I wanted to share Dr. Klimas that your advice here has been the only advice many of us long-haulers have received by a physician that is relevant to our illness. Many of us, including myself, have been gas-lighted by our PCP because many are so unprepared to deal with patients like us. They want to have us screened for illnesses like cancer they are more accustomed to treating. We are frustrating for them and they do not want to deal with us because they feel helpless. Your advice is spot on and has helped me. I am still dealing with it but I know I am better than many others because of this video. Thank you.
Excellent video and information to explain the fatigue due to the cell energy levels being conserved to prevent cell death and the need for antioxidants and plus reducing inflammation. It reflects be what I have been doing for post COVID-19 be supplements by with the NAC. I am also doing alpha lipoic acid for the nerve pain plus fish oil, flax seed oil, and the curcumin. Move Free Advanced for the joint pain. I will add the CoQ10 ubiquinol version. I did the one enteric adult or baby aspirin when I had Covid and was worried about micro-clots blood clots in my lungs. It did make the chest pain go away. I also did L-Arginine to prevent clots and to help the endothelial cells plus ate pumpkin seeds or Pepitas which had it. Your tips on exercise, rest, and listening to your body is spot on. I had written a post about how important it was to listen to the body and what it needs. Thanks again for making this video. I have seen so many Long Haulers with problems as you describe, and I think this information will help.
Excellent! I am also going to share this with my primary care physician. This is so great for a simplified triage to begin treatment. I've been taking NAC at bedtime and having trouble with sleep, so thank you for sharing it should be taken a.m. and afternoon instead! LDN fixed my inflammation. Thank you Dr Klimas for your generosity in sharing your years of experience.
Great video! Add this to the lung damage from the COVID lungs pneumonitis and not having been given oxygen! Nurse, zumba instructor, hiker, skier, energetic ball of love for life..and it's a demonic fatigue, on top of cognitive issues and lung damage, kidney damage :(
Thanks for mentioning exercise, Dr Klimas. Coincidence that lately I've been paying attention to my different heart rate zones, keeping mostly low and slow with occasional intervals. I'm still in pain, but the crashing and burning is less severe. I'm also taking NAC and "Qnol" - DS/DS GWI veteran.
We're glad you found it helpful! We also have an Activity Log that you can find here: www.nova.edu/nim/patients/forms/activity-log.pdf so that you can track and manage your activity to avoid those crashes.
I've only just come across your video and so much of it made huge sense to me, especially the adrenaline rushes, which I've been trying to explain to people but I had no idea why I was getting them! The video is from 3 years ago, when long COVID was still a fairly new phenomenon - would you say the advice still generally holds true, or has time and more evidence changed any of it?
Thank you sooo much for this very helpful information. QUESTION... Is there any advice about getting the flu shot while struggling with symptoms of long COVID? Last year my PCP would not let me get it while I was ill remarking that my immune system was already compromised (I have asthma). Thank you again. I will be adding the missing supplements. Yay science!!
For how long we'll have to take NAC, Curcumin ecc..? If we improve we can stop or we'll have to keep going? Wonder if it's a cure or just a temporary fix. Thanks
@@abdielmata unfortunately I had to discontinue the NAC after a week as I started having heart palpitations in the evening. They disappeared once I stopped. I am better though after a relapse 4 weeks ago. Fingers crossed...
@@angele810 thank you for your feedback. It’s greatly appreciated. Did you experience fatigue and brain fog? Did you taking Coq10 or anything for inflammation? I’m bed ridden after a relapse after testing positive on Nov 2. Any feedback is greatly appreciated. I hope you take it easy and on your way to a full recovery!
@@abdielmata 1) I eat well: zero refined sugar and lots of soups with seasonal veggies and fresh ginger and turmeric. Small meals. 2) I exercise regularly without pushing myself too much. I mostly walk and integrate long and slow slopes. 3) I do as many things as possible that make me/my family happy or that serve others. 4) I work less. I am a freelancer and have worked way too much in the past. I am lucky that I can do that in this point of my life. So far so good, it I know it can all change very quickly. Best wishes to you for a full recovery!
I have tried to do everything you suggest and finally, feel ready to think about pacing. I just wish I could find the book. There are many wrong books called "Pacing" and I have trouble deciphering the author's name. Does anyone know?
Dr. Klimas, for those of us with sensitivities to SSRIs or SNRIs, do you find low-dose Abilify to be helpful with fewer side effects? Or does it depend on the patient? I currently take 4.5mg LDN and 200mg SAM-e.
Thank You for the advice it is much needed. I can attest that NAC works for post COVID as it is of tremendous help for alleviating the brainfog/confusion for me.
I am curious, how long were you sick before you started taking NAC? My body aches went away on their own recently, but I still have fatigue. I started taking NAC early August, but I was sick back in mid March.
thanks so much for the advice. i have ordered a bottle of nac + and coq10 to help with my dizziness and brain fog since i had covid last march. something that has been asked previously is do we keep taking these supplements indefinitely or reduce slowly or indeed finish them once we feel better? thanks again...
this is awesome!! thank you so much! I have had CFS/ME for at least 20 years. I am going to try those nutraceuticals you mention. Question about Glutathione.. Is the sub q or IM glutathione effected or would using NAC or a lipo glutathione be a better option? thank you so much for all these helpful tips. Can you share the name of the pacing book your friend wrote? thanks again for all your work and dedication to these illnesses! Please Stay Safe
Hi cb brooks, We took your first question to Dr. Klimas and here is her response: "I think the oral NAC treatment is the easiest, with recent studies showing that it crosses the blood brain barrier and exerts a documented antioxidant effect. The IV and IM preparations of glutathione have to be administered by an expert, and compounded by a certified compounding IV pharmacy. The oral liposomal glutathione products are bioavailable, and RediSorb ‘s liposomal glutathione has data showing it crosses the blood brain barrier in animal studies. We are using this product in a placebo control study currently. There is a triphasic glutathione product by Apex Energenics with some nice data on cognitive effects, an indirect evidence for blood brain barrier penetrance. FYI, I don’t have any financial interests in any nutraceutical company, though Kaneka (Coq10 products and probiotics), Life Extension (various nutraceuticals) and Redisorb (liposomal products) have all supported our work in various ways." The pacing book is called: Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia.
Hello, I'm Julia Such good explanations and advice I found nowhere so far. Beeing a Covid Long-Hauler I am suffering now from Post Covid fatique. My first symptoms were on the 5th of March. Had neuro symptoms since the start of June. Now I am more or less bedbound suffering from dizzyness, double vision, headaches..... My questions: - is there a written transcript somewhere of what is said here? I understood most of it but because my native language is German and there were a few words, especially concerning the medication I couldn't follow so quickly. Would be easier for me to read.... . - if you suffer from post viral fatique people say after six months it can be disgnosed as chronic fatique. Is this counted from onset of the diseasee symptoms or from onset of the fatiques symptoms.? - Is there still a chance after six months that it will resolve still there or is it probable it'll stay like that and this is my " new normal" ? - I have my first ever appointment with a neurologist next week. Any recommendations what I should ask him for or not forget to tell him concerning CoV19?
Hi Julia, You can access the video's transcript by clicking on the three horizontal dots and clicking on Open Transcript. The three dots are above the Subscribe button and next to Save. For your appointment, we recommend writing down any questions or concerns that you have, symptoms or problems you are experiencing including how long you have had it/them and how it is affecting you.
Hi @@sharondaraeellis7528 - You may not be seeing this option because you are viewing the video on your mobile device. To access the transcript, use RU-vid's Desktop version. Once you are viewing the video on a computer, below the video, there is a thumbs up, thumbs down, share, save, and three horizontal dots. Click on the three horizontal dots and select open transcript. Let us know if you are still having trouble accessing the transcript :)
Hi, thanks very much for this. You say (I paraphrase) 'talk to your doc if your BPM goes up over 20 when you stand up because they can do something about that?'. Any clues on what they can do as mine just said to rest and gave me a blank face ('go away and come back in a month'). My POTS type symptoms and dizzy / chest symptoms developed suddenly on 13th Aug after probable covid appeared on 18th March. Now in long covid that is looking very much like ME. Hoping to nip it in the bud if possible. Thanks again :)
You can search "Dr Klimas New Zealand" on RU-vid for a recorded presentation to medical professionals where she goes much more in depth. Also, INIM's website's homepage has short clips, ME & GWI, that are informative as well.
Search nearest teaching hospital's website and make your own appt for eval. You won't need a referral if you can find dept w/ tilt table given your history and ask for general eval / 2nd opinion. You're revenue to them! Anyway, midodrine & beta blockers are options, but I was having trouble w side effects of other meds, so make sure YOU ask. Docs often overlook that part. Geez, right?
It has been six months since become sick, still tired, at times have mild breathing issues, need rest if overstimulated, have brain fog at times, get headaches occasionally, when I went to the pulmonologist he said my oxygen levels are good, didn't know what to do other than order X-ray. From time to time I spit up thick white mucus. What do you recommend I do or take? My Doctor is clueless about how to treat me. Thanks.
@@abdielmata Sorry to hear, day by day, some days better than others. I do think so. Been doing light stretching every day, taking vitamins, and using curry and ginger on my eggs.
I’ve been recovering since March. My follow-up question would be about my other ongoing symptoms besides fatigue body aches and pains. When I have a flareup, I also get a low-grade fever and chills, a buzzing sensation in my body, headaches, vertigo, etc. Is this also due to the cell difficulty creating energy?
I'm not medical but I've lived w FM & ME for years. I'd want to rule out a low-grade viral reactivation. Search RU-vid, "Dr Nancy Klimas, New Zealand" for a full presentation given to medical providers where she discusses this.
Would you not say also, that mesenchymal stem cells (such as those by Predictive Biotech) would make empirical sense? I chose to do this for my hubby and self (regardless of not FDA approval - but FDA has no "approvals" either on NAC or glutathione....) ALSO regardless of it all being out of pocket /no insurance coverage. (NOTE: these are harvested from live birth ONLY umbilical cord donations) Post Script APPROVE of the CoQ10 recommendation been taking for decades (After my PreMed spent 12 years in Pharma and 18 in Medical Nutrition)
Im so tired. I got covid phuemona seversl yesrs ago. I got covid pbumonia Long haulets I got FluA Than Rsv virus. I had covid 28daus i nevet thought id get better. Im so weak. I chased everyone away n no one cares about me ny body is giving up living
FDA banned companies making claims that their products containing NAC is a "hangover cure". NAC is still sold in a number of stores. Here is a warning letter they sent to one company: www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/les-labs-593764-07232020