She mentions: Rinsing nose with salt water. Nasal sprays containing Xylitol or Cellulose. CoQ 10, NAC, Glutathione (liposomal), Vitamin C, Carnitine. B12, folate (active forms). Immunovir (Europe and Canada). Isoprinosine (US, use good quality sources). Hydrate well when taking these two.
Have deleted the transcription I had here in the comments because people were having trouble finding sections of it. (I think RU-vid was hiding some of my comments with sections of the transcript). I’ve uploaded the full transcript as a PDF. You can access it here: tinyurl.com/u5dwujt
@@s_rofbear Thank you so much for the transcriptions!! But you've not posted anything for "Part 3". Is Part 4 actually Part 3, just mislabeled? Thanks again!
mcfunwow - part 3 is there. Make sure you click on all the “read more”. RU-vid like to hide stuff. 😝 But unfortunately it was too long to post as one comment (RU-vid wouldn’t let me).
Kaylene Irwin - that’s really weird. It shows up fine for me. I wonder why RU-vid is hiding it from some people. Give me a moment and I’ll make a work around.
@@kayleneirwin9730, I've now uploaded the transcript as a PDF. I couldn't do that last night because I was too tired to do the formatting and uploading. But it's all done now. Hopefully that's helpful!
Hi, and thanks for the questions, let’s see if I can clarify First, I agree with the comment on supplements and meds to go slow and layer them on The doses I discussed are optimal, but some folks won’t tolerate normal dosing, for different reasons. Slow pathways that metabolize supplements and medications, adverse reactions, reactions to the inflammation triggered when you start clearing viruses. Autoimmunity is another issue, improving immunity can increase autoimmunity. So the rule is go slow. A tough rule when you are in a hurry to protect your self! On the nose sprays - celllulose is a broad spectrum protector. Y,tool binds some of the binding sites but doesn’t coat as well, its better against bacteria than. Irises. But in the US it’s all we have. In saline you can make it yourself if it’s off the shelf, it’s easy. But use boiled or distilled water, and salt without iodine. The recipe is one cup of distilled or boiled water, 1/2 teaspoon of salt and 1/2 teaspoon of baking soda. If you are refilling an empty spray bottle rinse it alcohol or soapy water before reusing it. Neti pots are fine, These instructions are also fine for gulf war illness patients I will redo the podcast for veterans with GWI and other chronic illnesses tomorrow but it will say the same thing. If you want to see the isoprinosine study for respiratory infections here is the link: www.ncbi.nlm.nih.gov/pmc/articles/PMC5100179/. And another: link.springer.com/article/10.1007/s12325-019-00995-6 Thanks you folks that transcribed my podcast, that was very kind! I’ll try to answer your questions as much as I can, and I appreciate you supporting each other . Stay safe!
Thank you for a very informative video 👍🏼 My illness has improved a lot over the past year and I am taking really good care of myself but these advise are very useful to me now I have volunteered as a helper for people in isolation because of Covid-19. I am at high risk as it is but it's nice to hear that I can do more to help my body be more resilient than I already am 🙏
Thank you Dr. Klimas for your astute suggestions and helping us get through this uncertain time!! I will look for those nasal sprays. I am already taking most of those supplements. Again thank you!
Thanks so much. Good information and it's nice to have concrete suggestions from someone who understands ME/CFS. I second the request for a list of the supplements so we have the spelling; it will make an online search easier.
You can pause the video to write the supplements down. If someone needs help, if you post a reply, I'll respond if I can. Bear with me, I have severe M.E. myself, so it could be awhile, but this is all pretty much standard M.E. protocol baseline treatment that you should know if you have M.E. The important thing was the Imunivir/Inosine & taking weekends off. You titrate that up slowly & be careful, it can cause terrible abdominal pain. Don't take it on an empty stomach vs. Liposomal Glutathione which is taken on an empty stomach, then wait 20 min. before eating.
Thank you so much for this information and reinforcing the caution I should take. I am a PWC & have known about our tired immune system for years. I have practiced keeping at safe distances during flu seasons and when anything else might be contagious circulating in my area. The COVID-19 is much scarier, now that we have seen it become a pandemic. Your basic suggestions and the recommended supplements will help when I explain to friends and family about what I am doing to stay safe. I started taking CoQ-10, 200 mg daily, a month ago - glad I did After hearing your explanation of why it helps.
Ty Dr. Klimas, The Xylitol nasal spray is new to me. So looks like that's getting added to the Nasalcrom, Saline, Albuterol, speaking of which thanks for mentioning the asthma meds. I suspect many of us out here are only use them as needed vs. prophylacticly. The sequence of supplements was helpful as well.
Bless you, Dr. Klimas, for these helpful suggestions. What is your perspective of hydroxychloriquine for people with ME? I’ve taken it in the past when I’ve traveled to malaria areas. I had no negative side effects. Thank you.
Thank you Dr Klimas for advice. I live in Barcelona and no chance of travelling anywhere except the nearest supermarket or chemist. Total lockdown and children confined to home. Just as well we're used to social distancing as you say. Many of us here believe we have already had Covid-19 as we have already have had atypical flu this year. My asthma has disappeared as no traffic on roads. I've boosted my inmune system by using spiritual videos and meditational techniques. Obviously not suitable if you're suffering from noise sensitivity. Serious insomnia but always something to do if prepared. Just as well we're used to stocking up on food and essential items
Does anyone have any recommended, reputable supplement brands for the UK? It's so difficult to know which brands are better when there's so many on the market or are full of bulking agents.
Even though this video is a yr old, we are still fighting covid, Thank you sooo much for sharing which supplements are important, I needed guidance on this. Thank you.
In Canada's walmart.ca, one 3rd party seller has Xlear (xylitol nose spray) for $15.49 for 1.5 oz, but another 3rd party seller lists it for $30.76 for .75 FZ ... price gouger.
I agree with those who have asked for written details of the products you mention. I hope you can add these as soon as possible. I just can’t quite make out what you are saying when it comes to the names of the products sad dosages Thank you for providing this video
RE: rinsing the nose with salt water. I have a neti pot. Would using that be a good way to get that done, or do I need to squirt salt water up the nostrils?
I believe you want to irrigate as far up inside as possible to rinse any viral particles that may have gotten in your nose. She didn't mention neti pot and be careful to keep those cleaned and disinfected if you do use one. Marcie
- I've Had ME/CFS/FMA SINCE 1987,Here in West Hull,UK!!... :( *My 'sleep' is UNREFRESHING,I FELL KNACKERED & I KEEP FORGETTING EVERYTHING Incl the correct words to speak,Etc,etc!!... :(
I have had one sustained fever (elevated temperature) in the 24+ years since I came down with me/cfs - I wonder what that means in the context of covid-19.
I have the same situation slovakia. Recently had a fever after consuming some contaminated water, and that was the first time in many many years. I think it means that our immune system is too weak to mount a fever most of the time. Maybe in desperation our bodies work up to a fever when its something that could kill us? I like what Dr. Klimas said. Most doctors don't pay any attention at all to an abnormally LOW temp!
@@s_rofbear I’ve been scrolling, looking for your transcript post, but can’t find it. Can you please, if you have time, either copy/paste, or somehow help me find it? Thanks in advance. Wishing you and your loved ones safety, peace, and as much lighthearted laughter as you can get in these incredibly unpredictable and constantly changing times. 🙏🏼🇨🇦
@@traceynomatterwhat383 it’s the comment right under this one (or at least, it is for me?). I’m sorry, I can’t repost the link, because RU-vid deletes it if I repeatedly post it in the comments. I’ll see if I can tag your name under the comment?
@@s_rofbear I did see a list posted by woman who uploaded the video... maybe it’s the same one you posted. Sadly all beyond my finances on disability, so I’ll keep staying away from friends, and neighbours, unless masked and distanced when they drop off groceries or cat food... 😏 I haven’t been in a store in 18 months. Oh well, silver lining is with no impulse purchases, I had saved enough for some other things for my apartment to make it cooler and more happy to be in! 😍
Thank you so very much for providing this information. I already take glutathione (started 4 weeks ago) but want to start on NAC after listening to this. I wanted to check, can I add NAC to take as well as the glutathione or is it better to take one or the other? I’m worried about over supplementing. Thank you
Might depend on your level of stressors. I take both Liopsomal Glutathione and NAC & was told to boost my Glutathione higher, again...likely related to your viral and toxin load. If you don't take the liposomal form, I'd think adding NAC is a MUST.
It's important to be careful with NAC - after only a few weeks on it I started having severe palpitations and at one point had an irregular heart beat for four hours where it was skipping every other beat and it knocked the wind out of me. I couldn't breathe properly. I had to stop taking it.
Dawn Lauryn Dawn Lauryn thanks for replying. I take L-Glutathione, I presume the L stands for Liopsomal? My glutathione levels are low anyway, adding both might help get my levels back into the normal range so I’ll go ahead with both
chickybiker thanks for your reply. That’s a worrying effect of the NAC. I could only seem to find 500mg but just found a 250mg so I can start on the lower dose and see how I get on with that before increasing
@@helencochrane8237 The L- in organic chemistry usually stands for `Levo-' which indicates one of two possible configurations of the molecule. Despite the chemical formula being the same, many of the molecules can form in one of two mirrored configurations which are prefixed by either L- or D-. Don't ask me why the L- version is what we take but I'm pretty sure that's what it stands for
Thank you so much for doing this!:) I have a couple question though 1. if you believe you are already infected, do you have any good tips? Or does the same supplements apply? 2. Are these supplements only to be used during flu (corona) season or will they be helpful towards making ME patient feel better in every day life? 3. I've taken 1000mg C-vit for a 4 days now, should I continue or stop taking them? You talked about repairing cells before making them work, not sure if C-vit is making them work. Thanks in advance 🙌😷
if you are infected then yes the same recommendations apply, but if you have inosine/isoprinosine available the dose is higher 2 tablets 3 times a day for 5 days then a 2 day break and repeat until you are over it. Please understand we have no COVID19 experience, I am going from the antiviral impact seen in upper respiratory tract infections from other viruses, and the labeled use of isoprinosine in europe for herpes simplex. in the upper respiratory tract infection, they were treated for 7 days, perhaps a better recommendation, but i have many years of experience using the 5 days on 2 days off strategy for longer periods of time, so its not a bad recommendation. www.ncbi.nlm.nih.gov/pmc/articles/PMC5100179/ Your second question is whether the same recommendations apply for ME/CFS in general, and yes they do EXCEPT the isprinosine which is used differently. First, if the patient can get it I prefer the prescription drug that is available in Canada and the EU - it is formulated differently, it is tested through phase 4 studies, it is approved through the rigorous safety and efficacy requirements of the EU FDA for viral infections (not ME/CFS). It has never been through the US FDA process so we don't have it. So by prescription or the over the counter similar product in the US, the goal is to safely boost immune function. The logic seems good - ME/CFS patients have poor antiviral cell function, they have reactivated viruses (EBV, Coxsackie, HHV6 to name a few) and antivirals tend to be virus specific, so using immune boosting drugs seems the more reasonable approach (after all that is the reason you reactivate old latent infections to begin with). The tricky part that some of you have autoimmune diseases too, often more than one. Autoimmune thyroiditis, the autoimmune mediated form of fibromyalgia(small fiber neuropathy), that sort of thing. Cranking up immune function can also crank up autoimmune cells. So in this setting in our practice we still try it but go real slow, a half tablet once a day for a couple of weeks then twice a day etc. The maximum dose for long term use is 2 tablets three times a day five days a week on even weeks, then one table three times a day for five days on odd weeks. The person prescribing /watching needs to watch for gout, uric acid stones (rare but I've seen it a few times) check thyroid levels , renal function etc - again rare but possible to see changes there. Far more frequently is the sensation of flu like symptoms as the reactivated latent viruses you live with die off and stir inflammatory changes. So do you hear the obvious warning? When you start inosine/isoprinosine you might have flu like symptoms so dont assume you have COVID!. But the cough/lung symptoms of COVID are not a part of this so don't freak out, check out your lungs, your temperature and keep your cool! COVID aside, when you cross that inflammatory bridge, you have a lot less virus and the potential for your ME/CFS symptoms to improve. It does not work for every one , but some people have seen big improvement. and some people who do not tolerate the higher doses see big improvement with just one a day, five days a week. I would love to do that study with a big number of study subjects some day. One interesting thing, we have a study called the Gene study, where you can sign up and donate your 23 and Me data or your ancestry.com data. We are using that platform to reach out to people interested in doing distance studies and also keeping people in the loop about our other ongoing work. Its a labor of love, run on student energy, but we have 1500 people in the data base! If we could get to 5000 we should be able to say a lot more about genetic risk, subtypes, detoxification pathways, etc. so spread the word! Perhaps after COVID we could do a survey and see what you tried , what you tolerated, and what seemed to help. www.nova.edu/nim/research-studies/research-studies-pages/INIM-studies/mecfs-gene-study-page.html Stay safe! Nancy K
Are you knowledgeable about the spouses that may have gotten Gulf War Syndrome from their partner? Is the VA offering any testing for us? Thank you for this info. 💖
I met you in 1991, at a seminar you were doing on CFS. I was diagnosed in 1990. I am now 69 and have several autoimmune diseases. PA, HS, Hashimoto’s. When I do get a flu shot ,my immune overreacts. Only 2 since the 1976 live Swine Flu they recalled. Only had the flu once in the last 15 yrs, onset high fever, aches ,lasted 5 hours, woke up soaked , took a shower and fresh jammies, and the next day it was like I never had the flu ! And yes, I am a champ at social isolation !!! Stay well my friend !!!! ❤️❤️
