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Coping with prednisone, Dr Mazen Dimachkie 

The Myositis Association (TMA)
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Session at The Myositis Association's 2014 Annual patient Conference. Dr. Dimachkie answers questions about the drug myositis patients love and hate.

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26 авг 2024

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Комментарии : 36   
@hotstixx
@hotstixx 3 года назад
Jesus,this is a bloody nightmare - A lifetime of watchfulness,pain and anguish...all the while sporting a clown moon-face and buffalo hump.The Gods know the true beauty of vicious irony and cruelty.I start on Monday.
@kpkbkpkb7768
@kpkbkpkb7768 5 лет назад
I really like hearing him speak. Steroid Taper is a very challenging thing, fraught with flares like wild fires all over tendons, facia, and muscle....good point to "wait it out" and see if it resolves. I wonder if while on the bone thinning prednisone, if you take biphosphonates, will the bone density improve, and more importantly, will the incidence of fracture decrease?
@lf7065
@lf7065 2 года назад
These are my side effects: Headaches, blurry vision, dizziness, severe fatigue, anxiety, hot flashes, chills, night sweats, tremors, memory loss, heart palpitations, digestive issues, nausea, muscle soreness, anxiety, very emotional, insomnia, moon face, weight redistribution to belly and thighs, increased appetite and osteopenia. 😐
@lf7065
@lf7065 2 года назад
Oh, and high blood sugars and air hunger also. It's crazy!
@MAYHAM-ze8bo
@MAYHAM-ze8bo 2 года назад
how long have u been taking it and what are the doses?
@lf7065
@lf7065 2 года назад
@@MAYHAM-ze8bo I've been on Prednisone for the past 16 months. Started at 40mgs, now I'm down to just .5 mgs. The lower I'm getting, the tougher it is.
@MAYHAM-ze8bo
@MAYHAM-ze8bo 2 года назад
@@lf7065 I can't imagine the pain Yiu are going through, I was only on it for 2 weeks
@lf7065
@lf7065 2 года назад
@@MAYHAM-ze8bo Awww, thanks. It's not pleasant, but I'm managing. I feel that eating a pretty clean diet and taking supplements like Vitamin D3, B1 and Magnesium Malate help me a lot. That, and prayer. 🙂
@Exodus26.13Pi
@Exodus26.13Pi 4 года назад
Audio?
@shirleyhoward8438
@shirleyhoward8438 6 лет назад
Can barely hear!
@francesgillotti1378
@francesgillotti1378 4 года назад
Was put on it five days ago . Have had no sleep am hungry and can’t stop crying I’m not able to finish it off . It is awful.
@OBS.Rey__
@OBS.Rey__ 3 года назад
Thanks i think thats why my dog was tripping out maybe lower the dosage ima try
@vattguntasrinivasulunaidu2665
@vattguntasrinivasulunaidu2665 3 года назад
Thanks a lot
@zelenplav1701
@zelenplav1701 3 года назад
Fosomax altered my voice box, negatively, just 1 pill. Boniva etc does not prevent bone breakage but increases fractures.
@jaytay8637
@jaytay8637 Год назад
That's sounding familiar, my voice is getting much lower.
@StylezbyEmily
@StylezbyEmily 3 года назад
I need help…I had been taking 60mg a day then tapered to 40mg a day and once I was on 1 of 20mg a day…I forgot to take it one day and my blood pressure went up and I was in the ER. They claimed it was anxiety. I couldn’t sleep and etc. So the next day I decided I should just stay off it since I had missed the dose and my body went into shock. It was the worse and I have been dealing with flight or fight mode for over 3.5 years. 😔😥 I tried to go vegan, go on a fast and my body will not allow it. I take natural supplements for adrenals and cortisol support. Only one dr said I have “Cushings like” syndrome because of the prednisone. Anxiety, anger, mean…all those side effects and insomnia. I just want my life back. 😥
@mv8908
@mv8908 3 года назад
I'm so sorry to hear that. You could try CBD oil and then work out. Also try to add as much more fruits into your diet as you can. I took 10mg today since I have inflammation on my ear. I was thinking of taking 20 mg tomorrow but probably I'll just take a low dose and see how it goes. Reading the comments here give me more anxiety. 😓
@StylezbyEmily
@StylezbyEmily 3 года назад
@@mv8908 Thank you very much. I’ve used CBD oil in the beginning but I will try to incorporate it again. I walk a lot and that does help. ☺️🙏🏽 Thank you
@trafficjon400
@trafficjon400 5 лет назад
If YOUR DIEING . BUT DEADLY FOR JUST A RASH
@margoclarke9921
@margoclarke9921 Год назад
W2
@irinatubutiene9411
@irinatubutiene9411 8 лет назад
Thanks
@carynhivner1834
@carynhivner1834 5 лет назад
What about thinning skin
@ellenorbjornsdottir1166
@ellenorbjornsdottir1166 4 года назад
Stress does that.
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