a way to feel better soon. 🙏🏻 It is a horrible disease. Don’t give up. ❤️
I am 4 years in with crps, I want to die now, but of course I cannot. The pain is debilitating, I try not to take too many meds but some days... is there no other help out there??????? Please?
I've had CRPS since 2004 due to human bite to hand (an unprovoked attack). It has since spread to both arms and legs. barometric pressure affects me, there are times when things I'm holding fall out of my hand without me sensation. Do you have pictures of CRPS in people of color?
after I got hit by a car 8 years ago , my hand has crps. I seen a surgeon and he said he didn't want to touch it because it could get worse. The pain is like electricity going through my hand or like fire burning my ulnar nerve.
My crps in my hand is exactly how you describe it with a burning pain but the burning is like putting your hand in ice water and not being able to take it out. It's 24/7 with electric types jolts that start from my hand and move up my arm.
