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Cystic Fibrosis Podcast Interview. Cyster's share all- Life with game changer, Trikafta! 

irok this life
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Julie Desch, Somer Love, and Anne Governor share their Trikafta experiences.
In this I Rok Interview we are talking about something that is super exiting for the CF Community. Trikafta!
*Want to Win a FREE IROK this Life T-Shirt??? **
Winner Picked Sunday, March 29th at 5PM MST.
Enter Here -- mailchi.mp/904...
Julie, Somer, and Anne all have Cystic Fibrosis and have also begun Trikafta. However, they all also come from different backgrounds and have their own unique entrance points to their experience with this new drug. So both for my own curiosity and as an offering for our community, I thought why not pull together an interview where some of their experience can be shared.
So here we are!
I hope you all will enjoy hearing their experience and perspectives as much as I did.
With Love,
Kori
*For this interview I really want to focus on what can only come from talking to those who are living it, which is more of their unique experiences with Trikafta. If you would like more information regarding the specifics of what Trikafta does, or the medication itself, here are a few links:
www.fda.gov/ne...
www.cff.org/Li...
www.trikafta.c...

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6 сен 2024

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Комментарии : 10   
@ladonnahuckaby2335
@ladonnahuckaby2335 4 года назад
Isn’t it unusual for someone with CF to reach their 60’s? Amazing!
@irokthislife5890
@irokthislife5890 4 года назад
Yes. It is. It is amazing and so is our Julie! She also does a lot of volunteer coaching to help others living with CF. She has a lot to offer our community.
@NormalLifeGaming
@NormalLifeGaming 4 года назад
I’ve got CF too! And I’m currently on symkevi but hopefully the new drug soon
@KoriTolbert
@KoriTolbert 4 года назад
Normal Life ? I so hope you can try Trikafta soon. I have just started. I’m about a week in and I’m already noticing such incredible differences. Sending you love and strength!
@NormalLifeGaming
@NormalLifeGaming 4 года назад
Kori Tolbert that’s a amazing I wish you all the best on it and yeah hopefully the UK gets it soon! Have a great weekend
@zehn45
@zehn45 4 года назад
With kind of CF does the three Trikafta-Girls :-) have? All delta508?
@irokthislife5890
@irokthislife5890 4 года назад
Hi Rainer. All three woman are double DF508
@zehn45
@zehn45 4 года назад
Thank you, i‘ve also delta508. Going to start Trikafta end of may 🙏🏻
@irokthislife5890
@irokthislife5890 4 года назад
@@zehn45 I'm hoping to start by then too :). Good luck! We will be thinking of you. We'd love to hear how you're doing if you'd like to share.
@zehn45
@zehn45 4 года назад
I will tell you what Trikafta did to me.
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