Sarah is back 1 year after her CXL procedure to stop the progression of her keratoconus. Sarah tells us about her experience with CXL & shares her insight into keratoconus.
Great video! I am also diagnosed with K and have been living with it for the last 10 years. Surprisingly to me and my doctors, it hasn't progressed much over the years. I have 20/20 vision on my left eye and 20/25 on the right eye. I only wear glasses. Even that I am doing okay, you always live with the fear what if it gets worse! I am planning to do CXL on my right eye and still doing research and seeing different doctors to ensure I am the right candidate. Accepting your situation and trying to adjust your life style accordingly is the best you could do. when I was diagnosed, I was a student and very young and got very disappointed and depressed for a little while. But then I took that as an opportunity and tried to take the most out of it. Always look at the glass half full and enjoy your life as much as you can. If your vision is 20/25, 10/20, or 5/20, always remember that there are people out there having 0/20 vision and are ready to give out anything to have your vision for even a minute :) Find a good doctor, visit your doctor periodically, have the disease monitored and trust them. Internet is a good source of information but always remember the fact that medical science is an experimental field and your doctor is always the best source of information :)
Hello, I’d totally forgotten about my comment under this post. My vision is still the same as 18 years ago when it was first diagnosed. I mainly owe it to my positivity. Everything I said under this post six years ago still holds true :)
the aim of crosslinking is to arrest the progression of the condition or slow rown the progression. it is not aimed at improving your visual acuity. there are people who do see some improvement, but that is considered a bonus
Thank you! My 13 year old was diagnosed 2 years ago and the gas permeble contacts are sooo painful, so we have been researching new avenues. Your videos have helped us know not only what to expect during the procedure but the reality of what we can expect after. It also helped to relieve his anxiety.
Thank you for making this video. I can relate I have this eye problem and I have not got the surgery I'm nervous about it and let me tell you I feel alone with this eye problem and it has stopped me from doing so many things.
very important point....people neglect or underestimate the emotional impact... I am scheduled to get mine done on my right eye in a month.... I agree we are all told from day one that this procedure is only to halt the progression of Keratoconus but we all have our own expectations (humans lol) I cant wait to get mine done.... congrats to you Sarah and hopefully the PRK went well and that your vision is much better...
tuluvota just wondering how your eye is doing since surgery?? I just had mines 3 days ago so I'm praying that I'm lucky enough to get my vision back and better lol
I had keratoconus in my right eye but luckily it was diagnosed at early stage. CXL was recommended by dr. and i had it done two weeks ago. I am very happy because I was told that it only stops the progression of keratoconus but, besides fogginess, my vision has improved alot, Alhamdulilah. I was not expecting this at all. My right eye vision was worse than that of left one but now i can see much better with the right eye without specs and I am so glad to be one of such lucky patients who gets vision improvement as well.
I have this condition as well. I have been wearing hard contact lens for years. After recently misplacing one, I called my doctor. He informed me there was a new soft lens available and the results have been positive. So off to the Doctor I go. The fitting was difficult and required a few tries, but the results are fantastic. The lens are made by Alden Optical. I have them for a couple of months now. My vision checks have tested in the 20/20 range. If any of this helps, email me for more info....Good Luck!
I WISH this was my biggest challenge. Left to die with a rare stoke at age 30.develkped Parkinsonism and dystonia. And optic nerve damage. And I was just diagnosed with this yesterday and will face surgery alone. Meanwhile aqauntances judge me for my ptsd
hello im 23 yr old male and i have cross-linking last year in vancouver BC by dr mcarthy and it was a success my vison was 20/25 before and after and still now my vision is 20/15 (better than 20/20 in the eye i got it done which is my right eye... complete miracle and i was perfect candidate because it was the starting stage of the disease so im happy your eye is doing good I know the patient didnt get better vision but I did and everyone is different from person to person i wear no intacts or any prescriptions, also starting many weeks after surgery vision is much worse but will get better over long time but worth it!
I live in Vancouver as well and want to get this done. Where did you go? How much recovery time did you need until you were able to get back to your regular routine or work?
oh it was fast actually, within a few days your good to go and now its actually covered under MSP, i went to a specialist named Dr.Mccarthy. I paid 1500$ but now its covered for free. Its not super painful or anything its just annoying for a few days but just make sure you take all the eyedrops as required before and after for best healing and results its a lot better than doing a full cornea transplant because the healing on that is months apparently... im not a doctor by the way
Apple Juice Covered by MSP!? That's great news. I'm glad I waited I then. I got a consultation at Lasik MD and they wanted $3600 for both eyes but that's without MSP coverage. My doctor sent me to a specialist but he only does the procedure. He doesn't do post-op care. Lasik MD takes care of you for a full year included in the cost. After your surgery were you able to use your glasses? Or did the prescription change?
Yes you are lucky its covered now and it is worth it, there i no real need for spending money on post care because there wasnt really any need for it, its is probably just a selling point for the other company... the crosslinking helped my vision a lot!
I had a cross-linking treatment exactly 9 days ago. First day (more like first 12 hours after treatment), it was very difficult, especially since, when we came back from the clinic, it was just at the time the sun set and i had it right in the eyes just as the pain-killing meds wore off, heh... But the next day, i was doing good enough to get out of bed and eat with the family. And now, my vision is coming back -- still not completely there, though. By your testimony, i should be patient. :)
can u tell me what all post operative care u took...I had this procedure 10 days back on my left eye...after bandage contact lens was removed. .I dint wear that black glass much..so fearing now will it make my reduce my vision
@@reg8297 My vision came back nicely in short time, something like a week or two after. 7 years later, i can tell that this procedure was well worth it at the time. KC didn't progress at all since then, which i'm thankful for.
I'm really worried about going for the epi off procedure, even though it's more effective. I have an early Keratoconus in my right eye. I'm 29 by the way. Any advice?
Hi I was told to get Cross-linking on the Left eye only because the thickness inthe Right eye is over 400 and the MD told me it was not feasible. Can you tell me if there is any truth to this. Thank you
Yes protocol for each doctor varies but you must have a certain thickness of cornea for them to do it. For my doc it was 400 after epithelial was removed. I had 486.
Now that I know cross linking doesn't improve my vision, I'm not going to get it. But the hybrid lens aren't working for me so I don't know what I'm going to do.
@@Roy-mk9zl Corneal transplant in right eye. Still wear lens in left. Transplant recovery took a very long time. Sight in right eye is great. Only need glasses for night time vision.
hi. i have one quation mere lazer h8 hai 1 and half month pahle muje kabhi kabhi clear ya fir blur dikhta hai or headach bhi hota hai to kaise pata kare ki wo stable ho raha hai ya nahi? kuki mere doctor ne ab muje direct 6 month bad bulaya hai chek up ke liye samaj nahi aa raha hai kya karu?
That will help you for a while but the disease will progress and it will be useless. CXL s the only treatment clinically proven in 99% of cases to stop the progression of this disease.
Hello, I feel fine, no complications. I go for eye checkup every 6 months. No issues. I don’t wear prescription glasses, however, my eyesight for reading is getting slightly weak but that’s due to age. I am 50. Hope that helps
@ hi. i am going to have crosslining in a month. would you ps share with me what you experienced from it? it would be really appreciated, i heard theres a [percentage of 3% of blurry vision after the surgery for days,weekks or months? how true is that? thank you :)
video seriously does not really explains what i want to know ...please explain what was your vision after the procedure from the begining to end simple.
i have a very serious problem regarding me cornea (kerataconus)..Dr suggest me for Ring tech. i am using hard contact lenses since 5 years....if i send you my reports then can you consult it with good doctor,please..
