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Post COVID-19 Care 

Institute for Neuro-Immune Medicine
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Disclaimer: The information provided is for educational purposes. Please do not apply any of this information without first speaking with your doctor.

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17 сен 2020

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Комментарии : 118   
@peanut952
@peanut952 3 года назад
I wanted to share Dr. Klimas that your advice here has been the only advice many of us long-haulers have received by a physician that is relevant to our illness. Many of us, including myself, have been gas-lighted by our PCP because many are so unprepared to deal with patients like us. They want to have us screened for illnesses like cancer they are more accustomed to treating. We are frustrating for them and they do not want to deal with us because they feel helpless. Your advice is spot on and has helped me. I am still dealing with it but I know I am better than many others because of this video. Thank you.
@cathymillar6658
@cathymillar6658 3 года назад
I've had M.E for 3.5 years. This is THE BEST podcast I've listened to on M.E
@zareenatheasimone3945
@zareenatheasimone3945 Год назад
Thankyou so much for this. Something about listening to a knowledgeable person talk calmly about steps to recovery helps calm me.
@LaraMasucc1
@LaraMasucc1 3 года назад
Best advice I've received for post covid cfs thank you x
@LaraMasucc1
@LaraMasucc1 3 года назад
@@abdielmata yes I have improved and feel it when I miss a day , took nearly 2 weeks to start feeling it
@manindermanku8667
@manindermanku8667 3 года назад
@@LaraMasucc1 which medicine you took to feel better because I had Covid three months ago still suffering with breathing problem don’t know what to do
@tombunker429
@tombunker429 3 года назад
Awesome and practical information... All covid long haulers need to watch this excellent video.. Thank you Dr. Klimas!
@johnkelty4001
@johnkelty4001 3 года назад
Thank you for this timely and excellent video as well as the ongoing work you've done for so many years to improve the lives of so many.
@clairewithlove1
@clairewithlove1 3 года назад
Excellent video and information to explain the fatigue due to the cell energy levels being conserved to prevent cell death and the need for antioxidants and plus reducing inflammation. It reflects be what I have been doing for post COVID-19 be supplements by with the NAC. I am also doing alpha lipoic acid for the nerve pain plus fish oil, flax seed oil, and the curcumin. Move Free Advanced for the joint pain. I will add the CoQ10 ubiquinol version. I did the one enteric adult or baby aspirin when I had Covid and was worried about micro-clots blood clots in my lungs. It did make the chest pain go away. I also did L-Arginine to prevent clots and to help the endothelial cells plus ate pumpkin seeds or Pepitas which had it. Your tips on exercise, rest, and listening to your body is spot on. I had written a post about how important it was to listen to the body and what it needs. Thanks again for making this video. I have seen so many Long Haulers with problems as you describe, and I think this information will help.
@SpirithawkWoman
@SpirithawkWoman 2 года назад
Some of the best information I’ve seen on post viral recovery help for post Covid patients.
@astrocatcity
@astrocatcity 3 года назад
Wonderful information, a tremendous help, thank you 🙏🏻
@giagasparino6779
@giagasparino6779 2 года назад
Thank you for all of your work and help. 🙏
@laurabone3228
@laurabone3228 Год назад
Excellent! I am also going to share this with my primary care physician. This is so great for a simplified triage to begin treatment. I've been taking NAC at bedtime and having trouble with sleep, so thank you for sharing it should be taken a.m. and afternoon instead! LDN fixed my inflammation. Thank you Dr Klimas for your generosity in sharing your years of experience.
@gaelmclaughlin767
@gaelmclaughlin767 3 года назад
Thank you for this excellent video. NAC was a game changer for me. Also electrolytes, proning and compression socks.
@LizBrownYoga
@LizBrownYoga Год назад
Short, simple, reassuring - thank you!
@NSU_INIM
@NSU_INIM 10 месяцев назад
Our pleasure!
@b.callaghan3365
@b.callaghan3365 3 года назад
Thank you, you just described my post Covid experience
@robitamargo8094
@robitamargo8094 3 года назад
Dr Klimas, thank you for such a fantastic explanation of what’s happening! I’m on Day 151 of presumed COVID and I’ve never recovered.
@abdielmata
@abdielmata 3 года назад
Have you recovered?
@petejames9366
@petejames9366 2 года назад
How are you now?❤️🙏
@twirlygirl100
@twirlygirl100 3 года назад
Thank you so much for your care and research
@jac1161
@jac1161 3 года назад
Great video! Add this to the lung damage from the COVID lungs pneumonitis and not having been given oxygen! Nurse, zumba instructor, hiker, skier, energetic ball of love for life..and it's a demonic fatigue, on top of cognitive issues and lung damage, kidney damage :(
@cyberninjasworld
@cyberninjasworld 3 года назад
EXCELLENT VIDEO, thank you very much
@joyfulexpansion
@joyfulexpansion 3 года назад
Trul helpful. Thank you. 🙏🏼
@tonysolis9616
@tonysolis9616 3 года назад
Thanks for mentioning exercise, Dr Klimas. Coincidence that lately I've been paying attention to my different heart rate zones, keeping mostly low and slow with occasional intervals. I'm still in pain, but the crashing and burning is less severe. I'm also taking NAC and "Qnol" - DS/DS GWI veteran.
@NSU_INIM
@NSU_INIM 3 года назад
We're glad you found it helpful! We also have an Activity Log that you can find here: www.nova.edu/nim/patients/forms/activity-log.pdf so that you can track and manage your activity to avoid those crashes.
@snooky2shoes
@snooky2shoes 2 месяца назад
I've only just come across your video and so much of it made huge sense to me, especially the adrenaline rushes, which I've been trying to explain to people but I had no idea why I was getting them! The video is from 3 years ago, when long COVID was still a fairly new phenomenon - would you say the advice still generally holds true, or has time and more evidence changed any of it?
@tightsgoddess
@tightsgoddess 3 года назад
Thank you sooo much for this very helpful information. QUESTION... Is there any advice about getting the flu shot while struggling with symptoms of long COVID? Last year my PCP would not let me get it while I was ill remarking that my immune system was already compromised (I have asthma). Thank you again. I will be adding the missing supplements. Yay science!!
@sbirgistyle
@sbirgistyle 3 года назад
For how long we'll have to take NAC, Curcumin ecc..? If we improve we can stop or we'll have to keep going? Wonder if it's a cure or just a temporary fix. Thanks
@angele810
@angele810 3 года назад
Thank you so much! Informative and reasoned. Will definitely try NAC.
@angele810
@angele810 3 года назад
@@abdielmata unfortunately I had to discontinue the NAC after a week as I started having heart palpitations in the evening. They disappeared once I stopped. I am better though after a relapse 4 weeks ago. Fingers crossed...
@abdielmata
@abdielmata 3 года назад
@@angele810 thank you for your feedback. It’s greatly appreciated. Did you experience fatigue and brain fog? Did you taking Coq10 or anything for inflammation? I’m bed ridden after a relapse after testing positive on Nov 2. Any feedback is greatly appreciated. I hope you take it easy and on your way to a full recovery!
@angele810
@angele810 3 года назад
@@abdielmata 1) I eat well: zero refined sugar and lots of soups with seasonal veggies and fresh ginger and turmeric. Small meals. 2) I exercise regularly without pushing myself too much. I mostly walk and integrate long and slow slopes. 3) I do as many things as possible that make me/my family happy or that serve others. 4) I work less. I am a freelancer and have worked way too much in the past. I am lucky that I can do that in this point of my life. So far so good, it I know it can all change very quickly. Best wishes to you for a full recovery!
@peanut952
@peanut952 3 года назад
I have tried to do everything you suggest and finally, feel ready to think about pacing. I just wish I could find the book. There are many wrong books called "Pacing" and I have trouble deciphering the author's name. Does anyone know?
@janjones1027
@janjones1027 3 года назад
Thanks so much
@krosemccully
@krosemccully 3 года назад
Dr. Klimas, for those of us with sensitivities to SSRIs or SNRIs, do you find low-dose Abilify to be helpful with fewer side effects? Or does it depend on the patient? I currently take 4.5mg LDN and 200mg SAM-e.
@YURIKAVLAKOV1
@YURIKAVLAKOV1 3 года назад
Thank You for the advice it is much needed. I can attest that NAC works for post COVID as it is of tremendous help for alleviating the brainfog/confusion for me.
@hov2530
@hov2530 3 года назад
I am curious, how long were you sick before you started taking NAC? My body aches went away on their own recently, but I still have fatigue. I started taking NAC early August, but I was sick back in mid March.
@YURIKAVLAKOV1
@YURIKAVLAKOV1 3 года назад
@@hov2530 I started taking NAC approximately 3 months after i got sick.
@hov2530
@hov2530 3 года назад
@@YURIKAVLAKOV1 Okay, how long did it take until you started feeling a difference? Thanks :)
@YURIKAVLAKOV1
@YURIKAVLAKOV1 3 года назад
@@hov2530 on the very next day after starting with NAC i felt the difference.
@manindermanku8667
@manindermanku8667 3 года назад
@@YURIKAVLAKOV1 I had Covid three months ago still suffering with breathing problem does nac will help with the breathing problem s any advice
@reesh95
@reesh95 3 года назад
Hi very infromative thanks! Can you combine NAC and CoQ10?
@jdiddlediddledelilahdee1566
@jdiddlediddledelilahdee1566 3 года назад
Yes, some multivitamins do this in small doses
@paulhendrick7640
@paulhendrick7640 3 года назад
thanks so much for the advice. i have ordered a bottle of nac + and coq10 to help with my dizziness and brain fog since i had covid last march. something that has been asked previously is do we keep taking these supplements indefinitely or reduce slowly or indeed finish them once we feel better? thanks again...
@abdielmata
@abdielmata 3 года назад
Hello Paul, did they help with the brain fog? My went away and then came back. I’m 8 weeks in.
@manindermanku8667
@manindermanku8667 3 года назад
Hi nac and coq10 help with the breathing problem after Covid please advise
@qkcam45
@qkcam45 3 года назад
this is awesome!! thank you so much! I have had CFS/ME for at least 20 years. I am going to try those nutraceuticals you mention. Question about Glutathione.. Is the sub q or IM glutathione effected or would using NAC or a lipo glutathione be a better option? thank you so much for all these helpful tips. Can you share the name of the pacing book your friend wrote? thanks again for all your work and dedication to these illnesses! Please Stay Safe
@NSU_INIM
@NSU_INIM 3 года назад
Hi cb brooks, We took your first question to Dr. Klimas and here is her response: "I think the oral NAC treatment is the easiest, with recent studies showing that it crosses the blood brain barrier and exerts a documented antioxidant effect. The IV and IM preparations of glutathione have to be administered by an expert, and compounded by a certified compounding IV pharmacy. The oral liposomal glutathione products are bioavailable, and RediSorb ‘s liposomal glutathione has data showing it crosses the blood brain barrier in animal studies. We are using this product in a placebo control study currently. There is a triphasic glutathione product by Apex Energenics with some nice data on cognitive effects, an indirect evidence for blood brain barrier penetrance. FYI, I don’t have any financial interests in any nutraceutical company, though Kaneka (Coq10 products and probiotics), Life Extension (various nutraceuticals) and Redisorb (liposomal products) have all supported our work in various ways." The pacing book is called: Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia.
@lulutier71
@lulutier71 3 года назад
Hello, I'm Julia Such good explanations and advice I found nowhere so far. Beeing a Covid Long-Hauler I am suffering now from Post Covid fatique. My first symptoms were on the 5th of March. Had neuro symptoms since the start of June. Now I am more or less bedbound suffering from dizzyness, double vision, headaches..... My questions: - is there a written transcript somewhere of what is said here? I understood most of it but because my native language is German and there were a few words, especially concerning the medication I couldn't follow so quickly. Would be easier for me to read.... . - if you suffer from post viral fatique people say after six months it can be disgnosed as chronic fatique. Is this counted from onset of the diseasee symptoms or from onset of the fatiques symptoms.? - Is there still a chance after six months that it will resolve still there or is it probable it'll stay like that and this is my " new normal" ? - I have my first ever appointment with a neurologist next week. Any recommendations what I should ask him for or not forget to tell him concerning CoV19?
@NSU_INIM
@NSU_INIM 3 года назад
Hi Julia, You can access the video's transcript by clicking on the three horizontal dots and clicking on Open Transcript. The three dots are above the Subscribe button and next to Save. For your appointment, we recommend writing down any questions or concerns that you have, symptoms or problems you are experiencing including how long you have had it/them and how it is affecting you.
@lulutier71
@lulutier71 3 года назад
Thankyou so much, that you took time to answer to me.
@sharondaraeellis7528
@sharondaraeellis7528 3 года назад
@@NSU_INIM I'm not finding what you describe - no 3 horizontal dots, just vertical dots that don't open such an option. Can you pls advise? Thanks.
@NSU_INIM
@NSU_INIM 3 года назад
Hi @@sharondaraeellis7528 - You may not be seeing this option because you are viewing the video on your mobile device. To access the transcript, use RU-vid's Desktop version. Once you are viewing the video on a computer, below the video, there is a thumbs up, thumbs down, share, save, and three horizontal dots. Click on the three horizontal dots and select open transcript. Let us know if you are still having trouble accessing the transcript :)
@alicequayle4625
@alicequayle4625 3 года назад
Hi, thanks very much for this. You say (I paraphrase) 'talk to your doc if your BPM goes up over 20 when you stand up because they can do something about that?'. Any clues on what they can do as mine just said to rest and gave me a blank face ('go away and come back in a month'). My POTS type symptoms and dizzy / chest symptoms developed suddenly on 13th Aug after probable covid appeared on 18th March. Now in long covid that is looking very much like ME. Hoping to nip it in the bud if possible. Thanks again :)
@sharondaraeellis7528
@sharondaraeellis7528 3 года назад
Find a specialist where you can have a tilt table test done. They'll test and then recommend. Start @ teaching hospitals near you.
@sharondaraeellis7528
@sharondaraeellis7528 3 года назад
You can search "Dr Klimas New Zealand" on RU-vid for a recorded presentation to medical professionals where she goes much more in depth. Also, INIM's website's homepage has short clips, ME & GWI, that are informative as well.
@alicequayle4625
@alicequayle4625 3 года назад
@@sharondaraeellis7528 Hi. Thanks. Not the easiest to get a referral but we shall see.
@alicequayle4625
@alicequayle4625 3 года назад
@@sharondaraeellis7528 Ooh, that is useful about the website, thanks :)
@sharondaraeellis7528
@sharondaraeellis7528 3 года назад
Search nearest teaching hospital's website and make your own appt for eval. You won't need a referral if you can find dept w/ tilt table given your history and ask for general eval / 2nd opinion. You're revenue to them! Anyway, midodrine & beta blockers are options, but I was having trouble w side effects of other meds, so make sure YOU ask. Docs often overlook that part. Geez, right?
@BullsEye4444
@BullsEye4444 3 года назад
It has been six months since become sick, still tired, at times have mild breathing issues, need rest if overstimulated, have brain fog at times, get headaches occasionally, when I went to the pulmonologist he said my oxygen levels are good, didn't know what to do other than order X-ray. From time to time I spit up thick white mucus. What do you recommend I do or take? My Doctor is clueless about how to treat me. Thanks.
@abdielmata
@abdielmata 3 года назад
I’m in the same boat regarding a doctor, but I don’t blame him. Have you gotten any better? Did you also have gut issues?
@BullsEye4444
@BullsEye4444 3 года назад
@@abdielmata Sorry to hear, day by day, some days better than others. I do think so. Been doing light stretching every day, taking vitamins, and using curry and ginger on my eggs.
@ClulssCrs3310
@ClulssCrs3310 3 года назад
Spanish subtitles?
@meganschiele3620
@meganschiele3620 3 года назад
I’ve been recovering since March. My follow-up question would be about my other ongoing symptoms besides fatigue body aches and pains. When I have a flareup, I also get a low-grade fever and chills, a buzzing sensation in my body, headaches, vertigo, etc. Is this also due to the cell difficulty creating energy?
@sharondaraeellis7528
@sharondaraeellis7528 3 года назад
I'm not medical but I've lived w FM & ME for years. I'd want to rule out a low-grade viral reactivation. Search RU-vid, "Dr Nancy Klimas, New Zealand" for a full presentation given to medical providers where she discusses this.
@llathem2212
@llathem2212 3 года назад
I had COVID19 in March and everything you have is exactly what I’m experiencing.
@josephr2218
@josephr2218 3 года назад
Same! I had covid in March! And experience buzzing/muscle spasms. Any recommendations?
@Ashley-td7tt
@Ashley-td7tt 3 года назад
@@josephr2218 haven’t been able to figure anything out yet but they come and go
@toneelswick3512
@toneelswick3512 3 года назад
It’s been 2 months since my recovery smell hasn’t came back and I feel like my body became more relaxed idk it’s weird
@jac1161
@jac1161 3 года назад
I'm on Day 390...smell is just starting to come back. That was the least of the issues though. Ivermectin has been awesome!
@carolestarr4394
@carolestarr4394 3 года назад
Would you not say also, that mesenchymal stem cells (such as those by Predictive Biotech) would make empirical sense? I chose to do this for my hubby and self (regardless of not FDA approval - but FDA has no "approvals" either on NAC or glutathione....) ALSO regardless of it all being out of pocket /no insurance coverage. (NOTE: these are harvested from live birth ONLY umbilical cord donations) Post Script APPROVE of the CoQ10 recommendation been taking for decades (After my PreMed spent 12 years in Pharma and 18 in Medical Nutrition)
@chriswitham1389
@chriswitham1389 3 года назад
How are you post stem cells?
@dramadonna
@dramadonna 3 года назад
Thank you. It’s been almost 3 months. 😭
@Anita-silver
@Anita-silver 2 года назад
Any alternative to aspirin? I'm allergic to it.
@Lonelyone1111
@Lonelyone1111 Месяц назад
Im so tired. I got covid phuemona seversl yesrs ago. I got covid pbumonia Long haulets I got FluA Than Rsv virus. I had covid 28daus i nevet thought id get better. Im so weak. I chased everyone away n no one cares about me ny body is giving up living
@dramadonna
@dramadonna 3 года назад
How do we find a good doctor? My physician puts me off.
@mmkaya8
@mmkaya8 5 месяцев назад
You are healed now?
@christie_miranda_
@christie_miranda_ 3 года назад
FDA banned NAC a couple months ago.
@NSU_INIM
@NSU_INIM 3 года назад
FDA banned companies making claims that their products containing NAC is a "hangover cure". NAC is still sold in a number of stores. Here is a warning letter they sent to one company: www.fda.gov/inspections-compliance-enforcement-and-criminal-investigations/warning-letters/les-labs-593764-07232020
@lagiles16
@lagiles16 2 года назад
Still sold in many places.
@amira_shmira
@amira_shmira 3 года назад
Is there anything to supplement aspirin for those allergic to it?
@abdielmata
@abdielmata 3 года назад
I think the nano curcumin she recommends is a blood thinner and treats pain.
@amira_shmira
@amira_shmira 3 года назад
@@abdielmata I should look into that as I was originally doing curcumin for inflammation.
@abdielmata
@abdielmata 3 года назад
@@amira_shmira bromelain and quertecin are somethings you should look into as well.
@amira_shmira
@amira_shmira 3 года назад
@@abdielmata I see those supplements being mentioned often but I’m so tired of taking this stuff 😣 I’m over it. I started niacin a few days back.
@abdielmata
@abdielmata 3 года назад
@@amira_shmira yeah I understand. I’m not use to taking so many supplements either. Just a multivitamin and vitamin d before. Hang in there!
@gurpchirp
@gurpchirp 3 года назад
so we've essentially been disabled. awesome. why is this information not widely disseminated?
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