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Cystic fibrosis drug Trikafta helps most but not all with the deadly genetic disease 

The Boston Globe
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The cystic fibrosis drug Trikafta helps roughly 90 percent of people who have the deadly genetic disease. The drug enables patients to live a healthy life, start families, and think of a future. But for those left in the 10 percent, for whom Trikafta does not work, the daily struggles of living with a chronic, terminal illness continue. “Waiting for Hope, Fighting for Tomorrow” explores the lives of people at opposite ends of the spectrum: those who are benefiting from the drug, including young children who will escape much of the damage that CF causes, and those still waiting for their “miracle drug.”
Full story: bit.ly/45Vk1Ob
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4 окт 2024

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Комментарии : 10   
@jringo45acp
@jringo45acp 11 месяцев назад
I've been on Trikafta for 3 1/2 years, now. It helped me get back in the shape I was in wrestling in high school. I've been able to get back to work full time. It's been a miracle. I hate that it can't help everyone the way it's helped me. I haven't been in the hospital since 2018. I barely cough anymore, rarely get sick. I haven't done a treatment since I started taking it. Now I only take two meds, Trikafta, and Creon.
@boula9994
@boula9994 9 месяцев назад
And all that is because the medecine works exactly on your genes?
@pramohar_1455
@pramohar_1455 8 месяцев назад
hi jrinog could you help me to buy this tablet
@ShehnaazS-hq5cu
@ShehnaazS-hq5cu 3 месяца назад
Gabriela and Emily you are our inspiration and our heroes. Thank you Martin and Dr. Yonker for your care, compassion and commitment to a cure. We at ReCode are right there alongside you.
@sonia15702
@sonia15702 11 месяцев назад
I lift up all my friends who died of CF in the 90s even prior to pulmozyme here in Australia! Aija, Michelle, dimity, Adam, and Jenny ! I loved you all . Sonia x
@Noah_-_l
@Noah_-_l Год назад
Thank you for documenting the the progress made and the strides still needed to go to cure this disease for all.
@stephanieandlollipop5424
@stephanieandlollipop5424 Год назад
Thank you Ela and Emily for being amazing CF spokeswomen. And thank you Boston Globe for the CF coverage. Let’s find a cure for 100%!
@UNITEDWEFALLthemovie
@UNITEDWEFALLthemovie 4 месяца назад
My daughter just got it and she’s 2 years old
@proximacentauri8038
@proximacentauri8038 Год назад
trikafta can cause heavy mental aberrations
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